Limitations in occupational performance of individuals with hemophilia in Hemotherapy Regional Center of Ribeirão Preto, Brazil

Detalhes bibliográficos
Autor(a) principal: Barata-Assad, Danielle Aline
Data de Publicação: 2010
Outros Autores: Elui, Valéria Meirelles Carril
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista de Terapia Ocupacional da Universidade de São Paulo
Texto Completo: https://www.revistas.usp.br/rto/article/view/14105
Resumo: Hemophilia is a serious hereditary disorder of blood clotting that results in disabilities that influence the performance of affected infants. The assistive technology (AT) is equipment or set of products, modified or purchased or custom made, used to expand the functional performance. This research aimed to identify limitations in occupational performance of the hemophiliacs and the influence of resources on the functionality of the TA. The study was conducted from January to July 2009 at the Regional Blood Center HCFMRP-USP. All individuals with hemophilia followed up were invited. 42 individuals participated through the application of a schedule for the removal of socio-demographic and clinical data, the accessibility barriers and facilitators of the residence and in the community resources used in the TA activities of daily living (ADLs), mobility in resident and community assessment tool and functionality HAQ (Health Assessment Questionnaire). The results show that most respondents have limitations in ADLs, Productive Activities and Work, mobility, and were classified as "with difficulty" in HAQ. The TA resources used by the majority of participants were related to hygiene and use the toilet and assistive devices for ambulation.
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spelling Limitations in occupational performance of individuals with hemophilia in Hemotherapy Regional Center of Ribeirão Preto, Brazil Limitações no desempenho ocupacional de indivíduos portadores de hemofilia em Centro Regional de Hemoterapia de Ribeirão Preto, Brasil Terapia ocupacionalHemofilia AEquipamentos de auto-ajuda^i1^sutilizaOccupational therapyHaemophilia ASelf-help devices^i2^sutilizat Hemophilia is a serious hereditary disorder of blood clotting that results in disabilities that influence the performance of affected infants. The assistive technology (AT) is equipment or set of products, modified or purchased or custom made, used to expand the functional performance. This research aimed to identify limitations in occupational performance of the hemophiliacs and the influence of resources on the functionality of the TA. The study was conducted from January to July 2009 at the Regional Blood Center HCFMRP-USP. All individuals with hemophilia followed up were invited. 42 individuals participated through the application of a schedule for the removal of socio-demographic and clinical data, the accessibility barriers and facilitators of the residence and in the community resources used in the TA activities of daily living (ADLs), mobility in resident and community assessment tool and functionality HAQ (Health Assessment Questionnaire). The results show that most respondents have limitations in ADLs, Productive Activities and Work, mobility, and were classified as "with difficulty" in HAQ. The TA resources used by the majority of participants were related to hygiene and use the toilet and assistive devices for ambulation. A hemofilia é grave distúrbio hereditário da coagulação sanguínea que resulta em incapacidades que influenciam no desempenho dos acometidos. A tecnologia assistiva (TA) é equipamento ou conjunto de produtos, comprados ou modificados ou feitos sob medida, usados ampliar o desempenho funcional. Esta pesquisa teve como objetivo identificar as limitações no desempenho ocupacional dos hemofílicos e verificar a influência dos recursos de TA na funcionalidade destes. O estudo foi realizado de janeiro a julho de 2009 no Centro Regional de Hemoterapia do HCFMRP-USP. Todos os indivíduos portadores de hemofilia em seguimento foram convidados. Participaram 42 indivíduos através da aplicação de roteiros para o levantamento dos dados sócio-demográficos e clínicos; das barreiras e facilitadores da acessibilidade na residência e na comunidade; dos recursos da TA utilizados nas Atividades de Vida Diária (AVD´s), na mobilidade em sua residência e na comunidade e o instrumento de avaliação da funcionalidade HAQ (Health Assessment Questionnaire).Os resultados demonstram que a maioria dos entrevistados apresentam limitação nas AVD´s, Atividades Produtivas e de Trabalho, mobilidade; e obtiveram classificação "com alguma dificuldade" no HAQ. Os recursos de TA utilizados pela maioria dos participantes estavam relacionados à higiene e uso do vaso sanitário e dispositivos de ajuda para deambulação. Universidade de São Paulo. Faculdade de Medicina2010-12-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://www.revistas.usp.br/rto/article/view/1410510.11606/issn.2238-6149.v21i3p198-206Revista de Terapia Ocupacional da Universidade de São Paulo; Vol. 21 Núm. 3 (2010); 198-206Revista de Terapia Ocupacional da Universidade de São Paulo; Vol. 21 No. 3 (2010); 198-206Revista de Terapia Ocupacional da Universidade de São Paulo; v. 21 n. 3 (2010); 198-2062238-61491415-9104reponame:Revista de Terapia Ocupacional da Universidade de São Pauloinstname:Universidade de São Paulo (USP)instacron:USPporhttps://www.revistas.usp.br/rto/article/view/14105/15923Barata-Assad, Danielle AlineElui, Valéria Meirelles Carrilinfo:eu-repo/semantics/openAccess2014-10-17T12:24:41Zoai:revistas.usp.br:article/14105Revistahttp://www.revistas.usp.br/rtoPUBhttps://www.revistas.usp.br/rto/oai||revto@usp.br2238-61491415-9104opendoar:2014-10-17T12:24:41Revista de Terapia Ocupacional da Universidade de São Paulo - Universidade de São Paulo (USP)false
