“It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis
Autor(a) principal: | |
---|---|
Data de Publicação: | 2021 |
Outros Autores: | , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Research, Society and Development |
Texto Completo: | https://rsdjournal.org/index.php/rsd/article/view/17071 |
Resumo: | Rheumatoid arthritis (RA) is a chronic disease that compromises patients’ quality of life and it demands an indispensable and complex pharmacological treatment. The aim of the present study was to understand patients’ experiences with the pharmacological treatment of RA. In order to explore this area, interviews were conducted with patients with RA followed at an outpatient clinic. Merleau-Ponty’s theoretical framework was applied to understand the investigated phenomenon by using the essential structures of the experience (time, space, relationships with other people, and sexuality, all of which are anchored in the body). These were used to describe the central meanings of the patients’ medication experience. The data showed that patients experienced ambiguity during the RA treatment and that it pervaded all the essential structures of the experience. The experiences that emerged from data analysis were: “waiting for the proper treatment”; “hoping for its effectiveness and safety”; “rediscovering spaces lost because of the disease”; and “self-management in controlling symptoms”. Understanding these experiences allows for the healthcare team to offer more comprehensive, holistic and effective care, contributing to better health outcomes. |
id |
UNIFEI_7d0c50576dbf4bdd94619806c4e63b7d |
---|---|
oai_identifier_str |
oai:ojs.pkp.sfu.ca:article/17071 |
network_acronym_str |
UNIFEI |
network_name_str |
Research, Society and Development |
repository_id_str |
|
spelling |
“It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis“Es como un tiro en la oscuridad”: Viviendo la ambigüedad en el tratamiento farmacológico de la artritis reumatoide“É como se você estivesse dando um tiro no escuro”: Vivenciando a ambiguidade no tratamento farmacológico da artrite reumatoideRheumatoid arthritisQualitative researchPatient experience.Artritis reumatoideInvestigación cualitativaExperiencia del paciente.Artrite reumatoidePesquisa qualitativaExperiência do paciente.Rheumatoid arthritis (RA) is a chronic disease that compromises patients’ quality of life and it demands an indispensable and complex pharmacological treatment. The aim of the present study was to understand patients’ experiences with the pharmacological treatment of RA. In order to explore this area, interviews were conducted with patients with RA followed at an outpatient clinic. Merleau-Ponty’s theoretical framework was applied to understand the investigated phenomenon by using the essential structures of the experience (time, space, relationships with other people, and sexuality, all of which are anchored in the body). These were used to describe the central meanings of the patients’ medication experience. The data showed that patients experienced ambiguity during the RA treatment and that it pervaded all the essential structures of the experience. The experiences that emerged from data analysis were: “waiting for the proper treatment”; “hoping for its effectiveness and safety”; “rediscovering spaces lost because of the disease”; and “self-management in controlling symptoms”. Understanding these experiences allows for the healthcare team to offer more comprehensive, holistic and effective care, contributing to better health outcomes.La artritis reumatoide (AR) es una enfermedad crónica que compromete la calidad de vida de los pacientes y exige un tratamiento farmacológico indispensable y complejo. El objetivo del presente estudio fue comprender las experiencias de los pacientes con el tratamiento farmacológico de la AR. Para explorar esta área, se realizaron entrevistas con pacientes con AR seguidos en un ambulatorio. Se aplicó el marco teórico de Merleau-Ponty para comprender el fenómeno investigado utilizando las estructuras de la existencia (tiempo, espacio, relaciones con otras personas y sexualidad, todos ellos anclados en el cuerpo). Estos se utilizaron para describir los significados centrales de la experiencia con la medicación de los pacientes. Los datos mostraron que los pacientes experimentaron ambigüedad durante el tratamiento de la AR y que impregnaba todas las estructuras esenciales de la experiencia. Las experiencias que surgieron del análisis de datos fueron: “esperando el tratamiento adecuado”; “esperando su eficacia y seguridad”; “redescubriendo espacios perdidos por la enfermedad”; y "autogestión para controlar los síntomas". Comprender estas experiencias permite que el equipo de atención em salud ofrezca una atención más integral, holística y eficaz, contribuyendo a mejores resultados en salud.A artrite reumatoide (AR) é uma doença crônica que compromete a qualidade de vida dos pacientes e requer um tratamento farmacológico indispensável e complexo. O objetivo do presente estudo foi compreender as experiências dos pacientes com o tratamento farmacológico da AR. Para tal, foram realizadas entrevistas em profundidade com indivíduos atendidos em um ambulatório. O referencial teórico de Merleau-Ponty foi aplicado para compreender o fenômeno investigado por meio das estruturas essenciais da experiência (tempo, espaço, relação com o outro e sexualidade). Os dados revelaram que os pacientes experienciam de forma mais significativa a ambiguidade durante o tratamento, e esta perpassa todas as estruturas essenciais, ressaltando a experiência da espera pelo tratamento adequado, pela sua efetividade e segurança, a redescoberta dos espaços perdidos com a doença e o autogerenciamento no controle dos sintomas. Compreender essas experiências proporciona a prestação de um cuidado mais integral, holístico e efetivo contribuindo para melhora dos resultados em saúde.Research, Society and Development2021-07-19info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/1707110.33448/rsd-v10i9.17071Research, Society