Ganhando na loteria e temendo perder o prêmio: a experiência de famílias rurais ao ter a mãe/esposa sobrevivente de câncer de mama

Detalhes bibliográficos
Autor(a) principal: Mistura, Claudelí
Data de Publicação: 2014
Tipo de documento: Dissertação
Idioma: por
Título da fonte: Manancial - Repositório Digital da UFSM
Texto Completo: http://repositorio.ufsm.br/handle/1/7416
Resumo: With the transformations of the brazilian new rural , the family is going through adaptations in its everyday life and reformulating sociocultural and interactional scenarios. These changes can be perceived in the familiar arrangements and functioning. For the family which lives in the rural area, this is the place where their interactions and experiences happen. The movement that the rural family performs, in the moment they have a family member sick with cancer, enlarges and reflects the sociocultural life of these people. The diagnosis of breast cancer in a mother/wife can consist in a challenge for the family that has to face the illness, get along with the demands of the treatment and the uncertainty of the prognosis. Finishing, successfully, the treatment and having the mother/wife considered as cured means a new step in the family life. In this sense, the goals of this study are to understand the experience of the rural families as they have the mother/wife as a survivor of breast cancer as well as to elaborate a Theoretical Model representative of this familiar experience. It is a qualitative and descriptive research, guided by the theoretical apparatus of the Data Grounded Theory (DGT). The participants were 41 members from six rural families that live in the micro region of Marau/RS/Brasil, which had the mother/wife as survivor of breast cancer. The data were produced through open interviews and building of the familiar genome. The study was approved by the Ethical Committee of Federal University of Santa Maria under the number 13105413.2.0000.5346. The data analysis was carried out in accordance with the Constant Comparative Method from DGT, which resulted in the elaboration of the theoretical model representative of rural families experiences by having mother/wife survivor of breast cancer, defined by the central categories RECOGNIZING THEMSELVES AS A VICTORIOUS FAMILY and (NOT) BELIVING IN THE SURVIVING OF BREAST CANCER and the organization of eight categories which are intertwine and constitute the experience: Reliving experiences of the illness (1); Trying to make the treatment as soon as possible (2); Keeping the diagnosis in secret (3); Having to deal with contradictory feelings (4); Having repercussion in the family with the experience (5); Defining the illness by cancer (6); Recurring to the spiritual and religious beliefs (7); and Waiting for the five years (8). We conclude that the experience is a process which occurs in a time line traveled by the families even before living the illness of the mother/wife in the familiar nucleus. The experience of the rural families as they have the mother/wife survivor of breast cancer can be described as resulting of a constant, interactive and integrated moving where the family recognize themselves as victorious, who win in the lottery by having the mother/wife considered as cured, but that, by the fear of relapsing, they are afraid of losing the prize and live feelings of ambiguity for (not)believing in the cancer cure.
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spelling 2015-03-112015-03-112014-05-30MISTURA, Claudelí. WINNING THE LOTTERY AND FEARING TO LOSE THE PRIZE: THE EXPERIENCE OF RURAL FAMILIES BY HAVING THE MOTHER/WIFE AS SURVIVOR OF BREAST CANCER. 2014. 149 f. Dissertação (Mestrado em Enfermagem) - Universidade Federal de Santa Maria, Santa Maria, 2014.http://repositorio.ufsm.br/handle/1/7416With the transformations of the brazilian new rural , the family is going through adaptations in its everyday life and reformulating sociocultural and interactional scenarios. These changes can be perceived in the familiar arrangements and functioning. For the family which lives in the rural area, this is the place where their interactions and experiences happen. The movement that the rural family performs, in the moment they have a family member sick with cancer, enlarges and reflects the sociocultural life of these people. The diagnosis of breast cancer in a mother/wife can consist in a challenge for the family that has to face the illness, get along with the demands of the treatment and the uncertainty of the prognosis. Finishing, successfully, the treatment and having the mother/wife considered as cured means a new step in the family life. In this sense, the goals of this study are to