Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju
Autor(a) principal: | |
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Data de Publicação: | 2013 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Interfaces Científicas. Saúde e Ambiente (Online) |
Texto Completo: | https://periodicos.set.edu.br/saude/article/view/429 |
Resumo: | The Duchenne Muscular Dystrophy is most common and the most severe of the muscular dystrophies, where the signals and symptoms are more severe with faster evolution, death can occur around the 2nd or 3nd decade of life. Currently, the incidence is estimated at around one for each three thousand five hundred male births. To determine the prevalence of Duchenne Muscular Dystrophy in the city of Aracaju-SE, and to characterize the functional profile presented by these patients. The study included all patients with Duchenne Muscular Dystrophy, assisted at the physiotherapy clinics in this city. The data were collected from January to April 2011; initially in the medical records of each patient, and subsequently, the identified patients were submitted for clinical and epidemiological evaluation. Among the functional limitations found in most patients studied, mainly includes the involvement of the lower limbs. The patients evaluated in Aracaju showed moderate functional impairment to perform activities of daily living, characterizing the need to implement actions and private and public policies aimed at the improvement of life quality of these patients. |
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Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of AracajuPerfil epidemiológico y el estado funcional de los pacientes con distrofia muscular de Duchenne visto en clínicas de fisioterapia en la ciudad de AracajuPerfil epidemiológico e funcional de pacientes com distrofia muscular de Duchenne atendidos em clínicas de fisioterapia na cidade de AracajuPhysiotherapyDuchenne Muscular DystrophyEpidemiologyTerapia FísicaDistrofia Muscular de DuchenneEpidemiologíaFisioterapiaDistrofia Muscular de DuchenneEpidemiologiaThe Duchenne Muscular Dystrophy is most common and the most severe of the muscular dystrophies, where the signals and symptoms are more severe with faster evolution, death can occur around the 2nd or 3nd decade of life. Currently, the incidence is estimated at around one for each three thousand five hundred male births. To determine the prevalence of Duchenne Muscular Dystrophy in the city of Aracaju-SE, and to characterize the functional profile presented by these patients. The study included all patients with Duchenne Muscular Dystrophy, assisted at the physiotherapy clinics in this city. The data were collected from January to April 2011; initially in the medical records of each patient, and subsequently, the identified patients were submitted for clinical and epidemiological evaluation. Among the functional limitations found in most patients studied, mainly includes the involvement of the lower limbs. The patients evaluated in Aracaju showed moderate functional impairment to perform activities of daily living, characterizing the need to implement actions and private and public policies aimed at the improvement of life quality of these patients.La distrofia muscular de Duchenne es la más común y la más grave de las distrofias musculares, donde los signos y síntomas son más intensos con una evolución más rápida y la muerte puede ocurrir alrededor de la 2ª o 3ª década de la vida. En la actualidad, la incidencia se estima en alrededor de uno por cada três mil quinientos nacidos vivos del sexo masculino. Conocer la prevalencia de la Distrofia Muscular de Duchenne en la ciudad de Aracaju-SE, así como caracterizar el perfil funcional que presentan estos pacientes. La población de estudio consistió en todos los pacientes con distrofia muscular de Duchenne, asistidos por clínicas de terapia física en esta ciudad. Los datos fueron recogidos entre enero y abril de 2011, inicialmente en los registros clínicos de cada paciente, y, posteriormente, los pacientes identificados fueron sometidos a evaluación clínico-epidemiológica. Entre las limitaciones funcionales que se encontraron en la mayoría de los pacientes estudiados, se destaca el acometimiento de los miembros inferiores. Los pacientes evaluados en la ciudad de Aracaju mostraron deterioro funcional moderado para realizar actividades de la vida diaria, lo que caracteriza la necesidad de implementar acciones y políticas públicas y privadas dirigidas a mejorar la calidad de vida de estos pacientes.O presente artigo trata da Distrofia Muscular de Duchenne que é a mais comum e também a mais grave das distrofias musculares, onde os sinais e sintomas são mais severos com evolução mais rápida, podendo o óbito ocorrer por volta da 2ª ou 3ª década de vida. Atualmente, a incidência está estimada em torno de um para cada três mil e quinhentos nascidos vivos do sexo masculino. Os objetivos deste artigo são: conhecer a prevalência de Distrofia Muscular de Duchenne no município de Aracaju-SE, bem como caracterizar o perfil funcional apresentado por estes pacientes. A população de estudo compreendeu todos os pacientes com Distrofia Muscular de Duchenne, atendidos nas clínicas de fisioterapia desta cidade. Os dados foram coletados no período de janeiro a abril de 2011, inicialmente nos prontuários de cada paciente, e posteriormente, os pacientes identificados foram submetidos à avaliação clínico epidemiológica. Dentre as limitações funcionais encontradas na maioria dos pacientes pesquisados, inclui principalmente o comprometimento de membros inferiores. Verificou-se que os pacientes avaliados no município de Aracaju apresentaram comprometimento funcional moderado para a realização das atividades de vida diária, caracterizando