Paralisia cerebral: repercussões no contexto familiar
Autor(a) principal: | |
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Data de Publicação: | 2011 |
Tipo de documento: | Dissertação |
Idioma: | por |
Título da fonte: | Repositório Institucional da UFSCAR |
Texto Completo: | https://repositorio.ufscar.br/handle/ufscar/3232 |
Resumo: | Cerebral Palsy (CP) is a chronic condition that affects the motor development and posture of the child, often accompanied by disorders in speech, hearing, cognition, sensory perception, among others. This situation is responsible for changes and limitations in daily activities of children requiring adaptations by the family that plays a fundamental role in the rehabilitation process of children with CP, and partner and co-responsibility in child care. This study aims to evaluate the experience of families of children with CP treated at an outpatient child and investigate the impact of chronic disease in children in the family context. This is a qualitative study, which adopted the theoretical Symbolic Interactionism (SI). The study site was a specialized unit in the care of children in a midsize city in the interior of São Paulo state. To collect data we used an instrument composed of two parts: the first part consisted in gathering information related to family composition and sociodemographic conditions of the members, the second part featured questions relating to the experience of family in the PC in the family context. The interviews with family members were recorded and transcribed. The content analysis and thematic Bardin, was the technique adopted for data analysis. We apprehend this study that the PC has a significant effect on the family and among those experiences, which leaves the family more un easy is the lack of support emotional/instrumental from professionals and social networking. The study also identifies the urgent need of nursing care to be part of the family of the child with CP in order to add knowledge to the multidisciplinary team and care paid to redeem the family unit. |
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Sandor, Elizane Regina SantosDupas, Gisellehttp://lattes.cnpq.br/9461883918498554http://lattes.cnpq.br/48367810369101852016-06-02T19:48:18Z2011-10-062016-06-02T19:48:18Z2011-07-07SANDOR, Elizane Regina Santos. Paralisia cerebral: repercussões no contexto familiar. 2011. 121 f. Dissertação (Mestrado em Ciências da Saúde) - Universidade Federal de São Carlos, São Carlos, 2011.https://repositorio.ufscar.br/handle/ufscar/3232Cerebral Palsy (CP) is a chronic condition that affects the motor development and posture of the child, often accompanied by disorders in speech, hearing, cognition, sensory perception, among others. This situation is responsible for changes and limitations in daily activities of children requiring adaptations by the family that plays a fundamental role in the rehabilitation process of children with CP, and partner and co-responsibility in child care. This study aims to evaluate the experience of families of children with CP treated at an outpatient child and investigate the impact of chronic disease in children in the family context. This is a qualitative study, which adopted the theoretical Symbolic Interactionism (SI). The study site was a specialized unit in the care of children in a midsize city in the interior of São Paulo state. To collect data we used an instrument composed of two parts: the first part consisted in gathering information related to family composition and sociodemographic conditions of the members, the second part featured questions relating to the experience of family in the PC in the family context. The interviews with family members were recorded and transcribed. The content analysis and thematic Bardin, was the technique adopted for data analysis. We apprehend this study that the PC has a significant effect on the family and among those experiences, which leaves the family more un easy is the lack of support emotional/instrumental from professionals and social networking. The study also identifies the urgent need of nursing care to be part of the family of the child with CP in order to add knowledge to the multidisciplinary team and care paid to redeem the family unit.A Paralisia Cerebral (PC) é uma condição crônica que compromete o desenvolvimento motor e postural da criança, frequentemente acompanhada por desordens na fala, audição, cognição, percepção sensorial, entre outros. Esta situação é responsável por modificações e limitações nas atividades diárias da criança, demandando adaptações por parte da família, que tem papel fundamental no processo de reabilitação da criança com PC, sendo parceira e co-responsável no cuidado à criança. O presente trabalho tem, como objetivo, conhecer a experiência da família da criança com PC, atendidas em um ambulatório infantil e investigar a repercussão da doença crônica da criança no contexto familiar. Trata-se de um estudo de abordagem qualitativa, que adotou como referencial teórico o Interacionismo Simbólico (IS). O local do estudo foi uma unidade especializada no atendimento infantil de uma cidade de médio porte do interior estado de São Paulo. Para a coleta de dados utilizou-se um instrumento composto de duas partes: a primeira parte consistiu no levantamento de informações relacionadas à composição familiar e condições sóciodemográficas dos membros; a segunda parte trazia questões referentes à vivência da família frente à PC no contexto familiar. As entrevistas realizadas com os membros familiares foram gravadas e transcritas na íntegra. A Análise de Conteúdo, modalidade temática de Bardin, foi a técnica adotada para análise dos dados. Apreendemos neste estudo que a PC tem uma repercussão significativa no contexto familiar e dentre as experiências , a que mais deixa a família intranquila é a falta de apoio emocional/instrumental por parte dos profissionais