Adaptação cultural e validação do JAMAR - Juvenile Arthritis Multidimensional Assessment Report para a artrite idiopática juvenil

Detalhes bibliográficos
Autor(a) principal: Fernandes, Taciana de Albuquerque Pedrosa [UNESP]
Data de Publicação: 2015
Tipo de documento: Tese
Idioma: por
Título da fonte: Repositório Institucional da UNESP
Texto Completo: http://hdl.handle.net/11449/132731
http://www.athena.biblioteca.unesp.br/exlibris/bd/cathedra/18-12-2015/000855275.pdf
Resumo: Objectives: Translate and validate Juvenile Arthritis Multidimensional Assessment Report (JAMAR) into Brazilian Portuguese for Juvenile Idiopathic Arthritis (JIA). Methods: English JAMAR was translated according to international guidelines. The Brazilian-Portuguese version was applied in cross-sectional evaluation in JIA cases treated between May and December 2012. Clinical, demographic and joint assessments, physician global visual analog scale, Juvenile Arthritis Score Damage Index (JADI), with parents and children version in comparison to a healthy control group. The JAMAR components are: functional scales and quality of life scales. The scores were analyzed by intraclass correlation coefficient (ICC) for reliability between test-retest. The Median test was used to compare functional and quality of life scales, physician global assessment, pain and overall well-being for children and parents global assessment scales, Juvenile Arthritis Disease Activity Score (JADAS), clinical Juvenile Arthritis Disease Activity Score (cJADAS), Juvenile Arthritis Parent / Child Assessment Index (JAPAI / JACAI) scales. The Kappa test was used to measure the degree of agreement between parents, children and physician about disease activity perception. The Spearman correlation test was used to verify the association between JAPAI / JACAI and cJADAS scores. Results: The Brazilian-Portuguese version of JAMAR was obtained by 3 independent direct translations and 2 reverse translations and a final version by consensus expert committee. The pre-test was applied in ten JIA children of 9.8 to 18.6 years and their parents. Questionnaires from 72 parents and 69 children with JIA, and 72 parents and 62 children healthy were filled out. The JIA cases were classified as persistent oligoarticular (43.4%), enthesitis related arthritis (19.7%), extended oligoarticular (14.5%), polyarticular rheumatoid factor (RF) negative (10.5%), polyarticular RF positive ...
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spelling Adaptação cultural e validação do JAMAR - Juvenile Arthritis Multidimensional Assessment Report para a artrite idiopática juvenilCross-cultural adaptation and validation of JAMAR - Juvenile Arthritis Multidimensional Assessment Report for Juvenile Idiopathic ArthritisArtrite idiopática juvenilEstudos transversaisQualidade de vidaQuestionariosQuality of lifeArthritisObjectives: Translate and validate Juvenile Arthritis Multidimensional Assessment Report (JAMAR) into Brazilian Portuguese for Juvenile Idiopathic Arthritis (JIA). Methods: English JAMAR was translated according to international guidelines. The Brazilian-Portuguese version was applied in cross-sectional evaluation in JIA cases treated between May and December 2012. Clinical, demographic and joint assessments, physician global visual analog scale, Juvenile Arthritis Score Damage Index (JADI), with parents and children version in comparison to a healthy control group. The JAMAR components are: functional scales and quality of life scales. The scores were analyzed by intraclass correlation coefficient (ICC) for reliability between test-retest. The Median test was used to compare functional and quality of life scales, physician global assessment, pain and overall well-being for children and parents global assessment scales, Juvenile Arthritis Disease Activity Score (JADAS), clinical Juvenile Arthritis Disease Activity Score (cJADAS), Juvenile Arthritis Parent / Child Assessment Index (JAPAI / JACAI) scales. The Kappa test was used