The Standardization of Uveitis Nomenclature (SUN) Project Development of a Clinical Evidence Base Utilizing Informatics Tools and Techniques
Autor(a) principal: | |
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Data de Publicação: | 2013 |
Outros Autores: | , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Institucional da UNIFESP |
Texto Completo: | http://repositorio.unifesp.br/handle/11600/35741 http://dx.doi.org/10.3414/ME12-01-0063 |
Resumo: | Background: Given the recent increased focus on evidence-based medicine, it is critical that diseases and syndromes have accurate and complete descriptions, including standardized and widely accepted terminologies. Standardizing these descriptions and terminologies is necessary to develop tools such as computerized data entry forms and classification criteria. This need is especially true for diseases that are relatively uncommon, such as uveitis.Objectives: To develop a standardized and internationally accepted terminology for the field of uveitis.Methods: the Standardization of Uveitis Nomenclature (SUN) Working Group (WG) is an international group of 79 uveitis experts from 18 countries and 62 clinical centers. Initial terminology was developed utilizing a modified green field approach, which was enhanced through web-based surveys and teleconferences via a modified Delphi technique. Terms were mapped provisionally into ontologic dimensions for each syndrome. the Working Group then met and utilized nominal group techniques as a formalized method of finalizing the mappings.Results: Mapping of terms into dimensions to describe 28 major uveitic diseases was confirmed using nominal group techniques (achieving super-majority consensus) for each of the diseases at a meeting of the entire WG.Conclusions: the SUN WG utilized an informatics-based approach to develop a standardized and internationally accepted terminology for the uveitides. |
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Trusko, B.Thorne, J.Jabs, D.Belfort, R. [UNIFESP]Dick, A.Gangaputra, S.Nussenblatt, R.Okada, A.Rosenbaum, J.Standardization Uveitis NomenclatuMt Sinai Sch MedJohns Hopkins UnivUniversidade Federal de São Paulo (UNIFESP)Univ BristolUniv WisconsinNEIKyorin Eye CtrOregon Hlth & Sci Univ2016-01-24T14:30:57Z2016-01-24T14:30:57Z2013-01-01Methods of Information in Medicine. Stuttgart: Schattauer Gmbh-verlag Medizin Naturwissenschaften, v. 52, n. 3, p. 259-265, 2013.0026-1270http://repositorio.unifesp.br/handle/11600/35741http://dx.doi.org/10.3414/ME12-01-006310.3414/ME12-01-0063WOS:000319711200009Background: Given the recent increased focus on evidence-based medicine, it is critical that diseases and syndromes have accurate and complete descriptions, including standardized and widely accepted terminologies. Standardizing these descriptions and terminologies is necessary to develop tools such as computerized data entry forms and classification criteria. This need is especially true for diseases that are relatively uncommon, such as uveitis.Objectives: To develop a standardized and internationally accepted terminology for the field of uveitis.Methods: the Standardization of Uveitis Nomenclature (SUN) Working Group (WG) is an international group of 79 uveitis experts from 18 countries and 62 clinical centers. Initial terminology was developed utilizing a modified green field approach, which was enhanced through web-based surveys and teleconferences via a modified Delphi technique. Terms were mapped provisionally into ontologic dimensions for each syndrome. the Working Group then met and utilized nominal group techniques as a formalized method of finalizing the mappings.Results: Mapping of terms into dimensions to describe 28 major uveitic diseases was confirmed using nominal group techniques (achieving super-majority consensus) for each of the diseases at a meeting of the entire WG.Conclusions: the SUN WG utilized an informatics-based approach to develop a standardized and internationally accepted terminology for the uveitides.Mt Sinai Sch Med, New York, NY 10029 USAJohns Hopkins Univ, Sch Med, Baltimore, MD USAUniversidade Federal de São Paulo, Dept Ophthalmol, São Paulo, BrazilUniv Bristol, Bristol, Avon, EnglandUniv Wisconsin, Madison, WI USANEI, NIH, Bethesda, MD 20892 USAKyorin Eye Ctr, Tokyo, JapanOregon Hlth & Sci Univ, Portland, OR 97201 USAUniversidade Federal de São Paulo, Dept Ophthalmol, São Paulo, BrazilWeb of Science259-265engSchattauer Gmbh-verlag Medizin NaturwissenschaftenMethods of Information in MedicineClassification criteriauveitisDelphi techniquenominal group techniquesstandardized terminologyThe Standardization of Uveitis Nomenclature (SUN) Project Development of a Clinical Evidence Base Utilizing Informatics Tools and Techniquesinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleinfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UNIFESPinstname:Universidade Federal de São Paulo (UNIFESP)instacron:UNIFESP11600/357412022-06-02 09:05:57.043metadata only accessoai:repositorio.unifesp.br:11600/35741Repositório InstitucionalPUBhttp://www.repositorio.unifesp.br/oai/requestopendoar:34652022-06-02T12:05:57Repositório Institucional da UNIFESP - Universidade Federal de São Paulo (UNIFESP)false |
dc.title.en.fl_str_mv |
The Standardization of Uveitis Nomenclature (SUN) Project Development of a Clinical Evidence Base Utilizing Informatics Tools and Techniques |
title |
The Standardization of Uveitis Nomenclature (SUN) Project Development of a Clinical Evidence Base Utilizing Informatics Tools and Techniques |
