Tradução e adaptação cultural da Pediatric Eosinophilic Esophagitis Symptom Score (PEESS v2.0)
Autor(a) principal: | |
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Data de Publicação: | 2017 |
Tipo de documento: | Dissertação |
Idioma: | por |
Título da fonte: | Repositório Institucional da UFU |
Texto Completo: | https://repositorio.ufu.br/handle/123456789/18951 http://doi.org/10.14393/ufu.di.2017.545 |
Resumo: | Introduction: Eosinophilic Esophagitis (EEo) is a clinical-pathological entity mediated by immune and antigenic mechanisms with non-specific symptoms, especially in infants and pre-school children. It represents an important cause of high gastrointestinal tract morbidity, with a significant increase in its incidence and prevalence in the last decades. Instruments that assess EEo severity have been developed to support diagnosis and treatment of this disease. Objectives: To translate and culturally adapt the Pediatric Eosinophilic Esophagitis Symptom Score (PEESS version2.0), an instrument used to assess pediatric eosinophilic esophagitis symptoms through patients’ and/or parents’ report. Methods: The PEESS was translated through the following stages: initial translation, backtranslation and consensus of independent reviewers through the Delphi technique. We applied the pre-final version of the PEESS to five eight-to-18-year-old patients and to ten parents of two-to-18-year-old patients from a outpatient Pediatric Gastroenterology service (pre-test). Results: We did not observe translations of difficult consensus or grammar inconsistencies during the translation stages. During pre-testing, we identified difficulties in comprehension of some unconventional terms, e.g., “nausea”. Adverbs of frequency, such as “almost never” were also identified as of difficult understanding by patients and parents. Such difficulties may be inherent to the pediatric age group. Eight-year-old or older children should be considered suitable for self-reporting their own symptoms. Conclusions: We have produced a Brazilian version of the Pediatric Eosinophilic Esophagitis Symptom Score (PEESS), which is adapted to the Brazilian culture. This version may be introduced as a clinical and research instrument for the assessement of patients with esophagic disease symptoms. The PEESS represents a breakthrough in the evaluation of symptoms of the pediatric eosinophilic esophagitis, since it reinforces the importance of self-report of patients who experience this disease. |
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Tradução e adaptação cultural da Pediatric Eosinophilic Esophagitis Symptom Score (PEESS v2.0)Ciências médicasEsofagite eosinofílicaGastroenterologiaTraduçõesAutorrelatoAdolescenteCriançaEosinophilic esophagitisTranslationsSelf-reporthildAdolescentCNPQ::CIENCIAS DA SAUDE::MEDICINAIntroduction: Eosinophilic Esophagitis (EEo) is a clinical-pathological entity mediated by immune and antigenic mechanisms with non-specific symptoms, especially in infants and pre-school children. It represents an important cause of high gastrointestinal tract morbidity, with a significant increase in its incidence and prevalence in the last decades. Instruments that assess EEo severity have been developed to support diagnosis and treatment of this disease. Objectives: To translate and culturally adapt the Pediatric Eosinophilic Esophagitis Symptom Score (PEESS version2.0), an instrument used to assess pediatric eosinophilic esophagitis symptoms through patients’ and/or parents’ report. Methods: The PEESS was translated through the following stages: initial translation, backtranslation and consensus of independent reviewers through the Delphi technique. We applied the pre-final version of the PEESS to five eight-to-18-year-old patients and to ten parents of two-to-18-year-old patients from a outpatient Pediatric Gastroenterology service (pre-test). Results: We did not observe translations of difficult consensus or grammar inconsistencies during the translation stages. During pre-testing, we identified difficulties in comprehension of some unconventional terms, e.g., “nausea”. Adverbs of frequency, such as “almost never” were also identified as of difficult understanding by patients and parents. Such difficulties may be inherent to the pediatric age group. Eight-year-old or older children should be considered suitable for self-reporting their own symptoms. Conclusions: We have produced a Brazilian version of the Pediatric Eosinophilic Esophagitis Symptom Score (PEESS), which is adapted to the Brazilian culture. This version may be introduced as a clinical and research instrument for the assessement of patients with esophagic disease symptoms. The PEESS represents a breakthrough in the evaluation of symptoms of the pediatric eosinophilic esophagitis, since it reinforces the importance of self-report of patients who experience this disease.Dissertação (Mestrado)Introdução: A Esofagite Eosinofílica (EEo), é uma entidade clínico-patológica mediada por mecanismos imunes e antigênicos e apresenta-se com sintomas de caráter inespecífico, principalmente em lactentes e pré escolares. Representa uma causa importante de morbidade do trato gastrointestinal alto, com aumento significativo de sua incidência e prevalência nas últimas décadas. Instrumentos que avaliam a gravidade da EEo têm sido desenvolvidos para auxílio diagnóstico e terapêutico da doença. No entanto, poucos questionários consideram a percepção do próprio paciente sobre a gravidade de seus sintomas ou a resposta ao tratamento. Objetivo: Traduzir e adaptar culturalmente a Pediatric Eosinophilic Esophagitis Symptom Score (PEESS version2.0), um instrumento utilizado para identificar os sintomas relatados pelos pacientes ou seus pais/responsáveis para a avaliação da Esofagite Eosinofílica (EEo) pediátrica. Método: Realizamos o processo de tradução a partir da tradução inicial, retrotradução, seguida da etapa de obtenção de consenso por revisores independentes por meio da técnica Delphi. Aplicamos a versão pré-final a cinco pacientes de oito a dezoito anos e dez pais de pacientes de dois a dezoito anos, no serviço de Gastroenterologia Pediátrica (pré-teste). Resultados: No processo de tradução, não encontramos traduções de difícil consenso no processo de revisão ou discordâncias gramaticais. No pré-teste, identificamos dificuldades de entendimento de termos pouco convencionais, como “náusea”, com sugestão de substituição para o termo “enjoo”. Outra dificuldade encontrada relacionou-se aos advérbios de frequência da escala, como, por exemplo, “quase nunca”, sendo sugerida a substituição pelo termo “raramente”. Essas dificuldades podem ser inerentes à faixa etária pediátrica. A idade dos pacientes a partir de oito anos deve ser considerada adequada para o uso de escores de autorrelato. Conclusões: A tradução do Escore de Sintomas da Esofagite Eosinofílica Pediátrica (ESEEP) produziu uma escala adaptada à cultura brasileira, que, após validação, poderá ser introduzida como instrumento de investigação clínica e de pesquisa em pacientes com sintomas sugestivos de doenças esofágicas. É um importante avanço na avaliação dos sintomas, já que valoriza o relato dos próprios pacientes que convivem com essa doença.Universidade Federal de UberlândiaBrasilPrograma de Pós-graduação em Ciências da SaúdeParo, Helena Borges Martins da Silvahttp://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4273952J7Gomes, Débora Cristianehttp://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4254814Y2Araújo, Maria Bernadete Jehahttp://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4261342H4Santos, Maria Fernanda Oliveira2017-06-21T12:55:03Z2017-06-21T12:55:03Z2017-02-22info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisapplication/pdfSANTOS, Maria Fernanda Oliveira. Tradução e adaptação cultural da Pediatric Eosinophilic Esophagitis Symptom Score (PEESS v2.0). 2017. 56 f. Dissertação (Mestrado em Ciências da Saúde) - Universidade Federal de Uberlândia, Uberlândia, 2017. DOI http://doi.org/10.14393/ufu.di.2017.545https://repositorio.ufu.br/handle/123456789/18951http://doi.org/10.14393/ufu.di.2017.545porinfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UFUinstname:Universidade Federal de Uberlândia (UFU)instacron:UFU2020-09-10T23:49:35Zoai:repositorio.ufu.br:123456789/18951Repositório InstitucionalONGhttp://repositorio.ufu.br/oai/requestdiinf@dirbi.ufu.bropendoar:2020-09-10T23:49:35Repositório Institucional da UFU - Universidade Federal de Uberlândia (UFU)false |
dc.title.none.fl_str_mv |
Tradução e adaptação cultural da Pediatric Eosinophilic Esophagitis Symptom Score (PEESS v2.0) |
title |
Tradução e adaptação cultural da Pediatric Eosinophilic Esophagitis Symptom Score (PEESS v2.0) |
spellingShingle |
Tradução e adaptação cultural da Pediatric Eosinophilic Esophagitis Symptom Score (PEESS v2.0) Santos, Maria Fernanda Oliveira Ciências médicas Esofagite eosinofílica Gastroenterologia Traduções Autorrelato Adolescente Criança Eosinophilic esophagitis Translations Self-report hild Adolescent CNPQ::CIENCIAS DA SAUDE::MEDICINA |
title_short |
Tradução e adaptação cultural da Pediatric Eosinophilic Esophagitis Symptom Score (PEESS v2.0) |
title_full |
Tradução e adaptação cultural da Pediatric Eosinophilic Esophagitis Symptom Score (PEESS v2.0) |
title_fullStr |
Tradução e adaptação cultural da Pediatric Eosinophilic Esophagitis Symptom Score (PEESS v2.0) |
title_full_unstemmed |
Tradução e adaptação cultural da Pediatric Eosinophilic Esophagitis Symptom Score (PEESS v2.0) |
title_sort |
Tradução e adaptação cultural da Pediatric Eosinophilic Esophagitis Symptom Score (PEESS v2.0) |
author |
Santos, Maria Fernanda Oliveira |
author_facet |
Santos, Maria Fernanda Oliveira |
author_role |
author |
dc.contributor.none.fl_str_mv |
