Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico
Autor(a) principal: | |
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Data de Publicação: | 2023 |
Tipo de documento: | Tese |
Idioma: | por |
Título da fonte: | Manancial - Repositório Digital da UFSM |
dARK ID: | ark:/26339/0013000007qt5 |
Texto Completo: | http://repositorio.ufsm.br/handle/1/31340 |
Resumo: | This study aimed to understand the vulnerability of adolescents and young people in a rural context undergoing cancer treatment, to understand the process of autonomy of adolescents and young people in a rural context undergoing cancer treatment and to describe the social support network of adolescents and young people in a rural context undergoing cancer treatment. This is a qualitative, descriptive and exploratory research based on the health vulnerability framework of José Ricardo Ayres and the autonomy of Paulo Freire. The study setting was an oncology service at a university hospital in the southern region of Brazil. Adolescents aged 10 to 19 and young people aged up to 24 years old, who had experienced cancer, from rural areas, undergoing oncological treatment up to a maximum of five years before the start of data collection were included. Data were collected through semi-structured, individual and in-person interviews and construction of a genogram and ecomap with 15 adolescents and young people during the period from April 2021 to September 2022. The research was approved by the Ethics Committee under opinion: 4.594.079. The data was subjected to inductive thematic analysis. The results showed three thematic categories. Challenges of oncological treatment for adolescents and young people in rural contexts; Reframing the experience: ―I have cancer, but cancer doesn't have me‖ and (Re)building networks: family, friends, going through the same process and being cared for. And that led to the formulation of the thesis: adolescents and young people in rural contexts face unique challenges due to a combination of factors related to individual vulnerability, limited access to information about their health, diagnosis and treatment of cancer, resulting in lower awareness of their disease which, influenced by the stigma and culture of their rural community, makes it difficult to share information about cancer, which impacts on their autonomy. Social and programmatic vulnerability influenced, to a large extent, by geographic isolation. Adolescents and young people in rural areas have autonomy and take an active role in their own care and decision-making during cancer treatment. They become aware of their own reality and (re)build the social support network and agents of transformation in their own lives. There is an interconnection between vulnerability and autonomy, as overcoming vulnerability depends, to a large extent, on the exercise of autonomy. However, understanding individual, social and programmatic vulnerability makes it possible to promote the empowerment of adolescents and young people in rural contexts to face the challenges of cancer treatment. It is concluded that, despite the challenges of cancer treatment, not only related to the disease itself, but also social exclusion, the context in which they live, social stigma, the desire to overcome and the desire to live in search of autonomy persists. The implications for Nursing practice permeate the understanding of the experience of adolescents and young people from the rural context undergoing cancer treatment, taking into account the uniqueness of these individuals considering them in their entirety, the dimensions of the sociocultural context and the geographic space in which they live. |
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Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológicoVulnerability and autonomy of adolescents and young people in the rural context under oncological treatmentAdolescenteJovemOncologiaPopulação ruralVulnerabilidadeAutonomiaEnfermagemAdolescentYoungOncologyRural populationVulnerabilityAutonomyNursingCNPQ::CIENCIAS DA SAUDE::ENFERMAGEMThis study aimed to understand the vulnerability of adolescents and young people in a rural context undergoing cancer treatment, to understand the process of autonomy of adolescents and young people in a rural context undergoing cancer treatment and to describe the social support network of adolescents and young people in a rural context undergoing cancer treatment. This is a qualitative, descriptive and exploratory research based on the health vulnerability framework of José Ricardo Ayres and the autonomy of Paulo Freire. The study setting was an oncology service at a university hospital in the southern region of Brazil. Adolescents aged 10 to 19 and young people aged up to 24 years