understand the experience of the rural families as they have the mother/wife as a survivor of breast cancer as well as to elaborate a Theoretical Model representative of this familiar experience. It is a qualitative and descriptive research, guided by the theoretical apparatus of the Data Grounded Theory (DGT). The participants were 41 members from six rural families that live in the micro region of Marau/RS/Brasil, which had the mother/wife as survivor of breast cancer. The data were produced through open interviews and building of the familiar genome. The study was approved by the Ethical Committee of Federal University of Santa Maria under the number 13105413.2.0000.5346. The data analysis was carried out in accordance with the Constant Comparative Method from DGT, which resulted in the elaboration of the theoretical model representative of rural families experiences by having mother/wife survivor of breast cancer, defined by the central categories RECOGNIZING THEMSELVES AS A VICTORIOUS FAMILY and (NOT) BELIVING IN THE SURVIVING OF BREAST CANCER and the organization of eight categories which are intertwine and constitute the experience: Reliving experiences of the illness (1); Trying to make the treatment as soon as possible (2); Keeping the diagnosis in secret (3); Having to deal with contradictory feelings (4); Having repercussion in the family with the experience (5); Defining the illness by cancer (6); Recurring to the spiritual and religious beliefs (7); and Waiting for the five years (8). We conclude that the experience is a process which occurs in a time line traveled by the families even before living the illness of the mother/wife in the familiar nucleus. The experience of the rural families as they have the mother/wife survivor of breast cancer can be described as resulting of a constant, interactive and integrated moving where the family recognize themselves as victorious, who win in the lottery by having the mother/wife considered as cured, but that, by the fear of relapsing, they are afraid of losing the prize and live feelings of ambiguity for (not)believing in the cancer cure.Com as transformações do novo rural brasileiro, a família vem passando por adaptações em seu cotidiano e recriando cenários socioculturais e interacionais. Essas mudanças podem ser percebidas nos arranjos e no funcionamento familiar. Para a família que reside em área rural, este é o lugar onde suas interações e experiências acontecem. Os movimentos que a família rural realiza no momento em que tem um familiar doente de câncer se ampliam e refletem a vida sociocultural dessas pessoas. O diagnóstico de câncer de mama da mãe/esposa pode constituir-se em um desafio para a família, que tem de enfrentar a doença, lidar com as demandas do tratamento e as incertezas do prognóstico. Finalizar com sucesso o tratamento e ter a mãe/esposa considerada curada significa uma nova etapa na vida familiar. Nesse sentido, constituem-se como objetivos deste estudo compreender a experiência das famílias rurais ao ter a mãe/esposa sobrevivente de câncer de mama bem como elaborar um Modelo Teórico representativo da experiência familiar ao ter a mãe/esposa sobrevivente de câncer de mama. Trata-se de uma pesquisa qualitativa e descritiva, orientada pelo referencial teórico do Interacionismo Simbólico e pelo referencial metodológico da Teoria Fundamentada dos Dados (TFD). Participaram do estudo 41 membros de seis famílias rurais residentes na microrregião de Marau/RS/Brasil, que tinham a mãe/esposa sobrevivente de câncer de mama. Os dados foram produzidos mediante entrevista aberta e construção do genograma familiar. O estudo teve aprovação do Comitê de Ética em Pesquisa da Universidade Federal de Santa Maria sob o número 13105413.2.0000.5346. A análise dos dados foi realizada de acordo com o Método Comparativo Constante da TFD, que resultou na elaboração do modelo teórico representativo da experiência de famílias rurais ao ter a mãe/esposa sobrevivente de câncer de mama, definido pelas categorias centrais RECONHECENDO-SE COMO UMA FAMÍLIA VITORIOSA e (NÃO)ACREDITANDO NA SOBREVIVÊNCIA DO CÂNCER DE MAMA e na organização de oito categorias que se inter-relacionam e constituem a experiência: Revivendo experiências de adoecimento (1); Procurando realizar o tratamento o quanto antes (2); Mantendo o diagnóstico em segredo (3); Tendo que lidar com sentimentos contraditórios (4); Tendo repercussões na família com a experiência (5); Definindo o adoecimento por câncer (6); Recorrendo às crenças espirituais e religiosas (7); e Esperando pelos cinco anos (8). Conclui-se que a experiência constitui-se em um processo que ocorre em uma linha de tempo percorrida pelas famílias antes