Grupo de suporte familiar e treino de práticas parentais e habilidades sociais para pais de crianças e adolescentes com Síndrome de Williams

• Autor(a) principal: Martin, Maria Aparecida Fernandes
• Data de Publicação: 2011
• Tipo de documento: Dissertação
• Idioma: por
• Título da fonte: Biblioteca Digital de Teses e Dissertações do Mackenzie
• Texto Completo: http://dspace.mackenzie.br/handle/10899/22489
• topic: grupo; suporte familiar; práticas parentais; habilidades sociais; pais; Síndrome de Williams; group; family support; parenting practices; social skills; parents; Williams syndrome; CNPQ::CIENCIAS HUMANAS::PSICOLOGIA

The Williams Syndrome (WS) is caused by an aneusomia due to the deletion of multiple genes on the long arm of chromosome 7 (7q11.23 region), characterized by cognitive and behavioral changes, excessive sociability, language difficulties with better expressive language performance than receptive one and intellectual disability of varying degrees. For parents, the impact of having a child with changes on typical development, especially when correlated to cognitive and behavioral changes, is huge, affecting the family as a whole. Several studies have shown a higher incidence of mental health problems, especially higher level of anxiety, depression and stress in parents of children with intellectual disabilities compared to general population. This study aims to develop, implement and evaluate the effectiveness of a family support program, training of parenting styles and social skills for parents of children and adolescents with WS. For this, we assessed behavior problems (Adult Self-Report-ASR) and mental health indicators such as stress (ISSL), anxiety (Beck Anxiety Inventory), depression (Beck Depression Inventory) as well as parenting styles (Inventory Parenting Styles), social skills (IHS), perception of Family Support (IPSF) and quality of life (WHOQOL-bref) in the group of parents. After that, occurred a group of family support, training of parenting practices and social skills for parents with seven weekly meetings that deal with each of the subjects evaluated. A space for discussion was constituted where each subject was treated by the group. After that, the instruments were again used to assess changes in indicators. Thirteen parents took initially part in this process but only eight have completed the entire process. Instrument data were analyzed through their standardization and compared before and after intervention. As results signs of anxiety and depression as well as characteristics of stress in the resistance stage, with psychological symptoms were observed in mental health indicators. With regard to the characteristics of parenting practices, social skills and quality of life, we observed that some parents showed positive monitoring practice as below average and inconsistent punishment practices with parental style of risk. Moreover, almost half of the participants had a repertoire for social skills below average or very deficient. Regarding the presence of behavior problems indicated by the ASR, there are indicators of problems related to anxiety/depression and isolation, and some indicators of aggressive behavior. Generally, many indicators evaluated after the intervention were reduced. As conclusions, these results demonstrated the effectiveness of the family support program, training in parenting practices and social skills to parents of children and adolescents with WS.