Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico

Detalhes bibliográficos
Autor(a) principal: Siqueira, Fernanda Duarte
Data de Publicação: 2023
Tipo de documento: Tese
Idioma: por
Título da fonte: Manancial - Repositório Digital da UFSM
dARK ID: ark:/26339/0013000007qt5
Texto Completo: http://repositorio.ufsm.br/handle/1/31340
Resumo: This study aimed to understand the vulnerability of adolescents and young people in a rural context undergoing cancer treatment, to understand the process of autonomy of adolescents and young people in a rural context undergoing cancer treatment and to describe the social support network of adolescents and young people in a rural context undergoing cancer treatment. This is a qualitative, descriptive and exploratory research based on the health vulnerability framework of José Ricardo Ayres and the autonomy of Paulo Freire. The study setting was an oncology service at a university hospital in the southern region of Brazil. Adolescents aged 10 to 19 and young people aged up to 24 years old, who had experienced cancer, from rural areas, undergoing oncological treatment up to a maximum of five years before the start of data collection were included. Data were collected through semi-structured, individual and in-person interviews and construction of a genogram and ecomap with 15 adolescents and young people during the period from April 2021 to September 2022. The research was approved by the Ethics Committee under opinion: 4.594.079. The data was subjected to inductive thematic analysis. The results showed three thematic categories. Challenges of oncological treatment for adolescents and young people in rural contexts; Reframing the experience: ―I have cancer, but cancer doesn't have me‖ and (Re)building networks: family, friends, going through the same process and being cared for. And that led to the formulation of the thesis: adolescents and young people in rural contexts face unique challenges due to a combination of factors related to individual vulnerability, limited access to information about their health, diagnosis and treatment of cancer, resulting in lower awareness of their disease which, influenced by the stigma and culture of their rural community, makes it difficult to share information about cancer, which impacts on their autonomy. Social and programmatic vulnerability influenced, to a large extent, by geographic isolation. Adolescents and young people in rural areas have autonomy and take an active role in their own care and decision-making during cancer treatment. They become aware of their own reality and (re)build the social support network and agents of transformation in their own lives. There is an interconnection between vulnerability and autonomy, as overcoming vulnerability depends, to a large extent, on the exercise of autonomy. However, understanding individual, social and programmatic vulnerability makes it possible to promote the empowerment of adolescents and young people in rural contexts to face the challenges of cancer treatment. It is concluded that, despite the challenges of cancer treatment, not only related to the disease itself, but also social exclusion, the context in which they live, social stigma, the desire to overcome and the desire to live in search of autonomy persists. The implications for Nursing practice permeate the understanding of the experience of adolescents and young people from the rural context undergoing cancer treatment, taking into account the uniqueness of these individuals considering them in their entirety, the dimensions of the sociocultural context and the geographic space in which they live.
