Social support for caregivers of children with Down’s Syndrome
Autor(a) principal: | |
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Data de Publicação: | 2014 |
Outros Autores: | , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Revista Educação Especial (UFSM) |
Texto Completo: | http://periodicos.ufsm.br/educacaoespecial/article/view/5928 |
Resumo: | The objective of this study was to know the perception of social support for caregivers of children with Down’s syndrome (DS) in relation to the degree of satisfaction and the number of people to support in the southern region of the State of Minas Gerais and establish the relationship between them. This is a study of quantitative analysis, exploratory and descriptive character, and clinical type cross-section. The study population consisted of 50 people from both genres, mostly mothers (92), caregivers of children with DS, aged 6 months and 7 and a half years, regular goers of specialized agencies. To the group studied, the vast majority of responses indicating supportive people pointed out the lack of a reference person, being ticked the answer "no". Then appear the husband, son, parents, siblings, friends, wife and children's doctor. The analysis of the correlation between the number of supportive people and satisfaction with social support showed satisfaction among low and moderate denoting that these caregivers could not count on a network of efficient social support in caring for children with DS. It is considered appropriate to increase actions and governmental and non-governmental incentives for the development of professional teams and specialized institutions focused care, rehabilitation and inclusion of children with DS and their families into society. Families need appropriate support programs in order to foster their capabilities. |
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Social support for caregivers of children with Down’s SyndromeSuporte social de cuidadores de crianças com Síndrome de DownSocial supportCaregiversDown’s Syndrome.Suporte socialCuidadoresSíndrome de Down.The objective of this study was to know the perception of social support for caregivers of children with Down’s syndrome (DS) in relation to the degree of satisfaction and the number of people to support in the southern region of the State of Minas Gerais and establish the relationship between them. This is a study of quantitative analysis, exploratory and descriptive character, and clinical type cross-section. The study population consisted of 50 people from both genres, mostly mothers (92), caregivers of children with DS, aged 6 months and 7 and a half years, regular goers of specialized agencies. To the group studied, the vast majority of responses indicating supportive people pointed out the lack of a reference person, being ticked the answer "no". Then appear the husband, son, parents, siblings, friends, wife and children's doctor. The analysis of the correlation between the number of supportive people and satisfaction with social support showed satisfaction among low and moderate denoting that these caregivers could not count on a network of efficient social support in caring for children with DS. It is considered appropriate to increase actions and governmental and non-governmental incentives for the development of professional teams and specialized institutions focused care, rehabilitation and inclusion of children with DS and their families into society. Families need appropriate support programs in order to foster their capabilities. http://dx.doi.org/10.5902/1984686X5928 O objetivo desse estudo foi conhecer a percepção do suporte social de cuidadores de crianças com síndrome de Down (SD) em relação ao grau de satisfação e ao número de pessoas suportivas na região sul do estado de Minas Gerais e estabelecer a relação entre os mesmos. Este é um estudo, de análise quantitativa, de caráter clínico, exploratório e descritivo do tipo corte transversal. A população estudada foi composta por 50 pessoas de ambos os gêneros, em sua maioria as mães (92%), cuidadoras de crianças com SD, com idade entre 6 meses e 7 anos e meio, frequentadores regulares de instituições especializadas. Para o grupo estudado, a grande maioria das respostas indicativas de pessoas suportivas apontou a falta de uma pessoa de referência, sendo assinalada a resposta “ninguém”. Em seguida, aparecem o marido, filho, pais, irmãos, amigos, esposa e médico da criança. A análise da correlação entre o número de pessoas tidas como suportivas e a satisfação com o suporte social mostrou uma satisfação entre fraca e moderada denotando que esses cuidadores não puderam contar com uma rede de suporte social eficiente no cuidado dos filhos com SD. Considera-se pertinente o incremento de ações e incentivos governamentais e não-governamentais para o desenvolvimento de equipes profissionais e de instituições especializadas, voltadas ao atendimento, à reabilitação e a inclusão de crianças com SD e suas famílias na sociedade. As famílias precisam de programas de apoio apropriados para potencializarem ao máximo suas próprias capacidades. Palavras-chave: Suporte social; Cuidadores; Síndrome de Down Universidade Federal de Santa