a necessidade de implantação de ações e políticas privadas e públicas voltadas para melhoria na qualidade de vida desses pacientes. Editora Universitária Tiradentes2013-02-16info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://periodicos.set.edu.br/saude/article/view/42910.17564/2316-3798.2013v1n2p21-32Interfaces Científicas - Saúde e Ambiente; v. 1 n. 2 (2013); 21-322316-37982316-331310.17564/2316-3798.2013v1n2reponame:Interfaces Científicas. Saúde e Ambiente (Online)instname:Universidade Tiradentes (UNIT)instacron:UNITporhttps://periodicos.set.edu.br/saude/article/view/429/21410.17564/2316-3798.2013v1n2p21-32cFreitas, Mayanna MachadoSantos, Allen Rafael CardosoOliveira, Juciele Valéria Ribeiro deMaia, Daniela da CostaFrança, Rafael dos Reisinfo:eu-repo/semantics/openAccess2020-11-17T19:31:04Zoai:ojs.emnuvens.com.br:article/429Revistahttps://periodicos.set.edu.br/saudePRIhttps://periodicos.set.edu.br/index.php/saude/oai||crismporto@gmail.com||interfaces_saude_editor@yahoo.com.br2316-37982316-3313opendoar:2020-11-17T19:31:04Interfaces Científicas. Saúde e Ambiente (Online) - Universidade Tiradentes (UNIT)false |
dc.title.none.fl_str_mv |
Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju Perfil epidemiológico y el estado funcional de los pacientes con distrofia muscular de Duchenne visto en clínicas de fisioterapia en la ciudad de Aracaju Perfil epidemiológico e funcional de pacientes com distrofia muscular de Duchenne atendidos em clínicas de fisioterapia na cidade de Aracaju |
title |
Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju |
spellingShingle |
Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju Freitas, Mayanna Machado Physiotherapy Duchenne Muscular Dystrophy Epidemiology Terapia Física Distrofia Muscular de Duchenne Epidemiología Fisioterapia Distrofia Muscular de Duchenne Epidemiologia |
title_short |
Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju |
title_full |
Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju |
title_fullStr |
Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju |
title_full_unstemmed |
Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju |
title_sort |
Epidemiological profile and functional status of patients with Duchenne muscular dystrophy seen in physiotherapy clinics in the city of Aracaju |
author |
Freitas, Mayanna Machado |
author_facet |
Freitas, Mayanna Machado Santos, Allen Rafael Cardoso Oliveira, Juciele Valéria Ribeiro de Maia, Daniela da Costa França, Rafael dos Reis |
author_role |
author |
author2 |
Santos, Allen Rafael Cardoso Oliveira, Juciele Valéria Ribeiro de Maia, Daniela da Costa França, Rafael dos Reis |
author2_role |
author author author author |
dc.contributor.author.fl_str_mv |
Freitas, Mayanna Machado Santos, Allen Rafael Cardoso Oliveira, Juciele Valéria Ribeiro de Maia, Daniela da Costa França, Rafael dos Reis |
dc.subject.por.fl_str_mv |
Physiotherapy Duchenne Muscular Dystrophy Epidemiology Terapia Física Distrofia Muscular de Duchenne Epidemiología Fisioterapia Distrofia Muscular de Duchenne Epidemiologia |
topic |
Physiotherapy Duchenne Muscular Dystrophy Epidemiology Terapia Física Distrofia Muscular de Duchenne Epidemiología Fisioterapia Distrofia Muscular de Duchenne Epidemiologia |
description |
The Duchenne Muscular Dystrophy is most common and the most severe of the muscular dystrophies, where the signals and symptoms are more severe with faster evolution, death can occur around the 2nd or 3nd decade of life. Currently, the incidence is estimated at around one for each three thousand five hundred male births. To determine the prevalence of Duchenne Muscular Dystrophy in the city of Aracaju-SE, and to characterize the functional profile presented by these patients. The study included all patients with Duchenne Muscular Dystrophy, assisted at the physiotherapy clinics in this city. The data were collected from January to April 2011; initially in the medical records of each patient, and subsequently, the identified patients were submitted for clinical and epidemiological evaluation. Among the functional limitations found in most patients studied, mainly includes the involvement of the lower limbs. The patients evaluated in Aracaju showed moderate functional impairment to perform activities of daily living, characterizing the need to implement actions and private and public policies aimed at the improvement of life quality of these patients. |
publishDate |
2013 |
dc.date.none.fl_str_mv |
2013-02-16 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://periodicos.set.edu.br/saude/article/view/429 10.17564/2316-3798.2013v1n2p21-32 |
url |
https://periodicos.set.edu.br/saude/article/view/429 |
identifier_str_mv |
10.17564/2316-3798.2013v1n2p21-32 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://periodicos.set.edu.br/saude/article/view/429/214 10.17564/2316-3798.2013v1n2p21-32c |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Editora Universitária Tiradentes |
publisher.none.fl_str_mv |
Editora Universitária Tiradentes |
dc.source.none.fl_str_mv |
Interfaces Científicas - Saúde e Ambiente; v. 1 n. 2 (2013); 21-32 2316-3798 2316-3313 10.17564/2316-3798.2013v1n2 reponame:Interfaces Científicas. Saúde e Ambiente (Online) instname:Universidade Tiradentes (UNIT) instacron:UNIT |
instname_str |
Universidade Tiradentes (UNIT) |
instacron_str |
UNIT |
institution |
UNIT |
reponame_str |
Interfaces Científicas. Saúde e Ambiente (Online) |
collection |
Interfaces Científicas. Saúde e Ambiente (Online) |
repository.name.fl_str_mv |
Interfaces Científicas. Saúde e Ambiente (Online) - Universidade Tiradentes (UNIT) |
repository.mail.fl_str_mv |
||crismporto@gmail.com||interfaces_saude_editor@yahoo.com.br |
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1800220507961819136 |