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spelling Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológicoVulnerability and autonomy of adolescents and young people in the rural context under oncological treatmentAdolescenteJovemOncologiaPopulação ruralVulnerabilidadeAutonomiaEnfermagemAdolescentYoungOncologyRural populationVulnerabilityAutonomyNursingCNPQ::CIENCIAS DA SAUDE::ENFERMAGEMThis study aimed to understand the vulnerability of adolescents and young people in a rural context undergoing cancer treatment, to understand the process of autonomy of adolescents and young people in a rural context undergoing cancer treatment and to describe the social support network of adolescents and young people in a rural context undergoing cancer treatment. This is a qualitative, descriptive and exploratory research based on the health vulnerability framework of José Ricardo Ayres and the autonomy of Paulo Freire. The study setting was an oncology service at a university hospital in the southern region of Brazil. Adolescents aged 10 to 19 and young people aged up to 24 years old, who had experienced cancer, from rural areas, undergoing oncological treatment up to a maximum of five years before the start of data collection were included. Data were collected through semi-structured, individual and in-person interviews and construction of a genogram and ecomap with 15 adolescents and young people during the period from April 2021 to September 2022. The research was approved by the Ethics Committee under opinion: 4.594.079. The data was subjected to inductive thematic analysis. The results showed three thematic categories. Challenges of oncological treatment for adolescents and young people in rural contexts; Reframing the experience: ―I have cancer, but cancer doesn't have me‖ and (Re)building networks: family, friends, going through the same process and being cared for. And that led to the formulation of the thesis: adolescents and young people in rural contexts face unique challenges due to a combination of factors related to individual vulnerability, limited access to information about their health, diagnosis and treatment of cancer, resulting in lower awareness of their disease which, influenced by the stigma and culture of their rural community, makes it difficult to share information about cancer, which impacts on their autonomy. Social and programmatic vulnerability influenced, to a large extent, by geographic isolation. Adolescents and young people in rural areas have autonomy and take an active role in their own care and decision-making during cancer treatment. They become aware of their own reality and (re)build the social support network and agents of transformation in their own lives. There is an interconnection between vulnerability and autonomy, as overcoming vulnerability depends, to a large extent, on the exercise of autonomy. However, understanding individual, social and programmatic vulnerability makes it possible to promote the empowerment of adolescents and young people in rural contexts to face the challenges of cancer treatment. It is concluded that, despite the challenges of cancer treatment, not only related to the disease itself, but also social exclusion, the context in which they live, social stigma, the desire to overcome and the desire to live in search of autonomy persists. The implications for Nursing practice permeate the understanding of the experience of adolescents and young people from the rural context undergoing cancer treatment, taking into account the uniqueness of these individuals considering them in their entirety, the dimensions of the sociocultural context and the geographic space in which they live.Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - CAPESEste estudo objetivou compreender a vulnerabilidade de adolescentes e jovens do contexto rural em tratamento oncológico, conhecer o processo de autonomia de adolescentes e jovens do contexto rural em tratamento oncológico e descrever a rede de suporte social de adolescentes e jovens do contexto rural em tratamento oncológico. Trata-se de uma pesquisa qualitativa, descritiva e exploratória pautada no referencial da vulnerabilidade em saúde de José Ricardo Ayres e na autonomia de Paulo Freire. O cenário do estudo foi um serviço de oncologia, de um hospital universitário na região Sul do Brasil. Foram incluídos adolescentes de 10 a 19 anos e jovens com idade até 24 anos, que vivenciaram o adoecimento por câncer, oriundos da zona rural, em tratamento oncológico até no máximo cinco anos antes do início da coleta de dados. Os dados foram coletados por meio de entrevistas semiestruturadas, individual e presencial e construção do genograma e ecomapa com 15 adolescentes e jovens durante o período de abril de 2021 a setembro de 2022. A pesquisa foi aprovada pelo Comitê de Ética sob parecer: 4.594.079. Os dados foram submetidos à análise temática indutiva. Os resultados apontaram três categorias temáticas. Desafios