spellingShingle |
The Standardization of Uveitis Nomenclature (SUN) Project Development of a Clinical Evidence Base Utilizing Informatics Tools and Techniques Trusko, B. Classification criteria uveitis Delphi technique nominal group techniques standardized terminology |
title_short |
The Standardization of Uveitis Nomenclature (SUN) Project Development of a Clinical Evidence Base Utilizing Informatics Tools and Techniques |
title_full |
The Standardization of Uveitis Nomenclature (SUN) Project Development of a Clinical Evidence Base Utilizing Informatics Tools and Techniques |
title_fullStr |
The Standardization of Uveitis Nomenclature (SUN) Project Development of a Clinical Evidence Base Utilizing Informatics Tools and Techniques |
title_full_unstemmed |
The Standardization of Uveitis Nomenclature (SUN) Project Development of a Clinical Evidence Base Utilizing Informatics Tools and Techniques |
title_sort |
The Standardization of Uveitis Nomenclature (SUN) Project Development of a Clinical Evidence Base Utilizing Informatics Tools and Techniques |
author |
Trusko, B. |
author_facet |
Trusko, B. Thorne, J. Jabs, D. Belfort, R. [UNIFESP] Dick, A. Gangaputra, S. Nussenblatt, R. Okada, A. Rosenbaum, J. Standardization Uveitis Nomenclatu |
author_role |
author |
author2 |
Thorne, J. Jabs, D. Belfort, R. [UNIFESP] Dick, A. Gangaputra, S. Nussenblatt, R. Okada, A. Rosenbaum, J. Standardization Uveitis Nomenclatu |
author2_role |
author author author author author author author author author |
dc.contributor.institution.none.fl_str_mv |
Mt Sinai Sch Med Johns Hopkins Univ Universidade Federal de São Paulo (UNIFESP) Univ Bristol Univ Wisconsin NEI Kyorin Eye Ctr Oregon Hlth & Sci Univ |
dc.contributor.author.fl_str_mv |
Trusko, B. Thorne, J. Jabs, D. Belfort, R. [UNIFESP] Dick, A. Gangaputra, S. Nussenblatt, R. Okada, A. Rosenbaum, J. Standardization Uveitis Nomenclatu |
dc.subject.eng.fl_str_mv |
Classification criteria uveitis Delphi technique nominal group techniques standardized terminology |
topic |
Classification criteria uveitis Delphi technique nominal group techniques standardized terminology |
description |
Background: Given the recent increased focus on evidence-based medicine, it is critical that diseases and syndromes have accurate and complete descriptions, including standardized and widely accepted terminologies. Standardizing these descriptions and terminologies is necessary to develop tools such as computerized data entry forms and classification criteria. This need is especially true for diseases that are relatively uncommon, such as uveitis.Objectives: To develop a standardized and internationally accepted terminology for the field of uveitis.Methods: the Standardization of Uveitis Nomenclature (SUN) Working Group (WG) is an international group of 79 uveitis experts from 18 countries and 62 clinical centers. Initial terminology was developed utilizing a modified green field approach, which was enhanced through web-based surveys and teleconferences via a modified Delphi technique. Terms were mapped provisionally into ontologic dimensions for each syndrome. the Working Group then met and utilized nominal group techniques as a formalized method of finalizing the mappings.Results: Mapping of terms into dimensions to describe 28 major uveitic diseases was confirmed using nominal group techniques (achieving super-majority consensus) for each of the diseases at a meeting of the entire WG.Conclusions: the SUN WG utilized an informatics-based approach to develop a standardized and internationally accepted terminology for the uveitides. |
publishDate |
2013 |
dc.date.issued.fl_str_mv |
2013-01-01 |
dc.date.accessioned.fl_str_mv |
2016-01-24T14:30:57Z |
dc.date.available.fl_str_mv |
2016-01-24T14:30:57Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.citation.fl_str_mv |
Methods of Information in Medicine. Stuttgart: Schattauer Gmbh-verlag Medizin Naturwissenschaften, v. 52, n. 3, p. 259-265, 2013. |
dc.identifier.uri.fl_str_mv |
http://repositorio.unifesp.br/handle/11600/35741 http://dx.doi.org/10.3414/ME12-01-0063 |
dc.identifier.issn.none.fl_str_mv |
0026-1270 |
dc.identifier.doi.none.fl_str_mv |
10.3414/ME12-01-0063 |
dc.identifier.wos.none.fl_str_mv |
WOS:000319711200009 |
identifier_str_mv |
Methods of Information in Medicine. Stuttgart: Schattauer Gmbh-verlag Medizin Naturwissenschaften, v. 52, n. 3, p. 259-265, 2013. 0026-1270 10.3414/ME12-01-0063 WOS:000319711200009 |
url |
http://repositorio.unifesp.br/handle/11600/35741 http://dx.doi.org/10.3414/ME12-01-0063 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.ispartof.none.fl_str_mv |
Methods of Information in Medicine |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
259-265 |
dc.publisher.none.fl_str_mv |
Schattauer Gmbh-verlag Medizin Naturwissenschaften |
publisher.none.fl_str_mv |
Schattauer Gmbh-verlag Medizin Naturwissenschaften |
dc.source.none.fl_str_mv |
reponame:Repositório Institucional da UNIFESP instname:Universidade Federal de São Paulo (UNIFESP) instacron:UNIFESP |
instname_str |
Universidade Federal de São Paulo (UNIFESP) |
instacron_str |
UNIFESP |
institution |
UNIFESP |
reponame_str |
Repositório Institucional da UNIFESP |
collection |
Repositório Institucional da UNIFESP |
repository.name.fl_str_mv |
Repositório Institucional da UNIFESP - Universidade Federal de São Paulo (UNIFESP) |
repository.mail.fl_str_mv |
|
_version_ |
1802764129559117824 |