e rede social. O estudo identifica ainda a necessidade premente da enfermagem inserir-se no cuidado à família da criança com PC, visando agregar conhecimento à equipe multiprofissional e resgatar o cuidado integralizado à unidade familiar.application/pdfporUniversidade Federal de São CarlosPrograma de Pós-Graduação em Enfermagem - PPGEnfUFSCarBREnfermagem familiarCriançasDoenças crônicasParalisia cerebralEnfermagemFamilyChildCerebral palsyNursingCIENCIAS DA SAUDE::ENFERMAGEMParalisia cerebral: repercussões no contexto familiarinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisinfo:eu-repo/semantics/openAccessreponame:Repositório Institucional da UFSCARinstname:Universidade Federal de São Carlos (UFSCAR)instacron:UFSCARORIGINAL3727.pdfapplication/pdf1052623https://{{ getenv "DSPACE_HOST" "repositorio.ufscar.br" }}/bitstream/ufscar/3232/1/3727.pdf67a42cfa769fac0b883699b14f822137MD51THUMBNAIL3727.pdf.jpg3727.pdf.jpgIM Thumbnailimage/jpeg6109https://{{ getenv "DSPACE_HOST" "repositorio.ufscar.br" }}/bitstream/ufscar/3232/2/3727.pdf.jpg58f03ad5dc9a5faf070ac7b5d793a04cMD52ufscar/32322019-09-11 02:22:15.671oai:repositorio.ufscar.br:ufscar/3232Repositório InstitucionalPUBhttps://repositorio.ufscar.br/oai/requestopendoar:43222019-09-11T02:22:15Repositório Institucional da UFSCAR - Universidade Federal de São Carlos (UFSCAR)false |
dc.title.por.fl_str_mv |
Paralisia cerebral: repercussões no contexto familiar |
title |
Paralisia cerebral: repercussões no contexto familiar |
spellingShingle |
Paralisia cerebral: repercussões no contexto familiar Sandor, Elizane Regina Santos Enfermagem familiar Crianças Doenças crônicas Paralisia cerebral Enfermagem Family Child Cerebral palsy Nursing CIENCIAS DA SAUDE::ENFERMAGEM |
title_short |
Paralisia cerebral: repercussões no contexto familiar |
title_full |
Paralisia cerebral: repercussões no contexto familiar |
title_fullStr |
Paralisia cerebral: repercussões no contexto familiar |
title_full_unstemmed |
Paralisia cerebral: repercussões no contexto familiar |
title_sort |
Paralisia cerebral: repercussões no contexto familiar |
author |
Sandor, Elizane Regina Santos |
author_facet |
Sandor, Elizane Regina Santos |
author_role |
author |
dc.contributor.authorlattes.por.fl_str_mv |
http://lattes.cnpq.br/4836781036910185 |
dc.contributor.author.fl_str_mv |
Sandor, Elizane Regina Santos |
dc.contributor.advisor1.fl_str_mv |
Dupas, Giselle |
dc.contributor.advisor1Lattes.fl_str_mv |
http://lattes.cnpq.br/9461883918498554 |
contributor_str_mv |
Dupas, Giselle |
dc.subject.por.fl_str_mv |
Enfermagem familiar Crianças Doenças crônicas Paralisia cerebral Enfermagem |
topic |
Enfermagem familiar Crianças Doenças crônicas Paralisia cerebral Enfermagem Family Child Cerebral palsy Nursing CIENCIAS DA SAUDE::ENFERMAGEM |
dc.subject.eng.fl_str_mv |
Family Child Cerebral palsy Nursing |
dc.subject.cnpq.fl_str_mv |
CIENCIAS DA SAUDE::ENFERMAGEM |
description |
Cerebral Palsy (CP) is a chronic condition that affects the motor development and posture of the child, often accompanied by disorders in speech, hearing, cognition, sensory perception, among others. This situation is responsible for changes and limitations in daily activities of children requiring adaptations by the family that plays a fundamental role in the rehabilitation process of children with CP, and partner and co-responsibility in child care. This study aims to evaluate the experience of families of children with CP treated at an outpatient child and investigate the impact of chronic disease in children in the family context. This is a qualitative study, which adopted the theoretical Symbolic Interactionism (SI). The study site was a specialized unit in the care of children in a midsize city in the interior of São Paulo state. To collect data we used an instrument composed of two parts: the first part consisted in gathering information related to family composition and sociodemographic conditions of the members, the second part featured questions relating to the experience of family in the PC in the family context. The interviews with family members were recorded and transcribed. The content analysis and thematic Bardin, was the technique adopted for data analysis. We apprehend this study that the PC has a significant effect on the family and among those experiences, which leaves the family more un easy is the lack of support emotional/instrumental from professionals and social networking. The study also identifies the urgent need of nursing care to be part of the family of the child with CP in order to add knowledge to the multidisciplinary team and care paid to redeem the family unit. |
publishDate |
2011 |
dc.date.available.fl_str_mv |
2011-10-06 2016-06-02T19:48:18Z |
dc.date.issued.fl_str_mv |
2011-07-07 |
dc.date.accessioned.fl_str_mv |
2016-06-02T19:48:18Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/masterThesis |
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masterThesis |
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publishedVersion |
dc.identifier.citation.fl_str_mv |
SANDOR, Elizane Regina Santos. Paralisia cerebral: repercussões no contexto familiar. 2011. 121 f. Dissertação (Mestrado em Ciências da Saúde) - Universidade Federal de São Carlos, São Carlos, 2011. |
dc.identifier.uri.fl_str_mv |
https://repositorio.ufscar.br/handle/ufscar/3232 |
identifier_str_mv |
SANDOR, Elizane Regina Santos. Paralisia cerebral: repercussões no contexto familiar. 2011. 121 f. Dissertação (Mestrado em Ciências da Saúde) - Universidade Federal de São Carlos, São Carlos, 2011. |
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https://repositorio.ufscar.br/handle/ufscar/3232 |
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Universidade Federal de São Carlos |
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Programa de Pós-Graduação em Enfermagem - PPGEnf |
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