Quality of life and burden in caregivers of children with cerebral palsy

• Autor(a) principal: Souza, Jandara de Moura
• Data de Publicação: 2018
• Outros Autores: Machado, Fabiana Rita Camara, Antunes, Priscilla Pereira, Santos, Antônio Cardoso dos, Levandowski, Daniela Centenaro, Oliveira Jr, Alcyr Alves de
• Tipo de documento: Artigo
• Idioma: por; eng
• Título da fonte: Revista Brasileira em Promoção da Saúde
• Texto Completo: https://ojs.unifor.br/RBPS/article/view/7748
• topic: Cerebral Palsy; Quality of Life; Depression; Anxiety; Caregivers.; Parálisis Cerebral; Calidad de Vida; Trastornos de Adaptación; Ansiedad; Cuidadores.; Paralisia Cerebral; Qualidade de Vida; Depressão; Ansiedade; Cuidadores.

Objective: To analyze the association of Quality of Life (QoL) and caregiving burden with the degree of neuromotor impairment in children with cerebral palsy (CP). Methods: Cross-sectional study carried out in 2014 with 38 caregivers of children with cerebral palsy attending the Physiatry and Rehabilitation Clinic of the Hospital de Clínicas of Porto Alegre, Rio Grande do Sul, Brazil. The World Health Organization Quality of Life Questionnaire (WHOQOL - BREF), the Beck Depression Inventory (BDI), the Beck Anxiety Inventory (BAI), the State-Trait Anxiety Inventory (STAI), and the Zarit Burden Interview (ZBI) were used. The degree of children’s motor development was assessed using the Gross Motor Function Classification System (GMFCS). We checked for associations (Pearson’s coefficient) between variables and they were described as mean and standard deviation, or median, and interquartile range. Results: There were 20 caregivers (52.6%) with a moderate burden. The domain Social Relationships, of the WHOQOL – BREF, was associated with children’s motor development (rs=0.355; p=0.029), and there was a positive association between ZBI and STAI scores (rs=0.540; p