A critical review of instruments used to assess emotional, physical and social aspects of caregiver of terminal cancer patients

Detalhes bibliográficos
Autor(a) principal: Rezende, Vera Lucia
Data de Publicação: 2005
Outros Autores: Derchain, Sophie Mauricette, Botega, Neury José, Vial, Daniela Landulfo
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista Brasileira de Cancerologia (Online)
Texto Completo: https://rbc.inca.gov.br/index.php/revista/article/view/2000
Resumo: Nowadays a lot of people are living longer and than, taking care of patient with chronic disease is an important aspect of public health problem. Taking care of patient in the terminally ill cancer phase is considered a complex, difficult, anxiously and not well studied. The vast majority of papers evaluate family after death, however the informal caregiver can present a lot of emotional, physical and social changes, principally in the period just before patient death, and the measurement of these symptoms are necessary. Many well-studied instruments tools are available in the literature; however, the great majority of them seam to be incomplete regarding all dimension of care during terminal phase (physical, psychological, social, economical needs, hopes, spiritual and existential believes). In this review study some of the more important standard instruments tested for caregivers terminal cancer patients are analyzed and the application of an instrument still not validated in Brazil is suggested. This instrument, the General Comfort Questionnaire (GCQ) offers the possibility to make a multidimensional evaluation of caregivers for terminal cancer phase patients.
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spelling A critical review of instruments used to assess emotional, physical and social aspects of caregiver of terminal cancer patientsRevisão crítica dos instrumentos utilizados para avaliar aspectos emocionais, físicos e sociais do cuidador de pacientes com câncer na fase terminal da doençaNeoplasiasDoente terminalCuidadoresInstrumentosAspectos psicológicosNeoplasms;Terminally illCaregiverInstrumentsPsychological aspectsNowadays a lot of people are living longer and than, taking care of patient with chronic disease is an important aspect of public health problem. Taking care of patient in the terminally ill cancer phase is considered a complex, difficult, anxiously and not well studied. The vast majority of papers evaluate family after death, however the informal caregiver can present a lot of emotional, physical and social changes, principally in the period just before patient death, and the measurement of these symptoms are necessary. Many well-studied instruments tools are available in the literature; however, the great majority of them seam to be incomplete regarding all dimension of care during terminal phase (physical, psychological, social, economical needs, hopes, spiritual and existential believes). In this review study some of the more important standard instruments tested for caregivers terminal cancer patients are analyzed and the application of an instrument still not validated in Brazil is suggested. This instrument, the General Comfort Questionnaire (GCQ) offers the possibility to make a multidimensional evaluation of caregivers for terminal cancer phase patients.Atualmente, muitas pessoas vivem por mais tempo e assim, o cuidar do paciente com doenças crônicas tornou-se um elemento importante no contexto da saúde pública. No caso do paciente com câncer na fase terminal da doença, este cuidar é uma tarefa complexa, difícil, angustiante e pouco estudada. A maioria dos estudos avaliam, em geral, após a morte, já no período de luto, ao passo que o cuidador informal pode apresentar alterações emocionais, físicas e sociais principalmente no período que antecede a morte do paciente, fator que torna necessária a mensuração destes sintomas. Existem muitos instrumentos padronizados disponíveis na literatura nesta linha, porém a maioria não é completa em relação a todas as dimensões dos cuidados que devem ser oferecidos na fase terminal da doença (sintomas físicos, sintomas psicológicos, suporte social, necessidades econômicas, expectativas e esperanças, crenças existenciais e espirituais). No presente estudo, foram analisados alguns dos principais instrumentos e selecionado um, recentemente publicado e ainda não validado no Brasil, para realizar sua tradução. Ele possibilita a avaliação multidimensional dos cuidadores de pacientes com câncer na fase terminal da doença, o General Comfort Questionnaire (GCQ).INCA2005-03-31info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionRevisão de literaturaapplication/pdfhttps://rbc.inca.gov.br/index.php/revista/article/view/200010.32635/2176-9745.RBC.2005v51n1.2000Revista Brasileira de Cancerologia; Vol. 51 No. 1 (2005): Jan./Feb./Mar.; 79-87Revista Brasileira de Cancerologia; Vol. 51 Núm. 1 (2005): ene./feb./mar.; 79-87Revista Brasileira de Cancerologia; v. 51 n. 1 (2005): jan./fev./mar.; 79-872176-9745reponame:Revista Brasileira de Cancerologia (Online)instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)instacron:INCAporhttps://rbc.inca.gov.br/index.php/revista/article/view/2000/1223Rezende, Vera LuciaDerchain, Sophie MauricetteBotega, Neury JoséVial, Daniela Landulfoinfo:eu-repo/semantics/openAccess2021-11-29T20:30:46Zoai:rbc.inca.gov.br:article/2000Revistahttps://rbc.inca.gov.br/index.php/revistaPUBhttps://rbc.inca.gov.br/index.php/revista/oairbc@inca.gov.br0034-71162176-9745opendoar:2021-11-29T20:30:46Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)false