Maria2014-04-11info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttp://periodicos.ufsm.br/educacaoespecial/article/view/592810.5902/1984686X5928Special Education Magazine; Revista Educação Especial, v. 27, n. 48, jan./abr. 2014; 111-126Revista de Educación Especial; Revista Educação Especial, v. 27, n. 48, jan./abr. 2014; 111-126Revista Educação Especial; Revista Educação Especial, v. 27, n. 48, jan./abr. 2014; 111-1261984-686Xreponame:Revista Educação Especial (UFSM)instname:Universidade Federal de Santa Maria (UFSM)instacron:UFSMporhttp://periodicos.ufsm.br/educacaoespecial/article/view/5928/pdfRezende, Luciana KraussAssis, Silvana Maria BlascoviBarca, Luiz Fernandoinfo:eu-repo/semantics/openAccess2015-06-02T17:22:09Zoai:ojs.pkp.sfu.ca:article/5928Revistahttps://periodicos.ufsm.br/educacaoespecialPUBhttp://cascavel.ufsm.br/revistas/ojs-2.2.2/index.php/educacaoespecial/oaieducacaoespecial@smail.ufsm.br||clenioberni@gmail.com1984-686X1808-270Xopendoar:2015-06-02T17:22:09Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM)false |
dc.title.none.fl_str_mv |
Social support for caregivers of children with Down’s Syndrome Suporte social de cuidadores de crianças com Síndrome de Down |
title |
Social support for caregivers of children with Down’s Syndrome |
spellingShingle |
Social support for caregivers of children with Down’s Syndrome Rezende, Luciana Krauss Social support Caregivers Down’s Syndrome. Suporte social Cuidadores Síndrome de Down. |
title_short |
Social support for caregivers of children with Down’s Syndrome |
title_full |
Social support for caregivers of children with Down’s Syndrome |
title_fullStr |
Social support for caregivers of children with Down’s Syndrome |
title_full_unstemmed |
Social support for caregivers of children with Down’s Syndrome |
title_sort |
Social support for caregivers of children with Down’s Syndrome |
author |
Rezende, Luciana Krauss |
author_facet |
Rezende, Luciana Krauss Assis, Silvana Maria Blascovi Barca, Luiz Fernando |
author_role |
author |
author2 |
Assis, Silvana Maria Blascovi Barca, Luiz Fernando |
author2_role |
author author |
dc.contributor.author.fl_str_mv |
Rezende, Luciana Krauss Assis, Silvana Maria Blascovi Barca, Luiz Fernando |
dc.subject.por.fl_str_mv |
Social support Caregivers Down’s Syndrome. Suporte social Cuidadores Síndrome de Down. |
topic |
Social support Caregivers Down’s Syndrome. Suporte social Cuidadores Síndrome de Down. |
description |
The objective of this study was to know the perception of social support for caregivers of children with Down’s syndrome (DS) in relation to the degree of satisfaction and the number of people to support in the southern region of the State of Minas Gerais and establish the relationship between them. This is a study of quantitative analysis, exploratory and descriptive character, and clinical type cross-section. The study population consisted of 50 people from both genres, mostly mothers (92), caregivers of children with DS, aged 6 months and 7 and a half years, regular goers of specialized agencies. To the group studied, the vast majority of responses indicating supportive people pointed out the lack of a reference person, being ticked the answer "no". Then appear the husband, son, parents, siblings, friends, wife and children's doctor. The analysis of the correlation between the number of supportive people and satisfaction with social support showed satisfaction among low and moderate denoting that these caregivers could not count on a network of efficient social support in caring for children with DS. It is considered appropriate to increase actions and governmental and non-governmental incentives for the development of professional teams and specialized institutions focused care, rehabilitation and inclusion of children with DS and their families into society. Families need appropriate support programs in order to foster their capabilities. |
publishDate |
2014 |
dc.date.none.fl_str_mv |
2014-04-11 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://periodicos.ufsm.br/educacaoespecial/article/view/5928 10.5902/1984686X5928 |
url |
http://periodicos.ufsm.br/educacaoespecial/article/view/5928 |
identifier_str_mv |
10.5902/1984686X5928 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
http://periodicos.ufsm.br/educacaoespecial/article/view/5928/pdf |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Federal de Santa Maria |
publisher.none.fl_str_mv |
Universidade Federal de Santa Maria |
dc.source.none.fl_str_mv |
Special Education Magazine; Revista Educação Especial, v. 27, n. 48, jan./abr. 2014; 111-126 Revista de Educación Especial; Revista Educação Especial, v. 27, n. 48, jan./abr. 2014; 111-126 Revista Educação Especial; Revista Educação Especial, v. 27, n. 48, jan./abr. 2014; 111-126 1984-686X reponame:Revista Educação Especial (UFSM) instname:Universidade Federal de Santa Maria (UFSM) instacron:UFSM |
instname_str |
Universidade Federal de Santa Maria (UFSM) |
instacron_str |
UFSM |
institution |
UFSM |
reponame_str |
Revista Educação Especial (UFSM) |
collection |
Revista Educação Especial (UFSM) |
repository.name.fl_str_mv |
Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM) |
repository.mail.fl_str_mv |
educacaoespecial@smail.ufsm.br||clenioberni@gmail.com |
_version_ |
1799944199519338496 |