Epilepsia e trabalho: aspectos biopsicossociais da qualidade de vida

Detalhes bibliográficos
Autor(a) principal: Golfetto, Vando
Data de Publicação: 2018
Tipo de documento: Dissertação
Idioma: por
Título da fonte: Biblioteca de teses e dissertações da Universidade de Passo Fundo (BDTD UPF)
Texto Completo: http://tede.upf.br/jspui/handle/tede/1583
Resumo: Epilepsy is a common, chronic neurological condition that affects 1% to 3% of the world’s population and its diagnosis is associated with a high incidence of psychosocial difficulties. This study focuses on understanding the biopsychosocial factors emerging during subjectivation of individuals with epilepsy, specifically with regard to the labor market. This study is based on a sample from the records of people with epilepsy in the 20 th regional health department (20ª Regional de Saúde), located in the municipality of Toledo (PR). We utilized a quantitative approach to address the research question. Specifically, we took used a data collection form including questions regarding sociodemographic characteristics and the Subjective Handicap Of Epilepsy (SHE) scale. The first production of this dissertation discusses the perceptions associated with epilepsy and, in particular, the relationships between epilepsy and working life. For this purpose, historical and conceptual studies are reviewed in order to better understand how epilepsy was viewed in Western society before scientific knowledge was obtained. Since the pre-modern mystic and religious discourse was rejected, epilepsy has been considered a condition belonging to medical science and given the status of an organic disease; however, the stigma, which was previously instigated by obscure interpretations, has not disappeared. Technical arguments based on the perspective of risk and safety of those involved lead to conditions that restrict working life, an interpretation that has been scrutinized in academic circles through discourse that aims to preserve personal autonomy in patients affected by epilepsy. It is necessary to preserve the plurality of points of view in order to ensure that the ethical subject and law subsist alongside the patient, and where technical knowledge can result in better life experiences without affecting the working chances of the affected individuals. The objective of the second production of the study was to assess incapacity of individuals with epilepsy, particularly with regard to biopsychosocial aspects, using the SHE scale. The results were consistent across the studied population, and the findings reproduce those of the original study for the validation of the protocol in Brazil; we observed agreement between the results and the original studies across the six key domains (physical, social and personal, change, satisfaction with life, self-perception, and work and activities). The analyses developed in the present study using SHE indicate factors related to the crises themselves, stigmas, and psychosocial variables such as low self-esteem, difficulties in dealing with adverse situations, and low effectiveness at work.
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spelling Moretto, Cleide Fátima58284109034http://lattes.cnpq.br/4538022841136072Dametto, Jarbas00125387016http://lattes.cnpq.br/419947076290835672095733053http://lattes.cnpq.br/1127999221601727Golfetto, Vando2018-12-18T17:55:33Z2018-08-23GOLFETTO, Vando. Epilepsia e trabalho: aspectos biopsicossociais da qualidade de vida. 2018. 98 f. Dissertação (Mestrado em Envelhecimento Humano) - Universidade de Passo Fundo, Passo Fundo, RS, 2018.http://tede.upf.br/jspui/handle/tede/1583Epilepsy is a common, chronic neurological condition that affects 1% to 3% of the world’s population and its diagnosis is associated with a high incidence of psychosocial difficulties. This study focuses on understanding the biopsychosocial factors emerging during subjectivation of individuals with epilepsy, specifically with regard to the labor market. This study is based on a sample from the records of people with epilepsy in the 20 th regional health department (20ª Regional de Saúde), located in the municipality of Toledo (PR). We utilized a quantitative approach to address the research question. Specifically, we took used a data collection form including questions regarding sociodemographic characteristics and the Subjective Handicap Of Epilepsy (SHE) scale. The first production of this dissertation discusses the perceptions associated with epilepsy and, in particular, the relationships between epilepsy and working life. For this purpose, historical and conceptual studies are reviewed in order to better understand how epilepsy was viewed in Western society before scientific knowledge was obtained. Since the pre-modern mystic and religious discourse was rejected, epilepsy has been considered a condition belonging to medical science and given the status of an organic disease; however, the stigma, which was previously instigated by obscure interpretations, has not disappeared. Technical