Is information on social rights accessible to cancer patients?

Detalhes bibliográficos
Autor(a) principal: Guedim Batista, Fernanda
Data de Publicação: 2023
Outros Autores: Salem Szklo, André
Tipo de documento: Artigo
Idioma: por
Título da fonte: Cadernos de Saúde Pública
Texto Completo: https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/8377
Resumo: Brazilian legislation provides for rights for cancer patients in order to assist with their treatment and mitigate the expenses they face during their illness. This study aimed to calculate the proportion of individuals undergoing cancer treatment at a Brazilian Unified National Health System (SUS) referral center who reported being aware of 15 specific legal rights, according to the population subgroup eligible to request each right. All adult cancer patients starting treatment at the Juiz de Fora Women’s Association for Preventing and Fighting Cancer Hospital (ASCOMCER), Minas Gerais State, from March to July 2022, were interviewed (n = 62). About 60% of these patients had incomplete primary education or were illiterate, around 75% lived in households with a per capita income below one minimum wage, and 91.9% received treatment from the SUS. For nine of the 15 selected rights, the proportion of eligible patients was higher than 10%, ranging from 17.7% for “Withdrawal from the Severance Pay Fund (FGTS)” to 100% for “priority in the processing of procedures”. However, the only one of these rights known to at least 50% of eligible patients was “sickness benefit” (70.6%). The respective proportions were below 5% in three rights, including “exemption from property tax”, “exemption from income tax on retirement, pension, and retirement”, and “priority in the processing of cases”. Cancer patients need to have their comprehensive care strengthened. Therefore, it is crucial to enhance the availability of information regarding the benefits cancer patients may receive from a democratic state that respects the rule of law.
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spelling Is information on social rights accessible to cancer patients?As informações sobre os direitos sociais estão acessíveis aos pacientes oncológicos?As informações sobre os direitos sociais estão acessíveis aos pacientes oncológicos?Direitos Socioeconômicos; Processo Saúde-Doença; Legislação Médica; Sistema Único de SaúdeDerechos Socioeconómicos; Proceso Salud-Enfermedad; Legislación Médica; Sistema Único de SaludSocioeconomic Rights; Health-Disease Process; Medical Legislation; Unified Health SystemBrazilian legislation provides for rights for cancer patients in order to assist with their treatment and mitigate the expenses they face during their illness. This study aimed to calculate the proportion of individuals undergoing cancer treatment at a Brazilian Unified National Health System (SUS) referral center who reported being aware of 15 specific legal rights, according to the population subgroup eligible to request each right. All adult cancer patients starting treatment at the Juiz de Fora Women’s Association for Preventing and Fighting Cancer Hospital (ASCOMCER), Minas Gerais State, from March to July 2022, were interviewed (n = 62). About 60% of these patients had incomplete primary education or were illiterate, around 75% lived in households with a per capita income below one minimum wage, and 91.9% received treatment from the SUS. For nine of the 15 selected rights, the proportion of eligible patients was higher than 10%, ranging from 17.7% for “Withdrawal from the Severance Pay Fund (FGTS)” to 100% for “priority in the processing of procedures”. However, the only one of these rights known to at least 50% of eligible patients was “sickness benefit” (70.6%). The respective proportions were below 5% in three rights, including “exemption from property tax”, “exemption from income tax on retirement, pension, and retirement”, and “priority in the processing of cases”. Cancer patients need to have their comprehensive care strengthened. Therefore, it is crucial to enhance the availability of information regarding the benefits cancer patients may receive from a democratic state that respects the rule of law.La legislación brasileña garantiza a los pacientes con cáncer derechos que les ayudan en el tratamiento y mitigan los gastos que tienen a lo largo de la enfermedad. El objetivo de este estudio fue calcular la proporción de individuos sometidos al tratamiento oncológico en un centro de referencia del Sistema Único de Salud (SUS) brasileño que informaron conocer 15 derechos específicos previstos