Social support for caregivers of children with Down’s Syndrome

Detalhes bibliográficos
Autor(a) principal: Rezende, Luciana Krauss
Data de Publicação: 2014
Outros Autores: Assis, Silvana Maria Blascovi, Barca, Luiz Fernando
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista Educação Especial (UFSM)
Texto Completo: http://periodicos.ufsm.br/educacaoespecial/article/view/5928
Resumo: The objective of this study was to know the perception of social support for caregivers of children with Down’s syndrome (DS) in relation to the degree of satisfaction and the number of people to support in the southern region of the State of Minas Gerais and establish the relationship between them. This is a study of quantitative analysis, exploratory and descriptive character, and clinical type cross-section. The study population consisted of 50 people from both genres, mostly mothers (92), caregivers of children with DS, aged 6 months and 7 and a half years, regular goers of specialized agencies. To the group studied, the vast majority of responses indicating supportive people pointed out the lack of a reference person, being ticked the answer "no". Then appear the husband, son, parents, siblings, friends, wife and children's doctor. The analysis of the correlation between the number of supportive people and satisfaction with social support showed satisfaction among low and moderate denoting that these caregivers could not count on a network of efficient social support in caring for children with DS. It is considered appropriate to increase actions and governmental and non-governmental incentives for the development of professional teams and specialized institutions focused care, rehabilitation and inclusion of children with DS and their families into society. Families need appropriate support programs in order to foster their capabilities.
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spelling Social support for caregivers of children with Down’s SyndromeSuporte social de cuidadores de crianças com Síndrome de DownSocial supportCaregiversDown’s Syndrome.Suporte socialCuidadoresSíndrome de Down.The objective of this study was to know the perception of social support for caregivers of children with Down’s syndrome (DS) in relation to the degree of satisfaction and the number of people to support in the southern region of the State of Minas Gerais and establish the relationship between them. This is a study of quantitative analysis, exploratory and descriptive character, and clinical type cross-section. The study population consisted of 50 people from both genres, mostly mothers (92), caregivers of children with DS, aged 6 months and 7 and a half years, regular goers of specialized agencies. To the group studied, the vast majority of responses indicating supportive people pointed out the lack of a reference person, being ticked the answer "no". Then appear the husband, son, parents, siblings, friends, wife and children's doctor. The analysis of the correlation between the number of supportive people and satisfaction with social support showed satisfaction among low and moderate denoting that these caregivers could not count on a network of efficient social support in caring for children with DS. It is considered appropriate to increase actions and governmental and non-governmental incentives for the development of professional teams and specialized institutions focused care, rehabilitation and inclusion of children with DS and their families into society. Families need appropriate support programs in order to foster their capabilities. http://dx.doi.org/10.5902/1984686X5928 O objetivo desse estudo foi conhecer a percepção do suporte social de cuidadores de crianças com síndrome de Down (SD) em relação ao grau de satisfação e ao número de pessoas suportivas na região sul do estado de Minas Gerais e estabelecer a relação entre os mesmos. Este é um estudo, de análise quantitativa, de caráter clínico, exploratório e descritivo do tipo corte transversal. A população estudada foi composta por 50 pessoas de ambos os gêneros, em sua maioria as mães (92%), cuidadoras de crianças com SD, com idade entre 6 meses e 7 anos e meio, frequentadores regulares de instituições especializadas. Para o grupo estudado, a grande maioria das respostas indicativas de pessoas suportivas apontou a falta de uma pessoa de referência, sendo assinalada a resposta “ninguém”. Em seguida, aparecem o marido, filho, pais, irmãos, amigos, esposa e médico da criança. A análise da correlação entre o número de pessoas tidas como suportivas e a satisfação com o suporte social mostrou uma satisfação entre fraca e moderada denotando que esses cuidadores não puderam contar com uma rede de suporte social eficiente no cuidado dos filhos com SD. Considera-se pertinente o incremento de ações e incentivos governamentais e não-governamentais para o desenvolvimento de equipes profissionais e de instituições especializadas, voltadas ao atendimento, à reabilitação e a inclusão de crianças com SD e suas famílias na sociedade. As famílias precisam de