Conspiracy of Silence in Oncological Palliative Care: Perspectives and Strategies of the Healthcare Team
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2024 |
| Outros Autores: | , |
| Tipo de documento: | Artigo |
| Idioma: | eng |
| Título da fonte: | Revista Brasileira de Cancerologia (Online) |
| Texto Completo: | https://rbc.inca.gov.br/index.php/revista/article/view/4543 |
Resumo: | Introduction: Silence about dismal news is common in palliative care, involving patients, family and the healthcare team. This phenomenon of hiding the truth – conspiracy of silence – has negative consequences and deserves attention from professionals. Objective: This study investigates and explores the strategies used by healthcare professionals to prevent and intervene in the conspiracy of silence in the context of oncological palliative care. Method: Cross-sectional qualitative study using the Interpretative Phenomenological Analysis approach. The participants were nurses, doctors and a psychologist who work in the palliative care unit of a cancer center. A semi-structured interview was applied to a sample of 12 healthcare professionals. Results: The age of the participants varied between 31 and 64 years old, mostly females, ten nurses, one physician and one psychologist. From the analysis of the interviews, the following themes emerged: perceptionof the phenomenon of the conspiracy of silence; difficulties and challenges in dealing with the conspiracy of silence in palliative care; professionals’ feelings about the conspiracy of silence; strategies to intervene and prevent the conspiracy of silence. Important strategies were reported such as honest communication without impositions, listening to the motivations that led to the silence. Conclusion: Professionals are aware of the ethical duty to tell the truth when faced with a conspiracy of silence. However, continuous training is needed to develop skills for communicating dismal news in clinical settings and in medical education. |
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Conspiracy of Silence in Oncological Palliative Care: Perspectives and Strategies of the Healthcare TeamConspiración del Silencio en Cuidados Paliativos Oncológicos: Perspectivas y Estrategias del Equipo de SaludConspiração do Silêncio nos Cuidados Paliativos Oncológicos: Perspectivas e Estratégias da Equipe de SaúdeCuidados Paliativos/éticaComunicação em Saúde/éticaNeoplasias/epidemiologiaPessoal de Saúde/éticaPalliative Care/ethicsHealth Communication/ethicsNeoplasms/epidemiologyHealth Personnel/ethicsCuidados Paliativos/éticaComunicación en Salud/éticaNeoplasias/epidemiologiaPersonal de Salud/éticaIntroduction: Silence about dismal news is common in palliative care, involving patients, family and the healthcare team. This phenomenon of hiding the truth – conspiracy of silence – has negative consequences and deserves attention from professionals. Objective: This study investigates and explores the strategies used by healthcare professionals to prevent and intervene in the conspiracy of silence in the context of oncological palliative care. Method: Cross-sectional qualitative study using the Interpretative Phenomenological Analysis approach. The participants were nurses, doctors and a psychologist who work in the palliative care unit of a cancer center. A semi-structured interview was applied to a sample of 12 healthcare professionals. Results: The age of the participants varied between 31 and 64 years old, mostly females, ten nurses, one physician and one psychologist. From the analysis of the interviews, the following themes emerged: perceptionof the phenomenon of the conspiracy of silence; difficulties and challenges in dealing with the conspiracy of silence in palliative care; professionals’ feelings about the conspiracy of silence; strategies to intervene and prevent the conspiracy of silence. Important strategies were reported such as honest communication without impositions, listening to the motivations that led to the silence. Conclusion: Professionals are aware of the ethical duty to tell the truth when faced with a conspiracy of silence. However, continuous training is needed to develop skills for communicating dismal news in clinical settings and in medical education.Introducción: El silencio ante noticias difíciles es común en los cuidados paliativos, involucrando a pacientes, familiares y equipo de salud. Estas características de ocultar la verdad – conspiración de silencio – tienen consecuencias negativas y merecen la atención de los profesionales. Objetivo: Investigar y explorar las estrategias utilizadas por los profesionales de la salud para prevenir e intervenir en la conspiración del silencio en el contexto de los cuidados paliativos oncológicos. Método: Estudio cualitativo transversal utilizando el enfoque de Análisis Fenomenológico Interpretativo. Los participantes fueron enfermeras, médico y un psicólogo