Relapse Versus Cure: The Paradox of Surviving Childhood Câncer

Detalhes bibliográficos
Autor(a) principal: Arrais, Alessandra da Rocha
Data de Publicação: 2022
Outros Autores: Araújo, Tereza Cristina Cavalcanti Ferreira de
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista Brasileira de Cancerologia (Online)
Texto Completo: https://rbc.inca.gov.br/index.php/revista/article/view/2779
Resumo: This research describes aspects of the survival experience. It focuses on the perceptions of the patients and their parents regarding the disease, its treatment and the psychosocial adaptation of the survivors. The study group consisted of ten children, aged six to twelve, and their parents. Interviews were administered separately to patients and their parents. Additionally, the children were given the Anxiety Line-State Inventory (IDATE-C) and the Child Depression Inventory (CDI). Analysis indicated that more than a half of the children returned to their daily activities, and have a good psychosocial adaptation, despite continuing parental anxiety concerning the risks of relapse or arousal of a new tumor. The psychometric scales revealed no significant evidence of anxiety and depression in the survivors. We conclude that surviving cancer implies living with the paradox of the “cured" status and the constant risk of relapse. The ways the survivor and his family cope with this doubt seem do determine the quality oftheir adaptation and reinsertion. Future studies are suggested in order to analyze the variables involved in the development of abilities to live with the paradox of cure.
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spelling Relapse Versus Cure: The Paradox of Surviving Childhood CâncerRecidiva Versus Cura: A Vivência Paradoxal da Sobrevivência ao Câncer na InfânciaCâncerSobreviventesCriançasQualidade de VidaCuraCancerSurvivorsChildQuality of LifeCureThis research describes aspects of the survival experience. It focuses on the perceptions of the patients and their parents regarding the disease, its treatment and the psychosocial adaptation of the survivors. The study group consisted of ten children, aged six to twelve, and their parents. Interviews were administered separately to patients and their parents. Additionally, the children were given the Anxiety Line-State Inventory (IDATE-C) and the Child Depression Inventory (CDI). Analysis indicated that more than a half of the children returned to their daily activities, and have a good psychosocial adaptation, despite continuing parental anxiety concerning the risks of relapse or arousal of a new tumor. The psychometric scales revealed no significant evidence of anxiety and depression in the survivors. We conclude that surviving cancer implies living with the paradox of the “cured" status and the constant risk of relapse. The ways the survivor and his family cope with this doubt seem do determine the quality oftheir adaptation and reinsertion. Future studies are suggested in order to analyze the variables involved in the development of abilities to live with the paradox of cure.A presente pesquisa teve como objetivo descrever e compreender a experiência de sobreviver ao câncer na infância, identificando a qualidade da reinserção e adaptação das crianças sobreviventes à vida quotidiana, após tratamento oncológico. Foram entrevistadas 10 crianças, com idade variando entre seis e doze anos, cujos pais foram entrevistados separadamente. As crianças respondiam ainda a duas escalas, o Inventário de Ansiedade Traço-Estado (IDATE-C) e o Inventário de Depressão Infantil (CDI). As entrevistas foram submetidas à análise de conteúdo e os resultados indicam que mais da metade das crianças apresenta-se bem adaptada à vida quotidiana, apesar dos pais sofrerem forte apreensão e ansiedade quanto à possibilidade de recidiva e surgimento de um segundo tumor. As escalas psicométricas não revelam índices altos de ansiedade e depressão. Conclui-se que a experiência de sobreviver ao câncer na infância implica na capacidade de conviver com o paradoxo existente entre o reconhecimento da condição de curado e a possibilidade constante de recidiva. O modo de enfrentamento desta ameaça é que parece determinar a qualidade de vida da criança e sua família no período de sobrevivência. Sugerem-se futuras investigações que focalizem as possíveis variáveis que influenciam no desenvolvimento das habilidades necessárias para conviver com o paradoxo da cura.INCA2022-09-21info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionArtigos, Avaliado pelos paresapplication/pdfhttps://rbc.inca.gov.br/index.php/revista/article/view/277910.32635/2176-9745.RBC.1999v45n3.2779Revista Brasileira de Cancerologia; Vol. 45 No. 3 (1999): July/Aug./Sept.; 15-22Revista Brasileira de Cancerologia; Vol. 45 Núm. 3 (1999): jul./ago./sept.; 15-22Revista Brasileira de Cancerologia; v. 45 n. 3 (1999): jul./ago./set.; 15-222176-9745reponame:Revista Brasileira de Cancerologia (Online)instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)instacron:INCAporhttps://rbc.inca.gov.br/index.php/revista/article/view/2779/1655https://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessArrais, Alessandra da RochaAraújo, Tereza Cristina Cavalcanti Ferreira de2023-01-18T15:15:10Zoai:rbc.inca.gov.br:article/2779Revistahttps://rbc.inca.gov.br/index.php/revistaPUBhttps://rbc.inca.gov.br/index.php/revista/oairbc@inca.gov.br0034-71162176-9745opendoar:2023-01-18T15:15:10Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)false
