Patients' perception of the search for a leprosy diagnosis and care in health care networks
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2023 |
| Outros Autores: | , , , |
| Tipo de documento: | Artigo |
| Idioma: | por eng |
| Título da fonte: | Hansenologia Internationalis (Online) |
| Texto Completo: | https://periodicos.saude.sp.gov.br/hansenologia/article/view/39333 |
Resumo: | The aim of the study was to evaluate patients' perception regarding care in healthcare networks, from the emergence of symptoms to the diagnosis of leprosy. This is a qualitative study with 15 patients with leprosy managed ina referral center in the state of Piauí. Data collection occurred from August to September 2022, with the use of a 3-block semi-structured interview guide: 1) sociodemographic and economic profile; 2) clinical data; and 3) semi-structured questions about the therapeutic itinerary taken for diagnosis and treatment. Included were leprosy patients aged undergoing treatment aged 18 years or above. Excluded were patients who failed to answer questions that were essential to meet study objectives or who barely touched upon the subject. There was a predominance of female, married patients, self-declared as brown (parda), at a mean age of 58 years, with complete elementary school education that earned less than minimum wage and lived in Teresina, with the multibacillary form of disease. After content analysis, three thematic categories emerged: 1) difficulty in self-recognizing the clinical manifestations of leprosy; 2) therapeutic route of the leprosy user in the healthcare network; and 3) perception of leprosy patients about treatment provided by healthcare professionals. The patients' perception allows us to conclude that the search for diagnosis and health care was a long and conflicting process until they reached Primary Care. |
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Patients' perception of the search for a leprosy diagnosis and care in health care networksPercepción de los pacientes sobre la búsqueda de un diagnóstico y atención de la lepra en las redes de atención de saludPercepção dos pacientes sobre a busca pelo diagnóstico da hanseníase e o atendimento nas Redes de Atenção à SaúdeHanseníaseDiagnósticoAtenção à saúdePoliquimoterapiaLeprosyDiagnosisHealth careMultidrug therapyLepraDiagnósticoAtención a la SaludPoliquimioterapiaThe aim of the study was to evaluate patients' perception regarding care in healthcare networks, from the emergence of symptoms to the diagnosis of leprosy. This is a qualitative study with 15 patients with leprosy managed ina referral center in the state of Piauí. Data collection occurred from August to September 2022, with the use of a 3-block semi-structured interview guide: 1) sociodemographic and economic profile; 2) clinical data; and 3) semi-structured questions about the therapeutic itinerary taken for diagnosis and treatment. Included were leprosy patients aged undergoing treatment aged 18 years or above. Excluded were patients who failed to answer questions that were essential to meet study objectives or who barely touched upon the subject. There was a predominance of female, married patients, self-declared as brown (parda), at a mean age of 58 years, with complete elementary school education that earned less than minimum wage and lived in Teresina, with the multibacillary form of disease. After content analysis, three thematic categories emerged: 1) difficulty in self-recognizing the clinical manifestations of leprosy; 2) therapeutic route of the leprosy user in the healthcare network; and 3) perception of leprosy patients about treatment provided by healthcare professionals. The patients' perception allows us to conclude that the search for diagnosis and health care was a long and conflicting process until they reached Primary Care.El objetivo del estudio fue evaluar la percepción de los pacientes sobre la atención en las redes de redes de atención sanitaria, desde el inicio de los síntomas hasta el diagnóstico de lepra. Se trata de un estudio cualitativo con 15 pacientes con lepra atendidos en un centro de referencia del estado de Piauí. Los datos se recogieron entre agosto y septiembre de 2022, mediante un guión de entrevista semi-estruturada con tres bloques: 1) perfil sociodemográfico y económico; 2) datos clínicos; y 3) preguntas semidirigidas relacionadas con el itinerario terapéutico de diagnóstico y tratamiento. Se incluyeron pacientes con lepra en tratamiento y mayores de 18 años. Se excluyeron aquellos que no respondieron a preguntas esenciales para los objetivos del estudio, o que salieron del tema en este sentido. La mayoría de los pacientes eran mujeres, casadas, con edad media de 58 años, enseñanza primaria completa, ingresos inferiores a un salario mínimo, autodeclaradas pardas, residentes en Teresina y con la forma multibacilar de la enfermedad. Después de