Interrupted dreams, deviated pathways: marks aleviated by pension

Detalhes bibliográficos
Autor(a) principal: Silva, Regina Célia Pinheiro da
Data de Publicação: 2013
Outros Autores: Guisard, Carmen Luiza Monteiro Paes, Metello, Heleida Nobrega, Ferreira, Maria Emília, Marzliak, Mary Lise C., Clemente, Tânia Maria Guelpa
Tipo de documento: Artigo
Idioma: por
Título da fonte: Hansenologia Internationalis (Online)
Texto Completo: https://periodicos.saude.sp.gov.br/hansenologia/article/view/35071
Resumo: Leprosy is a slow course, chronic, granulomatous infectious disease caused by Mycobacterium leprae. The disease causes lesions on face, hands and feet, which can generate severe physical disabilities that contribute to the installation of deformities and disabling patterns. The claw hand type lesion is a sequel observed in patients with upper limbs lesions. It canbe very disabling, making it difficult to the individuals to carry out their Daily Living Activities which impairs their quality of life and personal satisfaction. The occupational therapy intervention using low cost assistive technology to aid in daily living activities of patients with claw hand aims at minimizing motor and manual dexterity deficits. Thus, this study aims to demonstrate the self perception of patients about improving their feeding performance activity after use of functional adaptation. We conducted the Canadian Model of Occupational Performance protocol before and after 10 training interventions with adaptation to feeding activity to evaluate the perception of 20 patients on the Performance and Satisfactionwith the performance of Daily Living Activities. It was observed that the variables showed improved indices with increase in the independence levels. The material proposed and used in this study showed to be adequate to the confection of the adaptations that were developed, which promoted reduction of costs. The adaptations developed in this study showed favorable results with statistical significance, obtained through analysis of the final data.
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spelling Interrupted dreams, deviated pathways: marks aleviated by pensionSonhos interrompidos, caminhos desviados: marcas amenizadas por pensõesHanseníaseInquéritos EpidemiológicosQualidade de VidaLeprosyHealth SurveysQuality of LifeLeprosy is a slow course, chronic, granulomatous infectious disease caused by Mycobacterium leprae. The disease causes lesions on face, hands and feet, which can generate severe physical disabilities that contribute to the installation of deformities and disabling patterns. The claw hand type lesion is a sequel observed in patients with upper limbs lesions. It canbe very disabling, making it difficult to the individuals to carry out their Daily Living Activities which impairs their quality of life and personal satisfaction. The occupational therapy intervention using low cost assistive technology to aid in daily living activities of patients with claw hand aims at minimizing motor and manual dexterity deficits. Thus, this study aims to demonstrate the self perception of patients about improving their feeding performance activity after use of functional adaptation. We conducted the Canadian Model of Occupational Performance protocol before and after 10 training interventions with adaptation to feeding activity to evaluate the perception of 20 patients on the Performance and Satisfactionwith the performance of Daily Living Activities. It was observed that the variables showed improved indices with increase in the independence levels. The material proposed and used in this study showed to be adequate to the confection of the adaptations that were developed, which promoted reduction of costs. The adaptations developed in this study showed favorable results with statistical significance, obtained through analysis of the final data.Este artigo é resultado de pesquisa da Divisão Técnica de Hanseníase da Secretaria de Saúde do Estado de São Paulo realizada com pessoas acometidas pela hanseníase e que recebem pensões do Estado desde 1954, como política compensatória. Foi utilizado inquérito de saúde de base populacional com universo de 631 beneficiários, sendo entrevistados, através de um formulário, 485 sujeitos. As entrevistas com os pensionistas foram realizadas em Unidades de Saúde e nos antigos Hospitais-Colônia onde ainda vivem remanescentes do isolamento compulsório. A pesquisa foi dividida em duas fases: aspectos sociais, com questões fechadas e abertas, e avaliação de incapacidades. Portanto, trata-se de pesquisa com abordagem quanti-qualitativa, que valorizou o discurso dos sujeitos. Os principais resultados qualitativos comprovam a importância do rendimento auferido pela pensão na sobrevivência dos pensionistas e familiares, bem como o impacto da hanseníase e do isolamento compulsório na vida destas pessoas.Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo2013-11-30info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionAvaliado pelos paresapplication/pdfhttps://periodicos.saude.sp.gov.br/hansenologia/article/view/3507110.47878/hi.2013.v38.35071Hansenologia Internationalis: leprosy and other infectious diseases; Vol. 38 No. 1/2 (2013); 3-13Hansenologia Internationalis: hanseníase e outras doenças infecciosas; v. 38 n. 1/2 (2013); 3-131982-5161reponame:Hansenologia Internationalis (Online)instname:Instituto Lauro de Souza Lima (ILSL)instacron:ILSLporhttps://periodicos.saude.sp.gov.br/hansenologia/article/view/35071/33544Silva, Regina Célia Pinheiro daGuisard, Carmen Luiza Monteiro PaesMetello, Heleida NobregaFerreira, Maria EmíliaMarzliak, Mary Lise C.Clemente, Tânia Maria Guelpainfo:eu-repo/semantics/openAccess2021-06-04T02:50:06Zoai:ojs.periodicos.saude.sp.gov.br:article/35071Revistahttps://periodicos.saude.sp.gov.br/hansenologiaPRIhttps://periodicos.saude.sp.gov.br/hansenologia/oaihansen_int@ilsl.br || hansenologia.internationalis@gmail.com || periodicossp@saude.sp.gov.br1982-51610100-3283opendoar:2021-06-04T02:50:06Hansenologia Internationalis (Online) - Instituto Lauro de Souza Lima (ILSL)false
