Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Outros Autores: | , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Revista Educação Especial (UFSM) |
Texto Completo: | http://periodicos.ufsm.br/educacaoespecial/article/view/44360 |
Resumo: | The impacts of hospitalization and/or hemodialysis outpatient care to the schooling process of children with chronic renal failure may be compromising the child's development, causing the same contextual ruptures, changes in daily life, impediments to the continuity of studies and to the previous experienced routine. We tried to analyze the impacts of hospitalization and/or hemodialysis outpatient care to the schooling process of children with chronic renal failure. It was a quanti-qualitative, descriptive survey in the form of multiple cases. The participants were 10 children with chronic renal failure, from 8 to 12 years old, in three contextual groups: three hospitalized children, six in hemodialysis outpatient care and one submitted to the two hospital processes, in two care units of a federal public hospital in São Luís. Semi-structured interviews involving interactive history, autobiographical book and wish box were applied individually with them. The greatest impacts of hospitalization and/or hemodialysis outpatient care on the schooling process were: school delays and future commitments due to the impossibility of school attendance (60%); loss of school bond due to the distance between hospital and school (20%); lack of appropriate resources for schooling in the hospital (10%) and difficulties to enroll in a school close to home (10%). It was concluded that the greatest impacts to schooling were manifested by children under hemodialysis treatment because it is a continuous, unpredictable and undetermined process, demanding greater deprivation of the school context or even absences, ranging from five months to four years, causing greater school deficits and compromising school life. |
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Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney diseaseVoces a la infancia silenciada: impactos de la hospitalización y hemodiálisis a la escolarización de niños con enfermedad renal crónicaVozes à infância silenciada: impactos da hospitalização e hemodiálise à escolarização de crianças com doença renal crônicaHospitalizationschoolingchronic renal failure.Hospitalizaciónescolarizacióninsuficiencia renal crónica.Hospitalizaçãoescolarizaçãoinsuficiência renal crônica.The impacts of hospitalization and/or hemodialysis outpatient care to the schooling process of children with chronic renal failure may be compromising the child's development, causing the same contextual ruptures, changes in daily life, impediments to the continuity of studies and to the previous experienced routine. We tried to analyze the impacts of hospitalization and/or hemodialysis outpatient care to the schooling process of children with chronic renal failure. It was a quanti-qualitative, descriptive survey in the form of multiple cases. The participants were 10 children with chronic renal failure, from 8 to 12 years old, in three contextual groups: three hospitalized children, six in hemodialysis outpatient care and one submitted to the two hospital processes, in two care units of a federal public hospital in São Luís. Semi-structured interviews involving interactive history, autobiographical book and wish box were applied individually with them. The greatest impacts of hospitalization and/or hemodialysis outpatient care on the schooling process were: school delays and future commitments due to the impossibility of school attendance (60%); loss of school bond due to the distance between hospital and school (20%); lack of appropriate resources for schooling in the hospital (10%) and difficulties to enroll in a school close to home (10%). It was concluded that the greatest impacts to schooling were manifested by children under hemodialysis treatment because it is a continuous, unpredictable and undetermined process, demanding greater deprivation of the school context or even absences, ranging from five months to four years, causing greater school deficits and compromising school life.Los impactos provenientes de la hospitalización y/o atendimiento de ambulatorio de hemodiálisis al proceso de escolarización de niños con insuficiencia renal crónica pueden ser comprometedoras al desarrollo infantil, causándoles rupturas contextuales, cambios en la vida cotidiana, impedimentos en la continuidad a los estudios y rutina anterior vivenciada. Se buscó analizar los impactos de la hospitalización y/o atendimiento de ambulatorio de hemodiálisis al proceso de escolarización de niños con insuficiencia renal crónica. Se trató de una investigación de tipo cuanti-cualitativa, descriptiva, bajo la forma de múltiplos casos. Los participantes