Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Outros Autores: | , |
Tipo de documento: | Artigo |
Idioma: | por eng |
Título da fonte: | Saúde e Pesquisa (Online) |
Texto Completo: | https://periodicos.unicesumar.edu.br/index.php/saudpesq/article/view/7662 |
Resumo: | The aim of this study is to analyze the functionality of children with DS in the areas of mobility, self-care and social function in relation to the child’s therapeutic history, parental adaptation, child’s disability, socioeconomic aspects and parents’ occupational performance. The Pediatric Disability Assessment Inventory, Canadian Occupational Performance Measure, the Parental Adaptation Scale for child’s disability and an interview constructed by the researchers were used. Thirty parents of children with DS from 10 months to seven years old participated. Children have mobility performance within the normal range and a significant delay in the area of self-care. The most therapies are structural in nature, focused on family and child. The parents’ occupational performance presents problems, mainly in the area of productivity. These have difficulty in dealing with the diagnosis. The socioeconomic level, schooling and leisure activities of the parents influence child’s development. |
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Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parentsSíndrome de Down: funcionalidade e histórico terapêutico da criança, adaptação e desempenho ocupacional dos paisChildDown’s syndromeFunctionalityParentsCriançaFuncionalidadePaisSíndrome de Down.Crianças com Síndrome de Down e seus familiaresThe aim of this study is to analyze the functionality of children with DS in the areas of mobility, self-care and social function in relation to the child’s therapeutic history, parental adaptation, child’s disability, socioeconomic aspects and parents’ occupational performance. The Pediatric Disability Assessment Inventory, Canadian Occupational Performance Measure, the Parental Adaptation Scale for child’s disability and an interview constructed by the researchers were used. Thirty parents of children with DS from 10 months to seven years old participated. Children have mobility performance within the normal range and a significant delay in the area of self-care. The most therapies are structural in nature, focused on family and child. The parents’ occupational performance presents problems, mainly in the area of productivity. These have difficulty in dealing with the diagnosis. The socioeconomic level, schooling and leisure activities of the parents influence child’s development. O objetivo deste estudo é analisar a funcionalidade de crianças com Síndrome de Down (SD) nas áreas de mobilidade, autocuidado e função social em relação ao histórico terapêutico da criança, à adaptação parental, à deficiência do filho, aos aspectos socioeconômicos e ao desempenho ocupacional dos pais. Foram utilizados o Inventário de Avaliação Pediátrica de Incapacidade, a Medida Canadense de Desempenho Ocupacional, a Escala de adaptação parental à deficiência do filho e uma entrevista construída pelas pesquisadoras. Participaram 30 genitores de crianças com SD de 10 meses a sete anos de idade. As crianças apresentam desempenho em mobilidade dentro dos padrões de normalidade e atraso significativo na área de autocuidado. Grande parte das terapias é de cunho estrutural, focada na família e na criança. O desempenho ocupacional dos pais apresenta problemas, principalmente na área de produtividade. Estes possuem dificuldade em lidar com o diagnóstico. O nível socioeconômico, de escolaridade e o exercício do lazer dos pais influenciam o desenvolvimento da criança. Universidade Cesumar - UniCesumar2020-11-24info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionPesquisa de campoapplication/pdfapplication/pdfhttps://periodicos.unicesumar.edu.br/index.php/saudpesq/article/view/766210.17765/2176-9206.2020v13n4p809-819Saúde e Pesquisa; Vol 13 No 4 (2020): out./dez.; 809-819Saúde e Pesquisa; v. 13 n. 4 (2020): out./dez.; 809-8192176-9206reponame:Saúde e Pesquisa (Online)instname:Cesumar Diretoria de Pesquisainstacron:CESUMARporenghttps://periodicos.unicesumar.edu.br/index.php/saudpesq/article/view/7662/6439https://periodicos.unicesumar.edu.br/index.php/saudpesq/article/view/7662/6462Halberstadt, Bianca FragaMoraes, Anaelena Bragança deSouza, Ana Paula Ramos deinfo:eu-repo/semantics/openAccess2020-11-24T18:27:24Zoai:ojs.pkp.sfu.ca:article/7662Revistahttps://periodicos.unicesumar.edu.br/index.php/saudpesqPUBhttps://periodicos.unicesumar.edu.br/index.php/saudpesq/oainaep@cesumar.br2176-92061983-1870opendoar:2020-11-24T18:27:24Saúde e Pesquisa (Online) - Cesumar Diretoria de Pesquisafalse |
