Assessment of fatigue and dryness in primary Sjogren's syndrome: Brazilian version of Profile of Fatigue and Discomfort - Sicca Symptoms Inventory (short form) (PROFAD-SSI-SF)
Autor(a) principal: | |
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Data de Publicação: | 2015 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | por eng |
Título da fonte: | Repositório Institucional da UNIFESP |
Texto Completo: | http://dx.doi.org/10.1016/j.rbr.2014.10.002 http://repositorio.unifesp.br/handle/11600/38787 |
Resumo: | Objective: To perform a cross-cultural adaptation and validation of the Profile of Fatigue and Discomfort - Sicca Symptoms Inventory (short form) (PROFAD-SSI-SF) questionnaire assessing the subjective aspects of the symptoms of primary Sjogren syndrome (pSS), for the Brazilian Portuguese language.Method: Conceptual, of the item, semantic and operational equivalences were evaluated. the Brazilian version of PROFAD-SSI-SF was administered to 62 women with pSS according to the European-American consensus 2002 to assess measurement equivalence. alpha-Cronbach was used for internal consistency; intraclass correlation coefficient (ICC) for intraobserver reproducibility; and Spearman correlation coefficient for validity by comparing with Patient Global Assessment (PaGA), EULAR Sjogren's Syndrome Patient Reported Index (ESSPRI), Functional Assessment of Chronic Illness Therapy Fatigue Subscale (FACIT-F) and EuroQOL (EQ-5D).Results: the internal consistency of PROFAD, SSI and total score was 0.80; 0.78; and 0.87, respectively. the intraobserver reproducibility of total PROFAD was 0.89; of total SSI of 0.86; and total score of 0.89. in terms of validity, PROFAD correlated significantly with PaGA (r = 0.50), FACIT-F (r = 0.59), ESSPRI (r = 0.58) and all domains of EQ-5D, with the exception of Mobility. On the other hand, SSI correlated significantly with PaGA (r = 0.43), FACIT-F (r = 0.57), ESSPRI (r = 0.55) and most areas of EQ-5D. the total score of PROFAD-SSI-SF had a non-statistically significant correlation only with Mobility domain and with 1-100 range of EQ-5D.Conclusion: the Portuguese version of PROFAD-SSI-SF proved to be an adaptable, reproducible and valid tool for the Brazilian Portuguese language. (C) 2014 Elsevier Editora Ltda. All rights reserved. |
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Assessment of fatigue and dryness in primary Sjogren's syndrome: Brazilian version of Profile of Fatigue and Discomfort - Sicca Symptoms Inventory (short form) (PROFAD-SSI-SF)Avaliação da fadiga e da secura na síndrome de Sjögren primária: versão brasileira do “Profile of Fatigue and Discomfort – Sicca Symptoms Inventory (short form) (Profad-SSI-SF)”Sjogren's syndromeQuestionnaireValidation studyEvaluationPROFAD-SSI-SFSíndrome de SjögrenQuestionárioEstudo de validaçãoAvaliaçãoProfad-SSI-SFObjective: To perform a cross-cultural adaptation and validation of the Profile of Fatigue and Discomfort - Sicca Symptoms Inventory (short form) (PROFAD-SSI-SF) questionnaire assessing the subjective aspects of the symptoms of primary Sjogren syndrome (pSS), for the Brazilian Portuguese language.Method: Conceptual, of the item, semantic and operational equivalences were evaluated. the Brazilian version of PROFAD-SSI-SF was administered to 62 women with pSS according to the European-American consensus 2002 to assess measurement equivalence. alpha-Cronbach was used for internal consistency; intraclass correlation coefficient (ICC) for intraobserver reproducibility; and Spearman correlation coefficient for validity by comparing with Patient Global Assessment (PaGA), EULAR