dc.title.none.fl_str_mv Limitations in occupational performance of individuals with hemophilia in Hemotherapy Regional Center of Ribeirão Preto, Brazil
Limitações no desempenho ocupacional de indivíduos portadores de hemofilia em Centro Regional de Hemoterapia de Ribeirão Preto, Brasil
title Limitations in occupational performance of individuals with hemophilia in Hemotherapy Regional Center of Ribeirão Preto, Brazil
spellingShingle Limitations in occupational performance of individuals with hemophilia in Hemotherapy Regional Center of Ribeirão Preto, Brazil
Barata-Assad, Danielle Aline
Terapia ocupacional
Hemofilia A
Equipamentos de auto-ajuda^i1^sutiliza
Occupational therapy
Haemophilia A
Self-help devices^i2^sutilizat
title_short Limitations in occupational performance of individuals with hemophilia in Hemotherapy Regional Center of Ribeirão Preto, Brazil
title_full Limitations in occupational performance of individuals with hemophilia in Hemotherapy Regional Center of Ribeirão Preto, Brazil
title_fullStr Limitations in occupational performance of individuals with hemophilia in Hemotherapy Regional Center of Ribeirão Preto, Brazil
title_full_unstemmed Limitations in occupational performance of individuals with hemophilia in Hemotherapy Regional Center of Ribeirão Preto, Brazil
title_sort Limitations in occupational performance of individuals with hemophilia in Hemotherapy Regional Center of Ribeirão Preto, Brazil
author Barata-Assad, Danielle Aline
author_facet Barata-Assad, Danielle Aline
Elui, Valéria Meirelles Carril
author_role author
author2 Elui, Valéria Meirelles Carril
author2_role author
dc.contributor.author.fl_str_mv Barata-Assad, Danielle Aline
Elui, Valéria Meirelles Carril
dc.subject.por.fl_str_mv Terapia ocupacional
Hemofilia A
Equipamentos de auto-ajuda^i1^sutiliza
Occupational therapy
Haemophilia A
Self-help devices^i2^sutilizat
topic Terapia ocupacional
Hemofilia A
Equipamentos de auto-ajuda^i1^sutiliza
Occupational therapy
Haemophilia A
Self-help devices^i2^sutilizat
description Hemophilia is a serious hereditary disorder of blood clotting that results in disabilities that influence the performance of affected infants. The assistive technology (AT) is equipment or set of products, modified or purchased or custom made, used to expand the functional performance. This research aimed to identify limitations in occupational performance of the hemophiliacs and the influence of resources on the functionality of the TA. The study was conducted from January to July 2009 at the Regional Blood Center HCFMRP-USP. All individuals with hemophilia followed up were invited. 42 individuals participated through the application of a schedule for the removal of socio-demographic and clinical data, the accessibility barriers and facilitators of the residence and in the community resources used in the TA activities of daily living (ADLs), mobility in resident and community assessment tool and functionality HAQ (Health Assessment Questionnaire). The results show that most respondents have limitations in ADLs, Productive Activities and Work, mobility, and were classified as "with difficulty" in HAQ. The TA resources used by the majority of participants were related to hygiene and use the toilet and assistive devices for ambulation.
publishDate 2010
dc.date.none.fl_str_mv 2010-12-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://www.revistas.usp.br/rto/article/view/14105
10.11606/issn.2238-6149.v21i3p198-206
url https://www.revistas.usp.br/rto/article/view/14105
identifier_str_mv 10.11606/issn.2238-6149.v21i3p198-206
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://www.revistas.usp.br/rto/article/view/14105/15923
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Universidade de São Paulo. Faculdade de Medicina
publisher.none.fl_str_mv Universidade de São Paulo. Faculdade de Medicina
dc.source.none.fl_str_mv Revista de Terapia Ocupacional da Universidade de São Paulo; Vol. 21 Núm. 3 (2010); 198-206
Revista de Terapia Ocupacional da Universidade de São Paulo; Vol. 21 No. 3 (2010); 198-206
Revista de Terapia Ocupacional da Universidade de São Paulo; v. 21 n. 3 (2010); 198-206
2238-6149
1415-9104
reponame:Revista de Terapia Ocupacional da Universidade de São Paulo
instname:Universidade de São Paulo (USP)
instacron:USP
instname_str Universidade de São Paulo (USP)
instacron_str USP
institution USP
reponame_str Revista de Terapia Ocupacional da Universidade de São Paulo
collection Revista de Terapia Ocupacional da Universidade de São Paulo
repository.name.fl_str_mv Revista de Terapia Ocupacional da Universidade de São Paulo - Universidade de São Paulo (USP)
repository.mail.fl_str_mv ||revto@usp.br
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