THERAPEUTIC ITINERARY AS A SEARCH FOR CARE TO THE PATIENT WITH SICKLE CELL DISEASE

• Autor(a) principal: Roman, Cassiela
• Data de Publicação: 2021
• Outros Autores: Campos, Marina da Silva, Bueno, Denise
• Tipo de documento: Artigo
• Idioma: por
• Título da fonte: Revista Baiana de Saúde Pública (Online)
• Texto Completo: https://rbsp.sesab.ba.gov.br/index.php/rbsp/article/view/2762
• topic: Assistência farmacêutica; Assistência à saúde; Doença falciforme; Medicamentos de uso contínuo; Trajetória clínica; Assistência Farmacêutica; Doença Falciforme; Itinerário Terapêutico; Servicios farmacéuticos; Prestación de atención de salud; Enfermedad falciforme; Medicamentos de uso contínuo; Vías clínicas; Pharmaceutical care; Delivery of health care; Sickle cell disease; Drugs of continuous use; Critical pathways

The way changes in work processes in the health area are made must be sensitive to the possible therapeutic itinerary of health users. In the case of patients with sickle cell disease (SCD), it is necessary to analyze the need for frequent consultations in referral centers and that the dispensation of medications post-consultation can impact adherence to treatment. The objective of this study was to describe the therapeutic itinerary of patients with SCD in the search for medications. A qualitative study, using a semi-structured interview, conducted with 12 participants (patients and caregivers) at Porto Alegre Clinical Hospital’s Reference Center for SCD located in Brazil’s southern region, between October and November 2017. Four main categories were identified: (1) Discovery of disease, (2) Search for medications, (3) Therapeutic itineraries and (4) Care line. It was observed that there is a lack of knowledge on the part of the interviewees about the changes made in the medicine withdrawal to treat the disease, making their therapeutic itineraries to be disorganized in the health system. Previously, the medications were withdrawn at the hospital referral center and are now being dispensed at state pharmacies in the patients’ hometown. The reported lack of knowledge shows that the pharmaceutical’s presence can approach the dispensation of medicine to the people with SCD reality that need a specialized look at health care.