que trabajan enla unidad de cuidados paliativos de un centro oncológico. Se aplicó una entrevista semiestructurada a una muestra de 12 profesionales de la salud. Resultados: La edad de los participantes varía entre 31 y 64 años, la mayoría de la muestra es femenina. En cuanto a su profesión, diez son enfermeros, un médico y un psicólogo. Del análisis de las entrevistas surgieron los siguientes temas: percepción de las especificidades de la conspiración del silencio; Dificultades y desafíos para afrontar la conspiración del silencio en los cuidados paliativos; Sentimientos de los profesionales sobre la conspiración del silencio; Estrategias para intervenir en la conspiración del silencio; Estrategias para evitar la conspiración del silencio. Se reportaronestrategias importantes, como la comunicación honesta y no impuesta, escuchando las motivaciones que llevaron al silencio. Conclusión: Los profesionales son conscientes del deber ético de decir la verdad ante una conspiración de silencio. Sin embargo, es necesaria una formación continuapara desarrollar habilidades para comunicar más noticias en el contexto clínico y en la educación médica.Introdução: O silêncio sobre notícias difíceis é comum em cuidados paliativos, envolvendo pacientes, familiares e equipe de saúde. Esse fenômeno de ocultação da verdade – conspiração do silêncio – tem consequências negativas e merece atenção dos profissionais. Objetivo: Investigar e explorar as estratégias utilizadas pelos profissionais de saúde para prevenir e intervir na conspiração do silêncio no contexto dos cuidados paliativos oncológicos. Método: Estudo qualitativo transversal utilizando a abordagem da Análise Fenomenológica Interpretativa. Os participantesforam enfermeiros, médico e uma psicóloga que atuam na unidade de cuidados paliativos de um centro oncológico. Aplicou-se entrevista semiestruturada a uma amostra de 12 profissionais de saúde. Resultados: A idade dos participantes variou entre 31 e 64 anos, a maior parte daamostra é do sexo feminino. Quanto à profissão, dez são enfermeiros, um médico e um psicólogo. Da análise das entrevistas, emergiram os seguintes temas: percepção do fenômeno da conspiração do silêncio; Dificuldades edesafios para lidar com a conspiração do silêncio nos cuidados paliativos; Sentimentos dos profissionais sobre a conspiração do silêncio; Estratégias para intervir na conspiração do silêncio; Estratégias para evitar a conspiração do silêncio. Foram relatadas estratégias importantes como a comunicação honesta e sem imposições, ouvindo as motivações que levaram ao silêncio.Conclusão: Os profissionais estão conscientes do dever ético de dizer a verdade diante de uma conspiração de silêncio. No entanto, é necessária formação contínua para desenvolver competências de comunicação de más notícias no contexto clínico e no ensino médico.INCA2024-04-05info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionArtigos, Avaliado pelos paresapplication/pdfhttps://rbc.inca.gov.br/index.php/revista/article/view/454310.32635/2176-9745.RBC.2024v70n1.4543Revista Brasileira de Cancerologia; Vol. 70 No. 1 (2024): Jan./Feb./Mar.; e-214543Revista Brasileira de Cancerologia; Vol. 70 Núm. 1 (2024): ene./feb./mar.; e-214543Revista Brasileira de Cancerologia; v. 70 n. 1 (2024): jan./fev./mar.; e-2145432176-9745reponame:Revista Brasileira de Cancerologia (Online)instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)instacron:INCAenghttps://rbc.inca.gov.br/index.php/revista/article/view/4543/3398Copyright (c) 2024 Revista Brasileira de Cancerologiahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessFerreira, Ana Carolina da SilvaAlvarenga, Margarida Isabel FreitasRego, Maria Francisca Melo Pojal da Silva2024-04-05T20:35:44Zoai:rbc.inca.gov.br:article/4543Revistahttps://rbc.inca.gov.br/index.php/revistaPUBhttps://rbc.inca.gov.br/index.php/revista/oairbc@inca.gov.br0034-71162176-9745opendoar:2024-04-05T20:35:44Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)false |
| dc.title.none.fl_str_mv |
Conspiracy of Silence in Oncological Palliative Care: Perspectives and Strategies of the Healthcare Team Conspiración del Silencio en Cuidados Paliativos Oncológicos: Perspectivas y Estrategias del Equipo de Salud Conspiração do Silêncio nos Cuidados Paliativos Oncológicos: Perspectivas e Estratégias da Equipe de Saúde |
| title |
Conspiracy of Silence in Oncological Palliative Care: Perspectives and Strategies of the Healthcare Team |
| spellingShingle |
Conspiracy of Silence in Oncological Palliative Care: Perspectives and Strategies of the Healthcare Team Ferreira, Ana Carolina da Silva Cuidados Paliativos/ética Comunicação em Saúde/ética Neoplasias/epidemiologia Pessoal de Saúde/ética Palliative Care/ethics Health Communication/ethics Neoplasms/epidemiology Health Personnel/ethics Cuidados Paliativos/ética Comunicación en Salud/ética Neoplasias/epidemiologia Personal de Salud/ética |