do tratamento oncológico para o adolescente e jovem do contexto rural; Ressignificando a experiência: ―eu tenho o câncer, mas o câncer não me tem‖ e (Re) construindo redes: família, amigos, viver o mesmo processo e ser cuidado. Estas conduziram a formulação da tese: os adolescentes e jovens em contextos rurais enfrentam desafios únicos devido a uma combinação de fatores relacionados com a vulnerabilidade individual, o acesso limitado à informação sobre sua saúde, diagnóstico e tratamento do câncer, resultando numa menor consciência da sua doença que, influenciada pelo estigma e pela cultura da sua comunidade rural, dificulta o compartilhamento de informações sobre o câncer o que repercute na sua autonomia. A vulnerabilidade, social e programática influenciadas, em grande parte, pelo isolamento geográfico. Os adolescentes e jovens do meio rural tem sua autonomia e assumem um papel ativo no seu próprio cuidado e na tomada de decisões durante o tratamento oncológico. Eles tornam-se conscientes de sua própria realidade e (re)constroem a rede de suporte social e agentes de transformação de sua própria vida. Ocorre uma interconexão entre a vulnerabilidade e a autonomia, pois a superação da vulnerabilidade depende, em grande parte, do exercício da autonomia. Contudo, a compreensão da vulnerabilidade individual, social e programática permite promover o empoderamento de adolescentes e jovens do contexto rural para enfrentar os desafios do tratamento oncológico. Conclui-se que, apesar dos desafios do tratamento oncológico, não apenas relacionados à doença em si, mas também a exclusão social, contexto em que vivem, estigma social, persiste o desejo de superação e a vontade de viver em busca de autonomia. As implicações para a prática de Enfermagem perpassam pela compreensão da experiência de adolescentes e jovens do contexto rural em tratamento oncológico, levando em conta a singularidade desses indivíduos considerando-os em sua integralidade, as dimensões ao contexto sociocultural e ao espaço geográfico em que vivem.Universidade Federal de Santa MariaBrasilEnfermagemUFSMPrograma de Pós-Graduação em EnfermagemCentro de Ciências da SaúdeNeves, Eliane Tatschhttp://lattes.cnpq.br/2267710105940770Sehnem, Graciela DutraRibeiro, Aline CammaranoPerlini, Nara Marilene Oliveira GirardonMotta, Maria da Graça Corso daSiqueira, Fernanda Duarte2024-01-31T12:44:03Z2024-01-31T12:44:03Z2023-09-25info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/doctoralThesisapplication/pdfhttp://repositorio.ufsm.br/handle/1/31340ark:/26339/0013000007qt5porAttribution-NonCommercial-NoDerivatives 4.0 Internationalhttp://creativecommons.org/licenses/by-nc-nd/4.0/info:eu-repo/semantics/openAccessreponame:Manancial - Repositório Digital da UFSMinstname:Universidade Federal de Santa Maria (UFSM)instacron:UFSM2024-01-31T12:44:03Zoai:repositorio.ufsm.br:1/31340Biblioteca Digital de Teses e Dissertaçõeshttps://repositorio.ufsm.br/ONGhttps://repositorio.ufsm.br/oai/requestatendimento.sib@ufsm.br||tedebc@gmail.comopendoar:2024-07-29T10:28:25.707266Manancial - Repositório Digital da UFSM - Universidade Federal de Santa Maria (UFSM)false
dc.title.none.fl_str_mv Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico
Vulnerability and autonomy of adolescents and young people in the rural context under oncological treatment
title Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico
spellingShingle Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico
Siqueira, Fernanda Duarte
Adolescente
Jovem
Oncologia
População rural
Vulnerabilidade
Autonomia
Enfermagem
Adolescent
Young
Oncology
Rural population
Vulnerability
Autonomy
Nursing
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
title_short Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico
title_full Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico
title_fullStr Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico
title_full_unstemmed Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico
title_sort Vulnerabilidade e autonomia de adolescentes e jovens do contexto rural em tratamento oncológico
author Siqueira, Fernanda Duarte
author_facet Siqueira, Fernanda Duarte
author_role author
dc.contributor.none.fl_str_mv Neves, Eliane Tatsch
http://lattes.cnpq.br/2267710105940770
Sehnem, Graciela Dutra
Ribeiro, Aline Cammarano
Perlini, Nara Marilene Oliveira Girardon
Motta, Maria da Graça Corso da
dc.contributor.author.fl_str_mv Siqueira, Fernanda Duarte
dc.subject.por.fl_str_mv Adolescente
Jovem
Oncologia
População rural
Vulnerabilidade
Autonomia
Enfermagem
Adolescent
Young
Oncology
Rural population
Vulnerability
Autonomy
Nursing
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
topic Adolescente
Jovem
Oncologia
População rural
Vulnerabilidade
Autonomia
Enfermagem
Adolescent
Young
Oncology
Rural population
Vulnerability
Autonomy
Nursing
CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM
description This study aimed to understand the vulnerability of adolescents and young people in a rural context undergoing cancer treatment, to understand the process of autonomy of adolescents and young people in a rural context undergoing cancer treatment and to describe the social support network of adolescents and young people in a rural context undergoing cancer treatment. This is a qualitative, descriptive and exploratory research based on the health vulnerability framework of José Ricardo Ayres and the autonomy of Paulo Freire. The study setting was an oncology service at a university hospital in the southern region of Brazil. Adolescents aged 10 to 19 and young people aged up to 24 years old, who had experienced cancer, from rural areas, undergoing oncological treatment up to a maximum of five years before the start of data collection were included. Data were collected through semi-structured, individual and in-person interviews and construction of a genogram and ecomap with 15 adolescents and young people during the period from April 2021 to September 2022. The research was approved by the Ethics Committee under opinion: 4.594.079. The data was subjected to inductive thematic analysis. The results showed three thematic categories. Challenges of oncological treatment for adolescents and young people in rural contexts; Reframing the experience: ―I have cancer, but cancer doesn't have me‖ and (Re)building networks: family, friends, going through the same process and being cared for. And that led to the formulation of the thesis: adolescents and young people in rural contexts face unique challenges due to a combination of factors related to individual vulnerability, limited access to information about their health, diagnosis and treatment of cancer, resulting in lower awareness of their disease which, influenced by the stigma and culture of their rural community, makes it difficult to share information about cancer, which impacts on their autonomy. Social and programmatic vulnerability influenced, to a large extent, by geographic isolation. Adolescents and young people in rural areas have autonomy and take an active role in their own care and decision-making during cancer treatment. They become aware of their own reality and (re)build the social support network and agents of transformation in their own lives. There is an interconnection between vulnerability and autonomy, as overcoming vulnerability depends, to a large extent, on the exercise of autonomy. However, understanding individual, social and programmatic vulnerability makes it possible to promote the empowerment of adolescents and young people in rural contexts to face the challenges of cancer treatment. It is concluded that, despite the challenges of cancer treatment, not only related to the disease itself, but also social exclusion, the context in which they live, social stigma, the desire to overcome and the desire to live in search of autonomy persists. The implications for Nursing practice permeate the understanding of the experience of adolescents and young people from the rural context undergoing cancer treatment, taking into account the uniqueness of these individuals considering them in their entirety, the dimensions of the sociocultural context and the geographic space in which they live.
publishDate 2023
dc.date.none.fl_str_mv 2023-09-25
2024-01-31T12:44:03Z
2024-01-31T12:44:03Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
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format doctoralThesis
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dc.identifier.uri.fl_str_mv http://repositorio.ufsm.br/handle/1/31340
dc.identifier.dark.fl_str_mv ark:/26339/0013000007qt5
url http://repositorio.ufsm.br/handle/1/31340
identifier_str_mv ark:/26339/0013000007qt5
dc.language.iso.fl_str_mv por
language por
dc.rights.driver.fl_str_mv Attribution-NonCommercial-NoDerivatives 4.0 International
http://creativecommons.org/licenses/by-nc-nd/4.0/
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Attribution-NonCommercial-NoDerivatives 4.0 International
http://creativecommons.org/licenses/by-nc-nd/4.0/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Universidade Federal de Santa Maria
Brasil
Enfermagem
UFSM
Programa de Pós-Graduação em Enfermagem
Centro de Ciências da Saúde
publisher.none.fl_str_mv Universidade Federal de Santa Maria
Brasil
Enfermagem
UFSM
Programa de Pós-Graduação em Enfermagem
Centro de Ciências da Saúde
dc.source.none.fl_str_mv reponame:Manancial - Repositório Digital da UFSM
instname:Universidade Federal de Santa Maria (UFSM)
instacron:UFSM
instname_str Universidade Federal de Santa Maria (UFSM)
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institution UFSM
reponame_str Manancial - Repositório Digital da UFSM
collection Manancial - Repositório Digital da UFSM
repository.name.fl_str_mv Manancial - Repositório Digital da UFSM - Universidade Federal de Santa Maria (UFSM)
repository.mail.fl_str_mv atendimento.sib@ufsm.br||tedebc@gmail.com
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