mesmo de vivenciar o adoecimento da mãe/esposa no núcleo da família. A experiência das famílias rurais ao ter a mãe/esposa sobrevivente de câncer de mama pode ser descrita como resultante de um movimento constante, interativo e integrado em que a família se reconhece como uma família vitoriosa, que ganha na loteria ao ter a mãe/esposa considerada curada, mas que, pelo medo da recidiva, teme perder o prêmio e vive sentimentos de ambiguidade ao (não)acreditar na cura do câncer.application/pdfporUniversidade Federal de Santa MariaPrograma de Pós-Graduação em EnfermagemUFSMBREnfermagemFamíliaPopulação ruralNeoplasias da mamaSobrevivênciaEnfermagemFamilyRural populationBreast neoplasmsSurvivalNursingCNPQ::CIENCIAS DA SAUDE::ENFERMAGEMGanhando na loteria e temendo perder o prêmio: a experiência de famílias rurais ao ter a mãe/esposa sobrevivente de câncer de mamaWinning the lottery and fearing to lose the prize: the experience of rural families by having the mother/wife as survivor of breast cancerinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisGirardon-Perlini, Nara Marilene Oliveirahttp://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4703226Z0Lacerda, Maria Ribeirohttp://lattes.cnpq.br/6751498934307804Beuter, Margridhttp://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4780840Z1Ressel, Lúcia Beatrizhttp://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4770281E5http://lattes.cnpq.br/3772520640035909Mistura, Claudelí4004000000004003003003003003006d357888-94a3-43f9-b92e-c8fea10f777df1cb1250-890b-4107-b826-efd91428d56ff4d88553-9a0a-45f5-a317-364843d318eba5bcb2dc-6581-400f-9c0f-0f1ce12ec9ece34058a7-7b98-45f6-8574-3225c304ddcfinfo:eu-repo/semantics/openAccessreponame:Manancial - Repositório Digital da UFSMinstname:Universidade Federal de Santa Maria (UFSM)instacron:UFSMORIGINALMISTURA, CLAUDELI.pdfapplication/pdf3986279http://repositorio.ufsm.br/bitstream/1/7416/1/MISTURA%2c%20CLAUDELI.pdfbe0bfc73215aa37c4fdc63fe89e05838MD51TEXTMISTURA, CLAUDELI.pdf.txtMISTURA, CLAUDELI.pdf.txtExtracted texttext/plain323873http://repositorio.ufsm.br/bitstream/1/7416/2/MISTURA%2c%20CLAUDELI.pdf.txt98d60dce8a2452d18d1900e0a4af5ef8MD52THUMBNAILMISTURA, CLAUDELI.pdf.jpgMISTURA, CLAUDELI.pdf.jpgIM Thumbnailimage/jpeg4981http://repositorio.ufsm.br/bitstream/1/7416/3/MISTURA%2c%20CLAUDELI.pdf.jpg38d81cea13cb4dc9e17f60ffa9bbc0a8MD531/74162017-07-27 12:54:16.71oai:repositorio.ufsm.br:1/7416Repositório Institucionalhttp://repositorio.ufsm.br/PUBhttp://repositorio.ufsm.br/oai/requestopendoar:39132017-07-27T15:54:16Manancial - Repositório Digital da UFSM - Universidade Federal de Santa Maria (UFSM)false
dc.title.por.fl_str_mv Ganhando na loteria e temendo perder o prêmio: a experiência de famílias rurais ao ter a mãe/esposa sobrevivente de câncer de mama
dc.title.alternative.eng.fl_str_mv Winning the lottery and fearing to lose the prize: the experience of rural families by having the mother/wife as survivor of breast cancer
title Ganhando na loteria e temendo perder o prêmio: a experiência de famílias rurais ao ter a mãe/esposa sobrevivente de câncer de mama
spellingShingle Ganhando na loteria e temendo perder o prêmio: a experiência de famílias rurais ao ter a mãe/esposa sobrevivente de câncer de mama
Mistura, Claudelí
Família
População rural
Neoplasias da mama
Sobrevivência
Enfermagem
Family
Rural population
Breast neoplasms
Survival
Nursing
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
title_short Ganhando na loteria e temendo perder o prêmio: a experiência de famílias rurais ao ter a mãe/esposa sobrevivente de câncer de mama
title_full Ganhando na loteria e temendo perder o prêmio: a experiência de famílias rurais ao ter a mãe/esposa sobrevivente de câncer de mama
title_fullStr Ganhando na loteria e temendo perder o prêmio: a experiência de famílias rurais ao ter a mãe/esposa sobrevivente de câncer de mama
title_full_unstemmed Ganhando na loteria e temendo perder o prêmio: a experiência de famílias rurais ao ter a mãe/esposa sobrevivente de câncer de mama
title_sort Ganhando na loteria e temendo perder o prêmio: a experiência de famílias rurais ao ter a mãe/esposa sobrevivente de câncer de mama
author Mistura, Claudelí
author_facet Mistura, Claudelí
author_role author
dc.contributor.advisor1.fl_str_mv Girardon-Perlini, Nara Marilene Oliveira
dc.contributor.advisor1Lattes.fl_str_mv http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4703226Z0
dc.contributor.referee1.fl_str_mv Lacerda, Maria Ribeiro
dc.contributor.referee1Lattes.fl_str_mv http://lattes.cnpq.br/6751498934307804
dc.contributor.referee2.fl_str_mv Beuter, Margrid
dc.contributor.referee2Lattes.fl_str_mv http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4780840Z1
