Health literacy of informal caregivers on Alzheimer's disease
Autor(a) principal: | |
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Data de Publicação: | 2022 |
Outros Autores: | , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://scielo.pt/scielo.php?script=sci_arttext&pid=S0873-30152022000100053 |
Resumo: | Abstract Introduction: Considering population aging and the demographic projections for Portugal, is expected an increase in the development of chronic degenerative diseases, as is the case of Alzheimer's Disease (AD). Thus, Informal Caregivers (IC) have a fundamental role in the provision of care, which is influenced by the literacy level of such population. Objective: To explore the level of literacy of Informal Caregivers on Alzheimer's Disease. Methods: Descriptive, exploratory and quantitative study, with a sample of 28 participants. The data collection took place through a questionnaire and the Alzheimer's Disease Knowledge Scale, on Google Forms, after informed consent. Results: Most IC were female (75%), with an average of 54,04 years of age (12,46), a high level of educational qualifications and a close relationship with the person cared for. They provide care on average 4,18 years ((2,41), approximately 12 hours a day, seven days a week. Regarding the difficulties felt, the majority reported neurobehavioral changes in AD, management of personal and professional life, lack of support and uncertainties of personal training to care. It is considered that 57,14% of IC have an intermediate level (3 on a scale of 1-5) in the way they provide care. Conclusion: Due to the difficulties and needs mentioned by IC, the creation of new health literacy programs in the community is essential. In future studies it is important to evaluate the effectiveness of these programs in order to promote care strategies for IC of people with AD. |
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Health literacy of informal caregivers on Alzheimer's diseaseAlzheimer´s diseaseinformal caregiverdementiahealth literacyAbstract Introduction: Considering population aging and the demographic projections for Portugal, is expected an increase in the development of chronic degenerative diseases, as is the case of Alzheimer's Disease (AD). Thus, Informal Caregivers (IC) have a fundamental role in the provision of care, which is influenced by the literacy level of such population. Objective: To explore the level of literacy of Informal Caregivers on Alzheimer's Disease. Methods: Descriptive, exploratory and quantitative study, with a sample of 28 participants. The data collection took place through a questionnaire and the Alzheimer's Disease Knowledge Scale, on Google Forms, after informed consent. Results: Most IC were female (75%), with an average of 54,04 years of age (12,46), a high level of educational qualifications and a close relationship with the person cared for. They provide care on average 4,18 years ((2,41), approximately 12 hours a day, seven days a week. Regarding the difficulties felt, the majority reported neurobehavioral changes in AD, management of personal and professional life, lack of support and uncertainties of personal training to care. It is considered that 57,14% of IC have an intermediate level (3 on a scale of 1-5) in the way they provide care. Conclusion: Due to the difficulties and needs mentioned by IC, the creation of new health literacy programs in the community is essential. In future studies it is important to evaluate the effectiveness of these programs in order to promote care strategies for IC of people with AD.Instituto Politécnico de Viseu (IPV)2022-02-01info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articletext/htmlhttp://scielo.pt/scielo.php?script=sci_arttext&pid=S0873-30152022000100053Millenium - Journal of Education, Technologies, and Health n.17 2022reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAPenghttp://scielo.pt/scielo.php?script=sci_arttext&pid=S0873-30152022000100053Sarmento,BeatrizCaetano,LilianaSerra,Maria JoãoCosta,Mônicainfo:eu-repo/semantics/openAccess2024-02-06T17:10:18Zoai:scielo:S0873-30152022000100053Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T02:21:53.660426Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Health literacy of informal caregivers on Alzheimer's disease |
title |
Health literacy of informal caregivers on Alzheimer's disease |
spellingShingle |
Health literacy of informal caregivers on Alzheimer's disease Sarmento,Beatriz Alzheimer´s disease informal caregiver dementia health literacy |
title_short |
Health literacy of informal caregivers on Alzheimer's disease |
title_full |
Health literacy of informal caregivers on Alzheimer's disease |
title_fullStr |
Health literacy of informal caregivers on Alzheimer's disease |
title_full_unstemmed |
Health literacy of informal caregivers on Alzheimer's disease |
title_sort |
Health literacy of informal caregivers on Alzheimer's disease |
author |
Sarmento,Beatriz |
author_facet |
Sarmento,Beatriz Caetano,Liliana Serra,Maria João Costa,Mônica |
author_role |
author |
author2 |
Caetano,Liliana Serra,Maria João Costa,Mônica |
author2_role |
author author author |
dc.contributor.author.fl_str_mv |
Sarmento,Beatriz Caetano,Liliana Serra,Maria João Costa,Mônica |
dc.subject.por.fl_str_mv |
Alzheimer´s disease informal caregiver dementia health literacy |
topic |
Alzheimer´s disease informal caregiver dementia health literacy |
description |
Abstract Introduction: Considering population aging and the demographic projections for Portugal, is expected an increase in the development of chronic degenerative diseases, as is the case of Alzheimer's Disease (AD). Thus, Informal Caregivers (IC) have a fundamental role in the provision of care, which is influenced by the literacy level of such population. Objective: To explore the level of literacy of Informal Caregivers on Alzheimer's Disease. Methods: Descriptive, exploratory and quantitative study, with a sample of 28 participants. The data collection took place through a questionnaire and the Alzheimer's Disease Knowledge Scale, on Google Forms, after informed consent. Results: Most IC were female (75%), with an average of 54,04 years of age (12,46), a high level of educational qualifications and a close relationship with the person cared for. They provide care on average 4,18 years ((2,41), approximately 12 hours a day, seven days a week. Regarding the difficulties felt, the majority reported neurobehavioral changes in AD, management of personal and professional life, lack of support and uncertainties of personal training to care. It is considered that 57,14% of IC have an intermediate level (3 on a scale of 1-5) in the way they provide care. Conclusion: Due to the difficulties and needs mentioned by IC, the creation of new health literacy programs in the community is essential. In future studies it is important to evaluate the effectiveness of these programs in order to promote care strategies for IC of people with AD. |
publishDate |
2022 |
dc.date.none.fl_str_mv |
2022-02-01 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://scielo.pt/scielo.php?script=sci_arttext&pid=S0873-30152022000100053 |
url |
http://scielo.pt/scielo.php?script=sci_arttext&pid=S0873-30152022000100053 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
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http://scielo.pt/scielo.php?script=sci_arttext&pid=S0873-30152022000100053 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
text/html |
dc.publisher.none.fl_str_mv |
Instituto Politécnico de Viseu (IPV) |
publisher.none.fl_str_mv |
Instituto Politécnico de Viseu (IPV) |
dc.source.none.fl_str_mv |
Millenium - Journal of Education, Technologies, and Health n.17 2022 reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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