Sjogren's Syndrome Patient Reported Index (ESSPRI), Functional Assessment of Chronic Illness Therapy Fatigue Subscale (FACIT-F) and EuroQOL (EQ-5D).Results: the internal consistency of PROFAD, SSI and total score was 0.80; 0.78; and 0.87, respectively. the intraobserver reproducibility of total PROFAD was 0.89; of total SSI of 0.86; and total score of 0.89. in terms of validity, PROFAD correlated significantly with PaGA (r = 0.50), FACIT-F (r = 0.59), ESSPRI (r = 0.58) and all domains of EQ-5D, with the exception of Mobility. On the other hand, SSI correlated significantly with PaGA (r = 0.43), FACIT-F (r = 0.57), ESSPRI (r = 0.55) and most areas of EQ-5D. the total score of PROFAD-SSI-SF had a non-statistically significant correlation only with Mobility domain and with 1-100 range of EQ-5D.Conclusion: the Portuguese version of PROFAD-SSI-SF proved to be an adaptable, reproducible and valid tool for the Brazilian Portuguese language. (C) 2014 Elsevier Editora Ltda. All rights reserved.Objetivo: Fazer a adaptação transcultural e a validação do Profile of Fatigue and Discomfort – Sicca Symptoms Inventory (short form) (Profad-SSI-SF), questionário que avalia os aspectos subjetivos dos sintomas da síndrome de Sjögren primária (SSp), para a língua portuguesa brasileira. Método: Foi avaliada a equivalência conceitual, de item, semântica e operacional. A versão brasileira do Profad-SSI-SF foi aplicada a 62 mulheres com SSp conforme consenso europeu-americano de 2002 para avaliar a equivalência de mensuração. Foi usado o α-Cronbach para consistência interna; coeficiente de correlação intraclasse (ICC) para reprodutibilidade intraobservador; e coeficiente de correlação de Spearman para validade em comparação com o Patient Global Assessment (PaGA), Eular Sjögren’s Syndrome Patient Reported Index (ESS-PRI), Functional Assessment of Chronic Illness Therapy Fatigue Subscale (Facit-F) e EuroQOL(EQ-5D). Resultados: A consistência interna do Profad, do SSI e da pontuação total foi de 0,80, 0,78 e 0,87, respectivamente. A reprodutibilidade intraobservador do Profad total foi de 0,89; do SSI total de 0,86 e da pontuação total de 0,89. Na validade, o Profad apresentou correlação significativa com o PaGA (r = 0,50), Facit-F (r = 0,59), Esspri (r = 0,58) e todos os domínios do EQ-5D, com exceção da mobilidade. Já o SSI apresentou correlação significativa com o PaGA (r = 0,43), Facit-F (r = 0,57), Esspri (r = 0,55) e a maioria dos domínios do EQ-5D. A pontuação total do Profad-SSI-SF só não obteve correlação estatisticamente significante com o domínio mobilidade e escala 1 a 100 do EQ-D5.Universidade Federal de São Paulo, Escola Paulista Med, São Paulo, SP, BrazilUniv Fed Espirito Santo, Vitoria, ES, BrazilUniv Vila Velha, Vila Velha, ES, BrazilEscola Super Ciencias, Vitoria, ES, BrazilUniversidade Federal de São Paulo, Escola Paulista Med, São Paulo, SP, BrazilWeb of ScienceElsevier B.V.Universidade Federal de São Paulo (UNIFESP)Univ Fed Espirito SantoUniv Vila VelhaEscola Super CienciasMiyamoto, Samira Tatiyama [UNIFESP]Paganotti, Mauricio AquinoSerrano, Erica VieiraGiovelli, Raquel AltoéValim, Valeria [UNIFESP]2016-01-24T14:40:06Z2016-01-24T14:40:06Z2015-03-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersion113-122application/pdfapplication/pdfhttp://dx.doi.org/10.1016/j.rbr.2014.10.002Revista Brasileira de Reumatologia. New York: Elsevier B.V., v. 55, n. 2, p. 113-122, 2015.10.1016/j.rbr.2014.10.002S0482-50042015000200113-en.pdfS0482-50042015000200113-pt.pdf0482-5004S0482-50042015000200113http://repositorio.unifesp.br/handle/11600/38787WOS:000352510000003porengRevista Brasileira de Reumatologiainfo:eu-repo/semantics/openAccesshttp://www.elsevier.com/about/open-access/open-access-policies/article-posting-policyreponame:Repositório Institucional da UNIFESPinstname:Universidade Federal de São Paulo (UNIFESP)instacron:UNIFESP2024-08-08T20:17:59Zoai:repositorio.unifesp.br/:11600/38787Repositório InstitucionalPUBhttp://www.repositorio.unifesp.br/oai/requestbiblioteca.csp@unifesp.bropendoar:34652024-08-08T20:17:59Repositório Institucional da UNIFESP - Universidade Federal de São Paulo (UNIFESP)false |