| title_short |
Conspiracy of Silence in Oncological Palliative Care: Perspectives and Strategies of the Healthcare Team |
| title_full |
Conspiracy of Silence in Oncological Palliative Care: Perspectives and Strategies of the Healthcare Team |
| title_fullStr |
Conspiracy of Silence in Oncological Palliative Care: Perspectives and Strategies of the Healthcare Team |
| title_full_unstemmed |
Conspiracy of Silence in Oncological Palliative Care: Perspectives and Strategies of the Healthcare Team |
| title_sort |
Conspiracy of Silence in Oncological Palliative Care: Perspectives and Strategies of the Healthcare Team |
| author |
Ferreira, Ana Carolina da Silva |
| author_facet |
Ferreira, Ana Carolina da Silva Alvarenga, Margarida Isabel Freitas Rego, Maria Francisca Melo Pojal da Silva |
| author_role |
author |
| author2 |
Alvarenga, Margarida Isabel Freitas Rego, Maria Francisca Melo Pojal da Silva |
| author2_role |
author author |
| dc.contributor.author.fl_str_mv |
Ferreira, Ana Carolina da Silva Alvarenga, Margarida Isabel Freitas Rego, Maria Francisca Melo Pojal da Silva |
| dc.subject.por.fl_str_mv |
Cuidados Paliativos/ética Comunicação em Saúde/ética Neoplasias/epidemiologia Pessoal de Saúde/ética Palliative Care/ethics Health Communication/ethics Neoplasms/epidemiology Health Personnel/ethics Cuidados Paliativos/ética Comunicación en Salud/ética Neoplasias/epidemiologia Personal de Salud/ética |
| topic |
Cuidados Paliativos/ética Comunicação em Saúde/ética Neoplasias/epidemiologia Pessoal de Saúde/ética Palliative Care/ethics Health Communication/ethics Neoplasms/epidemiology Health Personnel/ethics Cuidados Paliativos/ética Comunicación en Salud/ética Neoplasias/epidemiologia Personal de Salud/ética |
| description |
Introduction: Silence about dismal news is common in palliative care, involving patients, family and the healthcare team. This phenomenon of hiding the truth – conspiracy of silence – has negative consequences and deserves attention from professionals. Objective: This study investigates and explores the strategies used by healthcare professionals to prevent and intervene in the conspiracy of silence in the context of oncological palliative care. Method: Cross-sectional qualitative study using the Interpretative Phenomenological Analysis approach. The participants were nurses, doctors and a psychologist who work in the palliative care unit of a cancer center. A semi-structured interview was applied to a sample of 12 healthcare professionals. Results: The age of the participants varied between 31 and 64 years old, mostly females, ten nurses, one physician and one psychologist. From the analysis of the interviews, the following themes emerged: perceptionof the phenomenon of the conspiracy of silence; difficulties and challenges in dealing with the conspiracy of silence in palliative care; professionals’ feelings about the conspiracy of silence; strategies to intervene and prevent the conspiracy of silence. Important strategies were reported such as honest communication without impositions, listening to the motivations that led to the silence. Conclusion: Professionals are aware of the ethical duty to tell the truth when faced with a conspiracy of silence. However, continuous training is needed to develop skills for communicating dismal news in clinical settings and in medical education. |
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2024 |
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2024-04-05 |
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info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Artigos, Avaliado pelos pares |
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article |
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https://rbc.inca.gov.br/index.php/revista/article/view/4543 10.32635/2176-9745.RBC.2024v70n1.4543 |
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https://rbc.inca.gov.br/index.php/revista/article/view/4543 |
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10.32635/2176-9745.RBC.2024v70n1.4543 |
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eng |
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eng |
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https://rbc.inca.gov.br/index.php/revista/article/view/4543/3398 |
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Copyright (c) 2024 Revista Brasileira de Cancerologia https://creativecommons.org/licenses/by/4.0 |
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Revista Brasileira de Cancerologia; Vol. 70 No. 1 (2024): Jan./Feb./Mar.; e-214543 Revista Brasileira de Cancerologia; Vol. 70 Núm. 1 (2024): ene./feb./mar.; e-214543 Revista Brasileira de Cancerologia; v. 70 n. 1 (2024): jan./fev./mar.; e-214543 2176-9745 reponame:Revista Brasileira de Cancerologia (Online) instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) instacron:INCA |
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