Life narratives of cancer patients under palliative care: the look of poetic pieces

Detalhes bibliográficos
Autor(a) principal: Ferreira, José Carlos Malafaia
Data de Publicação: 2021
Outros Autores: Garcia, Rosamaria Rodrigues
Tipo de documento: Artigo
Idioma: por
Título da fonte: Research, Society and Development
Texto Completo: https://rsdjournal.org/index.php/rsd/article/view/19919
Resumo: Introduction: Total pain in palliative care implies attention to the biopsychosocial and spiritual dimensions of each person. The pain of someone with incurable cancer transcends their physical pain. Getting to know a person beyond their illness, illuminating their subjectivities, can tone up more humanized behaviors and a favor of a doctor-patient relationship that will benefit from the enhancement of empathy on the part of the doctor. Objective: to present poetic pieces about the most valuable aspects of the life of cancer patients under palliative care, based on life narratives. Method: this is a qualitative, prospective, exploratory study, based on the methodology of oral narratives of life histories of cancer patients enrolled in the Palliative Care clinic of the Oncology Center in the city of São Caetano do Sul. The clinic was renamed Extended Anamnesis, and two interviews were collected: the first, where the respondent was instigated to produce a life report from childhood until before the symptoms of the disease. In the second, the patient was introduced to a renowned artistic work and discussed the effect that the work had on him. Results: the narratives made it possible to understand aspects that are inaccessible to traditional assessment, bringing the doctor and the patient closer together, promoting a comprehensive and empathetic approach proposed by the principles of palliative care. Conclusion: inspired poetic pieces can foster the empathetic look of professionals who treat cancer patients undergoing palliation, as well as students, who initiate contact with the practice of humanized medicine.
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spelling Life narratives of cancer patients under palliative care: the look of poetic pieces Narrativas de vida de pacientes con cáncer en cuidados paliativos: la mirada de las piezas poéticas Narrativas de vida de pacientes oncológicos sob cuidados paliativos: o olhar das peças poéticas Cuidados PaliativosMedicina NarrativaHumanización de la AtenciónEnseñanzaConocimientos, actitudes y práctica en salud.Palliative CareNarrative MedicineTeachingHumanization of AssistanceHealth knowledge, attitudes, practice.Cuidados PaliativosMedicina NarrativaEnsinoHumanização da AssistênciaConhecimentos, atitudes e prática em saúde.Introduction: Total pain in palliative care implies attention to the biopsychosocial and spiritual dimensions of each person. The pain of someone with incurable cancer transcends their physical pain. Getting to know a person beyond their illness, illuminating their subjectivities, can tone up more humanized behaviors and a favor of a doctor-patient relationship that will benefit from the enhancement of empathy on the part of the doctor. Objective: to present poetic pieces about the most valuable aspects of the life of cancer patients under palliative care, based on life narratives. Method: this is a qualitative, prospective, exploratory study, based on the methodology of oral narratives of life histories of cancer patients enrolled in the Palliative Care clinic of the Oncology Center in the city of São Caetano do Sul. The clinic was renamed Extended Anamnesis, and two interviews were collected: the first, where the respondent was instigated to produce a life report from childhood until before the symptoms of the disease. In the second, the patient was introduced to a renowned artistic work and discussed the effect that the work had on him. Results: the narratives made it possible to understand aspects that are inaccessible to traditional assessment, bringing the doctor and the patient closer together, promoting a comprehensive and empathetic approach proposed by the principles of palliative care. Conclusion: inspired poetic pieces can foster the empathetic look of professionals who treat cancer patients undergoing palliation, as well as students, who initiate contact with the practice of humanized medicine.Introdución: Dolor total en cuidados paliativos implica la atención a las dimensiones biopsicosociales y espirituales de cada persona. El dolor de alguien con cáncer trasciende su dolor físico. Conocer a una persona