Family experience of living with children and adolescents with bladder and bowel dysfunction

Detalhes bibliográficos
Autor(a) principal: Rodrigues,Nayara dos Santos
Data de Publicação: 2020
Outros Autores: Martins,Gisele, Silveira,Aline Oliveira
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Revista Brasileira de Enfermagem (Online)
Texto Completo: http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672020001600192
Resumo: ABSTRACT Objective: to understand the experience of families of living with children and adolescents with bladder and bowel dysfunction. Methods: a qualitative phenomenological interpretive research carried out through an in-depth open interview with parents of children and adolescents linked to Advanced Practice Nursing clinic in pediatric urology. Results: the following representative categories of the families’ experiences emerged: Knowledge and learning: building family knowledge; Living with the children’s BBD: symbolic representations; Management and adaptation to the children’s BBD: reorganizing family life. Final considerations: the experience of families related to positive and negative meanings, presence or absence of previous experiences, information gaps, learning process and access to specialized professional follow-up. Follow-up by nurses is important in pediatric urology care for the learning and consolidation of specific knowledge about bladder and bowel dysfunction.
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spelling Family experience of living with children and adolescents with bladder and bowel dysfunctionFamilyChildAdolescentPediatric NursingAdvanced Practice NursingABSTRACT Objective: to understand the experience of families of living with children and adolescents with bladder and bowel dysfunction. Methods: a qualitative phenomenological interpretive research carried out through an in-depth open interview with parents of children and adolescents linked to Advanced Practice Nursing clinic in pediatric urology. Results: the following representative categories of the families’ experiences emerged: Knowledge and learning: building family knowledge; Living with the children’s BBD: symbolic representations; Management and adaptation to the children’s BBD: reorganizing family life. Final considerations: the experience of families related to positive and negative meanings, presence or absence of previous experiences, information gaps, learning process and access to specialized professional follow-up. Follow-up by nurses is important in pediatric urology care for the learning and consolidation of specific knowledge about bladder and bowel dysfunction.Associação Brasileira de Enfermagem2020-01-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672020001600192Revista Brasileira de Enfermagem v.73 suppl.4 2020reponame:Revista Brasileira de Enfermagem (Online)instname:Associação Brasileira de Enfermagem (ABEN)instacron:ABEN10.1590/0034-7167-2019-0805info:eu-repo/semantics/openAccessRodrigues,Nayara dos SantosMartins,GiseleSilveira,Aline Oliveiraeng2020-10-01T00:00:00Zoai:scielo:S0034-71672020001600192Revistahttp://www.scielo.br/rebenhttps://old.scielo.br/oai/scielo-oai.phpreben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br1984-04460034-7167opendoar:2020-10-01T00:00Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN)false
dc.title.none.fl_str_mv Family experience of living with children and adolescents with bladder and bowel dysfunction
title Family experience of living with children and adolescents with bladder and bowel dysfunction
spellingShingle Family experience of living with children and adolescents with bladder and bowel dysfunction
Rodrigues,Nayara dos Santos
Family
Child
Adolescent
Pediatric Nursing
Advanced Practice Nursing
title_short Family experience of living with children and adolescents with bladder and bowel dysfunction
title_full Family experience of living with children and adolescents with bladder and bowel dysfunction
title_fullStr Family experience of living with children and adolescents with bladder and bowel dysfunction
title_full_unstemmed Family experience of living with children and adolescents with bladder and bowel dysfunction
title_sort Family experience of living with children and adolescents with bladder and bowel dysfunction
author Rodrigues,Nayara dos Santos
author_facet Rodrigues,Nayara dos Santos
Martins,Gisele
Silveira,Aline Oliveira
author_role author
author2 Martins,Gisele
Silveira,Aline Oliveira
author2_role author
author
dc.contributor.author.fl_str_mv Rodrigues,Nayara dos Santos
Martins,Gisele
Silveira,Aline Oliveira
dc.subject.por.fl_str_mv Family
Child
Adolescent
Pediatric Nursing
Advanced Practice Nursing
topic Family
Child
Adolescent
Pediatric Nursing
Advanced Practice Nursing
description ABSTRACT Objective: to understand the experience of families of living with children and adolescents with bladder and bowel dysfunction. Methods: a qualitative phenomenological interpretive research carried out through an in-depth open interview with parents of children and adolescents linked to Advanced Practice Nursing clinic in pediatric urology. Results: the following representative categories of the families’ experiences emerged: Knowledge and learning: building family knowledge; Living with the children’s BBD: symbolic representations; Management and adaptation to the children’s BBD: reorganizing family life. Final considerations: the experience of families related to positive and negative meanings, presence or absence of previous experiences, information gaps, learning process and access to specialized professional follow-up. Follow-up by nurses is important in pediatric urology care for the learning and consolidation of specific knowledge about bladder and bowel dysfunction.
publishDate 2020
dc.date.none.fl_str_mv 2020-01-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672020001600192
url http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672020001600192
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv 10.1590/0034-7167-2019-0805
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv text/html
dc.publisher.none.fl_str_mv Associação Brasileira de Enfermagem
publisher.none.fl_str_mv Associação Brasileira de Enfermagem
dc.source.none.fl_str_mv Revista Brasileira de Enfermagem v.73 suppl.4 2020
reponame:Revista Brasileira de Enfermagem (Online)
instname:Associação Brasileira de Enfermagem (ABEN)
instacron:ABEN
instname_str Associação Brasileira de Enfermagem (ABEN)
instacron_str ABEN
institution ABEN
reponame_str Revista Brasileira de Enfermagem (Online)
collection Revista Brasileira de Enfermagem (Online)
repository.name.fl_str_mv Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN)
repository.mail.fl_str_mv reben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br
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