Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents

Detalhes bibliográficos
Autor(a) principal: Halberstadt, Bianca Fraga
Data de Publicação: 2020
Outros Autores: Moraes, Anaelena Bragança de, Souza, Ana Paula Ramos de
Tipo de documento: Artigo
Idioma: por
eng
Título da fonte: Saúde e Pesquisa (Online)
Texto Completo: https://periodicos.unicesumar.edu.br/index.php/saudpesq/article/view/7662
Resumo: The aim of this study is to analyze the functionality of children with DS in the areas of mobility, self-care and social function in relation to the child’s therapeutic history, parental adaptation, child’s disability, socioeconomic aspects and parents’ occupational performance. The Pediatric Disability Assessment Inventory, Canadian Occupational Performance Measure, the Parental Adaptation Scale for child’s disability and an interview constructed by the researchers were used. Thirty parents of children with DS from 10 months to seven years old participated. Children have mobility performance within the normal range and a significant delay in the area of self-care. The most therapies are structural in nature, focused on family and child. The parents’ occupational performance presents problems, mainly in the area of productivity. These have difficulty in dealing with the diagnosis. The socioeconomic level, schooling and leisure activities of the parents influence child’s development.
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spelling Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parentsSíndrome de Down: funcionalidade e histórico terapêutico da criança, adaptação e desempenho ocupacional dos paisChildDown’s syndromeFunctionalityParentsCriançaFuncionalidadePaisSíndrome de Down.Crianças com Síndrome de Down e seus familiaresThe aim of this study is to analyze the functionality of children with DS in the areas of mobility, self-care and social function in relation to the child’s therapeutic history, parental adaptation, child’s disability, socioeconomic aspects and parents’ occupational performance. The Pediatric Disability Assessment Inventory, Canadian Occupational Performance Measure, the Parental Adaptation Scale for child’s disability and an interview constructed by the researchers were used. Thirty parents of children with DS from 10 months to seven years old participated. Children have mobility performance within the normal range and a significant delay in the area of self-care. The most therapies are structural in nature, focused on family and child. The parents’ occupational performance presents problems, mainly in the area of productivity. These have difficulty in dealing with the diagnosis. The socioeconomic level, schooling and leisure activities of the parents influence child’s development. O objetivo deste estudo é analisar a funcionalidade de crianças com Síndrome de Down (SD) nas áreas de mobilidade, autocuidado e função social em relação ao histórico terapêutico da criança, à adaptação parental, à deficiência do filho, aos aspectos socioeconômicos e ao desempenho ocupacional dos pais. Foram utilizados o Inventário de Avaliação Pediátrica de Incapacidade, a Medida Canadense de Desempenho Ocupacional, a Escala de adaptação parental à deficiência do filho e uma entrevista construída pelas pesquisadoras. Participaram 30 genitores de crianças com SD de 10 meses a sete anos de idade. As crianças apresentam desempenho em mobilidade dentro dos padrões de normalidade e atraso significativo na área de autocuidado. Grande parte das terapias é de cunho estrutural, focada na família e na criança. O desempenho ocupacional dos pais apresenta problemas, principalmente na área de produtividade. Estes possuem dificuldade em lidar com o diagnóstico. O nível socioeconômico, de escolaridade e o exercício do lazer dos pais influenciam o desenvolvimento da criança. Universidade Cesumar - UniCesumar2020-11-24info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionPesquisa de campoapplication/pdfapplication/pdfhttps://periodicos.unicesumar.edu.br/index.php/saudpesq/article/view/766210.17765/2176-9206.2020v13n4p809-819Saúde e Pesquisa; Vol 13 No 4 (2020): out./dez.; 809-819Saúde e Pesquisa; v. 13 n. 4 (2020): out./dez.; 809-8192176-9206reponame:Saúde e Pesquisa (Online)instname:Cesumar Diretoria de Pesquisainstacron:CESUMARporenghttps://periodicos.unicesumar.edu.br/index.php/saudpesq/article/view/7662/6439https://periodicos.unicesumar.edu.br/index.php/saudpesq/article/view/7662/6462Halberstadt, Bianca FragaMoraes, Anaelena Bragança deSouza, Ana Paula Ramos deinfo:eu-repo/semantics/openAccess2020-11-24T18:27:24Zoai:ojs.pkp.sfu.ca:article/7662Revistahttps://periodicos.unicesumar.edu.br/index.php/saudpesqPUBhttps://periodicos.unicesumar.edu.br/index.php/saudpesq/oainaep@cesumar.br2176-92061983-1870opendoar:2020-11-24T18:27:24Saúde e Pesquisa (Online) - Cesumar Diretoria de Pesquisafalse
dc.title.none.fl_str_mv Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents
Síndrome de Down: funcionalidade e histórico terapêutico da criança, adaptação e desempenho ocupacional dos pais
title Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents
spellingShingle Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents
Halberstadt, Bianca Fraga
Child
Down’s syndrome
Functionality
Parents
Criança
Funcionalidade
Pais
Síndrome de Down.