más allá de su enfermedad, iluminando sus subjetividades, puede tonificar comportamientos más humanizados y favorecer una relación médico-paciente beneficiada por la potenciación de la empatía por el médico. Meta: Presentar piezas poéticas sobre los aspectos más valiosos de la vida de los pacientes oncológicos en cuidados paliativos, a partir de narrativas de vida. Método: se trata de un estudio cualitativo, prospectivo, exploratorio, basado en la metodología de narrativas orales de historias de vida de pacientes con cáncer inscritos en la clínica de Cuidados Paliativos del Centro de Oncología del la ciudad de São Caetano do Sul. La clínica pasó a denominarse Anamnesis Extendida, y se recogieron dos entrevistas: la primera, donde se instigó al entrevistado a realizar un relato de vida desde la infancia hasta antes de los síntomas de la enfermedad. En la segunda, se presentó al paciente una obra artística de renombre y se habló del efecto que la obra tuvo en él. Resultados: las narrativas permitieron comprender aspectos inaccesibles a la valoración tradicional, acercando al médico y al paciente, promoviendo un abordaje integral y empático propuesto por los principios de los cuidados paliativos. Consideraciones finales: las piezas poéticas buscan fomentar la mirada empática de los profesionales que tratan a los pacientes oncológicos en paliación, así como de los estudiantes, que inician el contacto con la práctica de la medicina humanizada.Introdução: dor total em cuidados paliativos implica atenção às dimensões biopsicossocial e espiritual de cada um. A dor de alguém com câncer transcende sua dor física. Conhecer alguém além da sua moléstia, iluminando suas subjetividades, pode tonificar condutas mais humanizadas e favorecer uma relação médico-paciente que se beneficiará com o aguçamento da empatia pelo médico. Objetivo: apresentar peças poéticas sobre os aspectos mais valiosos da vida de pacientes oncológicos sob cuidados paliativos, baseadas em narrativas de vida. Método: estudo qualitativo, prospectivo, exploratório, pautado na metodologia das narrativas orais de histórias de vida de pacientes oncológicos, matriculados no ambulatório de Cuidados Paliativos do Centro Oncológico, do município de São Caetano do Sul. O ambulatório foi renomeado para Anamnese Ampliada, sendo coletadas duas entrevistas: a primeira, onde o entrevistado foi instigado a produzir um relato de vida desde a infância e até antes dos sintomas da doença. Na segunda, o paciente foi apresentado a uma obra artística consagrada e discorreu sobre o efeito que a obra lhe causou. Resultados: as narrativas possibilitaram a compreensão de aspectos inacessíveis à avaliação tradicional, aproximando o médico e o paciente, promovendo abordagem integral e empática proposta pelos princípios dos cuidados paliativos. Considerações finais: as peças poéticas podem fomentar o olhar de empatia dos profissionais que tratam do paciente oncológico em paliação, bem como do alunado, que inicia o contato com a prática de uma medicina humanizada.Research, Society and Development2021-09-11info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/1991910.33448/rsd-v10i11.19919Research, Society and Development; Vol. 10 No. 11; e583101119919Research, Society and Development; Vol. 10 Núm. 11; e583101119919Research, Society and Development; v. 10 n. 11; e5831011199192525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/19919/17879Copyright (c) 2021 José Carlos Malafaia Ferreira; Rosamaria Rodrigues Garciahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessFerreira, José Carlos Malafaia Garcia, Rosamaria Rodrigues 2021-10-23T19:01:11Zoai:ojs.pkp.sfu.ca:article/19919Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:39:42.369395Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false
dc.title.none.fl_str_mv Life narratives of cancer patients under palliative care: the look of poetic pieces
Narrativas de vida de pacientes con cáncer en cuidados paliativos: la mirada de las piezas poéticas
Narrativas de vida de pacientes oncológicos sob cuidados paliativos: o olhar das peças poéticas
title Life narratives of cancer patients under palliative care: the look of poetic pieces
spellingShingle Life narratives of cancer patients under palliative care: the look of poetic pieces
Ferreira, José Carlos Malafaia
Cuidados Paliativos
Medicina Narrativa
Humanización de la Atención
Enseñanza
Conocimientos, actitudes y práctica en salud.
Palliative Care
Narrative Medicine
Teaching
Humanization of Assistance
Health knowledge, attitudes, practice.