por la ley, según el subgrupo de población elegible para solicitar cada derecho. Se entrevistó a todos los pacientes adultos con cáncer que comenzaron el tratamiento en el Hospital Asociación de Mujeres para la Prevención y Lucha contra el Cáncer de Juiz de Fora (ASCOMCER), Minas Gerais, entre marzo y julio de 2022 (n = 62). Cerca del 60% de estos pacientes eran analfabetos o no habían completado la escuela primaria, aproximadamente el 75% vivía en hogares con ingreso per cápita de un salario mínimo y el 91,9% eran tratados por el SUS. Para 9 de los 15 derechos seleccionados, la proporción de pacientes elegibles para ellos fue superior al 10%, oscilando del 17,7% para el “retirada del Fondo de Garantía por Duración del Servicio” al 100% para “prioridad en la tramitación de procedimientos”. Sin embargo, de estos derechos el único conociodo por al menos el 50% de los pacientes elegibles conocía fue el “beneficio por enfermedad” (70,6%), y en 3 derechos las proporciones respectivas no alcanzaron ni siquiera el 5% (“exención del impuesto sobre bienes inmuebles y territorial urbano”, “exención del impuesto sobre la renta por jubilación, pensión y retiro” y “prioridad en la tramitación de procedimientos”). Los pacientes con cáncer requieren el fortalecimiento de una atención integral. Por lo tanto, es esencial incrementar el acceso a la información sobre los beneficios que los pacientes con cáncer pueden obtener de un Estado de derecho democrático.A legislação brasileira assegura aos pacientes com câncer direitos que auxiliam no tratamento e atenuam os gastos despendidos na jornada de adoecimento. O objetivo do estudo foi calcular a proporção de indivíduos em tratamento oncológico de um centro de referência do Sistema Único de Saúde (SUS) que referiram conhecer 15 direitos específicos previstos em lei, segundo o subgrupo populacional elegível para solicitar cada direito. Foram entrevistados todos os pacientes oncológicos adultos em início de tratamento no Hospital Associação Feminina de Prevenção e Combate ao Câncer de Juiz de Fora (ASCOMCER), Minas Gerais, entre março e julho de 2022 (n = 62). Cerca de 60% desses pacientes eram analfabetos ou não tinham completado o ensino fundamental, aproximadamente 75% viviam em domicílios em que a renda per capita era de no máximo um salário mínimo e 91,9% eram atendidos pelo SUS. Para nove dos 15 direitos selecionados, a proporção de pacientes elegíveis foi superior a 10%, variando de 17,7% para “saque do Fundo de Garantia por Tempo de Serviço (FGTS)” a 100% para “prioridade na tramitação de processos”. No entanto, o único desses direitos conhecido por pelo menos 50% dos pacientes elegíveis foi o “auxílio-doença” (70,6%), sendo que para três direitos as respectivas proporções não chegaram a 5% (isenção de imposto sobre propriedade predial e territorial urbana, isenção do imposto de renda na aposentadoria, pensão e reforma e prioridade na tramitação de processos). Os pacientes oncológicos necessitam ter seus cuidados integrais fortalecidos. Dessa forma, é fundamental aumentar o acesso à informação sobre os benefícios que eles podem obter de um Estado democrático de direito.Reports in Public HealthCadernos de Saúde Pública2023-09-20info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/xmlapplication/pdfhttps://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/8377Reports in Public Health; Vol. 39 No. 9 (2023): SeptemberCadernos de Saúde Pública; v. 39 n. 9 (2023): Setembro1678-44640102-311Xreponame:Cadernos de Saúde Públicainstname:Fundação Oswaldo Cruz (FIOCRUZ)instacron:FIOCRUZporhttps://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/8377/18696https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/8377/18697Copyright (c) 2023 Cadernos de Saúde Públicainfo:eu-repo/semantics/openAccessGuedim Batista, FernandaSalem Szklo, André2023-09-20T13:28:14Zoai:ojs.teste-cadernos.ensp.fiocruz.br:article/8377Revistahttps://cadernos.ensp.fiocruz.br/ojs/index.php/csphttps://cadernos.ensp.fiocruz.br/ojs/index.php/csp/oaicadernos@ensp.fiocruz.br||cadernos@ensp.fiocruz.br1678-44640102-311Xopendoar:2024-03-06T13:09:33.826912Cadernos de Saúde Pública - Fundação Oswaldo Cruz (FIOCRUZ)true
dc.title.none.fl_str_mv Is information on social rights accessible to cancer patients?
As informações sobre os direitos sociais estão acessíveis aos pacientes oncológicos?
As informações sobre os direitos sociais estão acessíveis aos pacientes oncológicos?
title Is information on social rights accessible to cancer patients?
spellingShingle Is information on social rights accessible to cancer patients?