fueran 10 niños com insuficiencia renal crónica, rango de edad variando entre 8 a 12 años insertadas en tres grupos contextuales: tres niños hospitalizados, seis en atendimiento de ambulatorio de hemodiálisis y una sometida a los dos procesos hospitalarios, en dos unidades de atendimiento de un hospital público federal en la ciudad de São Luís. Fueron aplicados individualmente a los participantes, entrevistas semiestructuradas, envolviendo historia interactiva, libro autobiográfico y caja de los deseos. Los mayores impactos de la hospitalización y/o atendimiento de ambulatorio de hemodiálisis al proceso de escolarización fueron: atrasos escolares y comprometimientos futuros por la imposibilidad de frecuencia escolar (60%); pérdida del vínculo escolar por la distancia entre hospital y escuela (20%); ausencia de recursos apropiados a la escolarización en el hospital (10%) y dificultades de realizar matrícula en escuela cerca de la casa (10%). Se concluyó que los mayores impactos a la escolarización fueron manifestados por los niños en tratamiento de hemodiálisis por ser un proceso continuo, imprevisible e indeterminado, demandando mayores privaciones del contexto escolar o ausencias, variando entre cinco meses a cuatro años, ocasionando mayores déficits escolares y comprometiendo la vida escolar.Os impactos provenientes da hospitalização e/ou atendimento ambulatorial hemodialítico ao processo de escolarização de crianças com insuficiência renal crônica podem ser comprometedores ao desenvolvimento infantil, causando às mesmas rupturas contextuais, mudanças na vida cotidiana, impedimentos na continuidade aos estudos e à rotina anterior vivenciada. Buscou-se analisar os impactos da hospitalização e/ou atendimento ambulatorial hemodialítico ao processo de escolarização de crianças com insuficiência renal crônica. Tratou-se de uma pesquisa do tipo quanti-qualitativa, descritiva, sob a forma de múltiplos casos. Os participantes foram 10 crianças com insuficiência renal crônica, faixas etárias variando entre 8 e12 anos de idade, inseridas em três grupos contextuais: três crianças hospitalizadas, seis em atendimento ambulatorial hemodialítico e uma submetida aos dois processos hospitalares, em duas unidades de atendimento de um hospital público federal em São Luís. Foram aplicadas individualmente com elas, entrevistas semiestruturadas, envolvendo história interativa, livro autobiográfico e caixa dos desejos. Os maiores impactos da hospitalização e/ou atendimento ambulatorial hemodialítico ao processo de escolarização foram: atrasos escolares e comprometimentos futuros pela impossibilidade de frequência escolar (60%); perda do vínculo escolar pela distância entre hospital e escola (20%); ausência de recursos apropriados à escolarização no hospital (10%) e dificuldades de realizar matrícula em escola próxima de casa (10%). Concluiu-se que os maiores impactos à escolarização foram manifestados pelas crianças em tratamento hemodialítico, por ser um processo contínuo, imprevisível e indeterminado, demandando maiores privações do contexto escolar ou mesmo ausências, variando de cinco meses a quatro anos, ocasionando maiores déficits escolares e comprometendo a vida escolar.Universidade Federal de Santa Maria2020-10-26info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdftext/htmlhttp://periodicos.ufsm.br/educacaoespecial/article/view/4436010.5902/1984686X44360Special Education Magazine; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e52/ 1-25Revista de Educación Especial; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e52/ 1-25Revista Educação Especial; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e52/ 1-251984-686Xreponame:Revista Educação Especial (UFSM)instname:Universidade Federal de Santa Maria (UFSM)instacron:UFSMporhttp://periodicos.ufsm.br/educacaoespecial/article/view/44360/pdfhttp://periodicos.ufsm.br/educacaoespecial/article/view/44360/htmlCopyright (c) 2020 Revista Educação Especialinfo:eu-repo/semantics/openAccessSimões, Karina Cristina RabeloSilva, Silvana Maria Moura daCosta, Maria da Piedade Resende da2020-12-21T22:14:16Zoai:ojs.pkp.sfu.ca:article/44360Revistahttps://periodicos.ufsm.br/educacaoespecialPUBhttp://cascavel.ufsm.br/revistas/ojs-2.2.2/index.php/educacaoespecial/oaieducacaoespecial@smail.ufsm.br||clenioberni@gmail.com1984-686X1808-270Xopendoar:2020-12-21T22:14:16Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM)false |
dc.title.none.fl_str_mv |
Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease Voces a la infancia silenciada: impactos de la hospitalización y hemodiálisis a la escolarización de niños con enfermedad renal crónica Vozes à infância silenciada: impactos da hospitalização e hemodiálise à escolarização de crianças com doença renal crônica |
title |
Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease |
spellingShingle |
Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease Simões, Karina Cristina Rabelo Hospitalization schooling chronic renal failure. Hospitalización escolarización insuficiencia renal crónica. Hospitalização escolarização insuficiência renal crônica. |
title_short |
Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease |
title_full |
Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease |
title_fullStr |
Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease |
title_full_unstemmed |
Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease |
title_sort |
Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease |
author |
Simões, Karina Cristina Rabelo |
author_facet |
Simões, Karina Cristina Rabelo Silva, Silvana Maria Moura da Costa, Maria da Piedade Resende da |
author_role |
author |
author2 |
Silva, Silvana Maria Moura da Costa, Maria da Piedade Resende da |
author2_role |
author author |
dc.contributor.author.fl_str_mv |
Simões, Karina Cristina Rabelo Silva, Silvana Maria Moura da Costa, Maria da Piedade Resende da |
dc.subject.por.fl_str_mv |
Hospitalization schooling chronic renal failure. Hospitalización escolarización insuficiencia renal crónica. Hospitalização escolarização insuficiência renal crônica. |
topic |
Hospitalization schooling chronic renal failure. Hospitalización escolarización insuficiencia renal crónica. Hospitalização escolarização insuficiência renal crônica. |
description |
The impacts of hospitalization and/or hemodialysis outpatient care to the schooling process of children with chronic renal failure may be compromising the child's development, causing the same contextual ruptures, changes in daily life, impediments to the continuity of studies and to the previous experienced routine. We tried to analyze the impacts of hospitalization and/or hemodialysis outpatient care to the schooling process of children with chronic renal failure. It was a quanti-qualitative, descriptive survey in the form of multiple cases. The participants were 10 children with chronic renal failure, from 8 to 12 years old, in three contextual groups: three hospitalized children, six in hemodialysis outpatient care and one submitted to the two hospital processes, in two care units of a federal public hospital in São Luís. Semi-structured interviews involving interactive history, autobiographical book and wish box were applied individually with them. The greatest impacts of hospitalization and/or hemodialysis outpatient care on the schooling process were: school delays and future commitments due to the impossibility of school attendance (60%); loss of school bond due to the distance between hospital and school (20%); lack of appropriate resources for schooling in the hospital (10%) and difficulties to enroll in a school close to home (10%). It was concluded that the greatest impacts to schooling were manifested by children under hemodialysis treatment because it is a continuous, unpredictable and undetermined process, demanding greater deprivation of the school context or even absences, ranging from five months to four years, causing greater school deficits and compromising school life. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020-10-26 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://periodicos.ufsm.br/educacaoespecial/article/view/44360 10.5902/1984686X44360 |
url |
http://periodicos.ufsm.br/educacaoespecial/article/view/44360 |
identifier_str_mv |
10.5902/1984686X44360 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
http://periodicos.ufsm.br/educacaoespecial/article/view/44360/pdf http://periodicos.ufsm.br/educacaoespecial/article/view/44360/html |
dc.rights.driver.fl_str_mv |
Copyright (c) 2020 Revista Educação Especial info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2020 Revista Educação Especial |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf text/html |
dc.publisher.none.fl_str_mv |
Universidade Federal de Santa Maria |
publisher.none.fl_str_mv |
Universidade Federal de Santa Maria |
dc.source.none.fl_str_mv |
Special Education Magazine; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e52/ 1-25 Revista de Educación Especial; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e52/ 1-25 Revista Educação Especial; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e52/ 1-25 1984-686X reponame:Revista Educação Especial (UFSM) instname:Universidade Federal de Santa Maria (UFSM) instacron:UFSM |
instname_str |
Universidade Federal de Santa Maria (UFSM) |
instacron_str |
UFSM |
institution |
UFSM |
reponame_str |
Revista Educação Especial (UFSM) |
collection |
Revista Educação Especial (UFSM) |
repository.name.fl_str_mv |
Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM) |
repository.mail.fl_str_mv |
educacaoespecial@smail.ufsm.br||clenioberni@gmail.com |
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