Disclosure of the diagnosis of Alzheimer's disease: caregivers' opinions in a Brazilian sample
Autor(a) principal: | |
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Data de Publicação: | 2008 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Arquivos de neuro-psiquiatria (Online) |
Texto Completo: | http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0004-282X2008000500004 |
Resumo: | BACKGROUND: Disclosure of the diagnosis of Alzheimer's disease (AD) remains a contentious issue, and has been little studied in developing countries. OBJECTIVE: To investigate the influence of socio-demographic factors and the experience of being a caregiver on opinion about disclosing AD diagnosis to the patient in a Brazilian sample. METHOD: Caregivers of 50 AD patients together with 50 control participants that did not have the experience of being a caregiver of AD patient were interviewed using a structured questionnaire. RESULTS: Most of the participants (73.0%) endorsed disclosure of the diagnosis, while caregivers were less prone to disclose (58.0%) than controls (88.0%; p=0.0007). Logistic regression confirmed that only the experience of being a caregiver was associated with a lesser tendency for disclosure endorsement. CONCLUSION: The majority of participants was in favor of disclosing the diagnosis, but caregivers were less willing to disclose the diagnosis to the AD patient. |
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Arquivos de neuro-psiquiatria (Online) |
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Disclosure of the diagnosis of Alzheimer's disease: caregivers' opinions in a Brazilian sampleAlzheimer's diseasediagnosisdisclosurecaregiverdementiaBACKGROUND: Disclosure of the diagnosis of Alzheimer's disease (AD) remains a contentious issue, and has been little studied in developing countries. OBJECTIVE: To investigate the influence of socio-demographic factors and the experience of being a caregiver on opinion about disclosing AD diagnosis to the patient in a Brazilian sample. METHOD: Caregivers of 50 AD patients together with 50 control participants that did not have the experience of being a caregiver of AD patient were interviewed using a structured questionnaire. RESULTS: Most of the participants (73.0%) endorsed disclosure of the diagnosis, while caregivers were less prone to disclose (58.0%) than controls (88.0%; p=0.0007). Logistic regression confirmed that only the experience of being a caregiver was associated with a lesser tendency for disclosure endorsement. CONCLUSION: The majority of participants was in favor of disclosing the diagnosis, but caregivers were less willing to disclose the diagnosis to the AD patient.Academia Brasileira de Neurologia - ABNEURO2008-01-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0004-282X2008000500004Arquivos de Neuro-Psiquiatria v.66 n.3b 2008reponame:Arquivos de neuro-psiquiatria (Online)instname:Academia Brasileira de Neurologiainstacron:ABNEURO10.1590/S0004-282X2008000500004info:eu-repo/semantics/openAccessShimizu,Marta MariaRaicher,I.Takahashi,Daniel YasumasaCaramelli,PauloNitrini,Ricardoeng2008-10-15T00:00:00Zoai:scielo:S0004-282X2008000500004Revistahttp://www.scielo.br/anphttps://old.scielo.br/oai/scielo-oai.php||revista.arquivos@abneuro.org1678-42270004-282Xopendoar:2008-10-15T00:00Arquivos de neuro-psiquiatria (Online) - Academia Brasileira de Neurologiafalse |
dc.title.none.fl_str_mv |
Disclosure of the diagnosis of Alzheimer's disease: caregivers' opinions in a Brazilian sample |
title |
Disclosure of the diagnosis of Alzheimer's disease: caregivers' opinions in a Brazilian sample |
spellingShingle |
Disclosure of the diagnosis of Alzheimer's disease: caregivers' opinions in a Brazilian sample Shimizu,Marta Maria Alzheimer's disease diagnosis disclosure caregiver dementia |
title_short |
Disclosure of the diagnosis of Alzheimer's disease: caregivers' opinions in a Brazilian sample |
title_full |
Disclosure of the diagnosis of Alzheimer's disease: caregivers' opinions in a Brazilian sample |
title_fullStr |
Disclosure of the diagnosis of Alzheimer's disease: caregivers' opinions in a Brazilian sample |
title_full_unstemmed |
Disclosure of the diagnosis of Alzheimer's disease: caregivers' opinions in a Brazilian sample |
title_sort |
Disclosure of the diagnosis of Alzheimer's disease: caregivers' opinions in a Brazilian sample |
author |
Shimizu,Marta Maria |
author_facet |
Shimizu,Marta Maria Raicher,I. Takahashi,Daniel Yasumasa Caramelli,Paulo Nitrini,Ricardo |
author_role |
author |
author2 |
Raicher,I. Takahashi,Daniel Yasumasa Caramelli,Paulo Nitrini,Ricardo |
author2_role |
author author author author |
dc.contributor.author.fl_str_mv |
Shimizu,Marta Maria Raicher,I. Takahashi,Daniel Yasumasa Caramelli,Paulo Nitrini,Ricardo |
dc.subject.por.fl_str_mv |
Alzheimer's disease diagnosis disclosure caregiver dementia |
topic |
Alzheimer's disease diagnosis disclosure caregiver dementia |
description |
BACKGROUND: Disclosure of the diagnosis of Alzheimer's disease (AD) remains a contentious issue, and has been little studied in developing countries. OBJECTIVE: To investigate the influence of socio-demographic factors and the experience of being a caregiver on opinion about disclosing AD diagnosis to the patient in a Brazilian sample. METHOD: Caregivers of 50 AD patients together with 50 control participants that did not have the experience of being a caregiver of AD patient were interviewed using a structured questionnaire. RESULTS: Most of the participants (73.0%) endorsed disclosure of the diagnosis, while caregivers were less prone to disclose (58.0%) than controls (88.0%; p=0.0007). Logistic regression confirmed that only the experience of being a caregiver was associated with a lesser tendency for disclosure endorsement. CONCLUSION: The majority of participants was in favor of disclosing the diagnosis, but caregivers were less willing to disclose the diagnosis to the AD patient. |
publishDate |
2008 |
dc.date.none.fl_str_mv |
2008-01-01 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0004-282X2008000500004 |
url |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0004-282X2008000500004 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
10.1590/S0004-282X2008000500004 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
text/html |
dc.publisher.none.fl_str_mv |
Academia Brasileira de Neurologia - ABNEURO |
publisher.none.fl_str_mv |
Academia Brasileira de Neurologia - ABNEURO |
dc.source.none.fl_str_mv |
Arquivos de Neuro-Psiquiatria v.66 n.3b 2008 reponame:Arquivos de neuro-psiquiatria (Online) instname:Academia Brasileira de Neurologia instacron:ABNEURO |
instname_str |
Academia Brasileira de Neurologia |
instacron_str |
ABNEURO |
institution |
ABNEURO |
reponame_str |
Arquivos de neuro-psiquiatria (Online) |
collection |
Arquivos de neuro-psiquiatria (Online) |
repository.name.fl_str_mv |
Arquivos de neuro-psiquiatria (Online) - Academia Brasileira de Neurologia |
repository.mail.fl_str_mv |
||revista.arquivos@abneuro.org |
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1754212764522381312 |