Guedim Batista, Fernanda
Direitos Socioeconômicos; Processo Saúde-Doença; Legislação Médica; Sistema Único de Saúde
Derechos Socioeconómicos; Proceso Salud-Enfermedad; Legislación Médica; Sistema Único de Salud
Socioeconomic Rights; Health-Disease Process; Medical Legislation; Unified Health System
title_short Is information on social rights accessible to cancer patients?
title_full Is information on social rights accessible to cancer patients?
title_fullStr Is information on social rights accessible to cancer patients?
title_full_unstemmed Is information on social rights accessible to cancer patients?
title_sort Is information on social rights accessible to cancer patients?
author Guedim Batista, Fernanda
author_facet Guedim Batista, Fernanda
Salem Szklo, André
author_role author
author2 Salem Szklo, André
author2_role author
dc.contributor.author.fl_str_mv Guedim Batista, Fernanda
Salem Szklo, André
dc.subject.por.fl_str_mv Direitos Socioeconômicos; Processo Saúde-Doença; Legislação Médica; Sistema Único de Saúde
Derechos Socioeconómicos; Proceso Salud-Enfermedad; Legislación Médica; Sistema Único de Salud
Socioeconomic Rights; Health-Disease Process; Medical Legislation; Unified Health System
topic Direitos Socioeconômicos; Processo Saúde-Doença; Legislação Médica; Sistema Único de Saúde
Derechos Socioeconómicos; Proceso Salud-Enfermedad; Legislación Médica; Sistema Único de Salud
Socioeconomic Rights; Health-Disease Process; Medical Legislation; Unified Health System
description Brazilian legislation provides for rights for cancer patients in order to assist with their treatment and mitigate the expenses they face during their illness. This study aimed to calculate the proportion of individuals undergoing cancer treatment at a Brazilian Unified National Health System (SUS) referral center who reported being aware of 15 specific legal rights, according to the population subgroup eligible to request each right. All adult cancer patients starting treatment at the Juiz de Fora Women’s Association for Preventing and Fighting Cancer Hospital (ASCOMCER), Minas Gerais State, from March to July 2022, were interviewed (n = 62). About 60% of these patients had incomplete primary education or were illiterate, around 75% lived in households with a per capita income below one minimum wage, and 91.9% received treatment from the SUS. For nine of the 15 selected rights, the proportion of eligible patients was higher than 10%, ranging from 17.7% for “Withdrawal from the Severance Pay Fund (FGTS)” to 100% for “priority in the processing of procedures”. However, the only one of these rights known to at least 50% of eligible patients was “sickness benefit” (70.6%). The respective proportions were below 5% in three rights, including “exemption from property tax”, “exemption from income tax on retirement, pension, and retirement”, and “priority in the processing of cases”. Cancer patients need to have their comprehensive care strengthened. Therefore, it is crucial to enhance the availability of information regarding the benefits cancer patients may receive from a democratic state that respects the rule of law.
publishDate 2023
dc.date.none.fl_str_mv 2023-09-20
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
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url https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/8377
dc.language.iso.fl_str_mv por
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dc.relation.none.fl_str_mv https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/8377/18696
https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/8377/18697
dc.rights.driver.fl_str_mv Copyright (c) 2023 Cadernos de Saúde Pública
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2023 Cadernos de Saúde Pública
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv text/xml
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dc.publisher.none.fl_str_mv Reports in Public Health
Cadernos de Saúde Pública
publisher.none.fl_str_mv Reports in Public Health
Cadernos de Saúde Pública
dc.source.none.fl_str_mv Reports in Public Health; Vol. 39 No. 9 (2023): September
Cadernos de Saúde Pública; v. 39 n. 9 (2023): Setembro
1678-4464
0102-311X
reponame:Cadernos de Saúde Pública
instname:Fundação Oswaldo Cruz (FIOCRUZ)
instacron:FIOCRUZ
instname_str Fundação Oswaldo Cruz (FIOCRUZ)
instacron_str FIOCRUZ
institution FIOCRUZ
reponame_str Cadernos de Saúde Pública
collection Cadernos de Saúde Pública
repository.name.fl_str_mv Cadernos de Saúde Pública - Fundação Oswaldo Cruz (FIOCRUZ)
repository.mail.fl_str_mv cadernos@ensp.fiocruz.br||cadernos@ensp.fiocruz.br
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