old, who had experienced cancer, from rural areas, undergoing oncological treatment up to a maximum of five years before the start of data collection were included. Data were collected through semi-structured, individual and in-person interviews and construction of a genogram and ecomap with 15 adolescents and young people during the period from April 2021 to September 2022. The research was approved by the Ethics Committee under opinion: 4.594.079. The data was subjected to inductive thematic analysis. The results showed three thematic categories. Challenges of oncological treatment for adolescents and young people in rural contexts; Reframing the experience: ―I have cancer, but cancer doesn't have me‖ and (Re)building networks: family, friends, going through the same process and being cared for. And that led to the formulation of the thesis: adolescents and young people in rural contexts face unique challenges due to a combination of factors related to individual vulnerability, limited access to information about their health, diagnosis and treatment of cancer, resulting in lower awareness of their disease which, influenced by the stigma and culture of their rural community, makes it difficult to share information about cancer, which impacts on their autonomy. Social and programmatic vulnerability influenced, to a large extent, by geographic isolation. Adolescents and young people in rural areas have autonomy and take an active role in their own care and decision-making during cancer treatment. They become aware of their own reality and (re)build the social support network and agents of transformation in their own lives. There is an interconnection between vulnerability and autonomy, as overcoming vulnerability depends, to a large extent, on the exercise of autonomy. However, understanding individual, social and programmatic vulnerability makes it possible to promote the empowerment of adolescents and young people in rural contexts to face the challenges of cancer treatment. It is concluded that, despite the challenges of cancer treatment, not only related to the disease itself, but also social exclusion, the context in which they live, social stigma, the desire to overcome and the desire to live in search of autonomy persists. The implications for Nursing practice permeate the understanding of the experience of adolescents and young people from the rural context undergoing cancer treatment, taking into account the uniqueness of these individuals considering them in their entirety, the dimensions of the sociocultural context and the geographic space in which they live.Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - CAPESEste estudo objetivou compreender a vulnerabilidade de adolescentes e jovens do contexto rural em tratamento oncológico, conhecer o processo de autonomia de adolescentes e jovens do contexto rural em tratamento oncológico e descrever a rede de suporte social de adolescentes e jovens do contexto rural em tratamento oncológico. Trata-se de uma pesquisa qualitativa, descritiva e exploratória pautada no referencial da vulnerabilidade em saúde de José Ricardo Ayres e na autonomia de Paulo Freire. O cenário do estudo foi um serviço de oncologia, de um hospital universitário na região Sul do Brasil. Foram incluídos adolescentes de 10 a 19 anos e jovens com idade até 24 anos, que vivenciaram o adoecimento por câncer, oriundos da zona rural, em tratamento oncológico até no máximo cinco anos antes do início da coleta de dados. Os dados foram coletados por meio de entrevistas semiestruturadas, individual e presencial e construção do genograma e ecomapa com 15 adolescentes e jovens durante o período de abril de 2021 a setembro de 2022. A pesquisa foi aprovada pelo Comitê de Ética sob parecer: 4.594.079. Os dados foram submetidos à análise temática indutiva. Os resultados apontaram três categorias temáticas. Desafios do tratamento oncológico para o adolescente e jovem do contexto rural; Ressignificando a experiência: ―eu tenho o câncer, mas o câncer não me tem‖ e (Re) construindo redes: família, amigos, viver o mesmo processo e ser cuidado. Estas conduziram a formulação da tese: os adolescentes e jovens em contextos rurais enfrentam desafios únicos devido a uma combinação de fatores relacionados com a vulnerabilidade individual, o acesso limitado à informação sobre sua saúde, diagnóstico e tratamento do câncer, resultando numa menor consciência da sua doença que, influenciada pelo estigma e pela cultura da sua comunidade rural, dificulta o compartilhamento de informações sobre o câncer o que repercute na sua autonomia. A vulnerabilidade, social e programática influenciadas, em grande parte, pelo isolamento geográfico. Os adolescentes e jovens do meio rural tem sua autonomia e