“It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis

Detalhes bibliográficos
Autor(a) principal: Neves, Carina de Morais
Data de Publicação: 2021
Outros Autores: Nascimento, Yone de Almeida, Nascimento, Mariana Martins Gonzaga do, Silva , Hágabo Mathyell, Oliveira, Isabela Viana, Mendonça, Simone de Araújo Medina, Kakehasi, Adriana Maria, Ramalho de Oliveira, Djenane
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Research, Society and Development
Texto Completo: https://rsdjournal.org/index.php/rsd/article/view/17071
Resumo: Rheumatoid arthritis (RA) is a chronic disease that compromises patients’ quality of life and it demands an indispensable and complex pharmacological treatment. The aim of the present study was to understand patients’ experiences with the pharmacological treatment of RA. In order to explore this area, interviews were conducted with patients with RA followed at an outpatient clinic. Merleau-Ponty’s theoretical framework was applied to understand the investigated phenomenon by using the essential structures of the experience (time, space, relationships with other people, and sexuality, all of which are anchored in the body). These were used to describe the central meanings of the patients’ medication experience. The data showed that patients experienced ambiguity during the RA treatment and that it pervaded all the essential structures of the experience. The experiences that emerged from data analysis were: “waiting for the proper treatment”; “hoping for its effectiveness and safety”; “rediscovering spaces lost because of the disease”; and “self-management in controlling symptoms”. Understanding these experiences allows for the healthcare team to offer more comprehensive, holistic and effective care, contributing to better health outcomes.
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spelling “It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis“Es como un tiro en la oscuridad”: Viviendo la ambigüedad en el tratamiento farmacológico de la artritis reumatoide“É como se você estivesse dando um tiro no escuro”: Vivenciando a ambiguidade no tratamento farmacológico da artrite reumatoideRheumatoid arthritisQualitative researchPatient experience.Artritis reumatoideInvestigación cualitativaExperiencia del paciente.Artrite reumatoidePesquisa qualitativaExperiência do paciente.Rheumatoid arthritis (RA) is a chronic disease that compromises patients’ quality of life and it demands an indispensable and complex pharmacological treatment. The aim of the present study was to understand patients’ experiences with the pharmacological treatment of RA. In order to explore this area, interviews were conducted with patients with RA followed at an outpatient clinic. Merleau-Ponty’s theoretical framework was applied to understand the investigated phenomenon by using the essential structures of the experience (time, space, relationships with other people, and sexuality, all of which are anchored in the body). These were used to describe the central meanings of the patients’ medication experience. The data showed that patients experienced ambiguity during the RA treatment and that it pervaded all the essential structures of the experience. The experiences that emerged from data analysis were: “waiting for the proper treatment”; “hoping for its effectiveness and safety”; “rediscovering spaces lost because of the disease”; and “self-management in controlling symptoms”. Understanding these experiences allows for the healthcare team to offer more comprehensive, holistic and effective care, contributing to better health outcomes.La artritis reumatoide (AR) es una enfermedad crónica que compromete la calidad de vida de los pacientes y exige un tratamiento farmacológico indispensable y complejo. El objetivo del presente estudio fue comprender las experiencias de los pacientes con el tratamiento farmacológico de la AR. Para explorar esta área, se realizaron entrevistas con pacientes con AR seguidos en un ambulatorio. Se aplicó el marco teórico de Merleau-Ponty para comprender el fenómeno investigado utilizando las estructuras de la existencia (tiempo, espacio, relaciones con otras personas y sexualidad, todos ellos anclados en el cuerpo). Estos se utilizaron para describir los significados centrales de la experiencia con la medicación de los pacientes. Los datos mostraron que los pacientes experimentaron ambigüedad durante el tratamiento de la AR y que impregnaba todas las estructuras esenciales de la experiencia. Las experiencias que surgieron del análisis de datos fueron: “esperando el tratamiento adecuado”; “esperando su eficacia y seguridad”; “redescubriendo espacios perdidos por la enfermedad”; y "autogestión para controlar los síntomas". Comprender estas experiencias permite que el equipo de atención em salud ofrezca una atención más integral, holística y eficaz, contribuyendo a mejores resultados en salud.A artrite reumatoide (AR) é uma doença crônica que compromete a qualidade de vida dos pacientes e requer um tratamento farmacológico indispensável e complexo. O objetivo do presente estudo foi compreender as experiências dos pacientes com o tratamento farmacológico da AR. Para tal, foram realizadas entrevistas em profundidade com indivíduos atendidos em um ambulatório. O referencial teórico de Merleau-Ponty foi aplicado para compreender o fenômeno investigado por meio das estruturas essenciais da experiência (tempo, espaço, relação com o outro e sexualidade). Os dados revelaram que os pacientes experienciam de forma mais significativa a ambiguidade durante o tratamento, e esta perpassa todas as estruturas essenciais, ressaltando a experiência da espera pelo tratamento adequado, pela sua efetividade e segurança, a redescoberta dos espaços perdidos com a doença e o autogerenciamento no controle dos sintomas. Compreender essas experiências proporciona a prestação de um cuidado mais integral, holístico e efetivo contribuindo para melhora dos resultados em saúde.Research, Society and Development2021-07-19info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/1707110.33448/rsd-v10i9.17071Research, Society and Development; Vol. 10 No. 9; e0110917071Research, Society and Development; Vol. 10 Núm. 9; e0110917071Research, Society and Development; v. 10 n. 9; e01109170712525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIenghttps://rsdjournal.org/index.php/rsd/article/view/17071/15848Copyright (c) 2021 Carina de Morais Neves; Yone de Almeida Nascimento; Mariana Martins Gonzaga do Nascimento; Hágabo Mathyell Silva ; Isabela Viana Oliveira; Simone de Araújo Medina Mendonça; Adriana Maria Kakehasi; Djenane Ramalho de Oliveirahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessNeves, Carina de MoraisNascimento, Yone de AlmeidaNascimento, Mariana Martins Gonzaga do Silva , Hágabo MathyellOliveira, Isabela VianaMendonça, Simone de Araújo Medina Kakehasi, Adriana Maria Ramalho de Oliveira, Djenane 2021-09-12T14:28:06Zoai:ojs.pkp.sfu.ca:article/17071Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:37:28.963315Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false
dc.title.none.fl_str_mv “It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis
“Es como un tiro en la oscuridad”: Viviendo la ambigüedad en el tratamiento farmacológico de la artritis reumatoide
“É como se você estivesse dando um tiro no escuro”: Vivenciando a ambiguidade no tratamento farmacológico da artrite reumatoide
title “It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis
spellingShingle “It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis
Neves, Carina de Morais
Rheumatoid arthritis
Qualitative research
Patient experience.
