Children and adolescents with chronic kidney disease in an educational-therapeutic environment: support for cultural nursing care
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2012 |
| Outros Autores: | , |
| Tipo de documento: | Artigo |
| Idioma: | por eng |
| Título da fonte: | Revista da Escola de Enfermagem da USP (Online) |
| Texto Completo: | https://www.revistas.usp.br/reeusp/article/view/48125 |
Resumo: | This qualitative study was performed using an ethnographic approach, with the objective to understand how children and adolescents with chronic kidney disease experience their disease and treatment, and describe the educational-therapeutic care from the perspective of transcultural nursing. Participants were eleven subjects undergoing dialysis treatment. The study phases followed the observation-participation-reflection model, complemented by interviews. The analysis was guided by the four phases of the ethnonursing guide, revealing the following categories: living with kidney failure and changes in everyday life; and the hospital environment and educational-therapeutic activities, which show the discomforts and difficulties that impact several dimensions of life, somewhat compensated by the therapeutic environment and the opportunity for leisure. Culturally consistent care was understood as an intentional intervention constructed by the interaction between scientific knowledge and the valorization of the cultural knowledge of children and adolescents and their families. |
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Children and adolescents with chronic kidney disease in an educational-therapeutic environment: support for cultural nursing careNiños y adolescentes renales crónicos en espacio educativo-terapéutico: ayudas para el cuidado cultural de enfermeríaCrianças e adolescentes renais crônicos em espaço educativo-terapêutico: subsídios para o cuidado cultural de enfermagemCriançaAdolescenteInsuficiência renal crônicaEnfermagem transculturalCuidados de enfermagemNiñoAdolescenteInsuficiencia renal crónicaEnfermería transculturalAtención de enfermeríaChildAdolescentRenal insufficiencychronicTranscultural nursingNursing careThis qualitative study was performed using an ethnographic approach, with the objective to understand how children and adolescents with chronic kidney disease experience their disease and treatment, and describe the educational-therapeutic care from the perspective of transcultural nursing. Participants were eleven subjects undergoing dialysis treatment. The study phases followed the observation-participation-reflection model, complemented by interviews. The analysis was guided by the four phases of the ethnonursing guide, revealing the following categories: living with kidney failure and changes in everyday life; and the hospital environment and educational-therapeutic activities, which show the discomforts and difficulties that impact several dimensions of life, somewhat compensated by the therapeutic environment and the opportunity for leisure. Culturally consistent care was understood as an intentional intervention constructed by the interaction between scientific knowledge and the valorization of the cultural knowledge of children and adolescents and their families.Estudio cualitativo de abordaje etnográfico que objetivó comprender el modo en que niños y adolescentes con enfermedad renal crónica experimentan el padecimiento y la terapéutica, y describir el cuidado educativo-terapéutico en el enfoque de enfermería transcultural. Participaron 11 sujetos en tratamiento dialítico. Las fases de la investigación siguieron el modelo observación-participación-reflexión, complementado con entrevista. El análisis se orientó por las cuatro fases guía de la etnoenfermería, emergiendo las categorías: convivencia con la insuficiencia renal y cambios en el cotidiano; ambiente hospitalario y actividades educativo-terapéuticas, las cuales mostraron incomodidades y dificultades en varias dimensiones de la vida, en cierto grado compensadas por el ambiente terapéutico y la oferta de recreación. El cuidado culturalmente congruente se interpretó como acción intencional construida por la interacción entre los conocimientos científicos y la valorización de los conocimientos culturales de los niños y adolescentes y de sus familias.Trata-se de estudo qualitativo na abordagem etnográfica, cujos objetivos foram compreender como crianças e adolescentes com doença renal crônica vivenciam o adoecimento e a terapêutica e descrever o cuidado educativo-terapêutico no enfoque da enfermagem transcultural. Participaram onze sujeitos em tratamento dialítico. As fases da pesquisa seguiram o modelo observação-participação-reflexão complementado com a entrevista. A análise foi orientada pelas quatro fases do guia da etnoenfermagem, emergindo as categorias: convivência com a insuficiência renal e mudanças no cotidiano; ambiente hospitalar e atividades educativo-terapêuticas, as quais mostram desconfortos e dificuldades em várias dimensões da vida de certa forma compensados pelo ambiente terapêutico e oferta de lazer. O cuidar culturalmente congruente foi entendido como uma ação intencional construída pela interação entre os saberes científicos e a valorização dos saberes culturais das crianças e adolescentes e de suas famíliasUniversidade de São Paulo. Escola de Enfermagem2012-10-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfhttps://www.revistas.usp.br/reeusp/article/view/4812510.1590/S0080-62342012000500004Revista da Escola de Enfermagem da USP; v. 46 n. 5 (2012); 1057-1065Revista da Escola de Enfermagem da USP; Vol. 46 No. 5 (2012); 1057-1065Revista da Escola de Enfermagem da USP; Vol. 46 Núm. 5 (2012); 1057-10651980-220X0080-6234reponame:Revista da Escola de Enfermagem da USP (Online)instname:Universidade de São Paulo (USP)instacron:USPporenghttps://www.revistas.usp.br/reeusp/article/view/48125/51934https://www.revistas.usp.br/reeusp/article/view/48125/51935http://creativecommons.org/licenses/by-nc/4.0info:eu-repo/semantics/openAccessPennafort, Viviane Peixoto dos SantosQueiroz, Maria Veraci OliveiraJorge, Maria Salete Bessa2012-12-13T19:56:07Zoai:revistas.usp.br:article/48125Revistahttps://www.revistas.usp.br/reeuspPUBhttps://www.revistas.usp.br/reeusp/oai||nursingscholar@usp.br1980-220X0080-6234opendoar:2012-12-13T19:56:07Revista da Escola de Enfermagem da USP (Online) - Universidade de São Paulo (USP)false |
