Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil
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Data de Publicação: | 2020 |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Cadernos Ibero-Americanos de Direito Sanitário (Online) |
Texto Completo: | https://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/702 |
Resumo: | Objective: to discuss the bioethical implications from the announcement of Digital Health by the World Health Organization and the use of big data in the production of predictive health surveillance systems in Brazil. Methods: conducted a narrative review based on the search for articles on Scielo, Bireme, Jstor platforms and at the World Health Organization and the Ministry of Health of Brazil webpages, with the keywords big data, bioethics and ethics, from May to July 2020. Results: limits were evidenced in the use of big data as an epidemiological forecasting surveillance tool, notably with its use during the Covid-19 pandemic, although justified by the Bioethics of Protection Theory and Public Health Ethics. The greatest limits observed were the absence of adequate data protection legislation and bias in the data obtained. Conclusion: in order to analyze the bioethical impacts of the use of big data in the medicine of the future, it is essential to deepen the discussion on the possible impacts that the use of these technologies can have on life in society, with an emphasis on the development of surveillance capitalism, on interference in life and the intensification of regional inequalities. |
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Reflections on the use of big data in predictive models for epidemiological surveillance in BrazilReflexiones sobre el uso de macrodatos en modelos predictivos de vigilancia epidemiológica en BrasilReflexões sobre o uso do big data em modelos preditivos de vigilância epidemiológica no BrasilBioethicsBig dataPublic health surveillanceEthicsBioéticaMacrodatosVigilancia de salud públicaPrincipio moralBioéticaBig dataVigilância em saúde públicaÉticaObjective: to discuss the bioethical implications from the announcement of Digital Health by the World Health Organization and the use of big data in the production of predictive health surveillance systems in Brazil. Methods: conducted a narrative review based on the search for articles on Scielo, Bireme, Jstor platforms and at the World Health Organization and the Ministry of Health of Brazil webpages, with the keywords big data, bioethics and ethics, from May to July 2020. Results: limits were evidenced in the use of big data as an epidemiological forecasting surveillance tool, notably with its use during the Covid-19 pandemic, although justified by the Bioethics of Protection Theory and Public Health Ethics. The greatest limits observed were the absence of adequate data protection legislation and bias in the data obtained. Conclusion: in order to analyze the bioethical impacts of the use of big data in the medicine of the future, it is essential to deepen the discussion on the possible impacts that the use of these technologies can have on life in society, with an emphasis on the development of surveillance capitalism, on interference in life and the intensification of regional inequalities.Objetivo: discutir las implicaciones bioéticas del anuncio de la Salud Digital por la Organización Mundial de la Salud y el uso de macrodatos en la producción de sistemas de vigilancia predictiva de salud en Brasil. Metodología: se realizó una revisión narrativa a partir de la búsqueda de artículos en las plataformas Scielo, Bireme, Jstor y en la página de la Organización Mundial de la Salud y el Ministerio de Salud de Brasil, con las palabras clave macrodatos, bioética y ética, de mayo a julio, 2020. Resultados: se evidenciaron límites en el uso de macrodatos como herramienta de vigilancia epidemiológica predictiva, destacando su uso durante la pandemia Covid-19, aunque justificado a partir de la teoría de la Bioética de Protección y la Ética en Salud Pública. Los mayores límites observados fueron la ausencia de una legislación de protección de datos adecuada y el sesgo en los datos obtenidos. Conclusión: para analizar los impactos bioéticos del uso de macrodatos en la medicina del futuro, es fundamental profundizar la discusión sobre los posibles impactos que el uso de estas tecnologías puede tener en la vida en sociedad, con énfasis en el desarrollo del capitalismo de vigilancia, en la interferencia en la vida y la intensificación de las desigualdades regionales.Objetivo: discutir as implicações bioéticas a partir do anúncio da Saúde Digital por parte da Organização Mundial da Saúde e do uso do big data na produção de sistemas preditivos de vigilância em saúde no Brasil. Metodologia: realizou-se revisão narrativa a partir da busca de artigos nas plataformas Scielo, Bireme, Jstor e na página da Organização Mundial da Saúde e do Ministério da Saúde do Brasil, com os descritores big data, bioética e ética, de maio a julho de 2020. Resultados: foram evidenciados limites no uso do big data como ferramenta de vigilância epidemiológica preditiva, notadamente com o seu uso durante a pandemia de Covid-19, apesar de justificável a partir da teoria da bioética da proteção e da ética da saúde pública. Os maiores limites observados foram ausência de legislação de proteção de dados adequada e viés dos dados obtidos. Conclusão: para análise dos impactos bioéticos do uso do big data na medicina do futuro é imprescindível aprofundar a discussão sobre os possíveis impactos que o uso dessas tecnologias pode gerar na vida em sociedade, com ênfase no desenvolvimento do capitalismo de vigilância, na interferência na vida social e no acirramento das desigualdades regionais. Fundação Oswaldo Cruz