The daily lives of people with Parkinson's disease
Autor(a) principal: | |
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Data de Publicação: | 2018 |
Outros Autores: | , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Revista Brasileira de Enfermagem (Online) |
Texto Completo: | http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672018000200272 |
Resumo: | ABSTRACT Objective: To understand the daily lives of people with Parkinson's disease. Method: Qualitative research, using as methodological and theoretical referential the Grounded Theory and Symbolic Interactionism, respectively. The in-depth interview was conducted with 30 people with Parkinson's disease. Results: From data analysis, three themes were selected: Living with the disease - living with the treatment and changes in lifestyle; Modifying of one's job performance - revealing incapacity for work and the need to anticipate retirement and; Living with the stigma - the feeling of prejudice against the disease and the perceived limitations of the health services. Final considerations: Living with a chronic and non-transferable disease encompasses social, physical and cultural effects, along with the personal experiences of each unique individual. This study assists the improvement of care to people with the disease, because the care practice emerges from the interactions between the subjects. |
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The daily lives of people with Parkinson's diseaseChronic DiseaseParkinson's DiseaseLife-Altering EventsQualitative ResearchNursingABSTRACT Objective: To understand the daily lives of people with Parkinson's disease. Method: Qualitative research, using as methodological and theoretical referential the Grounded Theory and Symbolic Interactionism, respectively. The in-depth interview was conducted with 30 people with Parkinson's disease. Results: From data analysis, three themes were selected: Living with the disease - living with the treatment and changes in lifestyle; Modifying of one's job performance - revealing incapacity for work and the need to anticipate retirement and; Living with the stigma - the feeling of prejudice against the disease and the perceived limitations of the health services. Final considerations: Living with a chronic and non-transferable disease encompasses social, physical and cultural effects, along with the personal experiences of each unique individual. This study assists the improvement of care to people with the disease, because the care practice emerges from the interactions between the subjects.Associação Brasileira de Enfermagem2018-04-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672018000200272Revista Brasileira de Enfermagem v.71 n.2 2018reponame:Revista Brasileira de Enfermagem (Online)instname:Associação Brasileira de Enfermagem (ABEN)instacron:ABEN10.1590/0034-7167-2016-0577info:eu-repo/semantics/openAccessValcarenghi,Rafaela VivianAlvarez,Angela MariaSantos,Silvana Sidney CostaSiewert,Josiane SteilNunes,Simony Fabíola LopesTomasi,Andrelise Viana Rosaeng2018-02-02T00:00:00Zoai:scielo:S0034-71672018000200272Revistahttp://www.scielo.br/rebenhttps://old.scielo.br/oai/scielo-oai.phpreben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br1984-04460034-7167opendoar:2018-02-02T00:00Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN)false |
dc.title.none.fl_str_mv |
The daily lives of people with Parkinson's disease |
title |
The daily lives of people with Parkinson's disease |
spellingShingle |
The daily lives of people with Parkinson's disease Valcarenghi,Rafaela Vivian Chronic Disease Parkinson's Disease Life-Altering Events Qualitative Research Nursing |
title_short |
The daily lives of people with Parkinson's disease |
title_full |
The daily lives of people with Parkinson's disease |
title_fullStr |
The daily lives of people with Parkinson's disease |
title_full_unstemmed |
The daily lives of people with Parkinson's disease |
title_sort |
The daily lives of people with Parkinson's disease |
author |
Valcarenghi,Rafaela Vivian |
author_facet |
Valcarenghi,Rafaela Vivian Alvarez,Angela Maria Santos,Silvana Sidney Costa Siewert,Josiane Steil Nunes,Simony Fabíola Lopes Tomasi,Andrelise Viana Rosa |
author_role |
author |
author2 |
Alvarez,Angela Maria Santos,Silvana Sidney Costa Siewert,Josiane Steil Nunes,Simony Fabíola Lopes Tomasi,Andrelise Viana Rosa |
author2_role |
author author author author author |
dc.contributor.author.fl_str_mv |
Valcarenghi,Rafaela Vivian Alvarez,Angela Maria Santos,Silvana Sidney Costa Siewert,Josiane Steil Nunes,Simony Fabíola Lopes Tomasi,Andrelise Viana Rosa |
dc.subject.por.fl_str_mv |
Chronic Disease Parkinson's Disease Life-Altering Events Qualitative Research Nursing |
topic |
Chronic Disease Parkinson's Disease Life-Altering Events Qualitative Research Nursing |
description |
ABSTRACT Objective: To understand the daily lives of people with Parkinson's disease. Method: Qualitative research, using as methodological and theoretical referential the Grounded Theory and Symbolic Interactionism, respectively. The in-depth interview was conducted with 30 people with Parkinson's disease. Results: From data analysis, three themes were selected: Living with the disease - living with the treatment and changes in lifestyle; Modifying of one's job performance - revealing incapacity for work and the need to anticipate retirement and; Living with the stigma - the feeling of prejudice against the disease and the perceived limitations of the health services. Final considerations: Living with a chronic and non-transferable disease encompasses social, physical and cultural effects, along with the personal experiences of each unique individual. This study assists the improvement of care to people with the disease, because the care practice emerges from the interactions between the subjects. |
publishDate |
2018 |
dc.date.none.fl_str_mv |
2018-04-01 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672018000200272 |
url |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672018000200272 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
10.1590/0034-7167-2016-0577 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
text/html |
dc.publisher.none.fl_str_mv |
Associação Brasileira de Enfermagem |
publisher.none.fl_str_mv |
Associação Brasileira de Enfermagem |
dc.source.none.fl_str_mv |
Revista Brasileira de Enfermagem v.71 n.2 2018 reponame:Revista Brasileira de Enfermagem (Online) instname:Associação Brasileira de Enfermagem (ABEN) instacron:ABEN |
instname_str |
Associação Brasileira de Enfermagem (ABEN) |
instacron_str |
ABEN |
institution |
ABEN |
reponame_str |
Revista Brasileira de Enfermagem (Online) |
collection |
Revista Brasileira de Enfermagem (Online) |
repository.name.fl_str_mv |
Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN) |
repository.mail.fl_str_mv |
reben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br |
_version_ |
1754303034122305536 |