dc.title.none.fl_str_mv |
Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents Síndrome de Down: funcionalidade e histórico terapêutico da criança, adaptação e desempenho ocupacional dos pais |
title |
Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents |
spellingShingle |
Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents Halberstadt, Bianca Fraga Child Down’s syndrome Functionality Parents Criança Funcionalidade Pais Síndrome de Down. Crianças com Síndrome de Down e seus familiares |
title_short |
Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents |
title_full |
Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents |
title_fullStr |
Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents |
title_full_unstemmed |
Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents |
title_sort |
Down Syndrome: functionality and therapeutic history of the child, adaptation and occupational performance of parents |
author |
Halberstadt, Bianca Fraga |
author_facet |
Halberstadt, Bianca Fraga Moraes, Anaelena Bragança de Souza, Ana Paula Ramos de |
author_role |
author |
author2 |
Moraes, Anaelena Bragança de Souza, Ana Paula Ramos de |
author2_role |
author author |
dc.contributor.author.fl_str_mv |
Halberstadt, Bianca Fraga Moraes, Anaelena Bragança de Souza, Ana Paula Ramos de |
dc.subject.por.fl_str_mv |
Child Down’s syndrome Functionality Parents Criança Funcionalidade Pais Síndrome de Down. Crianças com Síndrome de Down e seus familiares |
topic |
Child Down’s syndrome Functionality Parents Criança Funcionalidade Pais Síndrome de Down. Crianças com Síndrome de Down e seus familiares |
description |
The aim of this study is to analyze the functionality of children with DS in the areas of mobility, self-care and social function in relation to the child’s therapeutic history, parental adaptation, child’s disability, socioeconomic aspects and parents’ occupational performance. The Pediatric Disability Assessment Inventory, Canadian Occupational Performance Measure, the Parental Adaptation Scale for child’s disability and an interview constructed by the researchers were used. Thirty parents of children with DS from 10 months to seven years old participated. Children have mobility performance within the normal range and a significant delay in the area of self-care. The most therapies are structural in nature, focused on family and child. The parents’ occupational performance presents problems, mainly in the area of productivity. These have difficulty in dealing with the diagnosis. The socioeconomic level, schooling and leisure activities of the parents influence child’s development. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020-11-24 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Pesquisa de campo |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://periodicos.unicesumar.edu.br/index.php/saudpesq/article/view/7662 10.17765/2176-9206.2020v13n4p809-819 |
url |
https://periodicos.unicesumar.edu.br/index.php/saudpesq/article/view/7662 |
identifier_str_mv |
10.17765/2176-9206.2020v13n4p809-819 |
dc.language.iso.fl_str_mv |
por eng |
language |
por eng |
dc.relation.none.fl_str_mv |
https://periodicos.unicesumar.edu.br/index.php/saudpesq/article/view/7662/6439 https://periodicos.unicesumar.edu.br/index.php/saudpesq/article/view/7662/6462 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Cesumar - UniCesumar |
publisher.none.fl_str_mv |
Universidade Cesumar - UniCesumar |
dc.source.none.fl_str_mv |
Saúde e Pesquisa; Vol 13 No 4 (2020): out./dez.; 809-819 Saúde e Pesquisa; v. 13 n. 4 (2020): out./dez.; 809-819 2176-9206 reponame:Saúde e Pesquisa (Online) instname:Cesumar Diretoria de Pesquisa instacron:CESUMAR |
instname_str |
Cesumar Diretoria de Pesquisa |
instacron_str |
CESUMAR |
institution |
CESUMAR |
reponame_str |
Saúde e Pesquisa (Online) |
collection |
Saúde e Pesquisa (Online) |
repository.name.fl_str_mv |
Saúde e Pesquisa (Online) - Cesumar Diretoria de Pesquisa |
repository.mail.fl_str_mv |
naep@cesumar.br |
_version_ |
1754122534979108864 |