análisar el contenido, surgieron tres categorías temáticas: 1) dificultades en el auto-reconocimiento de las manifestaciones clínicas de la lepra; 2) el itinerario terapéutico de los pacientes con lepra en la red de atención sanitaria; y 3) la percepción de los pacientes con lepra sobre la atención prestada por los profesionales de la salud. Las percepciones de los pacientes nos levam a concluir que la búsqueda de diagnóstico y atención sanitaria fue un proceso largo y conflictivo hasta que fueron atendidos en Atención Primaria. O objetivo do estudo foi avaliar a percepção dos pacientes quanto ao atendimento nas Redes de Atenção à Saúde, desde o surgimento dos sintomas até o diagnóstico de hanseníase. Trata-se de um estudo qualitativo com 15 pacientes com hanseníase atendidos em um centro de referência no estado do Piauí. A coleta de dados foi realizada entre agosto e setembro de 2022, com o uso de um roteiro de entrevista semiestruturado de três blocos: 1) perfil sociodemográfico e econômico; 2) dados clínicos; e 3) questões semidirigidas relacionadas ao itinerário terapêutico para o diagnóstico e tratamento. Foram incluídos pacientes com hanseníase em tratamento e idade superior a 18 anos. Excluiu-se aqueles que não responderam questionamentos essenciais para os objetivos do estudo ou tangenciaram o tema nesse sentido. Predominaram pacientes mulheres, casadas, com média de idade de 58 anos, ensino fundamental completo, que recebiam menos de um salário mínimo, autodeclaradas como pardas, residentes em Teresina e com a forma multibacilar da doença. Após a análise de conteúdo, emergiram três categorias temáticas: 1) dificuldades no autorreconhecimento das manifestações clínicas da hanseníase; 2) itinerário terapêutico do usuário com hanseníase na rede de atenção à saúde; e 3) percepção dos pacientes com hanseníase sobre o atendimento dos profissionais de saúde. A percepção dos pacientes permite concluir que a busca pelo diagnóstico e o atendimento em saúde foi um processo longo e conflituoso até que estes chegassem a ser atendidos na Atenção Primária.Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo2023-11-28info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionAvaliado pelos paresapplication/pdfapplication/pdfhttps://periodicos.saude.sp.gov.br/hansenologia/article/view/3933310.47878/hi.2023.v48.39333Hansenologia Internationalis: leprosy and other infectious diseases; Vol. 48 (2023); 1-20Hansenologia Internationalis: hanseníase e outras doenças infecciosas; v. 48 (2023); 1-201982-5161reponame:Hansenologia Internationalis (Online)instname:Instituto Lauro de Souza Lima (ILSL)instacron:ILSLporenghttps://periodicos.saude.sp.gov.br/hansenologia/article/view/39333/37775https://periodicos.saude.sp.gov.br/hansenologia/article/view/39333/37971Copyright (c) 2023 Juliana do Nascimento Sousa, Rafael Everton Assunção Ribeiro da Costa, Samira Rêgo Martins de Deus Leal, Arethuza de Melo Brito Carvalho, Sandra Marina Gonçalves Bezerrahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessSousa, Juliana do NascimentoCosta, Rafael Everton Assunção Ribeiro daLeal, Samira Rêgo Martins de DeusCarvalho, Arethuza de Melo BritoBezerra, Sandra Marina Gonçalves2024-03-28T15:26:40Zoai:ojs.periodicos.saude.sp.gov.br:article/39333Revistahttps://periodicos.saude.sp.gov.br/hansenologiaPRIhttps://periodicos.saude.sp.gov.br/hansenologia/oaihansen_int@ilsl.br || hansenologia.internationalis@gmail.com || periodicossp@saude.sp.gov.br1982-51610100-3283opendoar:2024-03-28T15:26:40Hansenologia Internationalis (Online) - Instituto Lauro de Souza Lima (ILSL)false |
| dc.title.none.fl_str_mv |
Patients' perception of the search for a leprosy diagnosis and care in health care networks Percepción de los pacientes sobre la búsqueda de un diagnóstico y atención de la lepra en las redes de atención de salud Percepção dos pacientes sobre a busca pelo diagnóstico da hanseníase e o atendimento nas Redes de Atenção à Saúde |
| title |
Patients' perception of the search for a leprosy diagnosis and care in health care networks |
| spellingShingle |
Patients' perception of the search for a leprosy diagnosis and care in health care networks Sousa, Juliana do Nascimento Hanseníase Diagnóstico Atenção à saúde Poliquimoterapia Leprosy Diagnosis Health care Multidrug therapy Lepra Diagnóstico Atención a la Salud Poliquimioterapia |
| title_short |
Patients' perception of the search for a leprosy diagnosis and care in health care networks |
| title_full |
Patients' perception of the search for a leprosy diagnosis and care in health care networks |
| title_fullStr |
Patients' perception of the search for a leprosy diagnosis and care in health care networks |
| title_full_unstemmed |
Patients' perception of the search for a leprosy diagnosis and care in health care networks |
| title_sort |
Patients' perception of the search for a leprosy diagnosis and care in health care networks |
