Physical and emotional impacts on the health care of informal caregivers of patients with Alzheimer’s disease
Autor(a) principal: | |
---|---|
Data de Publicação: | 2021 |
Outros Autores: | , , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Research, Society and Development |
Texto Completo: | https://rsdjournal.org/index.php/rsd/article/view/16990 |
Resumo: | Alzheimer’s disease significantly affects the daily activities of the patient and the people responsible for his/her care. Thus, given the great physical and emotional wear of caregivers, the objective of this study was to analyze how the care provided to patients with Alzheimer’s can physically and emotionally impact caregivers. This is an integrative literature review, using the Scielo and PubMED databases, and the descriptors “physical impacts”, “emotional impacts”, “caregivers”, “Alzheimer’s disease” and “family members”, in different combinations. Articles published between 2010 and 2020, in English, Spanish, Portuguese and French were included. It was observed that most caregivers of demented patients are women, in general, family members of the patient. In addition, with de progress of the disease, the physical and emotional exhaustion of caregivers tends to increase, causing exacerbated stress, the onset of chronic diseases, anxiety, abdications of pleasurable activities for the caregiver, depression and feelings of loneliness and abandonment. Thus, it was seen that the care process of patients with Alzheimer’s is quite complex, especially in the more advanced stages of the disease, causing abdications od the caregiver’s wishes and negative physical and emotional impacts on their health and quality of life. |
id |
UNIFEI_aa1b99a2aa66eed2619dfb6e4606810d |
---|---|
oai_identifier_str |
oai:ojs.pkp.sfu.ca:article/16990 |
network_acronym_str |
UNIFEI |
network_name_str |
Research, Society and Development |
repository_id_str |
|
spelling |
Physical and emotional impacts on the health care of informal caregivers of patients with Alzheimer’s disease Impactos físicos y emocionales em la atención médica de los cuidadores informales de pacientes com enfermedad de AlzheimerImpactos físicos e emocionais na saúde do cuidador informal de pacientes com doença de AlzheimerDoença de AlzheimerCuidadoresQualidade de vidaNeurologia.Enfermidad de AlzheimerCuidadoresCalidad de vidaNeurología.Alzheimer diseaseCaregiversQuality of lifeNeurology.Alzheimer’s disease significantly affects the daily activities of the patient and the people responsible for his/her care. Thus, given the great physical and emotional wear of caregivers, the objective of this study was to analyze how the care provided to patients with Alzheimer’s can physically and emotionally impact caregivers. This is an integrative literature review, using the Scielo and PubMED databases, and the descriptors “physical impacts”, “emotional impacts”, “caregivers”, “Alzheimer’s disease” and “family members”, in different combinations. Articles published between 2010 and 2020, in English, Spanish, Portuguese and French were included. It was observed that most caregivers of demented patients are women, in general, family members of the patient. In addition, with de progress of the disease, the physical and emotional exhaustion of caregivers tends to increase, causing exacerbated stress, the onset of chronic diseases, anxiety, abdications of pleasurable activities for the caregiver, depression and feelings of loneliness and abandonment. Thus, it was seen that the care process of patients with Alzheimer’s is quite complex, especially in the more advanced stages of the disease, causing abdications od the caregiver’s wishes and negative physical and emotional impacts on their health and quality of life.La enfermedad de Alzheimer afecta significativamente las actividades diarias del paciente y las personas responsables de su cuidado. Así, dado el gran desgaste físico y emocional de los cuidadores, el objetivo de este estudio fue analizar cómo la atención brindada a los pacientes con Alzheimer puede impactar física y emocionalmente a los cuidadores. Se trata de una revisión integradora de la literatura, utilizando las bases de datos Scielo y PubMED, y los descriptores “impactos físicos”, “impactos emocionales”, “cuidadores”, “enfermedad de Alzheimer” y “miembros de la familia”, en diferentes combinaciones. Se incluyeron artículos publicados entre 2010 y 2020, en inglés, español, portugués y francés. Se observó que la mayoría de los cuidadores de pacientes dementes son mujeres, en general familiares del paciente. Además, con el avance de la enfermedad tiende a incrementarse el agotamiento físico y emocional de los cuidadores, provocando un agravamiento del estrés, aparición de enfermedades crónicas, ansiedad, abdicación de actividades placenteras para el cuidador, depresión y sentimientos de soledad y abandono. Así, se vio que el proceso de atención de los pacientes con Alzheimer es bastante complejo, especialmente en las etapas más avanzadas de la enfermedad, provocando abdicación de los deseos del cuidador e impactos físicos y emocionales negativos en su salud y calidad de vida.A doença de Alzheimer afeta de forma bastante importante as atividades diárias do doente e das pessoas responsáveis pelo seu cuidado. Desta forma, haja vista o grande desgaste físico e emocional dos cuidadores, o objetivo deste trabalho foi analisar como o cuidado dispensado aos pacientes com Alzheimer pode impactar física e emocionalmente os cuidadores. Trata-se de uma revisão integrativa de literatura, aonde foram utilizadas as bases de dados Scielo e PubMED, e os descritores “impactos físicos”, “impactos emocionais”, “cuidadores”, “doença de Alzheimer” e “familiares”, em diferentes combinações. Foram incluídos artigos publicados entre 2010 e 2020, nos idiomas inglês, espanhol, português e francês. Observou-se que a maioria dos cuidadores de pacientes demenciados são mulheres, em geral, familiares do doente. Além disso, com o progresso da doença, o esgotamento físico e emocional dos cuidadores tende a aumentar, provocando estresse exacerbado, aparecimento de doenças crônicas, ansiedade, abdicação de atividades prazerosas ao cuidador, depressão e sentimentos de solidão e abandono. Dessa forma, visualizou-se que o processo de cuidado dos pacientes com Alzheimer é bastante complexo, sobretudo nos estágios mais avançados da doença, provocando abdicação das vontades do cuidador e impactos físicos e emocionais negativos na sua saúde e qualidade de vida.Research, Society and Development2021-07-04info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://rsdjournal.org/index.php/rsd/article/view/1699010.33448/rsd-v10i8.16990Research, Society and Development; Vol. 10 No. 8; e1410816990Research, Society and Development; Vol. 10 Núm. 8; e1410816990Research, Society and Development; v. 10 n. 8; e14108169902525-3409reponame:Research, Society and Developmentinstname:Universidade Federal de Itajubá (UNIFEI)instacron:UNIFEIporhttps://rsdjournal.org/index.php/rsd/article/view/16990/15209Copyright (c) 2021 Pedro Henrique de Souza; Priscylla Frazão Rodrigues ; Rafaella Silva Alcantara; Robério Araújo de Carvalho; Jhonantas Henrique Brito Santos; Mauro Mendes Pinheiro Machadohttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessSouza, Pedro Henrique deRodrigues , Priscylla Frazão Alcantara, Rafaella SilvaCarvalho, Robério Araújo de Santos, Jhonantas Henrique BritoMachado, Mauro Mendes Pinheiro2021-08-21T18:46:59Zoai:ojs.pkp.sfu.ca:article/16990Revistahttps://rsdjournal.org/index.php/rsd/indexPUBhttps://rsdjournal.org/index.php/rsd/oairsd.articles@gmail.com2525-34092525-3409opendoar:2024-01-17T09:37:24.065466Research, Society and Development - Universidade Federal de Itajubá (UNIFEI)false |
dc.title.none.fl_str_mv |
Physical and emotional impacts on the health care of informal caregivers of patients with Alzheimer’s disease Impactos físicos y emocionales em la atención médica de los cuidadores informales de pacientes com enfermedad de Alzheimer Impactos físicos e emocionais na saúde do cuidador informal de pacientes com doença de Alzheimer |
title |
Physical and emotional impacts on the health care of informal caregivers of patients with Alzheimer’s disease |
spellingShingle |
Physical and emotional impacts on the health care of informal caregivers of patients with Alzheimer’s disease Souza, Pedro Henrique de Doença de Alzheimer Cuidadores Qualidade de vida Neurologia. Enfermidad de Alzheimer Cuidadores Calidad de vida Neurología. Alzheimer disease Caregivers Quality of life Neurology. |
title_short |