Cuidados Paliativos
Medicina Narrativa
Ensino
Humanização da Assistência
Conhecimentos, atitudes e prática em saúde.
title_short Life narratives of cancer patients under palliative care: the look of poetic pieces
title_full Life narratives of cancer patients under palliative care: the look of poetic pieces
title_fullStr Life narratives of cancer patients under palliative care: the look of poetic pieces
title_full_unstemmed Life narratives of cancer patients under palliative care: the look of poetic pieces
title_sort Life narratives of cancer patients under palliative care: the look of poetic pieces
author Ferreira, José Carlos Malafaia
author_facet Ferreira, José Carlos Malafaia
Garcia, Rosamaria Rodrigues
author_role author
author2 Garcia, Rosamaria Rodrigues
author2_role author
dc.contributor.author.fl_str_mv Ferreira, José Carlos Malafaia
Garcia, Rosamaria Rodrigues
dc.subject.por.fl_str_mv Cuidados Paliativos
Medicina Narrativa
Humanización de la Atención
Enseñanza
Conocimientos, actitudes y práctica en salud.
Palliative Care
Narrative Medicine
Teaching
Humanization of Assistance
Health knowledge, attitudes, practice.
Cuidados Paliativos
Medicina Narrativa
Ensino
Humanização da Assistência
Conhecimentos, atitudes e prática em saúde.
topic Cuidados Paliativos
Medicina Narrativa
Humanización de la Atención
Enseñanza
Conocimientos, actitudes y práctica en salud.
Palliative Care
Narrative Medicine
Teaching
Humanization of Assistance
Health knowledge, attitudes, practice.
Cuidados Paliativos
Medicina Narrativa
Ensino
Humanização da Assistência
Conhecimentos, atitudes e prática em saúde.
description Introduction: Total pain in palliative care implies attention to the biopsychosocial and spiritual dimensions of each person. The pain of someone with incurable cancer transcends their physical pain. Getting to know a person beyond their illness, illuminating their subjectivities, can tone up more humanized behaviors and a favor of a doctor-patient relationship that will benefit from the enhancement of empathy on the part of the doctor. Objective: to present poetic pieces about the most valuable aspects of the life of cancer patients under palliative care, based on life narratives. Method: this is a qualitative, prospective, exploratory study, based on the methodology of oral narratives of life histories of cancer patients enrolled in the Palliative Care clinic of the Oncology Center in the city of São Caetano do Sul. The clinic was renamed Extended Anamnesis, and two interviews were collected: the first, where the respondent was instigated to produce a life report from childhood until before the symptoms of the disease. In the second, the patient was introduced to a renowned artistic work and discussed the effect that the work had on him. Results: the narratives made it possible to understand aspects that are inaccessible to traditional assessment, bringing the doctor and the patient closer together, promoting a comprehensive and empathetic approach proposed by the principles of palliative care. Conclusion: inspired poetic pieces can foster the empathetic look of professionals who treat cancer patients undergoing palliation, as well as students, who initiate contact with the practice of humanized medicine.
publishDate 2021
dc.date.none.fl_str_mv 2021-09-11
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/19919
10.33448/rsd-v10i11.19919
url https://rsdjournal.org/index.php/rsd/article/view/19919
identifier_str_mv 10.33448/rsd-v10i11.19919
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/19919/17879
dc.rights.driver.fl_str_mv Copyright (c) 2021 José Carlos Malafaia Ferreira; Rosamaria Rodrigues Garcia
https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2021 José Carlos Malafaia Ferreira; Rosamaria Rodrigues Garcia
https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Research, Society and Development
publisher.none.fl_str_mv Research, Society and Development
dc.source.none.fl_str_mv Research, Society and Development; Vol. 10 No. 11; e583101119919
Research, Society and Development; Vol. 10 Núm. 11; e583101119919
Research, Society and Development; v. 10 n. 11; e583101119919
2525-3409
reponame:Research, Society and Development
instname:Universidade Federal de Itajubá (UNIFEI)
instacron:UNIFEI
instname_str Universidade Federal de Itajubá (UNIFEI)
instacron_str UNIFEI
institution UNIFEI
reponame_str Research, Society and Development
collection Research, Society and Development
repository.name.fl_str_mv Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)
repository.mail.fl_str_mv rsd.articles@gmail.com
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