Interrupted dreams, deviated pathways: marks aleviated by pension
Autor(a) principal: | |
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Data de Publicação: | 2013 |
Outros Autores: | , , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Hansenologia Internationalis (Online) |
Texto Completo: | https://periodicos.saude.sp.gov.br/hansenologia/article/view/35071 |
Resumo: | Leprosy is a slow course, chronic, granulomatous infectious disease caused by Mycobacterium leprae. The disease causes lesions on face, hands and feet, which can generate severe physical disabilities that contribute to the installation of deformities and disabling patterns. The claw hand type lesion is a sequel observed in patients with upper limbs lesions. It canbe very disabling, making it difficult to the individuals to carry out their Daily Living Activities which impairs their quality of life and personal satisfaction. The occupational therapy intervention using low cost assistive technology to aid in daily living activities of patients with claw hand aims at minimizing motor and manual dexterity deficits. Thus, this study aims to demonstrate the self perception of patients about improving their feeding performance activity after use of functional adaptation. We conducted the Canadian Model of Occupational Performance protocol before and after 10 training interventions with adaptation to feeding activity to evaluate the perception of 20 patients on the Performance and Satisfactionwith the performance of Daily Living Activities. It was observed that the variables showed improved indices with increase in the independence levels. The material proposed and used in this study showed to be adequate to the confection of the adaptations that were developed, which promoted reduction of costs. The adaptations developed in this study showed favorable results with statistical significance, obtained through analysis of the final data. |
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Interrupted dreams, deviated pathways: marks aleviated by pensionSonhos interrompidos, caminhos desviados: marcas amenizadas por pensõesHanseníaseInquéritos EpidemiológicosQualidade de VidaLeprosyHealth SurveysQuality of LifeLeprosy is a slow course, chronic, granulomatous infectious disease caused by Mycobacterium leprae. The disease causes lesions on face, hands and feet, which can generate severe physical disabilities that contribute to the installation of deformities and disabling patterns. The claw hand type lesion is a sequel observed in patients with upper limbs lesions. It canbe very disabling, making it difficult to the individuals to carry out their Daily Living Activities which impairs their quality of life and personal satisfaction. The occupational therapy intervention using low cost assistive technology to aid in daily living activities of patients with claw hand aims at minimizing motor and manual dexterity deficits. Thus, this study aims to demonstrate the self perception of patients about improving their feeding performance activity after use of functional adaptation. We conducted the Canadian Model of Occupational Performance protocol before and after 10 training interventions with adaptation to feeding activity to evaluate the perception of 20 patients on the Performance and Satisfactionwith the performance of Daily Living Activities. It was observed that the variables showed improved indices with increase in the independence levels. The material proposed and used in this study showed to be adequate to the confection of the adaptations that were developed, which promoted reduction of costs. The adaptations developed in this study showed favorable results with statistical significance, obtained through analysis of the final data.Este artigo é resultado de pesquisa da Divisão Técnica de Hanseníase da Secretaria de Saúde do Estado de São Paulo realizada com pessoas acometidas pela hanseníase e que recebem pensões do Estado desde 1954, como política compensatória. Foi utilizado inquérito de saúde de base populacional com universo de 631 beneficiários, sendo entrevistados, através de um formulário, 485 sujeitos. As entrevistas com os pensionistas foram realizadas em Unidades de Saúde e nos antigos Hospitais-Colônia onde ainda vivem remanescentes do isolamento compulsório. A pesquisa foi dividida em duas fases: aspectos sociais, com questões fechadas e abertas, e avaliação de incapacidades. Portanto, trata-se de pesquisa com abordagem quanti-qualitativa, que valorizou o discurso dos sujeitos. Os principais resultados qualitativos comprovam a importância do rendimento auferido pela pensão na sobrevivência dos pensionistas e familiares, bem como o impacto da hanseníase e do isolamento compulsório na vida destas pessoas.Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo2013-11-30info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionAvaliado pelos paresapplication/pdfhttps://periodicos.saude.sp.gov.br/hansenologia/article/view/3507110.47878/hi.2013.v38.35071Hansenologia Internationalis: leprosy and other infectious diseases; Vol. 38 No. 1/2 (2013); 3-13Hansenologia Internationalis: hanseníase e outras doenças infecciosas; v. 38 n. 1/2 (2013); 3-131982-5161reponame:Hansenologia Internationalis (Online)instname:Instituto Lauro de Souza Lima (ILSL)instacron:ILSLporhttps://periodicos.saude.sp.gov.br/hansenologia/article/view/35071/33544Silva, Regina Célia Pinheiro daGuisard, Carmen Luiza Monteiro PaesMetello, Heleida NobregaFerreira, Maria EmíliaMarzliak, Mary Lise C.Clemente, Tânia Maria Guelpainfo:eu-repo/semantics/openAccess2021-06-04T02:50:06Zoai:ojs.periodicos.saude.sp.gov.br:article/35071Revistahttps://periodicos.saude.sp.gov.br/hansenologiaPRIhttps://periodicos.saude.sp.gov.br/hansenologia/oaihansen_int@ilsl.br || hansenologia.internationalis@gmail.com || periodicossp@saude.sp.gov.br1982-51610100-3283opendoar:2021-06-04T02:50:06Hansenologia Internationalis (Online) - Instituto Lauro de Souza Lima (ILSL)false |