Physical and emotional impacts on the health care of informal caregivers of patients with Alzheimer’s disease |
title_full |
Physical and emotional impacts on the health care of informal caregivers of patients with Alzheimer’s disease |
title_fullStr |
Physical and emotional impacts on the health care of informal caregivers of patients with Alzheimer’s disease |
title_full_unstemmed |
Physical and emotional impacts on the health care of informal caregivers of patients with Alzheimer’s disease |
title_sort |
Physical and emotional impacts on the health care of informal caregivers of patients with Alzheimer’s disease |
author |
Souza, Pedro Henrique de |
author_facet |
Souza, Pedro Henrique de Rodrigues , Priscylla Frazão Alcantara, Rafaella Silva Carvalho, Robério Araújo de Santos, Jhonantas Henrique Brito Machado, Mauro Mendes Pinheiro |
author_role |
author |
author2 |
Rodrigues , Priscylla Frazão Alcantara, Rafaella Silva Carvalho, Robério Araújo de Santos, Jhonantas Henrique Brito Machado, Mauro Mendes Pinheiro |
author2_role |
author author author author author |
dc.contributor.author.fl_str_mv |
Souza, Pedro Henrique de Rodrigues , Priscylla Frazão Alcantara, Rafaella Silva Carvalho, Robério Araújo de Santos, Jhonantas Henrique Brito Machado, Mauro Mendes Pinheiro |
dc.subject.por.fl_str_mv |
Doença de Alzheimer Cuidadores Qualidade de vida Neurologia. Enfermidad de Alzheimer Cuidadores Calidad de vida Neurología. Alzheimer disease Caregivers Quality of life Neurology. |
topic |
Doença de Alzheimer Cuidadores Qualidade de vida Neurologia. Enfermidad de Alzheimer Cuidadores Calidad de vida Neurología. Alzheimer disease Caregivers Quality of life Neurology. |
description |
Alzheimer’s disease significantly affects the daily activities of the patient and the people responsible for his/her care. Thus, given the great physical and emotional wear of caregivers, the objective of this study was to analyze how the care provided to patients with Alzheimer’s can physically and emotionally impact caregivers. This is an integrative literature review, using the Scielo and PubMED databases, and the descriptors “physical impacts”, “emotional impacts”, “caregivers”, “Alzheimer’s disease” and “family members”, in different combinations. Articles published between 2010 and 2020, in English, Spanish, Portuguese and French were included. It was observed that most caregivers of demented patients are women, in general, family members of the patient. In addition, with de progress of the disease, the physical and emotional exhaustion of caregivers tends to increase, causing exacerbated stress, the onset of chronic diseases, anxiety, abdications of pleasurable activities for the caregiver, depression and feelings of loneliness and abandonment. Thus, it was seen that the care process of patients with Alzheimer’s is quite complex, especially in the more advanced stages of the disease, causing abdications od the caregiver’s wishes and negative physical and emotional impacts on their health and quality of life. |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-07-04 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://rsdjournal.org/index.php/rsd/article/view/16990 10.33448/rsd-v10i8.16990 |
url |
https://rsdjournal.org/index.php/rsd/article/view/16990 |
identifier_str_mv |
10.33448/rsd-v10i8.16990 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://rsdjournal.org/index.php/rsd/article/view/16990/15209 |
dc.rights.driver.fl_str_mv |
https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Research, Society and Development |
publisher.none.fl_str_mv |
Research, Society and Development |
dc.source.none.fl_str_mv |
Research, Society and Development; Vol. 10 No. 8; e1410816990 Research, Society and Development; Vol. 10 Núm. 8; e1410816990 Research, Society and Development; v. 10 n. 8; e1410816990 2525-3409 reponame:Research, Society and Development instname:Universidade Federal de Itajubá (UNIFEI) instacron:UNIFEI |
instname_str |
Universidade Federal de Itajubá (UNIFEI) |
instacron_str |
UNIFEI |
institution |
UNIFEI |
reponame_str |
Research, Society and Development |
collection |
Research, Society and Development |
repository.name.fl_str_mv |
Research, Society and Development - Universidade Federal de Itajubá (UNIFEI) |
repository.mail.fl_str_mv |
rsd.articles@gmail.com |
_version_ |
1797052751394373632 |