Relapse Versus Cure: The Paradox of Surviving Childhood Câncer
Autor(a) principal: | |
---|---|
Data de Publicação: | 2022 |
Outros Autores: | |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Revista Brasileira de Cancerologia (Online) |
Texto Completo: | https://rbc.inca.gov.br/index.php/revista/article/view/2779 |
Resumo: | This research describes aspects of the survival experience. It focuses on the perceptions of the patients and their parents regarding the disease, its treatment and the psychosocial adaptation of the survivors. The study group consisted of ten children, aged six to twelve, and their parents. Interviews were administered separately to patients and their parents. Additionally, the children were given the Anxiety Line-State Inventory (IDATE-C) and the Child Depression Inventory (CDI). Analysis indicated that more than a half of the children returned to their daily activities, and have a good psychosocial adaptation, despite continuing parental anxiety concerning the risks of relapse or arousal of a new tumor. The psychometric scales revealed no significant evidence of anxiety and depression in the survivors. We conclude that surviving cancer implies living with the paradox of the “cured" status and the constant risk of relapse. The ways the survivor and his family cope with this doubt seem do determine the quality oftheir adaptation and reinsertion. Future studies are suggested in order to analyze the variables involved in the development of abilities to live with the paradox of cure. |
id |
INCA-1_9c0586fbff9bcabe810d430704445915 |
---|---|
oai_identifier_str |
oai:rbc.inca.gov.br:article/2779 |
network_acronym_str |
INCA-1 |
network_name_str |
Revista Brasileira de Cancerologia (Online) |
repository_id_str |
|
spelling |
Relapse Versus Cure: The Paradox of Surviving Childhood CâncerRecidiva Versus Cura: A Vivência Paradoxal da Sobrevivência ao Câncer na InfânciaCâncerSobreviventesCriançasQualidade de VidaCuraCancerSurvivorsChildQuality of LifeCureThis research describes aspects of the survival experience. It focuses on the perceptions of the patients and their parents regarding the disease, its treatment and the psychosocial adaptation of the survivors. The study group consisted of ten children, aged six to twelve, and their parents. Interviews were administered separately to patients and their parents. Additionally, the children were given the Anxiety Line-State Inventory (IDATE-C) and the Child Depression Inventory (CDI). Analysis indicated that more than a half of the children returned to their daily activities, and have a good psychosocial adaptation, despite continuing parental anxiety concerning the risks of relapse or arousal of a new tumor. The psychometric scales revealed no significant evidence of anxiety and depression in the survivors. We conclude that surviving cancer implies living with the paradox of the “cured" status and the constant risk of relapse. The ways the survivor and his family cope with this doubt seem do determine the quality oftheir adaptation and reinsertion. Future studies are suggested in order to analyze the variables involved in the development of abilities to live with the paradox of cure.A presente pesquisa teve como objetivo descrever e compreender a experiência de sobreviver ao câncer na infância, identificando a qualidade da reinserção e adaptação das crianças sobreviventes à vida quotidiana, após tratamento oncológico. Foram entrevistadas 10 crianças, com idade variando entre seis e doze anos, cujos pais foram entrevistados separadamente. As crianças respondiam ainda a duas escalas, o Inventário de Ansiedade Traço-Estado (IDATE-C) e o Inventário de Depressão Infantil (CDI). As entrevistas foram submetidas à análise de conteúdo e os resultados indicam que mais da metade das crianças apresenta-se bem adaptada à vida quotidiana, apesar dos pais sofrerem forte apreensão e ansiedade quanto à possibilidade de recidiva e surgimento de um segundo tumor. As escalas psicométricas não revelam índices altos de ansiedade e depressão. Conclui-se que a experiência de sobreviver ao câncer na infância implica na capacidade de conviver com o paradoxo existente entre o reconhecimento da condição de curado e a possibilidade constante de recidiva. O modo de enfrentamento desta ameaça é que parece determinar a qualidade de vida da criança e sua família no período de sobrevivência. Sugerem-se futuras investigações que focalizem as possíveis variáveis que influenciam no desenvolvimento das habilidades necessárias para conviver com o paradoxo da cura.INCA2022-09-21info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionArtigos, Avaliado pelos paresapplication/pdfhttps://rbc.inca.gov.br/index.php/revista/article/view/277910.32635/2176-9745.RBC.1999v45n3.2779Revista Brasileira de Cancerologia; Vol. 45 No. 3 (1999): July/Aug./Sept.; 15-22Revista