Parkinson’s disease: coping and coexistence

• Autor(a) principal: Valcarenghi,Rafaela Vivian
• Data de Publicação: 2019
• Outros Autores: Alvarez,Angela Maria, Nunes,Simony Fabíola Lopes, Hammerschimidt,Karina Silveira de Almeida, Costa,Maria Fernanda Baeta Neves Alonso da, Siewert,Josiane Steil
• Tipo de documento: Artigo
• Idioma: eng
• Título da fonte: Revista Brasileira de Geriatria e Gerontologia
• Texto Completo: http://old.scielo.br/scielo.php?script=sci_arttext&pid=S1809-98232019000600211
• topic: Parkinson Disease; Social Support; Nursing; Family; Qualitative Research

Abstract Objective: To know the ways of coping when living with Parkinson’s disease. Method: The methodological framework used was the Grounded Theory. Thirty people diagnosed with Parkinson’s disease registered at the Parkinson Santa Catarina Association, SC, Brazil. participated in the in-depth interview. After the data coding process, five people with the disease validated the findings. Data collection took place between September 2013 to April 2014. Results: The categories that emerged were: Share activities with people with Parkinson’s disease; Have family support; Seek healthy living: activities for self-esteem and quality of life. Discussion: The study highlights the importance of family company in promoting patient stability and self-esteem, where family support helps in coping with the health condition. Conclusion: It was possible to know the ways of coping to live with the disease, especially in sharing experiences with peers; family support, leisure activities, and lifestyle changes; Such characteristics are pertinent to the health care of people with neurodegenerative diseases.