The strength of information on retinoblastoma for the family of the child
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2018 |
| Outros Autores: | , , , , |
| Tipo de documento: | Artigo |
| Idioma: | eng |
| Título da fonte: | Repositório Institucional da UNIFESP |
| Texto Completo: | http://dx.doi.org/10.1590/1982-0194201800013 https://repositorio.unifesp.br/handle/11600/54298 |
Resumo: | Objective: To understand the need for information from the family members of children with retinoblastoma. Methods: A qualitative study based on the Patient and Family Centered Care Model. Families of children undergoing treatment at a referral institution in pediatric oncology participated. Qualitative content analysis guided the data collection and analysis. Results: The strength of information on retinoblastoma for the family of these children reveals the value the family assigns to the information about the child's illness during a time of intense suffering |
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Repositório Institucional da UNIFESP |
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3465 |
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The strength of information on retinoblastoma for the family of the childRetinoblastomaNeoplasmsChildFamilyHealth communicationInformationObjective: To understand the need for information from the family members of children with retinoblastoma. Methods: A qualitative study based on the Patient and Family Centered Care Model. Families of children undergoing treatment at a referral institution in pediatric oncology participated. Qualitative content analysis guided the data collection and analysis. Results: The strength of information on retinoblastoma for the family of these children reveals the value the family assigns to the information about the child's illness during a time of intense sufferingthe paths they take to obtain the informationand, the elements considered to be essential to feel fulfilled in their own right. Conclusion: Provision of information that respects the family's time is essentialit must be honest, and contemplate future perspectives for the child, in a dialogical space. Thus, a practice based on the Patient and Family Centered Care Model is promoted.Univ Fed Sao Paulo, Escola Paulista Enfermagem, Sao Paulo, SP, BrazilUniv Fed Sao Paulo, Escola Paulista Enfermagem, Sao Paulo, SP, BrazilWeb of ScienceUniv Fed Sao Paulo, Dept Enfermagen2020-07-08T13:09:55Z2020-07-08T13:09:55Z2018info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersion87-94application/pdfhttp://dx.doi.org/10.1590/1982-0194201800013Acta Paulista De Enfermagem. Sao Paulo, v. 31, n. 1, p. 87-94, 2018.10.1590/1982-0194201800013S0103-21002018000100087.pdf0103-2100S0103-21002018000100087https://repositorio.unifesp.br/handle/11600/54298WOS:000432486500013engActa Paulista De EnfermagemSao Pauloinfo:eu-repo/semantics/openAccessAmador, Daniela Doulavince [UNIFESP]Marcilio, Ana Carolina [UNIFESP]Souza Soares, Juliana dos Santos [UNIFESP]Baptista Marques, Fernanda Ribeiro [UNIFESP]Duarte, Adriana Maria [UNIFESP]Mandetta, Myriam Aparecida [UNIFESP]reponame:Repositório Institucional da UNIFESPinstname:Universidade Federal de São Paulo (UNIFESP)instacron:UNIFESP2024-08-08T18:21:58Zoai:repositorio.unifesp.br/:11600/54298Repositório InstitucionalPUBhttp://www.repositorio.unifesp.br/oai/requestbiblioteca.csp@unifesp.bropendoar:34652024-08-08T18:21:58Repositório Institucional da UNIFESP - Universidade Federal de São Paulo (UNIFESP)false |
| dc.title.none.fl_str_mv |
The strength of information on retinoblastoma for the family of the child |
| title |
The strength of information on retinoblastoma for the family of the child |
| spellingShingle |
The strength of information on retinoblastoma for the family of the child Amador, Daniela Doulavince [UNIFESP] Retinoblastoma Neoplasms Child Family Health communication Information |
| title_short |