Brasileira de Cancerologia; Vol. 45 Núm. 3 (1999): jul./ago./sept.; 15-22Revista Brasileira de Cancerologia; v. 45 n. 3 (1999): jul./ago./set.; 15-222176-9745reponame:Revista Brasileira de Cancerologia (Online)instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)instacron:INCAporhttps://rbc.inca.gov.br/index.php/revista/article/view/2779/1655https://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessArrais, Alessandra da RochaAraújo, Tereza Cristina Cavalcanti Ferreira de2023-01-18T15:15:10Zoai:rbc.inca.gov.br:article/2779Revistahttps://rbc.inca.gov.br/index.php/revistaPUBhttps://rbc.inca.gov.br/index.php/revista/oairbc@inca.gov.br0034-71162176-9745opendoar:2023-01-18T15:15:10Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)false |
dc.title.none.fl_str_mv |
Relapse Versus Cure: The Paradox of Surviving Childhood Câncer Recidiva Versus Cura: A Vivência Paradoxal da Sobrevivência ao Câncer na Infância |
title |
Relapse Versus Cure: The Paradox of Surviving Childhood Câncer |
spellingShingle |
Relapse Versus Cure: The Paradox of Surviving Childhood Câncer Arrais, Alessandra da Rocha Câncer Sobreviventes Crianças Qualidade de Vida Cura Cancer Survivors Child Quality of Life Cure |
title_short |
Relapse Versus Cure: The Paradox of Surviving Childhood Câncer |
title_full |
Relapse Versus Cure: The Paradox of Surviving Childhood Câncer |
title_fullStr |
Relapse Versus Cure: The Paradox of Surviving Childhood Câncer |
title_full_unstemmed |
Relapse Versus Cure: The Paradox of Surviving Childhood Câncer |
title_sort |
Relapse Versus Cure: The Paradox of Surviving Childhood Câncer |
author |
Arrais, Alessandra da Rocha |
author_facet |
Arrais, Alessandra da Rocha Araújo, Tereza Cristina Cavalcanti Ferreira de |
author_role |
author |
author2 |
Araújo, Tereza Cristina Cavalcanti Ferreira de |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Arrais, Alessandra da Rocha Araújo, Tereza Cristina Cavalcanti Ferreira de |
dc.subject.por.fl_str_mv |
Câncer Sobreviventes Crianças Qualidade de Vida Cura Cancer Survivors Child Quality of Life Cure |
topic |
Câncer Sobreviventes Crianças Qualidade de Vida Cura Cancer Survivors Child Quality of Life Cure |
description |
This research describes aspects of the survival experience. It focuses on the perceptions of the patients and their parents regarding the disease, its treatment and the psychosocial adaptation of the survivors. The study group consisted of ten children, aged six to twelve, and their parents. Interviews were administered separately to patients and their parents. Additionally, the children were given the Anxiety Line-State Inventory (IDATE-C) and the Child Depression Inventory (CDI). Analysis indicated that more than a half of the children returned to their daily activities, and have a good psychosocial adaptation, despite continuing parental anxiety concerning the risks of relapse or arousal of a new tumor. The psychometric scales revealed no significant evidence of anxiety and depression in the survivors. We conclude that surviving cancer implies living with the paradox of the “cured" status and the constant risk of relapse. The ways the survivor and his family cope with this doubt seem do determine the quality oftheir adaptation and reinsertion. Future studies are suggested in order to analyze the variables involved in the development of abilities to live with the paradox of cure. |
publishDate |
2022 |
dc.date.none.fl_str_mv |
2022-09-21 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Artigos, Avaliado pelos pares |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://rbc.inca.gov.br/index.php/revista/article/view/2779 10.32635/2176-9745.RBC.1999v45n3.2779 |
url |
https://rbc.inca.gov.br/index.php/revista/article/view/2779 |
identifier_str_mv |
10.32635/2176-9745.RBC.1999v45n3.2779 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://rbc.inca.gov.br/index.php/revista/article/view/2779/1655 |
dc.rights.driver.fl_str_mv |
https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
INCA |
publisher.none.fl_str_mv |
INCA |
dc.source.none.fl_str_mv |
Revista Brasileira de Cancerologia; Vol. 45 No. 3 (1999): July/Aug./Sept.; 15-22 Revista Brasileira de Cancerologia; Vol. 45 Núm. 3 (1999): jul./ago./sept.; 15-22 Revista Brasileira de Cancerologia; v. 45 n. 3 (1999): jul./ago./set.; 15-22 2176-9745 reponame:Revista Brasileira de Cancerologia (Online) instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) instacron:INCA |
instname_str |
Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) |
instacron_str |
INCA |
institution |
INCA |
reponame_str |
Revista Brasileira de Cancerologia (Online) |
collection |
Revista Brasileira de Cancerologia (Online) |
repository.name.fl_str_mv |
Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) |
repository.mail.fl_str_mv |
rbc@inca.gov.br |
_version_ |
1797042232893636608 |