arguments based on the perspective of risk and safety of those involved lead to conditions that restrict working life, an interpretation that has been scrutinized in academic circles through discourse that aims to preserve personal autonomy in patients affected by epilepsy. It is necessary to preserve the plurality of points of view in order to ensure that the ethical subject and law subsist alongside the patient, and where technical knowledge can result in better life experiences without affecting the working chances of the affected individuals. The objective of the second production of the study was to assess incapacity of individuals with epilepsy, particularly with regard to biopsychosocial aspects, using the SHE scale. The results were consistent across the studied population, and the findings reproduce those of the original study for the validation of the protocol in Brazil; we observed agreement between the results and the original studies across the six key domains (physical, social and personal, change, satisfaction with life, self-perception, and work and activities). The analyses developed in the present study using SHE indicate factors related to the crises themselves, stigmas, and psychosocial variables such as low self-esteem, difficulties in dealing with adverse situations, and low effectiveness at work.Epilepsia é uma condição neurológica crônica muito comum que afeta de 1 a 3% da população mundial e seu diagnóstico revela uma alta incidência de dificuldades psicossociais. A problemática do estudo surge da necessidade de observar quais os fatores biopsicossociais emergem nos processos de subjetivação das pessoas com epilepsia frente ao mercado de trabalho. Para fins de contextualizar o objeto, a pesquisa utiliza como base uma amostra dos registros de pessoas com epilepsia da 20ª Regional de Saúde, situada no município de Toledo (PR). O estudo, em nível exploratório e descritivo, adota uma abordagem de pesquisa quantitativa para a operacionalização do problema em questão. Como instrumento de pesquisa foi aplicado um formulário de coleta de dados que inclui questões relativas aos aspectos sociodemográficos e o formulário Subjective Handicap Of Epilepsy (SHE). A primeira produção da dissertação teve o intuito de problematizar as concepções relativas à epilepsia e, em especial, o discurso acadêmico sobre as relações existentes entre essa doença e a vida de trabalho. Para tal, são revisados elementos históricos e conceituais, tendo como objetivo identificar como a epilepsia foi apreendida no ocidente até ser encampada pelo saber científico. Constata-se que, declinado o discurso místico-religioso pré-moderno, a ciência médica apropria-se da epilepsia dando a ela a o status de doença orgânica, entretanto, o estigma, antes incitado por interpretações obscuras, não foi extinto. Argumentos técnicos sustentados a partir da perspectiva do risco e da segurança dos envolvidos geram prescrições limitadoras à vida laboral, leitura esta ponderada em âmbito acadêmico por discursos que visam preservar a autonomia pessoal na epilepsia. Aponta-se a necessidade de preservar a pluralidade de concepções, a fim de que o sujeito ético e o sujeito de direito possam subsistir ao sujeito-paciente, e com isso o saber técnico possa apenas gerar melhores experiências de vida e não boicote as possibilidades laborais dos acometidos. Na segunda produção cientifica o estudo objetivou avaliar os domínios da incapacidade da pessoa com epilepsia no âmbito biopsicossocial por meio do Subjetive Handicap of Epilepsy (SHE). Como resultado, indica que a consistência interna das escalas analisadas foi alta, reproduzindo os achados do instrumento original e o estudo de validação do instrumento no Brasil, observando-se a convergência nos resultados em relação aos estudos originais nos seis domínios, físico, social e pessoal, mudança, satisfação com a vida, autopercepção e trabalho e atividade. As análises desenvolvidas pelo SHE realizados nesta pesquisa apontam fatores relacionados às próprias crises, estigmas e variáveis psicossociais, como baixa autoestima, dificuldades de lidar com situações adversas e baixa efetividade no trabalho.Submitted by Mariana Freitas (marianafreitas@upf.br) on 2018-12-18T17:55:33Z No. of bitstreams: 1 2018VandoGolfetto.pdf: 210231 bytes, checksum: 7b786b8dd94a167d72d2fad4b904f7e9 (MD5)Made available in DSpace on 2018-12-18T17:55:33Z (GMT). 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dc.title.por.fl_str_mv Epilepsia e trabalho: aspectos biopsicossociais da qualidade de vida
dc.title.alternative.eng.fl_str_mv Epilepsy and work: biopsychosocial aspects of quality of life
title Epilepsia e trabalho: aspectos biopsicossociais da qualidade de vida
spellingShingle Epilepsia e trabalho: aspectos biopsicossociais da qualidade de vida
Golfetto, Vando
Epilepsia
Qualidade de vida no trabalho
Subjetividade
Incapacidade
Avaliação
SAUDE COLETIVA::SAUDE PUBLICA
title_short Epilepsia e trabalho: aspectos biopsicossociais da qualidade de vida