to measure the degree of agreement between parents, children and physician about disease activity perception. The Spearman correlation test was used to verify the association between JAPAI / JACAI and cJADAS scores. Results: The Brazilian-Portuguese version of JAMAR was obtained by 3 independent direct translations and 2 reverse translations and a final version by consensus expert committee. The pre-test was applied in ten JIA children of 9.8 to 18.6 years and their parents. Questionnaires from 72 parents and 69 children with JIA, and 72 parents and 62 children healthy were filled out. The JIA cases were classified as persistent oligoarticular (43.4%), enthesitis related arthritis (19.7%), extended oligoarticular (14.5%), polyarticular rheumatoid factor (RF) negative (10.5%), polyarticular RF positive ...Universidade Estadual Paulista (Unesp)Magalhães, Cláudia Saad [UNESP]Universidade Estadual Paulista (Unesp)Fernandes, Taciana de Albuquerque Pedrosa [UNESP]2016-01-13T13:27:47Z2016-01-13T13:27:47Z2015-08-28info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/doctoralThesis116 f.application/pdfFERNANDES, Taciana de Albuquerque Pedrosa. Adaptação cultural e validação do JAMAR - Juvenile Arthritis Multidimensional Assessment Report para a artrite idiopática juvenil. 2015. 116 f. Tese (doutorado) - Universidade Estadual Paulista Júlio de Mesquita Filho, Faculdade de Medicina de Botucatu, 2015.http://hdl.handle.net/11449/132731000855275http://www.athena.biblioteca.unesp.br/exlibris/bd/cathedra/18-12-2015/000855275.pdf33004064078P970983100083716320000-0002-7631-7093Alephreponame:Repositório Institucional da UNESPinstname:Universidade Estadual Paulista (UNESP)instacron:UNESPporinfo:eu-repo/semantics/openAccess2024-09-04T13:29:18Zoai:repositorio.unesp.br:11449/132731Repositório InstitucionalPUBhttp://repositorio.unesp.br/oai/requestrepositoriounesp@unesp.bropendoar:29462024-09-04T13:29:18Repositório Institucional da UNESP - Universidade Estadual Paulista (UNESP)false
dc.title.none.fl_str_mv Adaptação cultural e validação do JAMAR - Juvenile Arthritis Multidimensional Assessment Report para a artrite idiopática juvenil
Cross-cultural adaptation and validation of JAMAR - Juvenile Arthritis Multidimensional Assessment Report for Juvenile Idiopathic Arthritis
title Adaptação cultural e validação do JAMAR - Juvenile Arthritis Multidimensional Assessment Report para a artrite idiopática juvenil
spellingShingle Adaptação cultural e validação do JAMAR - Juvenile Arthritis Multidimensional Assessment Report para a artrite idiopática juvenil
Fernandes, Taciana de Albuquerque Pedrosa [UNESP]
Artrite idiopática juvenil
Estudos transversais
Qualidade de vida
Questionarios
Quality of life
Arthritis
title_short Adaptação cultural e validação do JAMAR - Juvenile Arthritis Multidimensional Assessment Report para a artrite idiopática juvenil
title_full Adaptação cultural e validação do JAMAR - Juvenile Arthritis Multidimensional Assessment Report para a artrite idiopática juvenil
title_fullStr Adaptação cultural e validação do JAMAR - Juvenile Arthritis Multidimensional Assessment Report para a artrite idiopática juvenil
title_full_unstemmed Adaptação cultural e validação do JAMAR - Juvenile Arthritis Multidimensional Assessment Report para a artrite idiopática juvenil
title_sort Adaptação cultural e validação do JAMAR - Juvenile Arthritis Multidimensional Assessment Report para a artrite idiopática juvenil
author Fernandes, Taciana de Albuquerque Pedrosa [UNESP]
author_facet Fernandes, Taciana de Albuquerque Pedrosa [UNESP]
author_role author
dc.contributor.none.fl_str_mv Magalhães, Cláudia Saad [UNESP]
Universidade Estadual Paulista (Unesp)
dc.contributor.author.fl_str_mv Fernandes, Taciana de Albuquerque Pedrosa [UNESP]
dc.subject.por.fl_str_mv Artrite idiopática juvenil
Estudos transversais
Qualidade de vida
Questionarios
Quality of life
Arthritis
topic Artrite idiopática juvenil
Estudos transversais
Qualidade de vida
Questionarios
Quality of life
Arthritis
