Barriers to early identification of autism in Brazil

Detalhes bibliográficos
Autor(a) principal: Ribeiro, Sabrina H. [UNIFESP]
Data de Publicação: 2017
Outros Autores: de Paula, Cristiane S. [UNIFESP], Bordini, Daniela [UNIFESP], Mari, Jair J. [UNIFESP], Caetano, Sheila C. [UNIFESP]
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Institucional da UNIFESP
Texto Completo: http://dx.doi.org/10.1590/1516-4446-2016-2141
https://repositorio.unifesp.br/handle/11600/57228
Resumo: Objective: Parents of children with autism spectrum disorders (ASD) seem to perceive that their child's development is not following the normal pattern as early as the first year of life. However, ASD children may not receive a diagnosis until they are of preschool age, especially in low- and middle-income countries. The objective of this study was to evaluate the pathway between initial parental concerns about atypical child development and ASD diagnosis in Brazil. Methods: Nineteen mothers whose children had been diagnosed with ASD participated and were interviewed. The ASD group consisted of two girls and 17 boys, with a mean age of 93.0 months (SD 48.4 months
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spelling Barriers to early identification of autism in BrazilAutism spectrum disorderparental identificationdelayed diagnosislow-and middle-income countriesObjective: Parents of children with autism spectrum disorders (ASD) seem to perceive that their child's development is not following the normal pattern as early as the first year of life. However, ASD children may not receive a diagnosis until they are of preschool age, especially in low- and middle-income countries. The objective of this study was to evaluate the pathway between initial parental concerns about atypical child development and ASD diagnosis in Brazil. Methods: Nineteen mothers whose children had been diagnosed with ASD participated and were interviewed. The ASD group consisted of two girls and 17 boys, with a mean age of 93.0 months (SD 48.4 monthsrange 39-197 months). Results: Mothers had their first concerns regarding ASD when children were 23.6 +/- 11.6 months old, but formal diagnosis occurred at a mean +/- SD age of 59.6 +/- 40.5 months, corresponding to a 3-year delay. Most mothers felt discouraged to address their concerns due to negative experiences with health professionals. Conclusion: In Brazil, mothers perceived the first signs of ASD in their children at an age similar to that reported in other countries, but the diagnosis of ASD seemed to be delayed. Consistent with the literature, mothers reported negative experiences with health professionals during the pathway to achieving ASD diagnosis.Univ Fed Sao Paulo UNIFESP, Dept Psiquiatria, Ambulatorio Cognicao Social Marcos Tomanik Mercad, Sao Paulo, SP, BrazilUniv Presbiteriana Mackenzie, Programa Posgrad Disturbios Desenvolvimento, Sao Paulo, SP, BrazilUniv Fed Sao Paulo UNIFESP, Dept Psiquiatria, Ambulatorio Cognicao Social Marcos Tomanik Mercad, Sao Paulo, SP, BrazilWeb of ScienceCoordenacao de Aperfeicoamento de Pessoal de Nivel Superior (CAPES)Assoc Brasileira Psiquiatria2020-08-04T13:40:00Z2020-08-04T13:40:00Z2017info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersion352-354application/pdfhttp://dx.doi.org/10.1590/1516-4446-2016-2141Revista Brasileira De Psiquiatria. Sao Paulo, v. 39, n. 4, p. 352-354, 2017.10.1590/1516-4446-2016-2141S1516-44462017000400352.pdf1516-4446S1516-44462017000400352https://repositorio.unifesp.br/handle/11600/57228WOS:000415387500014engRevista Brasileira De PsiquiatriaSao Pauloinfo:eu-repo/semantics/openAccessRibeiro, Sabrina H. [UNIFESP]de Paula, Cristiane S. [UNIFESP]Bordini, Daniela [UNIFESP]Mari, Jair J. [UNIFESP]Caetano, Sheila C. [UNIFESP]reponame:Repositório Institucional da UNIFESPinstname:Universidade Federal de São Paulo (UNIFESP)instacron:UNIFESP2024-08-05T20:45:05Zoai:repositorio.unifesp.br/:11600/57228Repositório InstitucionalPUBhttp://www.repositorio.unifesp.br/oai/requestbiblioteca.csp@unifesp.bropendoar:34652024-08-05T20:45:05Repositório Institucional da UNIFESP - Universidade Federal de São Paulo (UNIFESP)false