dc.title.none.fl_str_mv |
Assessment of fatigue and dryness in primary Sjogren's syndrome: Brazilian version of Profile of Fatigue and Discomfort - Sicca Symptoms Inventory (short form) (PROFAD-SSI-SF) Avaliação da fadiga e da secura na síndrome de Sjögren primária: versão brasileira do “Profile of Fatigue and Discomfort – Sicca Symptoms Inventory (short form) (Profad-SSI-SF)” |
title |
Assessment of fatigue and dryness in primary Sjogren's syndrome: Brazilian version of Profile of Fatigue and Discomfort - Sicca Symptoms Inventory (short form) (PROFAD-SSI-SF) |
spellingShingle |
Assessment of fatigue and dryness in primary Sjogren's syndrome: Brazilian version of Profile of Fatigue and Discomfort - Sicca Symptoms Inventory (short form) (PROFAD-SSI-SF) Miyamoto, Samira Tatiyama [UNIFESP] Sjogren's syndrome Questionnaire Validation study Evaluation PROFAD-SSI-SF Síndrome de Sjögren Questionário Estudo de validação Avaliação Profad-SSI-SF |
title_short |
Assessment of fatigue and dryness in primary Sjogren's syndrome: Brazilian version of Profile of Fatigue and Discomfort - Sicca Symptoms Inventory (short form) (PROFAD-SSI-SF) |
title_full |
Assessment of fatigue and dryness in primary Sjogren's syndrome: Brazilian version of Profile of Fatigue and Discomfort - Sicca Symptoms Inventory (short form) (PROFAD-SSI-SF) |
title_fullStr |
Assessment of fatigue and dryness in primary Sjogren's syndrome: Brazilian version of Profile of Fatigue and Discomfort - Sicca Symptoms Inventory (short form) (PROFAD-SSI-SF) |
title_full_unstemmed |
Assessment of fatigue and dryness in primary Sjogren's syndrome: Brazilian version of Profile of Fatigue and Discomfort - Sicca Symptoms Inventory (short form) (PROFAD-SSI-SF) |
title_sort |
Assessment of fatigue and dryness in primary Sjogren's syndrome: Brazilian version of Profile of Fatigue and Discomfort - Sicca Symptoms Inventory (short form) (PROFAD-SSI-SF) |
author |
Miyamoto, Samira Tatiyama [UNIFESP] |
author_facet |
Miyamoto, Samira Tatiyama [UNIFESP] Paganotti, Mauricio Aquino Serrano, Erica Vieira Giovelli, Raquel Altoé Valim, Valeria [UNIFESP] |
author_role |
author |
author2 |
Paganotti, Mauricio Aquino Serrano, Erica Vieira Giovelli, Raquel Altoé Valim, Valeria [UNIFESP] |
author2_role |
author author author author |
dc.contributor.none.fl_str_mv |
Universidade Federal de São Paulo (UNIFESP) Univ Fed Espirito Santo Univ Vila Velha Escola Super Ciencias |
dc.contributor.author.fl_str_mv |
Miyamoto, Samira Tatiyama [UNIFESP] Paganotti, Mauricio Aquino Serrano, Erica Vieira Giovelli, Raquel Altoé Valim, Valeria [UNIFESP] |
dc.subject.por.fl_str_mv |
Sjogren's syndrome Questionnaire Validation study Evaluation PROFAD-SSI-SF Síndrome de Sjögren Questionário Estudo de validação Avaliação Profad-SSI-SF |
topic |
Sjogren's syndrome Questionnaire Validation study Evaluation PROFAD-SSI-SF Síndrome de Sjögren Questionário Estudo de validação Avaliação Profad-SSI-SF |
description |
