Quality of life and stress of mothers of children with congenital heart disease

Detalhes bibliográficos
Autor(a) principal: Freire, Regina Maria
Data de Publicação: 2022
Outros Autores: Cunha, Maria Claudia, Mori, Juliana de Souza Moraes, Palladino, Ruth Ramalho Ruivo
Tipo de documento: Artigo
Idioma: por
Título da fonte: Research, Society and Development
Texto Completo: https://rsdjournal.org/index.php/rsd/article/view/39222
Resumo: Objective: to investigate stress levels and quality of life in mothers of children with heart disease. Method: exploratory study with 23 mothers of children with heart disease who answered the Parental Stress Scale: Neonatal Intensive Care Unit (PSS: NICU) and Quality of Life (WHOQOL-BREF) questionnaires. Results: the responses to the WHOQOL-BREF indicated that 17% of the mothers recognized their quality of life as good; 21% like it needs improvement and 60% like it regular. The stress scale in the ICU points out that the areas of the baby's appearance and behavior and changes in the mother's role are those that cause the most stress during hospitalization, considering that between 84% and 100% of the answers had the maximum level (level 5) of stress as a prevalent response. Conclusion: This study pointed out some factors that are potentially stressful and can change the quality of life of mothers of children with heart disease: the diagnosis of childhood heart disease, surgeries, hospitalization, initial care that extends into a chronic disease. In addition, it is likely that this affectation is also associated with constituent elements of each parental and family relationship and which are supported by different life stories.
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spelling Quality of life and stress of mothers of children with congenital heart diseaseCalidad de vida y estrés de madres de niños con cardiopatías congénitasQualidade de vida e estresse de mães de crianças com cardiopatia congênita Enfermedades del corazónEstrésCalidad de vidaMadres.CardiopatiasEstresseQualidade de vidaMães.Heart diseasesStressQuality of lifeMothers.Objective: to investigate stress levels and quality of life in mothers of children with heart disease. Method: exploratory study with 23 mothers of children with heart disease who answered the Parental Stress Scale: Neonatal Intensive Care Unit (PSS: NICU) and Quality of Life (WHOQOL-BREF) questionnaires. Results: the responses to the WHOQOL-BREF indicated that 17% of the mothers recognized their quality of life as good; 21% like it needs improvement and 60% like it regular. The stress scale in the ICU points out that the areas of the baby's appearance and behavior and changes in the mother's role are those that cause the most stress during hospitalization, considering that between 84% and 100% of the answers had the maximum level (level 5) of stress as a prevalent response. Conclusion: This study pointed out some factors that are potentially stressful and can change the quality of life of mothers of children with heart disease: the diagnosis of childhood heart disease, surgeries, hospitalization, initial care that extends into a chronic disease. In addition, it is likely that this affectation is also associated with constituent elements of each parental and family relationship and which are supported by different life stories.Objetivo: investigar los niveles de estrés y la calidad de vida en madres de niños con enfermedades del corazón. Método: estudio exploratorio con 23 madres de niños con cardiopatías que respondieron la Escala de Estrés Parental: Unidad de Cuidados Intensivos Neonatales (PSS: NICU) y cuestionarios de Calidad de Vida (WHOQOL-BREF). Resultados: WHOQOL-BREF (1994). BREF indicó que el 17% de las madres reconocen su calidad de vida como buena, el 21% como que necesita mejorar y el 60% como regular. La escala de estrés en la UCI señala que las áreas apariencia y comportamiento del bebé y cambio en el rol de madre son los que causan mayor estrés durante la hospitalización, considerando que entre el 84% y el 100% de las respuestas tuvieron el nivel máximo (nivel 5) de estrés como respuesta prevalente. Conclusión: Este estudio apuntó algunos factores que son potencialmente estresantes y que pueden alterar la calidad de vida de las madres de niños con cardiopatías: el diagnóstico de cardiopatía infantil, cirugías, hospitalización, cuidados iniciales que se extienden a una enfermedad crónica. asociados, además, a elementos constitutivos de cada relación parental y familiar y que se sustentan en distintas historias de vida.Objetivo: investigar níveis de estresse e qualidade de vida em mães de crianças cardiopatas. Método: estudo de caráter exploratório com 23 mães de crianças cardiopatas que responderam os questionários Parental Stress Scale: Neonatal Intensive Care Unit (PSS: NICU) e Qualidade de Vida (WHOQOL-BREF). Resultados: as respostas ao WHOQOL-BREF indicaram que 17% das mães reconhecem a sua qualidade de vida como boa; 21% como precisa melhorar e 60% como regular. A escala de estresse na UTI aponta que as áreas aparência e comportamento do bebê e alteração no papel de mãe são as que causam maior estresse durante a hospitalização, considerando que entre 84% e 100% das respostas tiveram o nível máximo (nível 5) de estresse como resposta prevalente. Conclusão: Este estudo apontou alguns fatores que são, potencialmente, estressores e podem alterar a qualidade de vida das mães de crianças cardiopatas: o diagnóstico da cardiopatia infantil, as cirurgias, a hospitalização, os cuidados iniciais que se prolongam em uma doença crônica. Além disso, é provável que esta afetação esteja associada, também, a elementos constituintes de cada relação parental e familiar e que são sustentados por diferentes histórias de vida.Research, Society and Development2022-12-30info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/3922210.33448/rsd-v11i17.39222Research, Society and Development; Vol. 11 No. 17; e291111739222Research, Society and Development; Vol. 11 Núm. 17; e291111739222Research, Society and Development; v. 11 n. 17; e2911117392222525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/39222/32364Copyright (c) 2022 Regina Maria Freire; Maria Claudia Cunha; Juliana de Souza Moraes Mori; Ruth Ramalho Ruivo Palladinohttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessFreire, Regina Maria Cunha, Maria Claudia Mori, Juliana de Souza MoraesPalladino, Ruth Ramalho Ruivo2022-12-28T13:53:48Zoai:ojs.pkp.sfu.ca:article/39222Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:52:33.082986Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false
dc.title.none.fl_str_mv Quality of life and stress of mothers of children with congenital heart disease
Calidad de vida y estrés de madres de niños con cardiopatías congénitas
Qualidade de vida e estresse de mães de crianças com cardiopatia congênita
title Quality of life and stress of mothers of children with congenital heart disease
spellingShingle Quality of life and stress of mothers of children with congenital heart disease
Freire, Regina Maria
Enfermedades del corazón
Estrés
Calidad de vida
Madres.