dc.title.none.fl_str_mv Relapse Versus Cure: The Paradox of Surviving Childhood Câncer
Recidiva Versus Cura: A Vivência Paradoxal da Sobrevivência ao Câncer na Infância
title Relapse Versus Cure: The Paradox of Surviving Childhood Câncer
spellingShingle Relapse Versus Cure: The Paradox of Surviving Childhood Câncer
Arrais, Alessandra da Rocha
Câncer
Sobreviventes
Crianças
Qualidade de Vida
Cura
Cancer
Survivors
Child
Quality of Life
Cure
title_short Relapse Versus Cure: The Paradox of Surviving Childhood Câncer
title_full Relapse Versus Cure: The Paradox of Surviving Childhood Câncer
title_fullStr Relapse Versus Cure: The Paradox of Surviving Childhood Câncer
title_full_unstemmed Relapse Versus Cure: The Paradox of Surviving Childhood Câncer
title_sort Relapse Versus Cure: The Paradox of Surviving Childhood Câncer
author Arrais, Alessandra da Rocha
author_facet Arrais, Alessandra da Rocha
Araújo, Tereza Cristina Cavalcanti Ferreira de
author_role author
author2 Araújo, Tereza Cristina Cavalcanti Ferreira de
author2_role author
dc.contributor.author.fl_str_mv Arrais, Alessandra da Rocha
Araújo, Tereza Cristina Cavalcanti Ferreira de
dc.subject.por.fl_str_mv Câncer
Sobreviventes
Crianças
Qualidade de Vida
Cura
Cancer
Survivors
Child
Quality of Life
Cure
topic Câncer
Sobreviventes
Crianças
Qualidade de Vida
Cura
Cancer
Survivors
Child
Quality of Life
Cure
description This research describes aspects of the survival experience. It focuses on the perceptions of the patients and their parents regarding the disease, its treatment and the psychosocial adaptation of the survivors. The study group consisted of ten children, aged six to twelve, and their parents. Interviews were administered separately to patients and their parents. Additionally, the children were given the Anxiety Line-State Inventory (IDATE-C) and the Child Depression Inventory (CDI). Analysis indicated that more than a half of the children returned to their daily activities, and have a good psychosocial adaptation, despite continuing parental anxiety concerning the risks of relapse or arousal of a new tumor. The psychometric scales revealed no significant evidence of anxiety and depression in the survivors. We conclude that surviving cancer implies living with the paradox of the “cured" status and the constant risk of relapse. The ways the survivor and his family cope with this doubt seem do determine the quality oftheir adaptation and reinsertion. Future studies are suggested in order to analyze the variables involved in the development of abilities to live with the paradox of cure.
publishDate 2022
dc.date.none.fl_str_mv 2022-09-21
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
Artigos, Avaliado pelos pares
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dc.identifier.uri.fl_str_mv https://rbc.inca.gov.br/index.php/revista/article/view/2779
10.32635/2176-9745.RBC.1999v45n3.2779
url https://rbc.inca.gov.br/index.php/revista/article/view/2779
identifier_str_mv 10.32635/2176-9745.RBC.1999v45n3.2779
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://rbc.inca.gov.br/index.php/revista/article/view/2779/1655
dc.rights.driver.fl_str_mv https://creativecommons.org/licenses/by/4.0
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dc.publisher.none.fl_str_mv INCA
publisher.none.fl_str_mv INCA
dc.source.none.fl_str_mv Revista Brasileira de Cancerologia; Vol. 45 No. 3 (1999): July/Aug./Sept.; 15-22
Revista Brasileira de Cancerologia; Vol. 45 Núm. 3 (1999): jul./ago./sept.; 15-22
Revista Brasileira de Cancerologia; v. 45 n. 3 (1999): jul./ago./set.; 15-22
2176-9745
reponame:Revista Brasileira de Cancerologia (Online)
instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
instacron:INCA
instname_str Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
instacron_str INCA
institution INCA
reponame_str Revista Brasileira de Cancerologia (Online)
collection Revista Brasileira de Cancerologia (Online)
repository.name.fl_str_mv Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
repository.mail.fl_str_mv rbc@inca.gov.br
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