The strength of information on retinoblastoma for the family of the child |
| title_full |
The strength of information on retinoblastoma for the family of the child |
| title_fullStr |
The strength of information on retinoblastoma for the family of the child |
| title_full_unstemmed |
The strength of information on retinoblastoma for the family of the child |
| title_sort |
The strength of information on retinoblastoma for the family of the child |
| author |
Amador, Daniela Doulavince [UNIFESP] |
| author_facet |
Amador, Daniela Doulavince [UNIFESP] Marcilio, Ana Carolina [UNIFESP] Souza Soares, Juliana dos Santos [UNIFESP] Baptista Marques, Fernanda Ribeiro [UNIFESP] Duarte, Adriana Maria [UNIFESP] Mandetta, Myriam Aparecida [UNIFESP] |
| author_role |
author |
| author2 |
Marcilio, Ana Carolina [UNIFESP] Souza Soares, Juliana dos Santos [UNIFESP] Baptista Marques, Fernanda Ribeiro [UNIFESP] Duarte, Adriana Maria [UNIFESP] Mandetta, Myriam Aparecida [UNIFESP] |
| author2_role |
author author author author author |
| dc.contributor.author.fl_str_mv |
Amador, Daniela Doulavince [UNIFESP] Marcilio, Ana Carolina [UNIFESP] Souza Soares, Juliana dos Santos [UNIFESP] Baptista Marques, Fernanda Ribeiro [UNIFESP] Duarte, Adriana Maria [UNIFESP] Mandetta, Myriam Aparecida [UNIFESP] |
| dc.subject.por.fl_str_mv |
Retinoblastoma Neoplasms Child Family Health communication Information |
| topic |
Retinoblastoma Neoplasms Child Family Health communication Information |
| description |
Objective: To understand the need for information from the family members of children with retinoblastoma. Methods: A qualitative study based on the Patient and Family Centered Care Model. Families of children undergoing treatment at a referral institution in pediatric oncology participated. Qualitative content analysis guided the data collection and analysis. Results: The strength of information on retinoblastoma for the family of these children reveals the value the family assigns to the information about the child's illness during a time of intense suffering |
| publishDate |
2018 |
| dc.date.none.fl_str_mv |
2018 2020-07-08T13:09:55Z 2020-07-08T13:09:55Z |
| dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
| dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
| format |
article |
| status_str |
publishedVersion |
| dc.identifier.uri.fl_str_mv |
http://dx.doi.org/10.1590/1982-0194201800013 Acta Paulista De Enfermagem. Sao Paulo, v. 31, n. 1, p. 87-94, 2018. 10.1590/1982-0194201800013 S0103-21002018000100087.pdf 0103-2100 S0103-21002018000100087 https://repositorio.unifesp.br/handle/11600/54298 WOS:000432486500013 |
| url |
http://dx.doi.org/10.1590/1982-0194201800013 https://repositorio.unifesp.br/handle/11600/54298 |
| identifier_str_mv |
Acta Paulista De Enfermagem. Sao Paulo, v. 31, n. 1, p. 87-94, 2018. 10.1590/1982-0194201800013 S0103-21002018000100087.pdf 0103-2100 S0103-21002018000100087 WOS:000432486500013 |
| dc.language.iso.fl_str_mv |
eng |
| language |
eng |
| dc.relation.none.fl_str_mv |
Acta Paulista De Enfermagem |
| dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
| eu_rights_str_mv |
openAccess |
| dc.format.none.fl_str_mv |
87-94 application/pdf |
| dc.coverage.none.fl_str_mv |
Sao Paulo |
| dc.publisher.none.fl_str_mv |
Univ Fed Sao Paulo, Dept Enfermagen |
| publisher.none.fl_str_mv |
Univ Fed Sao Paulo, Dept Enfermagen |
| dc.source.none.fl_str_mv |
reponame:Repositório Institucional da UNIFESP instname:Universidade Federal de São Paulo (UNIFESP) instacron:UNIFESP |
| instname_str |
Universidade Federal de São Paulo (UNIFESP) |
| instacron_str |
UNIFESP |
| institution |
UNIFESP |
| reponame_str |
Repositório Institucional da UNIFESP |
| collection |
Repositório Institucional da UNIFESP |
| repository.name.fl_str_mv |
Repositório Institucional da UNIFESP - Universidade Federal de São Paulo (UNIFESP) |
| repository.mail.fl_str_mv |
biblioteca.csp@unifesp.br |
| _version_ |
1814268366559379456 |