Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease

Detalhes bibliográficos
Autor(a) principal: Simões, Karina Cristina Rabelo
Data de Publicação: 2020
Outros Autores: Silva, Silvana Maria Moura da, Costa, Maria da Piedade Resende da
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista Educação Especial (UFSM)
Texto Completo: http://periodicos.ufsm.br/educacaoespecial/article/view/44360
Resumo: The impacts of hospitalization and/or hemodialysis outpatient care to the schooling process of children with chronic renal failure may be compromising the child's development, causing the same contextual ruptures, changes in daily life, impediments to the continuity of studies and to the previous experienced routine. We tried to analyze the impacts of hospitalization and/or hemodialysis outpatient care to the schooling process of children with chronic renal failure. It was a quanti-qualitative, descriptive survey in the form of multiple cases. The participants were 10 children with chronic renal failure, from 8 to 12 years old, in three contextual groups: three hospitalized children, six in hemodialysis outpatient care and one submitted to the two hospital processes, in two care units of a federal public hospital in São Luís. Semi-structured interviews involving interactive history, autobiographical book and wish box were applied individually with them. The greatest impacts of hospitalization and/or hemodialysis outpatient care on the schooling process were: school delays and future commitments due to the impossibility of school attendance (60%); loss of school bond due to the distance between hospital and school (20%); lack of appropriate resources for schooling in the hospital (10%) and difficulties to enroll in a school close to home (10%). It was concluded that the greatest impacts to schooling were manifested by children under hemodialysis treatment because it is a continuous, unpredictable and undetermined process, demanding greater deprivation of the school context or even absences, ranging from five months to four years, causing greater school deficits and compromising school life.
id UFSM-9_d872f23ca314bcf0ee8853635e5ece0a
oai_identifier_str oai:ojs.pkp.sfu.ca:article/44360
network_acronym_str UFSM-9
network_name_str Revista Educação Especial (UFSM)
repository_id_str
spelling Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney diseaseVoces a la infancia silenciada: impactos de la hospitalización y hemodiálisis a la escolarización de niños con enfermedad renal crónicaVozes à infância silenciada: impactos da hospitalização e hemodiálise à escolarização de crianças com doença renal crônicaHospitalizationschoolingchronic renal failure.Hospitalizaciónescolarizacióninsuficiencia renal crónica.Hospitalizaçãoescolarizaçãoinsuficiência renal crônica.The impacts of hospitalization and/or hemodialysis outpatient care to the schooling process of children with chronic renal failure may be compromising the child's development, causing the same contextual ruptures, changes in daily life, impediments to the continuity of studies and to the previous experienced routine. We tried to analyze the impacts of hospitalization and/or hemodialysis outpatient care to the schooling process of children with chronic renal failure. It was a quanti-qualitative, descriptive survey in the form of multiple cases. The participants were 10 children with chronic renal failure, from 8 to 12 years old, in three contextual groups: three hospitalized children, six in hemodialysis outpatient care and one submitted to the two hospital processes, in two care units of a federal public hospital in São Luís. Semi-structured interviews involving interactive history, autobiographical book and wish box were applied individually with them. The greatest impacts of hospitalization and/or hemodialysis outpatient care on the schooling process were: school delays and future commitments due to the impossibility of school attendance (60%); loss of school bond due to the distance between hospital and school (20%); lack of appropriate resources for schooling in the hospital (10%) and difficulties to enroll in a school close to home (10%). It was concluded that the greatest impacts to schooling were manifested by children under hemodialysis treatment because it is a continuous, unpredictable and undetermined process, demanding greater deprivation of the school context or even absences, ranging from five months to four years, causing greater school deficits and compromising school life.Los impactos provenientes de la hospitalización y/o atendimiento de ambulatorio de hemodiálisis al proceso de escolarización de niños con insuficiencia renal crónica pueden ser comprometedoras al desarrollo infantil, causándoles rupturas contextuales, cambios en la vida cotidiana, impedimentos en la continuidad a los estudios y rutina anterior vivenciada. Se buscó analizar los impactos de la hospitalización y/o atendimiento de ambulatorio de hemodiálisis al proceso de escolarización de niños con insuficiencia renal crónica. Se trató de una investigación de