Inquérito sobre a qualidade de vida relacionada à saúde em crianças e adolescentes portadores de artrites idiopáticas juvenis
Autor(a) principal: | |
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Data de Publicação: | 2003 |
Outros Autores: | , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Repositório Institucional da UNESP |
Texto Completo: | http://dx.doi.org/10.1590/S0021-75572003000100011 http://hdl.handle.net/11449/67512 |
Resumo: | Objective: to study the impact of chronic arthritis on health related quality of life by means of two self-reported tools: the parents' version of the Childhood Health Assessment Questionnaire (CHAQ) and the Childhood Health Questionnaire PF50® (CHQ). Methods: both tools were filled in after proper instructions by 36 parents, during 1-2 clinic visits. The Disability Index (CHAQ) and the Physical and Psychosocial scores (CHQ) were compared to the core set of outcome measures, namely 1) physician's global assessment, 2) parents' global assessment, both scored by 10 cm visual analogue scale, 3) number of joints with active arthritis, 4) number of joints with limited range of motion, 5) erythrocyte sedimentation rate. Results: there was significant difference for all measures of disease activity, being higher in the polyarticular as compared to oligoarticular except for erythrocyte sedimentation rate, parents' global assessment, and psychosocial score. This leads to different parents' perceptions of disease activity and outcome. The responsiveness of the outcome measures during two follow-up visits of patients receiving active treatment indicated better responsiveness of physicians' global assessment among the subjective measures, and intermediate responsiveness of the self-reported measures in comparison to the number of active and limited joints, and erythrocyte sedimentation rate. Conclusions: the responsiveness of two health related quality of life tools indicates their relative sensitivity for assessing clinical improvement during active treatment in Juvenile Idiopathic Arthritis patients. Copyright © 2003 by Sociedade Brasileira de Pediatria. |
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Inquérito sobre a qualidade de vida relacionada à saúde em crianças e adolescentes portadores de artrites idiopáticas juvenisHealth related quality of life survey about children and adolescents with juvenile idiopathic arthritisadolescentchildfemalehumanjuvenile rheumatoid arthritismalepreschool childquality of lifequestionnaireAdolescentArthritis, Juvenile RheumatoidChildChild, PreschoolFemaleHumansMaleQuality of LifeQuestionnairesObjective: to study the impact of chronic arthritis on health related quality of life by means of two self-reported tools: the parents' version of the Childhood Health Assessment Questionnaire (CHAQ) and the Childhood Health Questionnaire PF50® (CHQ). Methods: both tools were filled in after proper instructions by 36 parents, during 1-2 clinic visits. The Disability Index (CHAQ) and the Physical and Psychosocial scores (CHQ) were compared to the core set of outcome measures, namely 1) physician's global assessment, 2) parents' global assessment, both scored by 10 cm visual analogue scale, 3) number of joints with active arthritis, 4) number of joints with limited range of motion, 5) erythrocyte sedimentation rate. Results: there was significant difference for all measures of disease activity, being higher in the polyarticular as compared to oligoarticular except for erythrocyte sedimentation rate, parents' global assessment, and psychosocial score. This leads to different parents' perceptions of disease activity and outcome. The responsiveness of the outcome measures during two follow-up visits of patients receiving active treatment indicated better responsiveness of physicians' global assessment among the subjective measures, and intermediate responsiveness of the self-reported measures in comparison to the number of active and limited joints, and erythrocyte sedimentation rate. Conclusions: the responsiveness of two health related quality of life tools indicates their relative sensitivity for assessing clinical improvement during active treatment in Juvenile Idiopathic Arthritis patients. Copyright © 2003 by Sociedade Brasileira de Pediatria.Faculdade de Medicina de Botucatu UNESPDepartamento de Puericultura e Pediatria Faculdade de Medicina de Ribeirão Preto USPDepartamento de Pediatria Faculdade de Medicina de Botucatu UNESPDepartamento de Pediatria Faculdade de Medicina de Botucatu UNESP, CEP 18618-970 - Botucatu, SPFaculdade de Medicina de Botucatu UNESPDepartamento de Pediatria Faculdade de Medicina de Botucatu UNESPDepartamento de Pediatria Faculdade de Medicina de Botucatu UNESP, CEP 18618-970 - Botucatu, SPUniversidade Estadual Paulista (Unesp)Universidade de São Paulo (USP)Brasil, Tatiana B. [UNESP]Ferriani, Virginia P. L.Machado, Claudia S. M. [UNESP]2014-05-27T11:20:57Z2014-05-27T11:20:57Z2003-12-01info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/article63-68application/pdfhttp://dx.doi.org/10.1590/S0021-75572003000100011Jornal de Pediatria, v. 79, n. 1, p. 63-68, 2003.0021-7557http://hdl.handle.net/11449/6751210.1590/S0021-75572003000100011S0021-755720030001000112-s2.0-06423744172-s2.0-0642374417.pdfScopusreponame:Repositório Institucional da UNESPinstname:Universidade Estadual Paulista (UNESP)instacron:UNESPporJornal de Pediatria1.6900,704info:eu-repo/semantics/openAccess2024-09-03T13:46:51Zoai:repositorio.unesp.br:11449/67512Repositório InstitucionalPUBhttp://repositorio.unesp.br/oai/requestrepositoriounesp@unesp.bropendoar:29462024-09-03T13:46:51Repositório Institucional da UNESP - Universidade Estadual Paulista (UNESP)false |