dc.contributor.referee3.fl_str_mv Ressel, Lúcia Beatriz
dc.contributor.referee3Lattes.fl_str_mv http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4770281E5
dc.contributor.authorLattes.fl_str_mv http://lattes.cnpq.br/3772520640035909
dc.contributor.author.fl_str_mv Mistura, Claudelí
contributor_str_mv Girardon-Perlini, Nara Marilene Oliveira
Lacerda, Maria Ribeiro
Beuter, Margrid
Ressel, Lúcia Beatriz
dc.subject.por.fl_str_mv Família
População rural
Neoplasias da mama
Sobrevivência
Enfermagem
topic Família
População rural
Neoplasias da mama
Sobrevivência
Enfermagem
Family
Rural population
Breast neoplasms
Survival
Nursing
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
dc.subject.eng.fl_str_mv Family
Rural population
Breast neoplasms
Survival
Nursing
dc.subject.cnpq.fl_str_mv CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
description With the transformations of the brazilian new rural , the family is going through adaptations in its everyday life and reformulating sociocultural and interactional scenarios. These changes can be perceived in the familiar arrangements and functioning. For the family which lives in the rural area, this is the place where their interactions and experiences happen. The movement that the rural family performs, in the moment they have a family member sick with cancer, enlarges and reflects the sociocultural life of these people. The diagnosis of breast cancer in a mother/wife can consist in a challenge for the family that has to face the illness, get along with the demands of the treatment and the uncertainty of the prognosis. Finishing, successfully, the treatment and having the mother/wife considered as cured means a new step in the family life. In this sense, the goals of this study are to understand the experience of the rural families as they have the mother/wife as a survivor of breast cancer as well as to elaborate a Theoretical Model representative of this familiar experience. It is a qualitative and descriptive research, guided by the theoretical apparatus of the Data Grounded Theory (DGT). The participants were 41 members from six rural families that live in the micro region of Marau/RS/Brasil, which had the mother/wife as survivor of breast cancer. The data were produced through open interviews and building of the familiar genome. The study was approved by the Ethical Committee of Federal University of Santa Maria under the number 13105413.2.0000.5346. The data analysis was carried out in accordance with the Constant Comparative Method from DGT, which resulted in the elaboration of the theoretical model representative of rural families experiences by having mother/wife survivor of breast cancer, defined by the central categories RECOGNIZING THEMSELVES AS A VICTORIOUS FAMILY and (NOT) BELIVING IN THE SURVIVING OF BREAST CANCER and the organization of eight categories which are intertwine and constitute the experience: Reliving experiences of the illness (1); Trying to make the treatment as soon as possible (2); Keeping the diagnosis in secret (3); Having to deal with contradictory feelings (4); Having repercussion in the family with the experience (5); Defining the illness by cancer (6); Recurring to the spiritual and religious beliefs (7); and Waiting for the five years (8). We conclude that the experience is a process which occurs in a time line traveled by the families even before living the illness of the mother/wife in the familiar nucleus. The experience of the rural families as they have the mother/wife survivor of breast cancer can be described as resulting of a constant, interactive and integrated moving where the family recognize themselves as victorious, who win in the lottery by having the mother/wife considered as cured, but that, by the fear of relapsing, they are afraid of losing the prize and live feelings of ambiguity for (not)believing in the cancer cure.
publishDate 2014
dc.date.issued.fl_str_mv 2014-05-30
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dc.identifier.citation.fl_str_mv MISTURA, Claudelí. WINNING THE LOTTERY AND FEARING TO LOSE THE PRIZE: THE EXPERIENCE OF RURAL FAMILIES BY HAVING THE MOTHER/WIFE AS SURVIVOR OF BREAST CANCER. 2014. 149 f. Dissertação (Mestrado em Enfermagem) - Universidade Federal de Santa Maria, Santa Maria, 2014.
dc.identifier.uri.fl_str_mv http://repositorio.ufsm.br/handle/1/7416
identifier_str_mv MISTURA, Claudelí. WINNING THE LOTTERY AND FEARING TO LOSE THE PRIZE: THE EXPERIENCE OF RURAL FAMILIES BY HAVING THE MOTHER/WIFE AS SURVIVOR OF BREAST CANCER. 2014. 149 f. Dissertação (Mestrado em Enfermagem) - Universidade Federal de Santa Maria, Santa Maria, 2014.
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