title_full Epilepsia e trabalho: aspectos biopsicossociais da qualidade de vida
title_fullStr Epilepsia e trabalho: aspectos biopsicossociais da qualidade de vida
title_full_unstemmed Epilepsia e trabalho: aspectos biopsicossociais da qualidade de vida
title_sort Epilepsia e trabalho: aspectos biopsicossociais da qualidade de vida
author Golfetto, Vando
author_facet Golfetto, Vando
author_role author
dc.contributor.advisor1.fl_str_mv Moretto, Cleide Fátima
dc.contributor.advisor1ID.fl_str_mv 58284109034
dc.contributor.advisor1Lattes.fl_str_mv http://lattes.cnpq.br/4538022841136072
dc.contributor.advisor-co1.fl_str_mv Dametto, Jarbas
dc.contributor.advisor-co1ID.fl_str_mv 00125387016
dc.contributor.advisor-co1Lattes.fl_str_mv http://lattes.cnpq.br/4199470762908356
dc.contributor.authorID.fl_str_mv 72095733053
dc.contributor.authorLattes.fl_str_mv http://lattes.cnpq.br/1127999221601727
dc.contributor.author.fl_str_mv Golfetto, Vando
contributor_str_mv Moretto, Cleide Fátima
Dametto, Jarbas
dc.subject.por.fl_str_mv Epilepsia
Qualidade de vida no trabalho
Subjetividade
Incapacidade
Avaliação
topic Epilepsia
Qualidade de vida no trabalho
Subjetividade
Incapacidade
Avaliação
SAUDE COLETIVA::SAUDE PUBLICA
dc.subject.cnpq.fl_str_mv SAUDE COLETIVA::SAUDE PUBLICA
description Epilepsy is a common, chronic neurological condition that affects 1% to 3% of the world’s population and its diagnosis is associated with a high incidence of psychosocial difficulties. This study focuses on understanding the biopsychosocial factors emerging during subjectivation of individuals with epilepsy, specifically with regard to the labor market. This study is based on a sample from the records of people with epilepsy in the 20 th regional health department (20ª Regional de Saúde), located in the municipality of Toledo (PR). We utilized a quantitative approach to address the research question. Specifically, we took used a data collection form including questions regarding sociodemographic characteristics and the Subjective Handicap Of Epilepsy (SHE) scale. The first production of this dissertation discusses the perceptions associated with epilepsy and, in particular, the relationships between epilepsy and working life. For this purpose, historical and conceptual studies are reviewed in order to better understand how epilepsy was viewed in Western society before scientific knowledge was obtained. Since the pre-modern mystic and religious discourse was rejected, epilepsy has been considered a condition belonging to medical science and given the status of an organic disease; however, the stigma, which was previously instigated by obscure interpretations, has not disappeared. Technical arguments based on the perspective of risk and safety of those involved lead to conditions that restrict working life, an interpretation that has been scrutinized in academic circles through discourse that aims to preserve personal autonomy in patients affected by epilepsy. It is necessary to preserve the plurality of points of view in order to ensure that the ethical subject and law subsist alongside the patient, and where technical knowledge can result in better life experiences without affecting the working chances of the affected individuals. The objective of the second production of the study was to assess incapacity of individuals with epilepsy, particularly with regard to biopsychosocial aspects, using the SHE scale. The results were consistent across the studied population, and the findings reproduce those of the original study for the validation of the protocol in Brazil; we observed agreement between the results and the original studies across the six key domains (physical, social and personal, change, satisfaction with life, self-perception, and work and activities). The analyses developed in the present study using SHE indicate factors related to the crises themselves, stigmas, and psychosocial variables such as low self-esteem, difficulties in dealing with adverse situations, and low effectiveness at work.
publishDate 2018
dc.date.accessioned.fl_str_mv 2018-12-18T17:55:33Z
dc.date.issued.fl_str_mv 2018-08-23
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
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dc.identifier.citation.fl_str_mv GOLFETTO, Vando. Epilepsia e trabalho: aspectos biopsicossociais da qualidade de vida. 2018. 98 f. Dissertação (Mestrado em Envelhecimento Humano) - Universidade de Passo Fundo, Passo Fundo, RS, 2018.
dc.identifier.uri.fl_str_mv http://tede.upf.br/jspui/handle/tede/1583
identifier_str_mv GOLFETTO, Vando. Epilepsia e trabalho: aspectos biopsicossociais da qualidade de vida. 2018. 98 f. Dissertação (Mestrado em Envelhecimento Humano) - Universidade de Passo Fundo, Passo Fundo, RS, 2018.
url http://tede.upf.br/jspui/handle/tede/1583
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dc.publisher.program.fl_str_mv Programa de Pós-Graduação em Envelhecimento Humano
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dc.publisher.country.fl_str_mv Brasil
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