dc.title.none.fl_str_mv |
Inquérito sobre a qualidade de vida relacionada à saúde em crianças e adolescentes portadores de artrites idiopáticas juvenis Health related quality of life survey about children and adolescents with juvenile idiopathic arthritis |
title |
Inquérito sobre a qualidade de vida relacionada à saúde em crianças e adolescentes portadores de artrites idiopáticas juvenis |
spellingShingle |
Inquérito sobre a qualidade de vida relacionada à saúde em crianças e adolescentes portadores de artrites idiopáticas juvenis Brasil, Tatiana B. [UNESP] adolescent child female human juvenile rheumatoid arthritis male preschool child quality of life questionnaire Adolescent Arthritis, Juvenile Rheumatoid Child Child, Preschool Female Humans Male Quality of Life Questionnaires |
title_short |
Inquérito sobre a qualidade de vida relacionada à saúde em crianças e adolescentes portadores de artrites idiopáticas juvenis |
title_full |
Inquérito sobre a qualidade de vida relacionada à saúde em crianças e adolescentes portadores de artrites idiopáticas juvenis |
title_fullStr |
Inquérito sobre a qualidade de vida relacionada à saúde em crianças e adolescentes portadores de artrites idiopáticas juvenis |
title_full_unstemmed |
Inquérito sobre a qualidade de vida relacionada à saúde em crianças e adolescentes portadores de artrites idiopáticas juvenis |
title_sort |
Inquérito sobre a qualidade de vida relacionada à saúde em crianças e adolescentes portadores de artrites idiopáticas juvenis |
author |
Brasil, Tatiana B. [UNESP] |
author_facet |
Brasil, Tatiana B. [UNESP] Ferriani, Virginia P. L. Machado, Claudia S. M. [UNESP] |
author_role |
author |
author2 |
Ferriani, Virginia P. L. Machado, Claudia S. M. [UNESP] |
author2_role |
author author |
dc.contributor.none.fl_str_mv |
Universidade Estadual Paulista (Unesp) Universidade de São Paulo (USP) |
dc.contributor.author.fl_str_mv |
Brasil, Tatiana B. [UNESP] Ferriani, Virginia P. L. Machado, Claudia S. M. [UNESP] |
dc.subject.por.fl_str_mv |
adolescent child female human juvenile rheumatoid arthritis male preschool child quality of life questionnaire Adolescent Arthritis, Juvenile Rheumatoid Child Child, Preschool Female Humans Male Quality of Life Questionnaires |
topic |
adolescent child female human juvenile rheumatoid arthritis male preschool child quality of life questionnaire Adolescent Arthritis, Juvenile Rheumatoid Child Child, Preschool Female Humans Male Quality of Life Questionnaires |
description |
Objective: to study the impact of chronic arthritis on health related quality of life by means of two self-reported tools: the parents' version of the Childhood Health Assessment Questionnaire (CHAQ) and the Childhood Health Questionnaire PF50® (CHQ). Methods: both tools were filled in after proper instructions by 36 parents, during 1-2 clinic visits. The Disability Index (CHAQ) and the Physical and Psychosocial scores (CHQ) were compared to the core set of outcome measures, namely 1) physician's global assessment, 2) parents' global assessment, both scored by 10 cm visual analogue scale, 3) number of joints with active arthritis, 4) number of joints with limited range of motion, 5) erythrocyte sedimentation rate. Results: there was significant difference for all measures of disease activity, being higher in the polyarticular as compared to oligoarticular except for erythrocyte sedimentation rate, parents' global assessment, and psychosocial score. This leads to different parents' perceptions of disease activity and outcome. The responsiveness of the outcome measures during two follow-up visits of patients receiving active treatment indicated better responsiveness of physicians' global assessment among the subjective measures, and intermediate responsiveness of the self-reported measures in comparison to the number of active and limited joints, and erythrocyte sedimentation rate. Conclusions: the responsiveness of two health related quality of life tools indicates their relative sensitivity for assessing clinical improvement during active treatment in Juvenile Idiopathic Arthritis patients. Copyright © 2003 by Sociedade Brasileira de Pediatria. |
publishDate |
2003 |
dc.date.none.fl_str_mv |
2003-12-01 2014-05-27T11:20:57Z 2014-05-27T11:20:57Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://dx.doi.org/10.1590/S0021-75572003000100011 Jornal de Pediatria, v. 79, n. 1, p. 63-68, 2003. 0021-7557 http://hdl.handle.net/11449/67512 10.1590/S0021-75572003000100011 S0021-75572003000100011 2-s2.0-0642374417 2-s2.0-0642374417.pdf |
url |
http://dx.doi.org/10.1590/S0021-75572003000100011 http://hdl.handle.net/11449/67512 |
identifier_str_mv |
Jornal de Pediatria, v. 79, n. 1, p. 63-68, 2003. 0021-7557 10.1590/S0021-75572003000100011 S0021-75572003000100011 2-s2.0-0642374417 2-s2.0-0642374417.pdf |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
Jornal de Pediatria 1.690 0,704 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
63-68 application/pdf |
dc.source.none.fl_str_mv |
Scopus reponame:Repositório Institucional da UNESP instname:Universidade Estadual Paulista (UNESP) instacron:UNESP |
instname_str |
Universidade Estadual Paulista (UNESP) |
instacron_str |
UNESP |
institution |
UNESP |
reponame_str |
Repositório Institucional da UNESP |
collection |
Repositório Institucional da UNESP |
repository.name.fl_str_mv |
Repositório Institucional da UNESP - Universidade Estadual Paulista (UNESP) |
repository.mail.fl_str_mv |
repositoriounesp@unesp.br |
_version_ |
1810021398783983616 |