Objective: To perform a cross-cultural adaptation and validation of the Profile of Fatigue and Discomfort - Sicca Symptoms Inventory (short form) (PROFAD-SSI-SF) questionnaire assessing the subjective aspects of the symptoms of primary Sjogren syndrome (pSS), for the Brazilian Portuguese language.Method: Conceptual, of the item, semantic and operational equivalences were evaluated. the Brazilian version of PROFAD-SSI-SF was administered to 62 women with pSS according to the European-American consensus 2002 to assess measurement equivalence. alpha-Cronbach was used for internal consistency; intraclass correlation coefficient (ICC) for intraobserver reproducibility; and Spearman correlation coefficient for validity by comparing with Patient Global Assessment (PaGA), EULAR Sjogren's Syndrome Patient Reported Index (ESSPRI), Functional Assessment of Chronic Illness Therapy Fatigue Subscale (FACIT-F) and EuroQOL (EQ-5D).Results: the internal consistency of PROFAD, SSI and total score was 0.80; 0.78; and 0.87, respectively. the intraobserver reproducibility of total PROFAD was 0.89; of total SSI of 0.86; and total score of 0.89. in terms of validity, PROFAD correlated significantly with PaGA (r = 0.50), FACIT-F (r = 0.59), ESSPRI (r = 0.58) and all domains of EQ-5D, with the exception of Mobility. On the other hand, SSI correlated significantly with PaGA (r = 0.43), FACIT-F (r = 0.57), ESSPRI (r = 0.55) and most areas of EQ-5D. the total score of PROFAD-SSI-SF had a non-statistically significant correlation only with Mobility domain and with 1-100 range of EQ-5D.Conclusion: the Portuguese version of PROFAD-SSI-SF proved to be an adaptable, reproducible and valid tool for the Brazilian Portuguese language. (C) 2014 Elsevier Editora Ltda. All rights reserved. |
publishDate |
2015 |
dc.date.none.fl_str_mv |
2015-03-01 2016-01-24T14:40:06Z 2016-01-24T14:40:06Z |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://dx.doi.org/10.1016/j.rbr.2014.10.002 Revista Brasileira de Reumatologia. New York: Elsevier B.V., v. 55, n. 2, p. 113-122, 2015. 10.1016/j.rbr.2014.10.002 S0482-50042015000200113-en.pdf S0482-50042015000200113-pt.pdf 0482-5004 S0482-50042015000200113 http://repositorio.unifesp.br/handle/11600/38787 WOS:000352510000003 |
url |
http://dx.doi.org/10.1016/j.rbr.2014.10.002 http://repositorio.unifesp.br/handle/11600/38787 |
identifier_str_mv |
Revista Brasileira de Reumatologia. New York: Elsevier B.V., v. 55, n. 2, p. 113-122, 2015. 10.1016/j.rbr.2014.10.002 S0482-50042015000200113-en.pdf S0482-50042015000200113-pt.pdf 0482-5004 S0482-50042015000200113 WOS:000352510000003 |
dc.language.iso.fl_str_mv |
por eng |
language |
por eng |
dc.relation.none.fl_str_mv |
Revista Brasileira de Reumatologia |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess http://www.elsevier.com/about/open-access/open-access-policies/article-posting-policy |
eu_rights_str_mv |
openAccess |
rights_invalid_str_mv |
http://www.elsevier.com/about/open-access/open-access-policies/article-posting-policy |
dc.format.none.fl_str_mv |
113-122 application/pdf application/pdf |
dc.publisher.none.fl_str_mv |
Elsevier B.V. |
publisher.none.fl_str_mv |
Elsevier B.V. |
dc.source.none.fl_str_mv |
reponame:Repositório Institucional da UNIFESP instname:Universidade Federal de São Paulo (UNIFESP) instacron:UNIFESP |
instname_str |
Universidade Federal de São Paulo (UNIFESP) |
instacron_str |
UNIFESP |
institution |
UNIFESP |
reponame_str |
Repositório Institucional da UNIFESP |
collection |
Repositório Institucional da UNIFESP |
repository.name.fl_str_mv |
Repositório Institucional da UNIFESP - Universidade Federal de São Paulo (UNIFESP) |
repository.mail.fl_str_mv |
biblioteca.csp@unifesp.br |
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1814268443167293440 |