Maternal experience in the care of the child with cerebral palsy: analysis based on Roy theory

• Autor(a) principal: Farias, Patrícia de
• Data de Publicação: 2018
• Outros Autores: Araújo Moreira, Andréa Carvalho, Bezerra, Ana Caroline Lira, Monteiro da Silva, Maria Adelane, Ximenes Neto, Francisco Rosemiro Guimarães
• Tipo de documento: Artigo
• Idioma: por
• Título da fonte: RECIIS (Online)
• Texto Completo: https://www.reciis.icict.fiocruz.br/index.php/reciis/article/view/1373
• topic: Cerebral palsy; Public policy; Nursing theory; Adaptation; Child care.; Parálisis cerebral; Políticas públicas; Teoría de enfermería; Adaptación; Cuidado del niño.; Paralisia cerebral; Políticas públicas; Teoria de enfermagem; Adaptação; Cuidado da criança.

This study aims to describe the experience of the mothers of children with cerebral palsy in the light of Roy adaptation model, and to identify significant stimuli and adaptive mechanisms to cope with the situation in care. It is a descriptive study with qualitative approach. The subjects were eight mothers of children with cerebral palsy, enrolled in the APAE – Associação de Pais e Amigos dos Excepcionais [Association of Parents and Friends of the People with Special Needs] of a municipality in Ceará, Brazil. The research took place from April to May 2014 and used to data collection a semi-structured interview and for analysis the method of thematic categorization. The Roy theory allowed to recognize that mothers can trigger positive or negative responses through stimuli related to the nursing diagnosis of the child illness: impact, feelings, intrafamily context involved in care, conflicts, confrontations. We had concluded that the nursing should aim for adaptive responses in her work, minimizing the ineffective responses so to obtain the improvement of the mother-child care and to strengthen the affective bond between both.