dc.title.none.fl_str_mv Barriers to early identification of autism in Brazil
title Barriers to early identification of autism in Brazil
spellingShingle Barriers to early identification of autism in Brazil
Ribeiro, Sabrina H. [UNIFESP]
Autism spectrum disorder
parental identification
delayed diagnosis
low-and middle-income countries
title_short Barriers to early identification of autism in Brazil
title_full Barriers to early identification of autism in Brazil
title_fullStr Barriers to early identification of autism in Brazil
title_full_unstemmed Barriers to early identification of autism in Brazil
title_sort Barriers to early identification of autism in Brazil
author Ribeiro, Sabrina H. [UNIFESP]
author_facet Ribeiro, Sabrina H. [UNIFESP]
de Paula, Cristiane S. [UNIFESP]
Bordini, Daniela [UNIFESP]
Mari, Jair J. [UNIFESP]
Caetano, Sheila C. [UNIFESP]
author_role author
author2 de Paula, Cristiane S. [UNIFESP]
Bordini, Daniela [UNIFESP]
Mari, Jair J. [UNIFESP]
Caetano, Sheila C. [UNIFESP]
author2_role author
author
author
author
dc.contributor.author.fl_str_mv Ribeiro, Sabrina H. [UNIFESP]
de Paula, Cristiane S. [UNIFESP]
Bordini, Daniela [UNIFESP]
Mari, Jair J. [UNIFESP]
Caetano, Sheila C. [UNIFESP]
dc.subject.por.fl_str_mv Autism spectrum disorder
parental identification
delayed diagnosis
low-and middle-income countries
topic Autism spectrum disorder
parental identification
delayed diagnosis
low-and middle-income countries
description Objective: Parents of children with autism spectrum disorders (ASD) seem to perceive that their child's development is not following the normal pattern as early as the first year of life. However, ASD children may not receive a diagnosis until they are of preschool age, especially in low- and middle-income countries. The objective of this study was to evaluate the pathway between initial parental concerns about atypical child development and ASD diagnosis in Brazil. Methods: Nineteen mothers whose children had been diagnosed with ASD participated and were interviewed. The ASD group consisted of two girls and 17 boys, with a mean age of 93.0 months (SD 48.4 months
publishDate 2017
dc.date.none.fl_str_mv 2017
2020-08-04T13:40:00Z
2020-08-04T13:40:00Z
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://dx.doi.org/10.1590/1516-4446-2016-2141
Revista Brasileira De Psiquiatria. Sao Paulo, v. 39, n. 4, p. 352-354, 2017.
10.1590/1516-4446-2016-2141
S1516-44462017000400352.pdf
1516-4446
S1516-44462017000400352
https://repositorio.unifesp.br/handle/11600/57228
WOS:000415387500014
url http://dx.doi.org/10.1590/1516-4446-2016-2141
https://repositorio.unifesp.br/handle/11600/57228
identifier_str_mv Revista Brasileira De Psiquiatria. Sao Paulo, v. 39, n. 4, p. 352-354, 2017.
10.1590/1516-4446-2016-2141
S1516-44462017000400352.pdf
1516-4446
S1516-44462017000400352
WOS:000415387500014
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv Revista Brasileira De Psiquiatria
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv 352-354
application/pdf
dc.coverage.none.fl_str_mv Sao Paulo
dc.publisher.none.fl_str_mv Assoc Brasileira Psiquiatria
publisher.none.fl_str_mv Assoc Brasileira Psiquiatria
dc.source.none.fl_str_mv reponame:Repositório Institucional da UNIFESP
instname:Universidade Federal de São Paulo (UNIFESP)
instacron:UNIFESP
instname_str Universidade Federal de São Paulo (UNIFESP)
instacron_str UNIFESP
institution UNIFESP
reponame_str Repositório Institucional da UNIFESP
collection Repositório Institucional da UNIFESP
repository.name.fl_str_mv Repositório Institucional da UNIFESP - Universidade Federal de São Paulo (UNIFESP)
repository.mail.fl_str_mv biblioteca.csp@unifesp.br
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