Experience of adults with cystic fibrosis: a perspective based on social phenomenology
Autor(a) principal: | |
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Data de Publicação: | 2018 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Revista Brasileira de Enfermagem (Online) |
Texto Completo: | http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672018000602891 |
Resumo: | ABSTRACT Objective: To understand the experience of adults living with cystic fibrosis. Method: A qualitative study based on the social phenomenology by Alfred Schütz, carried out with 12 adults interviewed in 2016. The statements were analyzed and organized into concrete categories. Results: The following categories were evidenced: “The biopsychosocial impact of the disease on daily life”, “Social prejudice as a generator of embarrassment”, “Coping strategies” and “Fear, uncertainties and the desire to carry out life projects”. Final considerations: The understanding of the experience lived by adults with cystic fibrosis allowed unveiling intersubjective aspects experienced by this public that should be considered by health professionals in the care of this group. It is up to the professionals involved in assisting these people to develop care strategies aimed at completeness, respect for the world of meanings of each individual, their life history, and intersubjectivity that is specially built in the relationship between professionals and people with cystic fibrosis. |
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Revista Brasileira de Enfermagem (Online) |
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Experience of adults with cystic fibrosis: a perspective based on social phenomenologyCystic FibrosisAdultEmotionsNursingQualitative ResearchABSTRACT Objective: To understand the experience of adults living with cystic fibrosis. Method: A qualitative study based on the social phenomenology by Alfred Schütz, carried out with 12 adults interviewed in 2016. The statements were analyzed and organized into concrete categories. Results: The following categories were evidenced: “The biopsychosocial impact of the disease on daily life”, “Social prejudice as a generator of embarrassment”, “Coping strategies” and “Fear, uncertainties and the desire to carry out life projects”. Final considerations: The understanding of the experience lived by adults with cystic fibrosis allowed unveiling intersubjective aspects experienced by this public that should be considered by health professionals in the care of this group. It is up to the professionals involved in assisting these people to develop care strategies aimed at completeness, respect for the world of meanings of each individual, their life history, and intersubjectivity that is specially built in the relationship between professionals and people with cystic fibrosis.Associação Brasileira de Enfermagem2018-12-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672018000602891Revista Brasileira de Enfermagem v.71 n.6 2018reponame:Revista Brasileira de Enfermagem (Online)instname:Associação Brasileira de Enfermagem (ABEN)instacron:ABEN10.1590/0034-7167-2017-0749info:eu-repo/semantics/openAccessCordeiro,Samara MacedoJesus,Maria Cristina Pinto deTavares,Renata EvangelistaOliveira,Deise Moura deMerighi,Miriam Aparecida Barbosaeng2018-12-10T00:00:00Zoai:scielo:S0034-71672018000602891Revistahttp://www.scielo.br/rebenhttps://old.scielo.br/oai/scielo-oai.phpreben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br1984-04460034-7167opendoar:2018-12-10T00:00Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN)false |
dc.title.none.fl_str_mv |
Experience of adults with cystic fibrosis: a perspective based on social phenomenology |
title |
Experience of adults with cystic fibrosis: a perspective based on social phenomenology |
spellingShingle |
Experience of adults with cystic fibrosis: a perspective based on social phenomenology Cordeiro,Samara Macedo Cystic Fibrosis Adult Emotions Nursing Qualitative Research |
title_short |
Experience of adults with cystic fibrosis: a perspective based on social phenomenology |
title_full |
Experience of adults with cystic fibrosis: a perspective based on social phenomenology |
title_fullStr |
Experience of adults with cystic fibrosis: a perspective based on social phenomenology |
title_full_unstemmed |
Experience of adults with cystic fibrosis: a perspective based on social phenomenology |
title_sort |
Experience of adults with cystic fibrosis: a perspective based on social phenomenology |
author |
Cordeiro,Samara Macedo |
author_facet |
Cordeiro,Samara Macedo Jesus,Maria Cristina Pinto de Tavares,Renata Evangelista Oliveira,Deise Moura de Merighi,Miriam Aparecida Barbosa |
author_role |
author |
author2 |
Jesus,Maria Cristina Pinto de Tavares,Renata Evangelista Oliveira,Deise Moura de Merighi,Miriam Aparecida Barbosa |
author2_role |
author author author author |
dc.contributor.author.fl_str_mv |
Cordeiro,Samara Macedo Jesus,Maria Cristina Pinto de Tavares,Renata Evangelista Oliveira,Deise Moura de Merighi,Miriam Aparecida Barbosa |
dc.subject.por.fl_str_mv |
Cystic Fibrosis Adult Emotions Nursing Qualitative Research |
topic |
Cystic Fibrosis Adult Emotions Nursing Qualitative Research |
description |
ABSTRACT Objective: To understand the experience of adults living with cystic fibrosis. Method: A qualitative study based on the social phenomenology by Alfred Schütz, carried out with 12 adults interviewed in 2016. The statements were analyzed and organized into concrete categories. Results: The following categories were evidenced: “The biopsychosocial impact of the disease on daily life”, “Social prejudice as a generator of embarrassment”, “Coping strategies” and “Fear, uncertainties and the desire to carry out life projects”. Final considerations: The understanding of the experience lived by adults with cystic fibrosis allowed unveiling intersubjective aspects experienced by this public that should be considered by health professionals in the care of this group. It is up to the professionals involved in assisting these people to develop care strategies aimed at completeness, respect for the world of meanings of each individual, their life history, and intersubjectivity that is specially built in the relationship between professionals and people with cystic fibrosis. |
publishDate |
2018 |
dc.date.none.fl_str_mv |
2018-12-01 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672018000602891 |
url |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672018000602891 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
10.1590/0034-7167-2017-0749 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
text/html |
dc.publisher.none.fl_str_mv |
Associação Brasileira de Enfermagem |
publisher.none.fl_str_mv |
Associação Brasileira de Enfermagem |
dc.source.none.fl_str_mv |
Revista Brasileira de Enfermagem v.71 n.6 2018 reponame:Revista Brasileira de Enfermagem (Online) instname:Associação Brasileira de Enfermagem (ABEN) instacron:ABEN |
instname_str |
Associação Brasileira de Enfermagem (ABEN) |
instacron_str |
ABEN |
institution |
ABEN |
reponame_str |
Revista Brasileira de Enfermagem (Online) |
collection |
Revista Brasileira de Enfermagem (Online) |
repository.name.fl_str_mv |
Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN) |
repository.mail.fl_str_mv |
reben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br |
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1754303034778714112 |