Brasília2020-09-29info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/70210.17566/ciads.v9i3.702Iberoamerican Journal of Health Law; Vol. 9 No. 3 (2020): (JUL./SEPT. 2020); 153-165Cuadernos Iberoamericanos de Derecho Sanitario; Vol. 9 Núm. 3 (2020): (JUL./SEPT. 2020); 153-165Cadernos Ibero-Americanos de Direito Sanitário; v. 9 n. 3 (2020): (JUL./SET. 2020); 153-1652358-18242317-839610.17566/ciads.v9i3reponame:Cadernos Ibero-Americanos de Direito Sanitário (Online)instname:Fundação Oswaldo Cruz (FIOCRUZ)instacron:FIOCRUZporhttps://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/702/765https://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/702/1002Copyright (c) 2020 Rui Massato Harayamahttps://creativecommons.org/licenses/by-nc/4.0info:eu-repo/semantics/openAccessMassato Harayama, RuiMassato Harayama, RuiMassato Harayama, Rui2023-06-20T22:21:17Zoai:ojs.cadernos.prodisa.fiocruz.br:article/702Revistahttp://www.cadernos.prodisa.fiocruz.brPUBhttp://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/oaicadernos.direitosanitario@fiocruz.br2358-18242317-8396opendoar:2023-06-20T22:21:17Cadernos Ibero-Americanos de Direito Sanitário (Online) - Fundação Oswaldo Cruz (FIOCRUZ)false |
dc.title.none.fl_str_mv |
Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil Reflexiones sobre el uso de macrodatos en modelos predictivos de vigilancia epidemiológica en Brasil Reflexões sobre o uso do big data em modelos preditivos de vigilância epidemiológica no Brasil |
title |
Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil |
spellingShingle |
Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil Massato Harayama, Rui Bioethics Big data Public health surveillance Ethics Bioética Macrodatos Vigilancia de salud pública Principio moral Bioética Big data Vigilância em saúde pública Ética |
title_short |
Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil |
title_full |
Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil |
title_fullStr |
Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil |
title_full_unstemmed |
Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil |
title_sort |
Reflections on the use of big data in predictive models for epidemiological surveillance in Brazil |
author |
Massato Harayama, Rui |
author_facet |
Massato Harayama, Rui |
author_role |
author |
dc.contributor.author.fl_str_mv |
Massato Harayama, Rui Massato Harayama, Rui Massato Harayama, Rui |
dc.subject.por.fl_str_mv |
Bioethics Big data Public health surveillance Ethics Bioética Macrodatos Vigilancia de salud pública Principio moral Bioética Big data Vigilância em saúde pública Ética |
topic |
Bioethics Big data Public health surveillance Ethics Bioética Macrodatos Vigilancia de salud pública Principio moral Bioética Big data Vigilância em saúde pública Ética |
description |
Objective: to discuss the bioethical implications from the announcement of Digital Health by the World Health Organization and the use of big data in the production of predictive health surveillance systems in Brazil. Methods: conducted a narrative review based on the search for articles on Scielo, Bireme, Jstor platforms and at the World Health Organization and the Ministry of Health of Brazil webpages, with the keywords big data, bioethics and ethics, from May to July 2020. Results: limits were evidenced in the use of big data as an epidemiological forecasting surveillance tool, notably with its use during the Covid-19 pandemic, although justified by the Bioethics of Protection Theory and Public Health Ethics. The greatest limits observed were the absence of adequate data protection legislation and bias in the data obtained. Conclusion: in order to analyze the bioethical impacts of the use of big data in the medicine of the future, it is essential to deepen the discussion on the possible impacts that the use of these technologies can have on life in society, with an emphasis on the development of surveillance capitalism, on interference in life and the intensification of regional inequalities. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020-09-29 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/702 10.17566/ciads.v9i3.702 |
url |
https://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/702 |
identifier_str_mv |
10.17566/ciads.v9i3.702 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/702/765 https://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/702/1002 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2020 Rui Massato Harayama https://creativecommons.org/licenses/by-nc/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2020 Rui Massato Harayama https://creativecommons.org/licenses/by-nc/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Fundação Oswaldo Cruz Brasília |
publisher.none.fl_str_mv |
Fundação Oswaldo Cruz Brasília |
dc.source.none.fl_str_mv |
Iberoamerican Journal of Health Law; Vol. 9 No. 3 (2020): (JUL./SEPT. 2020); 153-165 Cuadernos Iberoamericanos de Derecho Sanitario; Vol. 9 Núm. 3 (2020): (JUL./SEPT. 2020); 153-165 Cadernos Ibero-Americanos de Direito Sanitário; v. 9 n. 3 (2020): (JUL./SET. 2020); 153-165 2358-1824 2317-8396 10.17566/ciads.v9i3 reponame:Cadernos Ibero-Americanos de Direito Sanitário (Online) instname:Fundação Oswaldo Cruz (FIOCRUZ) instacron:FIOCRUZ |
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Fundação Oswaldo Cruz (FIOCRUZ) |
instacron_str |
FIOCRUZ |
institution |
FIOCRUZ |
reponame_str |
Cadernos Ibero-Americanos de Direito Sanitário (Online) |
collection |
Cadernos Ibero-Americanos de Direito Sanitário (Online) |
repository.name.fl_str_mv |
Cadernos Ibero-Americanos de Direito Sanitário (Online) - Fundação Oswaldo Cruz (FIOCRUZ) |
repository.mail.fl_str_mv |
cadernos.direitosanitario@fiocruz.br |
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1798942495693864960 |