Paro, Helena Borges Martins da Silva http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4273952J7 Gomes, Débora Cristiane http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4254814Y2 Araújo, Maria Bernadete Jeha http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4261342H4 |
dc.contributor.author.fl_str_mv |
Santos, Maria Fernanda Oliveira |
dc.subject.por.fl_str_mv |
Ciências médicas Esofagite eosinofílica Gastroenterologia Traduções Autorrelato Adolescente Criança Eosinophilic esophagitis Translations Self-report hild Adolescent CNPQ::CIENCIAS DA SAUDE::MEDICINA |
topic |
Ciências médicas Esofagite eosinofílica Gastroenterologia Traduções Autorrelato Adolescente Criança Eosinophilic esophagitis Translations Self-report hild Adolescent CNPQ::CIENCIAS DA SAUDE::MEDICINA |
description |
Introduction: Eosinophilic Esophagitis (EEo) is a clinical-pathological entity mediated by immune and antigenic mechanisms with non-specific symptoms, especially in infants and pre-school children. It represents an important cause of high gastrointestinal tract morbidity, with a significant increase in its incidence and prevalence in the last decades. Instruments that assess EEo severity have been developed to support diagnosis and treatment of this disease. Objectives: To translate and culturally adapt the Pediatric Eosinophilic Esophagitis Symptom Score (PEESS version2.0), an instrument used to assess pediatric eosinophilic esophagitis symptoms through patients’ and/or parents’ report. Methods: The PEESS was translated through the following stages: initial translation, backtranslation and consensus of independent reviewers through the Delphi technique. We applied the pre-final version of the PEESS to five eight-to-18-year-old patients and to ten parents of two-to-18-year-old patients from a outpatient Pediatric Gastroenterology service (pre-test). Results: We did not observe translations of difficult consensus or grammar inconsistencies during the translation stages. During pre-testing, we identified difficulties in comprehension of some unconventional terms, e.g., “nausea”. Adverbs of frequency, such as “almost never” were also identified as of difficult understanding by patients and parents. Such difficulties may be inherent to the pediatric age group. Eight-year-old or older children should be considered suitable for self-reporting their own symptoms. Conclusions: We have produced a Brazilian version of the Pediatric Eosinophilic Esophagitis Symptom Score (PEESS), which is adapted to the Brazilian culture. This version may be introduced as a clinical and research instrument for the assessement of patients with esophagic disease symptoms. The PEESS represents a breakthrough in the evaluation of symptoms of the pediatric eosinophilic esophagitis, since it reinforces the importance of self-report of patients who experience this disease. |
publishDate |
2017 |
dc.date.none.fl_str_mv |
2017-06-21T12:55:03Z 2017-06-21T12:55:03Z 2017-02-22 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/masterThesis |
format |
masterThesis |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
SANTOS, Maria Fernanda Oliveira. Tradução e adaptação cultural da Pediatric Eosinophilic Esophagitis Symptom Score (PEESS v2.0). 2017. 56 f. Dissertação (Mestrado em Ciências da Saúde) - Universidade Federal de Uberlândia, Uberlândia, 2017. DOI http://doi.org/10.14393/ufu.di.2017.545 https://repositorio.ufu.br/handle/123456789/18951 http://doi.org/10.14393/ufu.di.2017.545 |
identifier_str_mv |
SANTOS, Maria Fernanda Oliveira. Tradução e adaptação cultural da Pediatric Eosinophilic Esophagitis Symptom Score (PEESS v2.0). 2017. 56 f. Dissertação (Mestrado em Ciências da Saúde) - Universidade Federal de Uberlândia, Uberlândia, 2017. DOI http://doi.org/10.14393/ufu.di.2017.545 |
url |
https://repositorio.ufu.br/handle/123456789/18951 http://doi.org/10.14393/ufu.di.2017.545 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Federal de Uberlândia Brasil Programa de Pós-graduação em Ciências da Saúde |
publisher.none.fl_str_mv |
Universidade Federal de Uberlândia Brasil Programa de Pós-graduação em Ciências da Saúde |
dc.source.none.fl_str_mv |
reponame:Repositório Institucional da UFU instname:Universidade Federal de Uberlândia (UFU) instacron:UFU |
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Universidade Federal de Uberlândia (UFU) |
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UFU |
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UFU |
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Repositório Institucional da UFU |
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Repositório Institucional da UFU |
repository.name.fl_str_mv |
Repositório Institucional da UFU - Universidade Federal de Uberlândia (UFU) |
repository.mail.fl_str_mv |
diinf@dirbi.ufu.br |
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1805569621367980032 |