assumem um papel ativo no seu próprio cuidado e na tomada de decisões durante o tratamento oncológico. Eles tornam-se conscientes de sua própria realidade e (re)constroem a rede de suporte social e agentes de transformação de sua própria vida. Ocorre uma interconexão entre a vulnerabilidade e a autonomia, pois a superação da vulnerabilidade depende, em grande parte, do exercício da autonomia. Contudo, a compreensão da vulnerabilidade individual, social e programática permite promover o empoderamento de adolescentes e jovens do contexto rural para enfrentar os desafios do tratamento oncológico. Conclui-se que, apesar dos desafios do tratamento oncológico, não apenas relacionados à doença em si, mas também a exclusão social, contexto em que vivem, estigma social, persiste o desejo de superação e a vontade de viver em busca de autonomia. As implicações para a prática de Enfermagem perpassam pela compreensão da experiência de adolescentes e jovens do contexto rural em tratamento oncológico, levando em conta a singularidade desses indivíduos considerando-os em sua integralidade, as dimensões ao contexto sociocultural e ao espaço geográfico em que vivem.Universidade Federal de Santa MariaBrasilEnfermagemUFSMPrograma de Pós-Graduação em EnfermagemCentro de Ciências da SaúdeNeves, Eliane Tatschhttp://lattes.cnpq.br/2267710105940770Sehnem, Graciela DutraRibeiro, Aline CammaranoPerlini, Nara Marilene Oliveira GirardonMotta, Maria da Graça Corso daSiqueira, Fernanda Duarte2024-01-31T12:44:03Z2024-01-31T12:44:03Z2023-09-25info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/doctoralThesisapplication/pdfhttp://repositorio.ufsm.br/handle/1/31340ark:/26339/0013000007qt5porAttribution-NonCommercial-NoDerivatives 4.0 Internationalhttp://creativecommons.org/licenses/by-nc-nd/4.0/info:eu-repo/semantics/openAccessreponame:Manancial - Repositório Digital da UFSMinstname:Universidade Federal de Santa Maria (UFSM)instacron:UFSM2024-01-31T12:44:03Zoai:repositorio.ufsm.br:1/31340Biblioteca Digital de Teses e Dissertaçõeshttps://repositorio.ufsm.br/ONGhttps://repositorio.ufsm.br/oai/requestatendimento.sib@ufsm.br||tedebc@gmail.comopendoar:2024-07-29T10:28:25.707266Manancial - Repositório Digital da UFSM - Universidade Federal de Santa Maria (UFSM)false |
dc.title.none.fl_str_mv |
Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico Vulnerability and autonomy of adolescents and young people in the rural context under oncological treatment |
title |
Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico |
spellingShingle |
Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico Siqueira, Fernanda Duarte Adolescente Jovem Oncologia População rural Vulnerabilidade Autonomia Enfermagem Adolescent Young Oncology Rural population Vulnerability Autonomy Nursing CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM |
title_short |
Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico |
title_full |
Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico |
title_fullStr |
Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico |
title_full_unstemmed |
Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico |
title_sort |
Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico |
author |
Siqueira, Fernanda Duarte |
author_facet |
Siqueira, Fernanda Duarte |
author_role |
author |
dc.contributor.none.fl_str_mv |
Neves, Eliane Tatsch http://lattes.cnpq.br/2267710105940770 Sehnem, Graciela Dutra Ribeiro, Aline Cammarano Perlini, Nara Marilene Oliveira Girardon Motta, Maria da Graça Corso da |
dc.contributor.author.fl_str_mv |
Siqueira, Fernanda Duarte |
dc.subject.por.fl_str_mv |
Adolescente Jovem Oncologia População rural Vulnerabilidade Autonomia Enfermagem Adolescent Young Oncology Rural population Vulnerability Autonomy Nursing CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM |
topic |
Adolescente Jovem Oncologia População rural Vulnerabilidade Autonomia Enfermagem Adolescent Young Oncology Rural population Vulnerability Autonomy Nursing CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM |
description |