| author |
Sousa, Juliana do Nascimento |
| author_facet |
Sousa, Juliana do Nascimento Costa, Rafael Everton Assunção Ribeiro da Leal, Samira Rêgo Martins de Deus Carvalho, Arethuza de Melo Brito Bezerra, Sandra Marina Gonçalves |
| author_role |
author |
| author2 |
Costa, Rafael Everton Assunção Ribeiro da Leal, Samira Rêgo Martins de Deus Carvalho, Arethuza de Melo Brito Bezerra, Sandra Marina Gonçalves |
| author2_role |
author author author author |
| dc.contributor.author.fl_str_mv |
Sousa, Juliana do Nascimento Costa, Rafael Everton Assunção Ribeiro da Leal, Samira Rêgo Martins de Deus Carvalho, Arethuza de Melo Brito Bezerra, Sandra Marina Gonçalves |
| dc.subject.por.fl_str_mv |
Hanseníase Diagnóstico Atenção à saúde Poliquimoterapia Leprosy Diagnosis Health care Multidrug therapy Lepra Diagnóstico Atención a la Salud Poliquimioterapia |
| topic |
Hanseníase Diagnóstico Atenção à saúde Poliquimoterapia Leprosy Diagnosis Health care Multidrug therapy Lepra Diagnóstico Atención a la Salud Poliquimioterapia |
| description |
The aim of the study was to evaluate patients' perception regarding care in healthcare networks, from the emergence of symptoms to the diagnosis of leprosy. This is a qualitative study with 15 patients with leprosy managed ina referral center in the state of Piauí. Data collection occurred from August to September 2022, with the use of a 3-block semi-structured interview guide: 1) sociodemographic and economic profile; 2) clinical data; and 3) semi-structured questions about the therapeutic itinerary taken for diagnosis and treatment. Included were leprosy patients aged undergoing treatment aged 18 years or above. Excluded were patients who failed to answer questions that were essential to meet study objectives or who barely touched upon the subject. There was a predominance of female, married patients, self-declared as brown (parda), at a mean age of 58 years, with complete elementary school education that earned less than minimum wage and lived in Teresina, with the multibacillary form of disease. After content analysis, three thematic categories emerged: 1) difficulty in self-recognizing the clinical manifestations of leprosy; 2) therapeutic route of the leprosy user in the healthcare network; and 3) perception of leprosy patients about treatment provided by healthcare professionals. The patients' perception allows us to conclude that the search for diagnosis and health care was a long and conflicting process until they reached Primary Care. |
| publishDate |
2023 |
| dc.date.none.fl_str_mv |
2023-11-28 |
| dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Avaliado pelos pares |
| format |
article |
| status_str |
publishedVersion |
| dc.identifier.uri.fl_str_mv |
https://periodicos.saude.sp.gov.br/hansenologia/article/view/39333 10.47878/hi.2023.v48.39333 |
| url |
https://periodicos.saude.sp.gov.br/hansenologia/article/view/39333 |
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10.47878/hi.2023.v48.39333 |
| dc.language.iso.fl_str_mv |
por eng |
| language |
por eng |
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https://periodicos.saude.sp.gov.br/hansenologia/article/view/39333/37775 https://periodicos.saude.sp.gov.br/hansenologia/article/view/39333/37971 |
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https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
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https://creativecommons.org/licenses/by/4.0 |
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openAccess |
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application/pdf application/pdf |
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Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo |
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Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo |
| dc.source.none.fl_str_mv |
Hansenologia Internationalis: leprosy and other infectious diseases; Vol. 48 (2023); 1-20 Hansenologia Internationalis: hanseníase e outras doenças infecciosas; v. 48 (2023); 1-20 1982-5161 reponame:Hansenologia Internationalis (Online) instname:Instituto Lauro de Souza Lima (ILSL) instacron:ILSL |
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Instituto Lauro de Souza Lima (ILSL) |
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ILSL |
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ILSL |
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Hansenologia Internationalis (Online) |
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Hansenologia Internationalis (Online) |
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Hansenologia Internationalis (Online) - Instituto Lauro de Souza Lima (ILSL) |
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hansen_int@ilsl.br || hansenologia.internationalis@gmail.com || periodicossp@saude.sp.gov.br |
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