dc.title.none.fl_str_mv Interrupted dreams, deviated pathways: marks aleviated by pension
Sonhos interrompidos, caminhos desviados: marcas amenizadas por pensões
title Interrupted dreams, deviated pathways: marks aleviated by pension
spellingShingle Interrupted dreams, deviated pathways: marks aleviated by pension
Silva, Regina Célia Pinheiro da
Hanseníase
Inquéritos Epidemiológicos
Qualidade de Vida
Leprosy
Health Surveys
Quality of Life
title_short Interrupted dreams, deviated pathways: marks aleviated by pension
title_full Interrupted dreams, deviated pathways: marks aleviated by pension
title_fullStr Interrupted dreams, deviated pathways: marks aleviated by pension
title_full_unstemmed Interrupted dreams, deviated pathways: marks aleviated by pension
title_sort Interrupted dreams, deviated pathways: marks aleviated by pension
author Silva, Regina Célia Pinheiro da
author_facet Silva, Regina Célia Pinheiro da
Guisard, Carmen Luiza Monteiro Paes
Metello, Heleida Nobrega
Ferreira, Maria Emília
Marzliak, Mary Lise C.
Clemente, Tânia Maria Guelpa
author_role author
author2 Guisard, Carmen Luiza Monteiro Paes
Metello, Heleida Nobrega
Ferreira, Maria Emília
Marzliak, Mary Lise C.
Clemente, Tânia Maria Guelpa
author2_role author
author
author
author
author
dc.contributor.author.fl_str_mv Silva, Regina Célia Pinheiro da
Guisard, Carmen Luiza Monteiro Paes
Metello, Heleida Nobrega
Ferreira, Maria Emília
Marzliak, Mary Lise C.
Clemente, Tânia Maria Guelpa
dc.subject.por.fl_str_mv Hanseníase
Inquéritos Epidemiológicos
Qualidade de Vida
Leprosy
Health Surveys
Quality of Life
topic Hanseníase
Inquéritos Epidemiológicos
Qualidade de Vida
Leprosy
Health Surveys
Quality of Life
description Leprosy is a slow course, chronic, granulomatous infectious disease caused by Mycobacterium leprae. The disease causes lesions on face, hands and feet, which can generate severe physical disabilities that contribute to the installation of deformities and disabling patterns. The claw hand type lesion is a sequel observed in patients with upper limbs lesions. It canbe very disabling, making it difficult to the individuals to carry out their Daily Living Activities which impairs their quality of life and personal satisfaction. The occupational therapy intervention using low cost assistive technology to aid in daily living activities of patients with claw hand aims at minimizing motor and manual dexterity deficits. Thus, this study aims to demonstrate the self perception of patients about improving their feeding performance activity after use of functional adaptation. We conducted the Canadian Model of Occupational Performance protocol before and after 10 training interventions with adaptation to feeding activity to evaluate the perception of 20 patients on the Performance and Satisfactionwith the performance of Daily Living Activities. It was observed that the variables showed improved indices with increase in the independence levels. The material proposed and used in this study showed to be adequate to the confection of the adaptations that were developed, which promoted reduction of costs. The adaptations developed in this study showed favorable results with statistical significance, obtained through analysis of the final data.
publishDate 2013
dc.date.none.fl_str_mv 2013-11-30
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
Avaliado pelos pares
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://periodicos.saude.sp.gov.br/hansenologia/article/view/35071
10.47878/hi.2013.v38.35071
url https://periodicos.saude.sp.gov.br/hansenologia/article/view/35071
identifier_str_mv 10.47878/hi.2013.v38.35071
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://periodicos.saude.sp.gov.br/hansenologia/article/view/35071/33544
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo
publisher.none.fl_str_mv Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo
dc.source.none.fl_str_mv Hansenologia Internationalis: leprosy and other infectious diseases; Vol. 38 No. 1/2 (2013); 3-13
Hansenologia Internationalis: hanseníase e outras doenças infecciosas; v. 38 n. 1/2 (2013); 3-13
1982-5161
reponame:Hansenologia Internationalis (Online)
instname:Instituto Lauro de Souza Lima (ILSL)
instacron:ILSL
instname_str Instituto Lauro de Souza Lima (ILSL)
instacron_str ILSL
institution ILSL
reponame_str Hansenologia Internationalis (Online)
collection Hansenologia Internationalis (Online)
repository.name.fl_str_mv Hansenologia Internationalis (Online) - Instituto Lauro de Souza Lima (ILSL)
repository.mail.fl_str_mv hansen_int@ilsl.br || hansenologia.internationalis@gmail.com || periodicossp@saude.sp.gov.br
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