Tempo, corpo e interações face a face: corporeidades de crianças com doenças crônicas neurológicas. Uma etnografia entre o hospital e a escola.

• Autor(a) principal: Marques, Mariana Pasqual [UNIFESP]
• Data de Publicação: 2019
• Tipo de documento: Tese
• Idioma: por
• Título da fonte: Repositório Institucional da UNIFESP
• dARK ID: ark:/48912/0013000019psx
• Texto Completo: https://sucupira.capes.gov.br/sucupira/public/consultas/coleta/trabalhoConclusao/viewTrabalhoConclusao.jsf?popup=true&id_trabalho=9018404; https://repositorio.unifesp.br/handle/11600/59457
• topic: Corporality; Child; Chronic Disease; Vulnerabilities; Ethnography; Education; Corporalidade; Criança; Doença Crônica; Vulnerabilidades; Etnografia. Educação.

This thesis investigated the logic that transforms certain singularities of the body of children with chronic neurological diseases into social vulnerabilities or sufferings. The ethnographic research was conducted between 2016 and 2017 at the pediatric neurology clinic of Hospital das Clinicas, in the city of São Paulo, and in a public school of early childhood education in the city of Embu das Artes, in the metropolitan region of São Paulo. The field work was organized from experimental tables with a fixed transverse column (scenarios). This form of organizing, articulating and analyzing the ethnographic findings resulted from the encounter with the work “Practical Reasons - On the Theory of Action” of Pierre Bourdieu (1996). From the tables, the field research was articulated with the main theoretical references of this research: the interactionist literature of Erving Goffman (2012, 1981); the current debate on body and corporality, above all from Thomaz Csordas (2015); the readings that he and Loic Wacquan (2006, 2007) make of Pierre Bordieu (1983, 1996, 1998) and the notion of time constructed by Norbert Elias (1998). This articulation provided critical arguments regarding the naturalization of the logics of analysis and intervention that predominate in the experience of children with reduced mobility. This thesis integrates the set of research of LAEVI - Laboratory of Educational Anthropology and Infantile Vulnerabilities of Unifesp Guarulhos, and reaffirms the importance of studies of everyday life, of looking "inside" institutions - spaces and times in which the interactions constructed, lived and linked by symbolic networks and sociability, conform identities and their possibilities to exist. In the end, the research reaffirmed that the logic that produces vulnerabilities and social suffering in children with chronic neurological diseases and in their families, especially women-mothers, is binary, practical, linear, dualistic, adult-centric and the perpetuator of gender inequalities.