Experience of adults with cystic fibrosis: a perspective based on social phenomenology

Detalhes bibliográficos
Autor(a) principal: Cordeiro,Samara Macedo
Data de Publicação: 2018
Outros Autores: Jesus,Maria Cristina Pinto de, Tavares,Renata Evangelista, Oliveira,Deise Moura de, Merighi,Miriam Aparecida Barbosa
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Revista Brasileira de Enfermagem (Online)
Texto Completo: http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672018000602891
Resumo: ABSTRACT Objective: To understand the experience of adults living with cystic fibrosis. Method: A qualitative study based on the social phenomenology by Alfred Schütz, carried out with 12 adults interviewed in 2016. The statements were analyzed and organized into concrete categories. Results: The following categories were evidenced: “The biopsychosocial impact of the disease on daily life”, “Social prejudice as a generator of embarrassment”, “Coping strategies” and “Fear, uncertainties and the desire to carry out life projects”. Final considerations: The understanding of the experience lived by adults with cystic fibrosis allowed unveiling intersubjective aspects experienced by this public that should be considered by health professionals in the care of this group. It is up to the professionals involved in assisting these people to develop care strategies aimed at completeness, respect for the world of meanings of each individual, their life history, and intersubjectivity that is specially built in the relationship between professionals and people with cystic fibrosis.
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spelling Experience of adults with cystic fibrosis: a perspective based on social phenomenologyCystic FibrosisAdultEmotionsNursingQualitative ResearchABSTRACT Objective: To understand the experience of adults living with cystic fibrosis. Method: A qualitative study based on the social phenomenology by Alfred Schütz, carried out with 12 adults interviewed in 2016. The statements were analyzed and organized into concrete categories. Results: The following categories were evidenced: “The biopsychosocial impact of the disease on daily life”, “Social prejudice as a generator of embarrassment”, “Coping strategies” and “Fear, uncertainties and the desire to carry out life projects”. Final considerations: The understanding of the experience lived by adults with cystic fibrosis allowed unveiling intersubjective aspects experienced by this public that should be considered by health professionals in the care of this group. It is up to the professionals involved in assisting these people to develop care strategies aimed at completeness, respect for the world of meanings of each individual, their life history, and intersubjectivity that is specially built in the relationship between professionals and people with cystic fibrosis.Associação Brasileira de Enfermagem2018-12-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672018000602891Revista Brasileira de Enfermagem v.71 n.6 2018reponame:Revista Brasileira de Enfermagem (Online)instname:Associação Brasileira de Enfermagem (ABEN)instacron:ABEN10.1590/0034-7167-2017-0749info:eu-repo/semantics/openAccessCordeiro,Samara MacedoJesus,Maria Cristina Pinto deTavares,Renata EvangelistaOliveira,Deise Moura deMerighi,Miriam Aparecida Barbosaeng2018-12-10T00:00:00Zoai:scielo:S0034-71672018000602891Revistahttp://www.scielo.br/rebenhttps://old.scielo.br/oai/scielo-oai.phpreben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br1984-04460034-7167opendoar:2018-12-10T00:00Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN)false
dc.title.none.fl_str_mv Experience of adults with cystic fibrosis: a perspective based on social phenomenology
title Experience of adults with cystic fibrosis: a perspective based on social phenomenology
spellingShingle Experience of adults with cystic fibrosis: a perspective based on social phenomenology
Cordeiro,Samara Macedo
Cystic Fibrosis
Adult
Emotions
Nursing
Qualitative Research
title_short Experience of adults with cystic fibrosis: a perspective based on social phenomenology
title_full Experience of adults with cystic fibrosis: a perspective based on social phenomenology
title_fullStr Experience of adults with cystic fibrosis: a perspective based on social phenomenology
title_full_unstemmed Experience of adults with cystic fibrosis: a perspective based on social phenomenology
title_sort Experience of adults with cystic fibrosis: a perspective based on social phenomenology
author Cordeiro,Samara Macedo
author_facet Cordeiro,Samara Macedo
Jesus,Maria Cristina Pinto de
Tavares,Renata Evangelista
Oliveira,Deise Moura de
Merighi,Miriam Aparecida Barbosa
author_role author
author2 Jesus,Maria Cristina Pinto de
Tavares,Renata Evangelista
Oliveira,Deise Moura de
Merighi,Miriam Aparecida Barbosa
author2_role author
author
author
author
dc.contributor.author.fl_str_mv Cordeiro,Samara Macedo
Jesus,Maria Cristina Pinto de
Tavares,Renata Evangelista
Oliveira,Deise Moura de
Merighi,Miriam Aparecida Barbosa
dc.subject.por.fl_str_mv Cystic Fibrosis
Adult
Emotions
Nursing
Qualitative Research
topic Cystic Fibrosis
Adult
Emotions
Nursing
Qualitative Research
description ABSTRACT Objective: To understand the experience of adults living with cystic fibrosis. Method: A qualitative study based on the social phenomenology by Alfred Schütz, carried out with 12 adults interviewed in 2016. The statements were analyzed and organized into concrete categories. Results: The following categories were evidenced: “The biopsychosocial impact of the disease on daily life”, “Social prejudice as a generator of embarrassment”, “Coping strategies” and “Fear, uncertainties and the desire to carry out life projects”. Final considerations: The understanding of the experience lived by adults with cystic fibrosis allowed unveiling intersubjective aspects experienced by this public that should be considered by health professionals in the care of this group. It is up to the professionals involved in assisting these people to develop care strategies aimed at completeness, respect for the world of meanings of each individual, their life history, and intersubjectivity that is specially built in the relationship between professionals and people with cystic fibrosis.
publishDate 2018
dc.date.none.fl_str_mv 2018-12-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672018000602891
url http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672018000602891
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv 10.1590/0034-7167-2017-0749
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv text/html
dc.publisher.none.fl_str_mv Associação Brasileira de Enfermagem
publisher.none.fl_str_mv Associação Brasileira de Enfermagem
dc.source.none.fl_str_mv Revista Brasileira de Enfermagem v.71 n.6 2018
reponame:Revista Brasileira de Enfermagem (Online)
instname:Associação Brasileira de Enfermagem (ABEN)
instacron:ABEN
instname_str Associação Brasileira de Enfermagem (ABEN)
instacron_str ABEN
institution ABEN
reponame_str Revista Brasileira de Enfermagem (Online)
collection Revista Brasileira de Enfermagem (Online)
repository.name.fl_str_mv Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN)
repository.mail.fl_str_mv reben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br
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