Cardiopatias
Estresse
Qualidade de vida
Mães.
Heart diseases
Stress
Quality of life
Mothers.
title_short Quality of life and stress of mothers of children with congenital heart disease
title_full Quality of life and stress of mothers of children with congenital heart disease
title_fullStr Quality of life and stress of mothers of children with congenital heart disease
title_full_unstemmed Quality of life and stress of mothers of children with congenital heart disease
title_sort Quality of life and stress of mothers of children with congenital heart disease
author Freire, Regina Maria
author_facet Freire, Regina Maria
Cunha, Maria Claudia
Mori, Juliana de Souza Moraes
Palladino, Ruth Ramalho Ruivo
author_role author
author2 Cunha, Maria Claudia
Mori, Juliana de Souza Moraes
Palladino, Ruth Ramalho Ruivo
author2_role author
author
author
dc.contributor.author.fl_str_mv Freire, Regina Maria
Cunha, Maria Claudia
Mori, Juliana de Souza Moraes
Palladino, Ruth Ramalho Ruivo
dc.subject.por.fl_str_mv Enfermedades del corazón
Estrés
Calidad de vida
Madres.
Cardiopatias
Estresse
Qualidade de vida
Mães.
Heart diseases
Stress
Quality of life
Mothers.
topic Enfermedades del corazón
Estrés
Calidad de vida
Madres.
Cardiopatias
Estresse
Qualidade de vida
Mães.
Heart diseases
Stress
Quality of life
Mothers.
description Objective: to investigate stress levels and quality of life in mothers of children with heart disease. Method: exploratory study with 23 mothers of children with heart disease who answered the Parental Stress Scale: Neonatal Intensive Care Unit (PSS: NICU) and Quality of Life (WHOQOL-BREF) questionnaires. Results: the responses to the WHOQOL-BREF indicated that 17% of the mothers recognized their quality of life as good; 21% like it needs improvement and 60% like it regular. The stress scale in the ICU points out that the areas of the baby's appearance and behavior and changes in the mother's role are those that cause the most stress during hospitalization, considering that between 84% and 100% of the answers had the maximum level (level 5) of stress as a prevalent response. Conclusion: This study pointed out some factors that are potentially stressful and can change the quality of life of mothers of children with heart disease: the diagnosis of childhood heart disease, surgeries, hospitalization, initial care that extends into a chronic disease. In addition, it is likely that this affectation is also associated with constituent elements of each parental and family relationship and which are supported by different life stories.
publishDate 2022
dc.date.none.fl_str_mv 2022-12-30
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/39222
10.33448/rsd-v11i17.39222
url https://rsdjournal.org/index.php/rsd/article/view/39222
identifier_str_mv 10.33448/rsd-v11i17.39222
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/39222/32364
dc.rights.driver.fl_str_mv https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Research, Society and Development
publisher.none.fl_str_mv Research, Society and Development
dc.source.none.fl_str_mv Research, Society and Development; Vol. 11 No. 17; e291111739222
Research, Society and Development; Vol. 11 Núm. 17; e291111739222
Research, Society and Development; v. 11 n. 17; e291111739222
2525-3409
reponame:Research, Society and Development
instname:Universidade Federal de Itajubá (UNIFEI)
instacron:UNIFEI
instname_str Universidade Federal de Itajubá (UNIFEI)
instacron_str UNIFEI
institution UNIFEI
reponame_str Research, Society and Development
collection Research, Society and Development
repository.name.fl_str_mv Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)
repository.mail.fl_str_mv rsd.articles@gmail.com
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