dc.title.none.fl_str_mv A critical review of instruments used to assess emotional, physical and social aspects of caregiver of terminal cancer patients
Revisão crítica dos instrumentos utilizados para avaliar aspectos emocionais, físicos e sociais do cuidador de pacientes com câncer na fase terminal da doença
title A critical review of instruments used to assess emotional, physical and social aspects of caregiver of terminal cancer patients
spellingShingle A critical review of instruments used to assess emotional, physical and social aspects of caregiver of terminal cancer patients
Rezende, Vera Lucia
Neoplasias
Doente terminal
Cuidadores
Instrumentos
Aspectos psicológicos
Neoplasms;
Terminally ill
Caregiver
Instruments
Psychological aspects
title_short A critical review of instruments used to assess emotional, physical and social aspects of caregiver of terminal cancer patients
title_full A critical review of instruments used to assess emotional, physical and social aspects of caregiver of terminal cancer patients
title_fullStr A critical review of instruments used to assess emotional, physical and social aspects of caregiver of terminal cancer patients
title_full_unstemmed A critical review of instruments used to assess emotional, physical and social aspects of caregiver of terminal cancer patients
title_sort A critical review of instruments used to assess emotional, physical and social aspects of caregiver of terminal cancer patients
author Rezende, Vera Lucia
author_facet Rezende, Vera Lucia
Derchain, Sophie Mauricette
Botega, Neury José
Vial, Daniela Landulfo
author_role author
author2 Derchain, Sophie Mauricette
Botega, Neury José
Vial, Daniela Landulfo
author2_role author
author
author
dc.contributor.author.fl_str_mv Rezende, Vera Lucia
Derchain, Sophie Mauricette
Botega, Neury José
Vial, Daniela Landulfo
dc.subject.por.fl_str_mv Neoplasias
Doente terminal
Cuidadores
Instrumentos
Aspectos psicológicos
Neoplasms;
Terminally ill
Caregiver
Instruments
Psychological aspects
topic Neoplasias
Doente terminal
Cuidadores
Instrumentos
Aspectos psicológicos
Neoplasms;
Terminally ill
Caregiver
Instruments
Psychological aspects
description Nowadays a lot of people are living longer and than, taking care of patient with chronic disease is an important aspect of public health problem. Taking care of patient in the terminally ill cancer phase is considered a complex, difficult, anxiously and not well studied. The vast majority of papers evaluate family after death, however the informal caregiver can present a lot of emotional, physical and social changes, principally in the period just before patient death, and the measurement of these symptoms are necessary. Many well-studied instruments tools are available in the literature; however, the great majority of them seam to be incomplete regarding all dimension of care during terminal phase (physical, psychological, social, economical needs, hopes, spiritual and existential believes). In this review study some of the more important standard instruments tested for caregivers terminal cancer patients are analyzed and the application of an instrument still not validated in Brazil is suggested. This instrument, the General Comfort Questionnaire (GCQ) offers the possibility to make a multidimensional evaluation of caregivers for terminal cancer phase patients.
publishDate 2005
dc.date.none.fl_str_mv 2005-03-31
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
Revisão de literatura
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://rbc.inca.gov.br/index.php/revista/article/view/2000
10.32635/2176-9745.RBC.2005v51n1.2000
url https://rbc.inca.gov.br/index.php/revista/article/view/2000
identifier_str_mv 10.32635/2176-9745.RBC.2005v51n1.2000
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://rbc.inca.gov.br/index.php/revista/article/view/2000/1223
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv INCA
publisher.none.fl_str_mv INCA
dc.source.none.fl_str_mv Revista Brasileira de Cancerologia; Vol. 51 No. 1 (2005): Jan./Feb./Mar.; 79-87
Revista Brasileira de Cancerologia; Vol. 51 Núm. 1 (2005): ene./feb./mar.; 79-87
Revista Brasileira de Cancerologia; v. 51 n. 1 (2005): jan./fev./mar.; 79-87
2176-9745
reponame:Revista Brasileira de Cancerologia (Online)
instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
instacron:INCA
instname_str Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
instacron_str INCA
institution INCA
reponame_str Revista Brasileira de Cancerologia (Online)
collection Revista Brasileira de Cancerologia (Online)
repository.name.fl_str_mv Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
repository.mail.fl_str_mv rbc@inca.gov.br
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