Parents' perception of Down Syndrome diagnosis and access to health services

• Autor(a) principal: Freitas, Taysa Cristina Cardoso
• Data de Publicação: 2022
• Outros Autores: Alves, Ricardo Junio de Carvalho, Rodrigues, Luciene Oliveira, Oliveira, Valdira Vieira de, Mota, Laudileyde Rocha, Teixeira , Álvaro Ataide Landulfo, Gonçalves, Luzete Celestino da Silva, Macedo Júnior, Flauci, Fonseca, Adélia Dayane Guimarães, Brito, Alcina Mendes, Torres, Jaqueline D`Paula Ribeiro Vieira, Scremin, Marlete, Monteiro, Sylmara Corrêa, Alves, Renato da Silva
• Tipo de documento: Artigo
• Idioma: por
• Título da fonte: Research, Society and Development
• Texto Completo: https://rsdjournal.org/index.php/rsd/article/view/25388
• topic: Criança; Família; Profissionais de saúde; Síndrome de Down.; Child; Family; Health professionals; Down syndrome.; Niño; Familia; Profesionales de la salud; Síndrome de Down.

The aim of this study was to know the perceptions of parents in relation to the diagnosis of down syndrome and access to health services. A descriptive study was conducted with a qualitative approach, conducted with nine parents of children with down syndrome enrolled in the Association of Parents and Friends of The Exceptional (APAE). Data were obtained through semi-structured interviews and analyzed in order to unsee out thematic categories. Results: The results showed two thematic categories: "Parents' perception of the diagnosis of down syndrome and obstacles in ensuring access to health care". Parents demonstrate ambivalence about satisfaction in the professional approach at the time of diagnosis, pointing out satisfaction and also dissatisfaction with the professional's approach. It is evident the need for further studies providing the construction of an adequate approach posture of the professional through the diagnosis of down syndrome and an innovative access to health with quality and efficacy.