tipo cuanti-cualitativa, descriptiva, bajo la forma de múltiplos casos. Los participantes fueran 10 niños com  insuficiencia renal crónica, rango de edad variando entre 8 a 12 años insertadas  en tres grupos contextuales: tres niños hospitalizados, seis en atendimiento de ambulatorio de hemodiálisis y una sometida a los dos procesos hospitalarios, en dos unidades de atendimiento de un hospital público federal en la ciudad de São Luís. Fueron aplicados individualmente a los participantes, entrevistas semiestructuradas, envolviendo historia interactiva, libro autobiográfico y caja de los deseos. Los mayores impactos de la hospitalización y/o atendimiento de ambulatorio de hemodiálisis al proceso de escolarización fueron: atrasos escolares y comprometimientos futuros por la imposibilidad de frecuencia escolar (60%); pérdida del vínculo escolar por la distancia entre hospital y escuela (20%); ausencia de recursos apropiados a la escolarización en el hospital (10%) y dificultades de realizar matrícula en escuela cerca de la casa (10%). Se concluyó que los mayores impactos a la escolarización fueron manifestados por los niños en tratamiento de hemodiálisis por ser un proceso continuo, imprevisible e indeterminado, demandando mayores privaciones del contexto escolar o ausencias, variando entre cinco meses a cuatro años, ocasionando mayores déficits escolares y comprometiendo la vida escolar.Os impactos provenientes da hospitalização e/ou atendimento ambulatorial hemodialítico ao processo de escolarização de crianças com insuficiência renal crônica podem ser comprometedores ao desenvolvimento infantil, causando às mesmas rupturas contextuais, mudanças na vida cotidiana, impedimentos na continuidade aos estudos e à rotina anterior vivenciada. Buscou-se analisar os impactos da hospitalização e/ou atendimento ambulatorial hemodialítico ao processo de escolarização de crianças com insuficiência renal crônica. Tratou-se de uma pesquisa do tipo quanti-qualitativa, descritiva, sob a forma de múltiplos casos. Os participantes foram 10 crianças com insuficiência renal crônica, faixas etárias variando entre 8 e12 anos de idade, inseridas em três grupos contextuais: três crianças hospitalizadas, seis em atendimento ambulatorial hemodialítico e uma submetida aos dois processos hospitalares, em duas unidades de atendimento de um hospital público federal em São Luís. Foram aplicadas individualmente com elas, entrevistas semiestruturadas, envolvendo história interativa, livro autobiográfico e caixa dos desejos. Os maiores impactos da hospitalização e/ou atendimento ambulatorial hemodialítico ao processo de escolarização foram: atrasos escolares e comprometimentos futuros pela impossibilidade de frequência escolar (60%); perda do vínculo escolar pela distância entre hospital e escola (20%); ausência de recursos apropriados à escolarização no hospital (10%) e dificuldades de realizar matrícula em escola próxima de casa (10%). Concluiu-se que os maiores impactos à escolarização foram manifestados pelas crianças em tratamento hemodialítico, por ser um processo contínuo, imprevisível e indeterminado, demandando maiores privações do contexto escolar ou mesmo ausências, variando de cinco meses a quatro anos, ocasionando maiores déficits escolares e comprometendo a vida escolar.Universidade Federal de Santa Maria2020-10-26info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdftext/htmlhttp://periodicos.ufsm.br/educacaoespecial/article/view/4436010.5902/1984686X44360Special Education Magazine; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e52/ 1-25Revista de Educación Especial; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e52/ 1-25Revista Educação Especial; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e52/ 1-251984-686Xreponame:Revista Educação Especial (UFSM)instname:Universidade Federal de Santa Maria (UFSM)instacron:UFSMporhttp://periodicos.ufsm.br/educacaoespecial/article/view/44360/pdfhttp://periodicos.ufsm.br/educacaoespecial/article/view/44360/htmlCopyright (c) 2020 Revista Educação Especialinfo:eu-repo/semantics/openAccessSimões, Karina Cristina RabeloSilva, Silvana Maria Moura daCosta, Maria da Piedade Resende da2020-12-21T22:14:16Zoai:ojs.pkp.sfu.ca:article/44360Revistahttps://periodicos.ufsm.br/educacaoespecialPUBhttp://cascavel.ufsm.br/revistas/ojs-2.2.2/index.php/educacaoespecial/oaieducacaoespecial@smail.ufsm.br||clenioberni@gmail.com1984-686X1808-270Xopendoar:2020-12-21T22:14:16Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM)false
dc.title.none.fl_str_mv Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease
Voces a la infancia silenciada: impactos de la hospitalización y hemodiálisis a la escolarización de niños con enfermedad renal crónica
Vozes à infância silenciada: impactos da hospitalização e hemodiálise à escolarização de crianças com doença renal crônica
title Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease
spellingShingle Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease
Simões, Karina Cristina Rabelo
Hospitalization
schooling
chronic renal failure.
