The perceptions of families with children having chronic diseases and their relationships with healthcare professionals

Detalhes bibliográficos
Autor(a) principal: Baltor, Marja Rany Rigotti
Data de Publicação: 2013
Outros Autores: Matos, Ana Paula Keller de, Wernet, Monika, Ferreira, Noeli Marchioro Liston Andrade, Dupas, Giselle
Tipo de documento: Artigo
Idioma: por
eng
Título da fonte: Revista da Escola de Enfermagem da USP (Online)
Texto Completo: https://www.revistas.usp.br/reeusp/article/view/78028
Resumo: The prevalence of chronic disease in childhood has increased, placing families in constant contact with health professionals. In such situations the relationship with health professionals has an important role. Few scientific studies address this theme, in spite of its being highlighted as fundamental for effective interaction. The aim of this study was to characterize how the family of a child with a chronic disease perceives its relationship with health professionals. Twenty caregivers for children with chronic diseases were interviewed. The theoretical and methodological frameworks were, respectively, symbolic interactionism and thematic content analysis. The analytical process revealed four themes: role of the caregiver, stressful relationships, services and professionals, and seeking welcoming relationships. The outcomes of this interactional process, which show an incongruity of expectations and behaviors between professionals and families, are poor and generate feelings of abandonment. These can be eased through listening and understanding by other families in similar situations.
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spelling The perceptions of families with children having chronic diseases and their relationships with healthcare professionalsPercepciones de la familia del nino con enfermedad cronica frente a las relaciones con los profesionales de la saludPercepcoes da familia da crianca com doenca cronica frente as relacoes com profissionais da saudeThe prevalence of chronic disease in childhood has increased, placing families in constant contact with health professionals. In such situations the relationship with health professionals has an important role. Few scientific studies address this theme, in spite of its being highlighted as fundamental for effective interaction. The aim of this study was to characterize how the family of a child with a chronic disease perceives its relationship with health professionals. Twenty caregivers for children with chronic diseases were interviewed. The theoretical and methodological frameworks were, respectively, symbolic interactionism and thematic content analysis. The analytical process revealed four themes: role of the caregiver, stressful relationships, services and professionals, and seeking welcoming relationships. The outcomes of this interactional process, which show an incongruity of expectations and behaviors between professionals and families, are poor and generate feelings of abandonment. These can be eased through listening and understanding by other families in similar situations.La prevalencia de la enfermedad crónica en la infancia ha aumentado, requiriendo la familia un contacto continuo con los profesionales de salud, momento donde esta relación juega un papel importante. Existen pocas exploraciones científicas que traten este tema, a pesar de ser identificado como núcleo fundamental para la interacción efectiva. El objetivo de este estudio fue caracterizar la percepción de la familia del niño con enfermedad crónica sobre la relación con los profesionales de la salud. Fueron entrevistados 20 cuidadores de niños con enfermedades crónicas. El referencial teórico y metodológico adoptados fueron el Interaccionismo Simbólico y el análisis del contenido temático, respectivamente. El proceso de análisis reveló cuatro categorías temáticas: rol del cuidador, relaciones angustiantes, servicios y profesionales y; buscando relaciones acogedoras. El resultado de este proceso de interacción que presenta incongruencia de las expectativas y comportamientos entre el profesional y la familia es deficiente, y genera un sentimiento de abandono, que es atenuado por la escucha y la comprensión de otras familias en situaciones similares.A prevalência de doença crônica na infância tem aumentado, impondo à família contato contínuo com profissionais de saúde, ocasião em que a relação desempenha papel relevante. Raras explorações científicas abordam tal temática, apesar de ser apontada como núcleo fundamental para a interação efetiva. O objetivo desse estudo foi caracterizar como a família de criança doente crônica percebe sua relação com os profissionais de saúde. Foram entrevistados 20 cuidadores de criança com doença crônica. O referencial teórico e metodológico adotados foram, respectivamente, o Interacionismo Simbólico e a análise de conteúdo temática. O processo analítico revelou quatro categorias temáticas: papel do cuidador, relações angustiantes, serviços e profissionais e buscando relações acolhedoras. O resultado deste processo interacional que apresenta incongruência de expectativas e comportamentos entre profissional e família é falho e gera sentimento de desamparo, o qual é amenizado pela escuta e compreensão de outras famílias em situação similar.Universidade de São Paulo. Escola de Enfermagem2013-08-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfhttps://www.revistas.usp.br/reeusp/article/view/7802810.1590/reeusp.v47i4.78028Revista