programas de apoio apropriados para potencializarem ao máximo suas próprias capacidades. Palavras-chave: Suporte social; Cuidadores; Síndrome de Down Universidade Federal de Santa Maria2014-04-11info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttp://periodicos.ufsm.br/educacaoespecial/article/view/592810.5902/1984686X5928Special Education Magazine; Revista Educação Especial, v. 27, n. 48, jan./abr. 2014; 111-126Revista de Educación Especial; Revista Educação Especial, v. 27, n. 48, jan./abr. 2014; 111-126Revista Educação Especial; Revista Educação Especial, v. 27, n. 48, jan./abr. 2014; 111-1261984-686Xreponame:Revista Educação Especial (UFSM)instname:Universidade Federal de Santa Maria (UFSM)instacron:UFSMporhttp://periodicos.ufsm.br/educacaoespecial/article/view/5928/pdfRezende, Luciana KraussAssis, Silvana Maria BlascoviBarca, Luiz Fernandoinfo:eu-repo/semantics/openAccess2015-06-02T17:22:09Zoai:ojs.pkp.sfu.ca:article/5928Revistahttps://periodicos.ufsm.br/educacaoespecialPUBhttp://cascavel.ufsm.br/revistas/ojs-2.2.2/index.php/educacaoespecial/oaieducacaoespecial@smail.ufsm.br||clenioberni@gmail.com1984-686X1808-270Xopendoar:2015-06-02T17:22:09Revista Educação Especial (UFSM) - Universidade Federal de Santa Maria (UFSM)false
dc.title.none.fl_str_mv Social support for caregivers of children with Down’s Syndrome
Suporte social de cuidadores de crianças com Síndrome de Down
title Social support for caregivers of children with Down’s Syndrome
spellingShingle Social support for caregivers of children with Down’s Syndrome
Rezende, Luciana Krauss
Social support
Caregivers
Down’s Syndrome.
Suporte social
Cuidadores
Síndrome de Down.
title_short Social support for caregivers of children with Down’s Syndrome
title_full Social support for caregivers of children with Down’s Syndrome
title_fullStr Social support for caregivers of children with Down’s Syndrome
title_full_unstemmed Social support for caregivers of children with Down’s Syndrome
title_sort Social support for caregivers of children with Down’s Syndrome
author Rezende, Luciana Krauss
author_facet Rezende, Luciana Krauss
Assis, Silvana Maria Blascovi
Barca, Luiz Fernando
author_role author
author2 Assis, Silvana Maria Blascovi
Barca, Luiz Fernando
author2_role author
author
dc.contributor.author.fl_str_mv Rezende, Luciana Krauss
Assis, Silvana Maria Blascovi
Barca, Luiz Fernando
dc.subject.por.fl_str_mv Social support
Caregivers
Down’s Syndrome.
Suporte social
Cuidadores
Síndrome de Down.
topic Social support
Caregivers
Down’s Syndrome.
Suporte social
Cuidadores
Síndrome de Down.
description The objective of this study was to know the perception of social support for caregivers of children with Down’s syndrome (DS) in relation to the degree of satisfaction and the number of people to support in the southern region of the State of Minas Gerais and establish the relationship between them. This is a study of quantitative analysis, exploratory and descriptive character, and clinical type cross-section. The study population consisted of 50 people from both genres, mostly mothers (92), caregivers of children with DS, aged 6 months and 7 and a half years, regular goers of specialized agencies. To the group studied, the vast majority of responses indicating supportive people pointed out the lack of a reference person, being ticked the answer "no". Then appear the husband, son, parents, siblings, friends, wife and children's doctor. The analysis of the correlation between the number of supportive people and satisfaction with social support showed satisfaction among low and moderate denoting that these caregivers could not count on a network of efficient social support in caring for children with DS. It is considered appropriate to increase actions and governmental and non-governmental incentives for the development of professional teams and specialized institutions focused care, rehabilitation and inclusion of children with DS and their families into society. Families need appropriate support programs in order to foster their capabilities.
publishDate 2014
dc.date.none.fl_str_mv 2014-04-11
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://periodicos.ufsm.br/educacaoespecial/article/view/5928
10.5902/1984686X5928
url http://periodicos.ufsm.br/educacaoespecial/article/view/5928
identifier_str_mv 10.5902/1984686X5928
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv http://periodicos.ufsm.br/educacaoespecial/article/view/5928/pdf
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Universidade Federal de Santa Maria
publisher.none.fl_str_mv Universidade Federal de Santa Maria
dc.source.none.fl_str_mv Special Education Magazine; Revista Educação Especial, v. 27, n. 48, jan./abr. 2014; 111-126
Revista de Educación Especial; Revista Educação Especial, v. 27, n. 48, jan./abr. 2014; 111-126
Revista Educação Especial; Revista Educação Especial, v. 27, n. 48, jan./abr. 2014; 111-126
1984-686X
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reponame_str Revista Educação Especial (UFSM)
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