description Objectives: Translate and validate Juvenile Arthritis Multidimensional Assessment Report (JAMAR) into Brazilian Portuguese for Juvenile Idiopathic Arthritis (JIA). Methods: English JAMAR was translated according to international guidelines. The Brazilian-Portuguese version was applied in cross-sectional evaluation in JIA cases treated between May and December 2012. Clinical, demographic and joint assessments, physician global visual analog scale, Juvenile Arthritis Score Damage Index (JADI), with parents and children version in comparison to a healthy control group. The JAMAR components are: functional scales and quality of life scales. The scores were analyzed by intraclass correlation coefficient (ICC) for reliability between test-retest. The Median test was used to compare functional and quality of life scales, physician global assessment, pain and overall well-being for children and parents global assessment scales, Juvenile Arthritis Disease Activity Score (JADAS), clinical Juvenile Arthritis Disease Activity Score (cJADAS), Juvenile Arthritis Parent / Child Assessment Index (JAPAI / JACAI) scales. The Kappa test was used to measure the degree of agreement between parents, children and physician about disease activity perception. The Spearman correlation test was used to verify the association between JAPAI / JACAI and cJADAS scores. Results: The Brazilian-Portuguese version of JAMAR was obtained by 3 independent direct translations and 2 reverse translations and a final version by consensus expert committee. The pre-test was applied in ten JIA children of 9.8 to 18.6 years and their parents. Questionnaires from 72 parents and 69 children with JIA, and 72 parents and 62 children healthy were filled out. The JIA cases were classified as persistent oligoarticular (43.4%), enthesitis related arthritis (19.7%), extended oligoarticular (14.5%), polyarticular rheumatoid factor (RF) negative (10.5%), polyarticular RF positive ...
publishDate 2015
dc.date.none.fl_str_mv 2015-08-28
2016-01-13T13:27:47Z
2016-01-13T13:27:47Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/doctoralThesis
format doctoralThesis
status_str publishedVersion
dc.identifier.uri.fl_str_mv FERNANDES, Taciana de Albuquerque Pedrosa. Adaptação cultural e validação do JAMAR - Juvenile Arthritis Multidimensional Assessment Report para a artrite idiopática juvenil. 2015. 116 f. Tese (doutorado) - Universidade Estadual Paulista Júlio de Mesquita Filho, Faculdade de Medicina de Botucatu, 2015.
http://hdl.handle.net/11449/132731
000855275
http://www.athena.biblioteca.unesp.br/exlibris/bd/cathedra/18-12-2015/000855275.pdf
33004064078P9
7098310008371632
0000-0002-7631-7093
identifier_str_mv FERNANDES, Taciana de Albuquerque Pedrosa. Adaptação cultural e validação do JAMAR - Juvenile Arthritis Multidimensional Assessment Report para a artrite idiopática juvenil. 2015. 116 f. Tese (doutorado) - Universidade Estadual Paulista Júlio de Mesquita Filho, Faculdade de Medicina de Botucatu, 2015.
000855275
33004064078P9
7098310008371632
0000-0002-7631-7093
url http://hdl.handle.net/11449/132731
http://www.athena.biblioteca.unesp.br/exlibris/bd/cathedra/18-12-2015/000855275.pdf
dc.language.iso.fl_str_mv por
language por
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv 116 f.
application/pdf
dc.publisher.none.fl_str_mv Universidade Estadual Paulista (Unesp)
publisher.none.fl_str_mv Universidade Estadual Paulista (Unesp)
dc.source.none.fl_str_mv Aleph
reponame:Repositório Institucional da UNESP
instname:Universidade Estadual Paulista (UNESP)
instacron:UNESP
instname_str Universidade Estadual Paulista (UNESP)
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institution UNESP
reponame_str Repositório Institucional da UNESP
collection Repositório Institucional da UNESP
repository.name.fl_str_mv Repositório Institucional da UNESP - Universidade Estadual Paulista (UNESP)
repository.mail.fl_str_mv repositoriounesp@unesp.br
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