The history life and work of people with leprosy users of the Health Service in the State of São Paulo
Autor(a) principal: | |
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Data de Publicação: | 2008 |
Outros Autores: | , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Hansenologia Internationalis (Online) |
Texto Completo: | https://periodicos.saude.sp.gov.br/hansenologia/article/view/35171 |
Resumo: | This work began with a pilot project for professional empowerment or semi-professionalizing courses developed between 2001 and 2002, with eleven users of the health services of the State of São Paulo. These users were people with leprosy and his contacts. After the subject’s selection, a qualitative research was performed during which the researchers tried to rescue the life history and the working status of those users, seeking to establish the changes occurred after the leprosy diagnosis, specially at work. The used tools were a form and the topic life history. The data analysis showed following categories: life quality; perceptions and representations about the disease; social condition changes due to the diagnosis; leprosy and working relations; and leprosy and the health system. Among other aspects, it was noted that: the users think that lying or omitting the disease is necessary in order to get or to keep a job, since prejudice, discrimination and isolation resulting fromthe stigma still exist; also noted was the great benefit the subjects had when they enhanced their self-esteem thanks to the provided empowerment course. On the other side, the reports showed that most professionals of the health area are still unprepared to identify and diagnose leprosy patients. The suggested proposals are: to intensify the clarification campaigns for the population; to make a research in order to understand the user’s route to the health unit and the leprosy diagnosis; the continued education of the health system’s professionals; to intensify the training during the regular courses and post-doctoral courses of the future health professionals about how to suspect, diagnose and treat leprosy; and to outreach the empowerment courses to other units in the State of São Paulo. |
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The history life and work of people with leprosy users of the Health Service in the State of São PauloHistória de vida e trabalho de pessoas atingidas pela hanseníase em serviços de saúde do estado de São Paulohanseníaseserviços de saúdesituação de trabalhoqualidade de vidhealth servicesworking statuslife qualityThis work began with a pilot project for professional empowerment or semi-professionalizing courses developed between 2001 and 2002, with eleven users of the health services of the State of São Paulo. These users were people with leprosy and his contacts. After the subject’s selection, a qualitative research was performed during which the researchers tried to rescue the life history and the working status of those users, seeking to establish the changes occurred after the leprosy diagnosis, specially at work. The used tools were a form and the topic life history. The data analysis showed following categories: life quality; perceptions and representations about the disease; social condition changes due to the diagnosis; leprosy and working relations; and leprosy and the health system. Among other aspects, it was noted that: the users think that lying or omitting the disease is necessary in order to get or to keep a job, since prejudice, discrimination and isolation resulting fromthe stigma still exist; also noted was the great benefit the subjects had when they enhanced their self-esteem thanks to the provided empowerment course. On the other side, the reports showed that most professionals of the health area are still unprepared to identify and diagnose leprosy patients. The suggested proposals are: to intensify the clarification campaigns for the population; to make a research in order to understand the user’s route to the health unit and the leprosy diagnosis; the continued education of the health system’s professionals; to intensify the training during the regular courses and post-doctoral courses of the future health professionals about how to suspect, diagnose and treat leprosy; and to outreach the empowerment courses to other units in the State of São Paulo.Trabalho originado de um projeto piloto de capacitação profissional ou semi-profissionalizante desenvolvido nos anos de 2001 e 2002 com onze usuários de serviços de saúde do Estado de São Paulo: pessoas atingidas pela hanseníase e comunicantes. No processo de seleção dos sujeitos realizou-se uma pesquisa qualitativa para verificar as alterações ocorridas na situação de trabalho após o diagnóstico de hanseníase. Como instrumentos foram utilizados um formulário e a história de vida tópica. A análise dos dados apontou as categorias: qualidade de vida; percepções e representações sobre a doença; situação social desencadeada a partir do diagnóstico; hanseníase e relação de trabalho; hanseníase e sistema de saúde. Resultados apontam: que a mentira e a omissão da doença são percebidas como necessárias à obtenção e/ou manutenção do emprego, uma vez que o preconceito, a discriminação e o isolamento em função do estigma ainda persistem; o aumento da auto-estima dos sujeitos com o curso de capacitação realizado; relatos de profissionais da área da saúde ainda despreparados em relação à hanseníase. Como propostas são apontadas: intensificação de campanhas à população; realização de pesquisa para compreensão do percurso do usuário até a unidade de saúde e o diagnóstico de hanseníase; educação continuada dos profissionais da rede; inclusão do tema nos cursos de graduação e pós-graduação dos futuros profissionais da área da saúde; e expansão dos cursos de capacitação a usuários de outras unidades do Estado de São Paulo.Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo2008-06-30info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionAvaliado pelos paresapplication/pdfhttps://periodicos.saude.sp.gov.br/hansenologia/article/view/3517110.47878/hi.2008.v33.35171Hansenologia Internationalis: leprosy and other infectious diseases; Vol. 33 No. 1 (2008); 9-18Hansenologia Internationalis: hanseníase e outras doenças infecciosas; v. 33 n. 1 (2008); 9-181982-5161reponame:Hansenologia Internationalis (Online)instname:Instituto Lauro de Souza Lima (ILSL)instacron:ILSLporhttps://periodicos.saude.sp.gov.br/hansenologia/article/view/35171/33640https://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessSilva, Regina Célia Pinheiro daLopes, AngelinaGuisard, Carmen Luiza Monteiro PaesPeixoto, Edna SilveiraMetello, Heleida NobregaIto, Liria SuzunaSantos, Maria Aparecida Hilário dosFerreira, Maria EmíliaClemente, Maria GuelpaNogueira, Wagner2023-02-17T18:32:54Zoai:ojs.periodicos.saude.sp.gov.br:article/35171Revistahttps://periodicos.saude.sp.gov.br/hansenologiaPRIhttps://periodicos.saude.sp.gov.br/hansenologia/oaihansen_int@ilsl.br || hansenologia.internationalis@gmail.com || periodicossp@saude.sp.gov.br1982-51610100-3283opendoar:2023-02-17T18:32:54Hansenologia Internationalis (Online) - Instituto Lauro de Souza Lima (ILSL)false |