Hospitalización
escolarización
insuficiencia renal crónica.
Hospitalização
escolarização
insuficiência renal crônica.
title_short Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease
title_full Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease
title_fullStr Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease
title_full_unstemmed Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease
title_sort Voices to silent infance: impacts of hospitalization and hemodialysis on schooling of children with chronic kidney disease
author Simões, Karina Cristina Rabelo
author_facet Simões, Karina Cristina Rabelo
Silva, Silvana Maria Moura da
Costa, Maria da Piedade Resende da
author_role author
author2 Silva, Silvana Maria Moura da
Costa, Maria da Piedade Resende da
author2_role author
author
dc.contributor.author.fl_str_mv Simões, Karina Cristina Rabelo
Silva, Silvana Maria Moura da
Costa, Maria da Piedade Resende da
dc.subject.por.fl_str_mv Hospitalization
schooling
chronic renal failure.
Hospitalización
escolarización
insuficiencia renal crónica.
Hospitalização
escolarização
insuficiência renal crônica.
topic Hospitalization
schooling
chronic renal failure.
Hospitalización
escolarización
insuficiencia renal crónica.
Hospitalização
escolarização
insuficiência renal crônica.
description The impacts of hospitalization and/or hemodialysis outpatient care to the schooling process of children with chronic renal failure may be compromising the child's development, causing the same contextual ruptures, changes in daily life, impediments to the continuity of studies and to the previous experienced routine. We tried to analyze the impacts of hospitalization and/or hemodialysis outpatient care to the schooling process of children with chronic renal failure. It was a quanti-qualitative, descriptive survey in the form of multiple cases. The participants were 10 children with chronic renal failure, from 8 to 12 years old, in three contextual groups: three hospitalized children, six in hemodialysis outpatient care and one submitted to the two hospital processes, in two care units of a federal public hospital in São Luís. Semi-structured interviews involving interactive history, autobiographical book and wish box were applied individually with them. The greatest impacts of hospitalization and/or hemodialysis outpatient care on the schooling process were: school delays and future commitments due to the impossibility of school attendance (60%); loss of school bond due to the distance between hospital and school (20%); lack of appropriate resources for schooling in the hospital (10%) and difficulties to enroll in a school close to home (10%). It was concluded that the greatest impacts to schooling were manifested by children under hemodialysis treatment because it is a continuous, unpredictable and undetermined process, demanding greater deprivation of the school context or even absences, ranging from five months to four years, causing greater school deficits and compromising school life.
publishDate 2020
dc.date.none.fl_str_mv 2020-10-26
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://periodicos.ufsm.br/educacaoespecial/article/view/44360
10.5902/1984686X44360
url http://periodicos.ufsm.br/educacaoespecial/article/view/44360
identifier_str_mv 10.5902/1984686X44360
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv http://periodicos.ufsm.br/educacaoespecial/article/view/44360/pdf
http://periodicos.ufsm.br/educacaoespecial/article/view/44360/html
dc.rights.driver.fl_str_mv Copyright (c) 2020 Revista Educação Especial
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2020 Revista Educação Especial
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
text/html
dc.publisher.none.fl_str_mv Universidade Federal de Santa Maria
publisher.none.fl_str_mv Universidade Federal de Santa Maria
dc.source.none.fl_str_mv Special Education Magazine; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e52/ 1-25
Revista de Educación Especial; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e52/ 1-25
Revista Educação Especial; Revista Educação Especial, v. 33, 2020 – Publicação Contínua; e52/ 1-25
1984-686X
reponame:Revista Educação Especial (UFSM)
instname:Universidade Federal de Santa Maria (UFSM)
instacron:UFSM
instname_str Universidade Federal de Santa Maria (UFSM)
instacron_str UFSM
institution UFSM
reponame_str Revista Educação Especial (UFSM)
collection Revista Educação Especial (UFSM)
repository.name.fl_str_mv Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM)
repository.mail.fl_str_mv educacaoespecial@smail.ufsm.br||clenioberni@gmail.com
_version_ 1799944202330570752