Artritis reumatoide
Investigación cualitativa
Experiencia del paciente.
Artrite reumatoide
Pesquisa qualitativa
Experiência do paciente.
title_short “It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis
title_full “It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis
title_fullStr “It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis
title_full_unstemmed “It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis
title_sort “It is as if you were taking a shot in the dark”: Experiencing ambiguity in the pharmacological treatment of rheumatoid arthritis
author Neves, Carina de Morais
author_facet Neves, Carina de Morais
Nascimento, Yone de Almeida
Nascimento, Mariana Martins Gonzaga do
Silva , Hágabo Mathyell
Oliveira, Isabela Viana
Mendonça, Simone de Araújo Medina
Kakehasi, Adriana Maria
Ramalho de Oliveira, Djenane
author_role author
author2 Nascimento, Yone de Almeida
Nascimento, Mariana Martins Gonzaga do
Silva , Hágabo Mathyell
Oliveira, Isabela Viana
Mendonça, Simone de Araújo Medina
Kakehasi, Adriana Maria
Ramalho de Oliveira, Djenane
author2_role author
author
author
author
author
author
author
dc.contributor.author.fl_str_mv Neves, Carina de Morais
Nascimento, Yone de Almeida
Nascimento, Mariana Martins Gonzaga do
Silva , Hágabo Mathyell
Oliveira, Isabela Viana
Mendonça, Simone de Araújo Medina
Kakehasi, Adriana Maria
Ramalho de Oliveira, Djenane
dc.subject.por.fl_str_mv Rheumatoid arthritis
Qualitative research
Patient experience.
Artritis reumatoide
Investigación cualitativa
Experiencia del paciente.
Artrite reumatoide
Pesquisa qualitativa
Experiência do paciente.
topic Rheumatoid arthritis
Qualitative research
Patient experience.
Artritis reumatoide
Investigación cualitativa
Experiencia del paciente.
Artrite reumatoide
Pesquisa qualitativa
Experiência do paciente.
description Rheumatoid arthritis (RA) is a chronic disease that compromises patients’ quality of life and it demands an indispensable and complex pharmacological treatment. The aim of the present study was to understand patients’ experiences with the pharmacological treatment of RA. In order to explore this area, interviews were conducted with patients with RA followed at an outpatient clinic. Merleau-Ponty’s theoretical framework was applied to understand the investigated phenomenon by using the essential structures of the experience (time, space, relationships with other people, and sexuality, all of which are anchored in the body). These were used to describe the central meanings of the patients’ medication experience. The data showed that patients experienced ambiguity during the RA treatment and that it pervaded all the essential structures of the experience. The experiences that emerged from data analysis were: “waiting for the proper treatment”; “hoping for its effectiveness and safety”; “rediscovering spaces lost because of the disease”; and “self-management in controlling symptoms”. Understanding these experiences allows for the healthcare team to offer more comprehensive, holistic and effective care, contributing to better health outcomes.
publishDate 2021
dc.date.none.fl_str_mv 2021-07-19
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/17071
10.33448/rsd-v10i9.17071
url https://rsdjournal.org/index.php/rsd/article/view/17071
identifier_str_mv 10.33448/rsd-v10i9.17071
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv https://rsdjournal.org/index.php/rsd/article/view/17071/15848
dc.rights.driver.fl_str_mv https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Research, Society and Development
publisher.none.fl_str_mv Research, Society and Development
dc.source.none.fl_str_mv Research, Society and Development; Vol. 10 No. 9; e0110917071
Research, Society and Development; Vol. 10 Núm. 9; e0110917071
Research, Society and Development; v. 10 n. 9; e0110917071
2525-3409
reponame:Research, Society and Development
instname:Universidade Federal de Itajubá (UNIFEI)
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instname_str Universidade Federal de Itajubá (UNIFEI)
instacron_str UNIFEI
institution UNIFEI
reponame_str Research, Society and Development
collection Research, Society and Development
repository.name.fl_str_mv Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)
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