and Development; Vol. 10 No. 9; e0110917071Research, Society and Development; Vol. 10 Núm. 9; e0110917071Research, Society and Development; v. 10 n. 9; e01109170712525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIenghttps://rsdjournal.org/index.php/rsd/article/view/17071/15848Copyright (c) 2021 Carina de Morais Neves; Yone de Almeida Nascimento; Mariana Martins Gonzaga do Nascimento; Hágabo Mathyell Silva ; Isabela Viana Oliveira; Simone de Araújo Medina Mendonça; Adriana Maria Kakehasi; Djenane Ramalho de Oliveirahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessNeves, Carina de MoraisNascimento, Yone de AlmeidaNascimento, Mariana Martins Gonzaga do Silva , Hágabo MathyellOliveira, Isabela VianaMendonça, Simone de Araújo Medina Kakehasi, Adriana Maria Ramalho de Oliveira, Djenane 2021-09-12T14:28:06Zoai:ojs.pkp.sfu.ca:article/17071Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:37:28.963315Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false |
dc.title.none.fl_str_mv |
“It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis “Es como un tiro en la oscuridad”: Viviendo la ambigüedad en el tratamiento farmacológico de la artritis reumatoide “É como se você estivesse dando um tiro no escuro”: Vivenciando a ambiguidade no tratamento farmacológico da artrite reumatoide |
title |
“It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis |
spellingShingle |
“It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis Neves, Carina de Morais Rheumatoid arthritis Qualitative research Patient experience. Artritis reumatoide Investigación cualitativa Experiencia del paciente. Artrite reumatoide Pesquisa qualitativa Experiência do paciente. |
title_short |
“It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis |
title_full |
“It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis |
title_fullStr |
“It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis |
title_full_unstemmed |
“It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis |
title_sort |
“It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis |
author |
Neves, Carina de Morais |
author_facet |
Neves, Carina de Morais Nascimento, Yone de Almeida Nascimento, Mariana Martins Gonzaga do Silva , Hágabo Mathyell Oliveira, Isabela Viana Mendonça, Simone de Araújo Medina Kakehasi, Adriana Maria Ramalho de Oliveira, Djenane |
author_role |
author |
author2 |
Nascimento, Yone de Almeida Nascimento, Mariana Martins Gonzaga do Silva , Hágabo Mathyell Oliveira, Isabela Viana Mendonça, Simone de Araújo Medina Kakehasi, Adriana Maria Ramalho de Oliveira, Djenane |
author2_role |
author author author author author author author |
dc.contributor.author.fl_str_mv |
Neves, Carina de Morais Nascimento, Yone de Almeida Nascimento, Mariana Martins Gonzaga do Silva , Hágabo Mathyell Oliveira, Isabela Viana Mendonça, Simone de Araújo Medina Kakehasi, Adriana Maria Ramalho de Oliveira, Djenane |
dc.subject.por.fl_str_mv |
Rheumatoid arthritis Qualitative research Patient experience. Artritis reumatoide Investigación cualitativa Experiencia del paciente. Artrite reumatoide Pesquisa qualitativa Experiência do paciente. |
topic |
Rheumatoid arthritis Qualitative research Patient experience. Artritis reumatoide Investigación cualitativa Experiencia del paciente. Artrite reumatoide Pesquisa qualitativa Experiência do paciente. |
description |
Rheumatoid arthritis (RA) is a chronic disease that compromises patients’ quality of life and it demands an indispensable and complex pharmacological treatment. The aim of the present study was to understand patients’ experiences with the pharmacological treatment of RA. In order to explore this area, interviews were conducted with patients with RA followed at an outpatient clinic. Merleau-Ponty’s theoretical framework was applied to understand the investigated phenomenon by using the essential structures of the experience (time, space, relationships with other people, and sexuality, all of which are anchored in the body). These were used to describe the central meanings of the patients’ medication experience. The data showed that patients experienced ambiguity during the RA treatment and that it pervaded all the essential structures of the experience. The experiences that emerged from data analysis were: “waiting for the proper treatment”; “hoping for its effectiveness and safety”; “rediscovering spaces lost because of the disease”; and “self-management in controlling symptoms”. Understanding these experiences allows for the healthcare team to offer more comprehensive, holistic and effective care, contributing to better health outcomes. |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-07-19 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://rsdjournal.org/index.php/rsd/article/view/17071 10.33448/rsd-v10i9.17071 |
url |
https://rsdjournal.org/index.php/rsd/article/view/17071 |
identifier_str_mv |
10.33448/rsd-v10i9.17071 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
https://rsdjournal.org/index.php/rsd/article/view/17071/15848 |
dc.rights.driver.fl_str_mv |
https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Research, Society and Development |
publisher.none.fl_str_mv |
Research, Society and Development |
dc.source.none.fl_str_mv |
Research, Society and Development; Vol. 10 No. 9; e0110917071 Research, Society and Development; Vol. 10 Núm. 9; e0110917071 Research, Society and Development; v. 10 n. 9; e0110917071 2525-3409 reponame:Research, Society and Development instname:Universidade Federal de Itajubá (UNIFEI) instacron:UNIFEI |
instname_str |
Universidade Federal de Itajubá (UNIFEI) |
instacron_str |
UNIFEI |
institution |
UNIFEI |
reponame_str |
Research, Society and Development |
collection |
Research, Society and Development |
repository.name.fl_str_mv |
Research, Society and Development - Universidade Federal de Itajubá (UNIFEI) |
repository.mail.fl_str_mv |
rsd.articles@gmail.com |
_version_ |
1797052641897873408 |