dc.title.none.fl_str_mv |
The history life and work of people with leprosy users of the Health Service in the State of São Paulo História de vida e trabalho de pessoas atingidas pela hanseníase em serviços de saúde do estado de São Paulo |
title |
The history life and work of people with leprosy users of the Health Service in the State of São Paulo |
spellingShingle |
The history life and work of people with leprosy users of the Health Service in the State of São Paulo Silva, Regina Célia Pinheiro da hanseníase serviços de saúde situação de trabalho qualidade de vid health services working status life quality |
title_short |
The history life and work of people with leprosy users of the Health Service in the State of São Paulo |
title_full |
The history life and work of people with leprosy users of the Health Service in the State of São Paulo |
title_fullStr |
The history life and work of people with leprosy users of the Health Service in the State of São Paulo |
title_full_unstemmed |
The history life and work of people with leprosy users of the Health Service in the State of São Paulo |
title_sort |
The history life and work of people with leprosy users of the Health Service in the State of São Paulo |
author |
Silva, Regina Célia Pinheiro da |
author_facet |
Silva, Regina Célia Pinheiro da Lopes, Angelina Guisard, Carmen Luiza Monteiro Paes Peixoto, Edna Silveira Metello, Heleida Nobrega Ito, Liria Suzuna Santos, Maria Aparecida Hilário dos Ferreira, Maria Emília Clemente, Maria Guelpa Nogueira, Wagner |
author_role |
author |
author2 |
Lopes, Angelina Guisard, Carmen Luiza Monteiro Paes Peixoto, Edna Silveira Metello, Heleida Nobrega Ito, Liria Suzuna Santos, Maria Aparecida Hilário dos Ferreira, Maria Emília Clemente, Maria Guelpa Nogueira, Wagner |
author2_role |
author author author author author author author author author |
dc.contributor.author.fl_str_mv |
Silva, Regina Célia Pinheiro da Lopes, Angelina Guisard, Carmen Luiza Monteiro Paes Peixoto, Edna Silveira Metello, Heleida Nobrega Ito, Liria Suzuna Santos, Maria Aparecida Hilário dos Ferreira, Maria Emília Clemente, Maria Guelpa Nogueira, Wagner |
dc.subject.por.fl_str_mv |
hanseníase serviços de saúde situação de trabalho qualidade de vid health services working status life quality |
topic |
hanseníase serviços de saúde situação de trabalho qualidade de vid health services working status life quality |
description |
This work began with a pilot project for professional empowerment or semi-professionalizing courses developed between 2001 and 2002, with eleven users of the health services of the State of São Paulo. These users were people with leprosy and his contacts. After the subject’s selection, a qualitative research was performed during which the researchers tried to rescue the life history and the working status of those users, seeking to establish the changes occurred after the leprosy diagnosis, specially at work. The used tools were a form and the topic life history. The data analysis showed following categories: life quality; perceptions and representations about the disease; social condition changes due to the diagnosis; leprosy and working relations; and leprosy and the health system. Among other aspects, it was noted that: the users think that lying or omitting the disease is necessary in order to get or to keep a job, since prejudice, discrimination and isolation resulting fromthe stigma still exist; also noted was the great benefit the subjects had when they enhanced their self-esteem thanks to the provided empowerment course. On the other side, the reports showed that most professionals of the health area are still unprepared to identify and diagnose leprosy patients. The suggested proposals are: to intensify the clarification campaigns for the population; to make a research in order to understand the user’s route to the health unit and the leprosy diagnosis; the continued education of the health system’s professionals; to intensify the training during the regular courses and post-doctoral courses of the future health professionals about how to suspect, diagnose and treat leprosy; and to outreach the empowerment courses to other units in the State of São Paulo. |
publishDate |
2008 |
dc.date.none.fl_str_mv |
2008-06-30 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Avaliado pelos pares |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://periodicos.saude.sp.gov.br/hansenologia/article/view/35171 10.47878/hi.2008.v33.35171 |
url |
https://periodicos.saude.sp.gov.br/hansenologia/article/view/35171 |
identifier_str_mv |
10.47878/hi.2008.v33.35171 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://periodicos.saude.sp.gov.br/hansenologia/article/view/35171/33640 |
dc.rights.driver.fl_str_mv |
https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo |
publisher.none.fl_str_mv |
Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo |
dc.source.none.fl_str_mv |
Hansenologia Internationalis: leprosy and other infectious diseases; Vol. 33 No. 1 (2008); 9-18 Hansenologia Internationalis: hanseníase e outras doenças infecciosas; v. 33 n. 1 (2008); 9-18 1982-5161 reponame:Hansenologia Internationalis (Online) instname:Instituto Lauro de Souza Lima (ILSL) instacron:ILSL |
instname_str |
Instituto Lauro de Souza Lima (ILSL) |
instacron_str |
ILSL |
institution |
ILSL |
reponame_str |
Hansenologia Internationalis (Online) |
collection |
Hansenologia Internationalis (Online) |
repository.name.fl_str_mv |
Hansenologia Internationalis (Online) - Instituto Lauro de Souza Lima (ILSL) |
repository.mail.fl_str_mv |
hansen_int@ilsl.br || hansenologia.internationalis@gmail.com || periodicossp@saude.sp.gov.br |
_version_ |
1796797578843521025 |