This study aimed to understand the vulnerability of adolescents and young people in a rural context undergoing cancer treatment, to understand the process of autonomy of adolescents and young people in a rural context undergoing cancer treatment and to describe the social support network of adolescents and young people in a rural context undergoing cancer treatment. This is a qualitative, descriptive and exploratory research based on the health vulnerability framework of José Ricardo Ayres and the autonomy of Paulo Freire. The study setting was an oncology service at a university hospital in the southern region of Brazil. Adolescents aged 10 to 19 and young people aged up to 24 years old, who had experienced cancer, from rural areas, undergoing oncological treatment up to a maximum of five years before the start of data collection were included. Data were collected through semi-structured, individual and in-person interviews and construction of a genogram and ecomap with 15 adolescents and young people during the period from April 2021 to September 2022. The research was approved by the Ethics Committee under opinion: 4.594.079. The data was subjected to inductive thematic analysis. The results showed three thematic categories. Challenges of oncological treatment for adolescents and young people in rural contexts; Reframing the experience: ―I have cancer, but cancer doesn't have me‖ and (Re)building networks: family, friends, going through the same process and being cared for. And that led to the formulation of the thesis: adolescents and young people in rural contexts face unique challenges due to a combination of factors related to individual vulnerability, limited access to information about their health, diagnosis and treatment of cancer, resulting in lower awareness of their disease which, influenced by the stigma and culture of their rural community, makes it difficult to share information about cancer, which impacts on their autonomy. Social and programmatic vulnerability influenced, to a large extent, by geographic isolation. Adolescents and young people in rural areas have autonomy and take an active role in their own care and decision-making during cancer treatment. They become aware of their own reality and (re)build the social support network and agents of transformation in their own lives. There is an interconnection between vulnerability and autonomy, as overcoming vulnerability depends, to a large extent, on the exercise of autonomy. However, understanding individual, social and programmatic vulnerability makes it possible to promote the empowerment of adolescents and young people in rural contexts to face the challenges of cancer treatment. It is concluded that, despite the challenges of cancer treatment, not only related to the disease itself, but also social exclusion, the context in which they live, social stigma, the desire to overcome and the desire to live in search of autonomy persists. The implications for Nursing practice permeate the understanding of the experience of adolescents and young people from the rural context undergoing cancer treatment, taking into account the uniqueness of these individuals considering them in their entirety, the dimensions of the sociocultural context and the geographic space in which they live. |
publishDate |
2023 |
dc.date.none.fl_str_mv |
2023-09-25 2024-01-31T12:44:03Z 2024-01-31T12:44:03Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/doctoralThesis |
format |
doctoralThesis |
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publishedVersion |
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http://repositorio.ufsm.br/handle/1/31340 |
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ark:/26339/0013000007qt5 |
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http://repositorio.ufsm.br/handle/1/31340 |
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ark:/26339/0013000007qt5 |
dc.language.iso.fl_str_mv |
por |
language |
por |
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Attribution-NonCommercial-NoDerivatives 4.0 International http://creativecommons.org/licenses/by-nc-nd/4.0/ info:eu-repo/semantics/openAccess |
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Attribution-NonCommercial-NoDerivatives 4.0 International http://creativecommons.org/licenses/by-nc-nd/4.0/ |
eu_rights_str_mv |
openAccess |
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application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Federal de Santa Maria Brasil Enfermagem UFSM Programa de Pós-Graduação em Enfermagem Centro de Ciências da Saúde |
publisher.none.fl_str_mv |
Universidade Federal de Santa Maria Brasil Enfermagem UFSM Programa de Pós-Graduação em Enfermagem Centro de Ciências da Saúde |
dc.source.none.fl_str_mv |
reponame:Manancial - Repositório Digital da UFSM instname:Universidade Federal de Santa Maria (UFSM) instacron:UFSM |
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Universidade Federal de Santa Maria (UFSM) |
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UFSM |
institution |
UFSM |
reponame_str |
Manancial - Repositório Digital da UFSM |
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Manancial - Repositório Digital da UFSM |
repository.name.fl_str_mv |
Manancial - Repositório Digital da UFSM - Universidade Federal de Santa Maria (UFSM) |
repository.mail.fl_str_mv |
atendimento.sib@ufsm.br||tedebc@gmail.com |
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