| dc.title.none.fl_str_mv |
Children and adolescents with chronic kidney disease in an educational-therapeutic environment: support for cultural nursing care Niños y adolescentes renales crónicos en espacio educativo-terapéutico: ayudas para el cuidado cultural de enfermería Crianças e adolescentes renais crônicos em espaço educativo-terapêutico: subsídios para o cuidado cultural de enfermagem |
| title |
Children and adolescents with chronic kidney disease in an educational-therapeutic environment: support for cultural nursing care |
| spellingShingle |
Children and adolescents with chronic kidney disease in an educational-therapeutic environment: support for cultural nursing care Pennafort, Viviane Peixoto dos Santos Criança Adolescente Insuficiência renal crônica Enfermagem transcultural Cuidados de enfermagem Niño Adolescente Insuficiencia renal crónica Enfermería transcultural Atención de enfermería Child Adolescent Renal insufficiency chronic Transcultural nursing Nursing care |
| title_short |
Children and adolescents with chronic kidney disease in an educational-therapeutic environment: support for cultural nursing care |
| title_full |
Children and adolescents with chronic kidney disease in an educational-therapeutic environment: support for cultural nursing care |
| title_fullStr |
Children and adolescents with chronic kidney disease in an educational-therapeutic environment: support for cultural nursing care |
| title_full_unstemmed |
Children and adolescents with chronic kidney disease in an educational-therapeutic environment: support for cultural nursing care |
| title_sort |
Children and adolescents with chronic kidney disease in an educational-therapeutic environment: support for cultural nursing care |
| author |
Pennafort, Viviane Peixoto dos Santos |
| author_facet |
Pennafort, Viviane Peixoto dos Santos Queiroz, Maria Veraci Oliveira Jorge, Maria Salete Bessa |
| author_role |
author |
| author2 |
Queiroz, Maria Veraci Oliveira Jorge, Maria Salete Bessa |
| author2_role |
author author |
| dc.contributor.author.fl_str_mv |
Pennafort, Viviane Peixoto dos Santos Queiroz, Maria Veraci Oliveira Jorge, Maria Salete Bessa |
| dc.subject.por.fl_str_mv |
Criança Adolescente Insuficiência renal crônica Enfermagem transcultural Cuidados de enfermagem Niño Adolescente Insuficiencia renal crónica Enfermería transcultural Atención de enfermería Child Adolescent Renal insufficiency chronic Transcultural nursing Nursing care |
| topic |
Criança Adolescente Insuficiência renal crônica Enfermagem transcultural Cuidados de enfermagem Niño Adolescente Insuficiencia renal crónica Enfermería transcultural Atención de enfermería Child Adolescent Renal insufficiency chronic Transcultural nursing Nursing care |
| description |
This qualitative study was performed using an ethnographic approach, with the objective to understand how children and adolescents with chronic kidney disease experience their disease and treatment, and describe the educational-therapeutic care from the perspective of transcultural nursing. Participants were eleven subjects undergoing dialysis treatment. The study phases followed the observation-participation-reflection model, complemented by interviews. The analysis was guided by the four phases of the ethnonursing guide, revealing the following categories: living with kidney failure and changes in everyday life; and the hospital environment and educational-therapeutic activities, which show the discomforts and difficulties that impact several dimensions of life, somewhat compensated by the therapeutic environment and the opportunity for leisure. Culturally consistent care was understood as an intentional intervention constructed by the interaction between scientific knowledge and the valorization of the cultural knowledge of children and adolescents and their families. |
| publishDate |
2012 |
| dc.date.none.fl_str_mv |
2012-10-01 |
| dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
| format |
article |
| status_str |
publishedVersion |
| dc.identifier.uri.fl_str_mv |
https://www.revistas.usp.br/reeusp/article/view/48125 10.1590/S0080-62342012000500004 |
| url |
https://www.revistas.usp.br/reeusp/article/view/48125 |
| identifier_str_mv |
10.1590/S0080-62342012000500004 |
| dc.language.iso.fl_str_mv |
por eng |
| language |
por eng |
| dc.relation.none.fl_str_mv |
https://www.revistas.usp.br/reeusp/article/view/48125/51934 https://www.revistas.usp.br/reeusp/article/view/48125/51935 |
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http://creativecommons.org/licenses/by-nc/4.0 info:eu-repo/semantics/openAccess |
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http://creativecommons.org/licenses/by-nc/4.0 |
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openAccess |
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application/pdf application/pdf |
| dc.publisher.none.fl_str_mv |
Universidade de São Paulo. Escola de Enfermagem |
| publisher.none.fl_str_mv |
Universidade de São Paulo. Escola de Enfermagem |
| dc.source.none.fl_str_mv |
Revista da Escola de Enfermagem da USP; v. 46 n. 5 (2012); 1057-1065 Revista da Escola de Enfermagem da USP; Vol. 46 No. 5 (2012); 1057-1065 Revista da Escola de Enfermagem da USP; Vol. 46 Núm. 5 (2012); 1057-1065 1980-220X 0080-6234 reponame:Revista da Escola de Enfermagem da USP (Online) instname:Universidade de São Paulo (USP) instacron:USP |
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Universidade de São Paulo (USP) |
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USP |
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USP |
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Revista da Escola de Enfermagem da USP (Online) |
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Revista da Escola de Enfermagem da USP (Online) |
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Revista da Escola de Enfermagem da USP (Online) - Universidade de São Paulo (USP) |
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1800221735016988672 |