dc.title.none.fl_str_mv |
Interrupted dreams, deviated pathways: marks aleviated by pension Sonhos interrompidos, caminhos desviados: marcas amenizadas por pensões |
title |
Interrupted dreams, deviated pathways: marks aleviated by pension |
spellingShingle |
Interrupted dreams, deviated pathways: marks aleviated by pension Silva, Regina Célia Pinheiro da Hanseníase Inquéritos Epidemiológicos Qualidade de Vida Leprosy Health Surveys Quality of Life |
title_short |
Interrupted dreams, deviated pathways: marks aleviated by pension |
title_full |
Interrupted dreams, deviated pathways: marks aleviated by pension |
title_fullStr |
Interrupted dreams, deviated pathways: marks aleviated by pension |
title_full_unstemmed |
Interrupted dreams, deviated pathways: marks aleviated by pension |
title_sort |
Interrupted dreams, deviated pathways: marks aleviated by pension |
author |
Silva, Regina Célia Pinheiro da |
author_facet |
Silva, Regina Célia Pinheiro da Guisard, Carmen Luiza Monteiro Paes Metello, Heleida Nobrega Ferreira, Maria Emília Marzliak, Mary Lise C. Clemente, Tânia Maria Guelpa |
author_role |
author |
author2 |
Guisard, Carmen Luiza Monteiro Paes Metello, Heleida Nobrega Ferreira, Maria Emília Marzliak, Mary Lise C. Clemente, Tânia Maria Guelpa |
author2_role |
author author author author author |
dc.contributor.author.fl_str_mv |
Silva, Regina Célia Pinheiro da Guisard, Carmen Luiza Monteiro Paes Metello, Heleida Nobrega Ferreira, Maria Emília Marzliak, Mary Lise C. Clemente, Tânia Maria Guelpa |
dc.subject.por.fl_str_mv |
Hanseníase Inquéritos Epidemiológicos Qualidade de Vida Leprosy Health Surveys Quality of Life |
topic |
Hanseníase Inquéritos Epidemiológicos Qualidade de Vida Leprosy Health Surveys Quality of Life |
description |
Leprosy is a slow course, chronic, granulomatous infectious disease caused by Mycobacterium leprae. The disease causes lesions on face, hands and feet, which can generate severe physical disabilities that contribute to the installation of deformities and disabling patterns. The claw hand type lesion is a sequel observed in patients with upper limbs lesions. It canbe very disabling, making it difficult to the individuals to carry out their Daily Living Activities which impairs their quality of life and personal satisfaction. The occupational therapy intervention using low cost assistive technology to aid in daily living activities of patients with claw hand aims at minimizing motor and manual dexterity deficits. Thus, this study aims to demonstrate the self perception of patients about improving their feeding performance activity after use of functional adaptation. We conducted the Canadian Model of Occupational Performance protocol before and after 10 training interventions with adaptation to feeding activity to evaluate the perception of 20 patients on the Performance and Satisfactionwith the performance of Daily Living Activities. It was observed that the variables showed improved indices with increase in the independence levels. The material proposed and used in this study showed to be adequate to the confection of the adaptations that were developed, which promoted reduction of costs. The adaptations developed in this study showed favorable results with statistical significance, obtained through analysis of the final data. |
publishDate |
2013 |
dc.date.none.fl_str_mv |
2013-11-30 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Avaliado pelos pares |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://periodicos.saude.sp.gov.br/hansenologia/article/view/35071 10.47878/hi.2013.v38.35071 |
url |
https://periodicos.saude.sp.gov.br/hansenologia/article/view/35071 |
identifier_str_mv |
10.47878/hi.2013.v38.35071 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://periodicos.saude.sp.gov.br/hansenologia/article/view/35071/33544 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo |
publisher.none.fl_str_mv |
Instituto Lauro de Souza Lima da Secretaria de Estado da Saúde de São Paulo |
dc.source.none.fl_str_mv |
Hansenologia Internationalis: leprosy and other infectious diseases; Vol. 38 No. 1/2 (2013); 3-13 Hansenologia Internationalis: hanseníase e outras doenças infecciosas; v. 38 n. 1/2 (2013); 3-13 1982-5161 reponame:Hansenologia Internationalis (Online) instname:Instituto Lauro de Souza Lima (ILSL) instacron:ILSL |
instname_str |
Instituto Lauro de Souza Lima (ILSL) |
instacron_str |
ILSL |
institution |
ILSL |
reponame_str |
Hansenologia Internationalis (Online) |
collection |
Hansenologia Internationalis (Online) |
repository.name.fl_str_mv |
Hansenologia Internationalis (Online) - Instituto Lauro de Souza Lima (ILSL) |
repository.mail.fl_str_mv |
hansen_int@ilsl.br || hansenologia.internationalis@gmail.com || periodicossp@saude.sp.gov.br |
_version_ |
1796797578736566273 |