Fortalecendo-se para seguir a vida: experiência de famílias ao conviver com familiar adulto com estomia por câncer intestinal

• Autor(a) principal: Simon, Bruna Sodré
• Data de Publicação: 2020
• Tipo de documento: Tese
• Idioma: por
• Título da fonte: Manancial - Repositório Digital da UFSM
• dARK ID: ark:/26339/001300000z6tz
• Texto Completo: http://repositorio.ufsm.br/handle/1/22209
• topic: Enfermagem da família; Família; Estomia; Neoplasias intestinais; Interacionismo simbólico; Teoria fundamentada; Teoria fundamentada; Family nursing; Family; Stoma; Intestinal neoplasms; Symbolic interactionism; Grounded theory; Enfermería da família; Estoma; Neoplasias intestinales; Interaccionismo simbólico; CNPQ::CIENCIAS DA SAUDE::ENFERMAGEM

This study's general aim was to comprehend the experience of families to live with the adult family member with stoma because of intestinal cancer, and as specific aims, to know meanings attributed, by the family, to the experience of living with an adult family member with stoma because of intestinal cancer; to elaborate a substantial theory of family experiences on living with the adult family member with stoma because of intestinal cancer; and to construct propositions to guide family care of people with intestinal stomas. It is an interpretivist research that used Symbolic Interactionism as theoretical referential and Grounded Theory as methodological referential. Data collection occurred in the period of July 2018 to August 2019, mediated the construction of genome, ecomap and in depth interviews developed at home of 12 families resided in two cities in the countryside of Rio Grande do Sul, Brazil, that lived with an adult family member with stoma because of intestinal cancer. Data were organized in the software NVivo12.x86 and analyzed following constant comparative method and the Glaseriana proposal developed in two steps: substantive codification (open and selective) and theoretical codification. In the theoretical codification, an interrelation of concepts through family of theoretical code, denominated process. During the data analysis, memorandum and diagrams. Research was approved by the Research Ethics Committee under the feedback number 2.760.036. Results of the study enabled to elaborate the the substantive theory denominated “Strengthening oneself to go on with life: experience of families living with an adult family member with stoma for intestinal cancer” constituted by the concepts: Unveiling a (un) known world, Facing obstacles, Looking for alternatives to help in the new condition, Getting support, Developing ways to take care (if) and Recognizing the need to follow life, which correspond to the theoretical codes: origin, confrontation, protection , adaptation and continuation. The theory has a central concept “Taking care from interactions” that enables to integrate the other concepts and represent the body of actions developed by families based in one's behavior, values and beliefs of how one's experience is signified as a family nucleus, in an unusual way, living with a family member with stoma for intestinal cancer. The experience of families is a processual, dynamic and continuous phenomenon, that is being constructed through time through phases that interrelate, resulting in movements that strengthen families to follow life. It is understood that the substantive theory elaborated contributes to the understanding of the families' experience by presenting a comprehensive level of knowledge to the multiprofessional team that provides assistance in this particular area. Thus, it can assist in effective practices for people with ostomy and their families based on the dimensions explored, in addition to subsidizing the continuity of care within the health care network.