Crianças com Síndrome de Down e seus familiares
title_short Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents
title_full Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents
title_fullStr Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents
title_full_unstemmed Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents
title_sort Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents
author Halberstadt, Bianca Fraga
author_facet Halberstadt, Bianca Fraga
Moraes, Anaelena Bragança de
Souza, Ana Paula Ramos de
author_role author
author2 Moraes, Anaelena Bragança de
Souza, Ana Paula Ramos de
author2_role author
author
dc.contributor.author.fl_str_mv Halberstadt, Bianca Fraga
Moraes, Anaelena Bragança de
Souza, Ana Paula Ramos de
dc.subject.por.fl_str_mv Child
Down’s syndrome
Functionality
Parents
Criança
Funcionalidade
Pais
Síndrome de Down.
Crianças com Síndrome de Down e seus familiares
topic Child
Down’s syndrome
Functionality
Parents
Criança
Funcionalidade
Pais
Síndrome de Down.
Crianças com Síndrome de Down e seus familiares
description The aim of this study is to analyze the functionality of children with DS in the areas of mobility, self-care and social function in relation to the child’s therapeutic history, parental adaptation, child’s disability, socioeconomic aspects and parents’ occupational performance. The Pediatric Disability Assessment Inventory, Canadian Occupational Performance Measure, the Parental Adaptation Scale for child’s disability and an interview constructed by the researchers were used. Thirty parents of children with DS from 10 months to seven years old participated. Children have mobility performance within the normal range and a significant delay in the area of self-care. The most therapies are structural in nature, focused on family and child. The parents’ occupational performance presents problems, mainly in the area of productivity. These have difficulty in dealing with the diagnosis. The socioeconomic level, schooling and leisure activities of the parents influence child’s development.
publishDate 2020
dc.date.none.fl_str_mv 2020-11-24
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
Pesquisa de campo
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://periodicos.unicesumar.edu.br/index.php/saudpesq/article/view/7662
10.17765/2176-9206.2020v13n4p809-819
url https://periodicos.unicesumar.edu.br/index.php/saudpesq/article/view/7662
identifier_str_mv 10.17765/2176-9206.2020v13n4p809-819
dc.language.iso.fl_str_mv por
eng
language por
eng
dc.relation.none.fl_str_mv https://periodicos.unicesumar.edu.br/index.php/saudpesq/article/view/7662/6439
https://periodicos.unicesumar.edu.br/index.php/saudpesq/article/view/7662/6462
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Universidade Cesumar - UniCesumar
publisher.none.fl_str_mv Universidade Cesumar - UniCesumar
dc.source.none.fl_str_mv Saúde e Pesquisa; Vol 13 No 4 (2020): out./dez.; 809-819
Saúde e Pesquisa; v. 13 n. 4 (2020): out./dez.; 809-819
2176-9206
reponame:Saúde e Pesquisa (Online)
instname:Cesumar Diretoria de Pesquisa
instacron:CESUMAR
instname_str Cesumar Diretoria de Pesquisa
instacron_str CESUMAR
institution CESUMAR
reponame_str Saúde e Pesquisa (Online)
collection Saúde e Pesquisa (Online)
repository.name.fl_str_mv Saúde e Pesquisa (Online) - Cesumar Diretoria de Pesquisa
repository.mail.fl_str_mv naep@cesumar.br
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