da Escola de Enfermagem da USP; v. 47 n. 4 (2013); 808-814Revista da Escola de Enfermagem da USP; Vol. 47 No. 4 (2013); 808-814Revista da Escola de Enfermagem da USP; Vol. 47 Núm. 4 (2013); 808-8141980-220X0080-6234reponame:Revista da Escola de Enfermagem da USP (Online)instname:Universidade de São Paulo (USP)instacron:USPporenghttps://www.revistas.usp.br/reeusp/article/view/78028/82033https://www.revistas.usp.br/reeusp/article/view/78028/82034http://creativecommons.org/licenses/by-nc/4.0info:eu-repo/semantics/openAccessBaltor, Marja Rany RigottiMatos, Ana Paula Keller deWernet, MonikaFerreira, Noeli Marchioro Liston AndradeDupas, Giselle2014-04-01T18:38:54Zoai:revistas.usp.br:article/78028Revistahttps://www.revistas.usp.br/reeuspPUBhttps://www.revistas.usp.br/reeusp/oai||nursingscholar@usp.br1980-220X0080-6234opendoar:2014-04-01T18:38:54Revista da Escola de Enfermagem da USP (Online) - Universidade de São Paulo (USP)false
dc.title.none.fl_str_mv The perceptions of families with children having chronic diseases and their relationships with healthcare professionals
Percepciones de la familia del nino con enfermedad cronica frente a las relaciones con los profesionales de la salud
Percepcoes da familia da crianca com doenca cronica frente as relacoes com profissionais da saude
title The perceptions of families with children having chronic diseases and their relationships with healthcare professionals
spellingShingle The perceptions of families with children having chronic diseases and their relationships with healthcare professionals
Baltor, Marja Rany Rigotti
title_short The perceptions of families with children having chronic diseases and their relationships with healthcare professionals
title_full The perceptions of families with children having chronic diseases and their relationships with healthcare professionals
title_fullStr The perceptions of families with children having chronic diseases and their relationships with healthcare professionals
title_full_unstemmed The perceptions of families with children having chronic diseases and their relationships with healthcare professionals
title_sort The perceptions of families with children having chronic diseases and their relationships with healthcare professionals
author Baltor, Marja Rany Rigotti
author_facet Baltor, Marja Rany Rigotti
Matos, Ana Paula Keller de
Wernet, Monika
Ferreira, Noeli Marchioro Liston Andrade
Dupas, Giselle
author_role author
author2 Matos, Ana Paula Keller de
Wernet, Monika
Ferreira, Noeli Marchioro Liston Andrade
Dupas, Giselle
author2_role author
author
author
author
dc.contributor.author.fl_str_mv Baltor, Marja Rany Rigotti
Matos, Ana Paula Keller de
Wernet, Monika
Ferreira, Noeli Marchioro Liston Andrade
Dupas, Giselle
description The prevalence of chronic disease in childhood has increased, placing families in constant contact with health professionals. In such situations the relationship with health professionals has an important role. Few scientific studies address this theme, in spite of its being highlighted as fundamental for effective interaction. The aim of this study was to characterize how the family of a child with a chronic disease perceives its relationship with health professionals. Twenty caregivers for children with chronic diseases were interviewed. The theoretical and methodological frameworks were, respectively, symbolic interactionism and thematic content analysis. The analytical process revealed four themes: role of the caregiver, stressful relationships, services and professionals, and seeking welcoming relationships. The outcomes of this interactional process, which show an incongruity of expectations and behaviors between professionals and families, are poor and generate feelings of abandonment. These can be eased through listening and understanding by other families in similar situations.
publishDate 2013
dc.date.none.fl_str_mv 2013-08-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://www.revistas.usp.br/reeusp/article/view/78028
10.1590/reeusp.v47i4.78028
url https://www.revistas.usp.br/reeusp/article/view/78028
identifier_str_mv 10.1590/reeusp.v47i4.78028
dc.language.iso.fl_str_mv por
eng
language por
eng
dc.relation.none.fl_str_mv https://www.revistas.usp.br/reeusp/article/view/78028/82033
https://www.revistas.usp.br/reeusp/article/view/78028/82034
dc.rights.driver.fl_str_mv http://creativecommons.org/licenses/by-nc/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv http://creativecommons.org/licenses/by-nc/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Universidade de São Paulo. Escola de Enfermagem
publisher.none.fl_str_mv Universidade de São Paulo. Escola de Enfermagem
dc.source.none.fl_str_mv Revista da Escola de Enfermagem da USP; v. 47 n. 4 (2013); 808-814
Revista da Escola de Enfermagem da USP; Vol. 47 No. 4 (2013); 808-814
Revista da Escola de Enfermagem da USP; Vol. 47 Núm. 4 (2013); 808-814
1980-220X
0080-6234
reponame:Revista da Escola de Enfermagem da USP (Online)
instname:Universidade de São Paulo (USP)
instacron:USP
instname_str Universidade de São Paulo (USP)
instacron_str USP
institution USP
reponame_str Revista da Escola de Enfermagem da USP (Online)
collection Revista da Escola de Enfermagem da USP (Online)
repository.name.fl_str_mv Revista da Escola de Enfermagem da USP (Online) - Universidade de São Paulo (USP)
repository.mail.fl_str_mv ||nursingscholar@usp.br
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