Perception and Expectations of Cancer Patients about the Anticipated Directives of Will

Detalhes bibliográficos
Autor(a) principal: Santana, Stefani Catarina Gois
Data de Publicação: 2022
Outros Autores: Câmara, Davi de Brito
Tipo de documento: Artigo
Idioma: por
eng
Título da fonte: Revista Brasileira de Cancerologia (Online)
Texto Completo: https://rbc.inca.gov.br/index.php/revista/article/view/1625
Resumo: Introduction: Anticipated Directives of Will is a document that allows patients to register previously and clearly expressed wills about care and treatments they want, or not, to receive in a situation of inability to express their will. Objective: Assess the perception and expectations of cancer patients about the concept and applicability of the Anticipated Directives of Will. Method: Descriptive, quantitative approach and cross-sectional study carried out with 346 patients from a reference hospital in oncology in the city of Recife-PE. The data were collected through the application of the game “Cards on the Table” (Go Wish®) and a questionnaire, according to the Likert-scale (degree of disagreement or agreement, from 0 to 10). Results: The mean of the knowledge of the term “Anticipated Directive of Will” was 0.64 points among patients. After explaining its meaning, the mean of the intent to prepare to was 8.58 points. The mean acceptance among patients was 9.42 points for the creation in the Brazilian legislation and 9.64 points for the implantation in the hospital where they were hospitalized. Conclusion: In the perception of these patients, although little known, the advance directives have shown to be an instrument capable of preserving their dignity and autonomy. Patients showed interest both in their elaboration and in their applicability, however, they expect to receive more information and guidance from health professionals.
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spelling Perception and Expectations of Cancer Patients about the Anticipated Directives of WillPercepción y Expectativas de los Pacientes con Cáncer sobre las Directrices de Voluntad AnticipadasPercepção e Expectativas de Pacientes com Câncer acerca das Diretivas Antecipadas de Vontadediretivas antecipadasautonomia pessoaldoente terminalbioéticaneoplasiasadvance directivespersonal autonomyterminally Illbioethicsneoplasmsdirectivas anticipadasautonomía personalenfermo terminalbioéticaneoplasiasIntroduction: Anticipated Directives of Will is a document that allows patients to register previously and clearly expressed wills about care and treatments they want, or not, to receive in a situation of inability to express their will. Objective: Assess the perception and expectations of cancer patients about the concept and applicability of the Anticipated Directives of Will. Method: Descriptive, quantitative approach and cross-sectional study carried out with 346 patients from a reference hospital in oncology in the city of Recife-PE. The data were collected through the application of the game “Cards on the Table” (Go Wish®) and a questionnaire, according to the Likert-scale (degree of disagreement or agreement, from 0 to 10). Results: The mean of the knowledge of the term “Anticipated Directive of Will” was 0.64 points among patients. After explaining its meaning, the mean of the intent to prepare to was 8.58 points. The mean acceptance among patients was 9.42 points for the creation in the Brazilian legislation and 9.64 points for the implantation in the hospital where they were hospitalized. Conclusion: In the perception of these patients, although little known, the advance directives have shown to be an instrument capable of preserving their dignity and autonomy. Patients showed interest both in their elaboration and in their applicability, however, they expect to receive more information and guidance from health professionals.Introducción: La Directiva de Voluntad Anticipada es un documento que permite registrar deseos, expresados previa y expresamente por el paciente, sobre los cuidados y tratamientos que quiere, o no, recibir en una situación de incapacidad para expresar su voluntad. Objetivo: Evaluar la percepción y las expectativas de los pacientes con cáncer sobre el concepto y aplicabilidad de las Directrices Anticipadas de Voluntad. Método: Estudio descriptivo y transversal de carácter cuantitativo, realizado con 346 pacientes de un hospital de referencia en oncología de la ciudad de Recife-PE. Los datos fueron recolectados mediante la aplicación del juego “Cartas sobre la Mesa” (Go Wish®) y un cuestionario, según la escala numérica Likert (grado de desacuerdo o acuerdo, de 0 a 10). Resultados: El conocimiento del término “Directiva de voluntad anticipada” alcanzó sólo un promedio de 0,64 puntos entre los pacientes. Tras explicar su significado, la intención de obtener una media de 8,58 puntos. La aceptación media entre los pacientes fue de 9,42 puntos para la implantación en la legislación brasileña y de 9,64 puntos para la implantación en el hospital donde fueron hospitalizados. Conclusión: En la percepción de estos pacientes, aunque poco, como directivas anticipadas representan un instrumento capaz de preservar su dignidad y autonomía. Los pacientes mostraron interés tanto en su evolución como en su aplicabilidad, sin embargo, agregando más información y orientación de los profesionales que atienden un tema.Introdução: Diretiva Antecipada de Vontade é um documento que permite registrar desejos prévios e expressamente manifestados pelo paciente sobre cuidados e tratamentos que desejam, ou não, receber em uma situação de incapacidade de expressar sua vontade. Objetivo: Avaliar a percepção e as expectativas de pacientes com câncer acerca do conceito e aplicabilidade das Diretivas Antecipadas de Vontade. Método: Estudo descritivo e transversal, de natureza quantitativa, realizado com 346 pacientes de uma instituição hospitalar de referência em Oncologia no município de Recife-PE. Os dados foram coletados por meio da aplicação do jogo “Cartas na Mesa” (Go Wish®) e de um questionário, desenhado segundo a escala numérica de Likert (grau de discordância ou concordância, de 0 a 10). Resultados: O conhecimento do termo “Diretiva Antecipada de Vontade” alcançou apenas a média de 0,64 pontos entre os pacientes. Após a explicação de seu significado, a intenção de elaboração obteve média de 8,58 pontos. A média de aceitação entre os pacientes foi de 9,42 pontos para implantação na legislação brasileira e 9,64 pontos para implantação na instituição hospitalar onde estavam internados. Conclusão: Na percepção desses pacientes, embora pouco conhecidas, as diretivas antecipadas se mostraram um instrumento capaz de preservar sua dignidade e autonomia. Os pacientes demonstraram interesse tanto por sua elaboração quanto por sua aplicabilidade, no entanto, esperaram receber mais informações e orientações dos profissionais em relação a essa temática.INCA2022-03-10info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionArtigos, Avaliado pelos paresapplication/pdfapplication/pdftext/htmlhttps://rbc.inca.gov.br/index.php/revista/article/view/162510.32635/2176-9745.RBC.2022v68n1.1625Revista Brasileira de Cancerologia; Vol. 68 No. 1 (2022): Jan./Feb./Mar.; e-181625Revista Brasileira de Cancerologia; Vol. 68 Núm. 1 (2022): ene./feb./mar.; e-181625Revista Brasileira de Cancerologia; v. 68 n. 1 (2022): jan./fev./mar.; e-1816252176-9745reponame:Revista Brasileira de Cancerologia (Online)instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)instacron:INCAporenghttps://rbc.inca.gov.br/index.php/revista/article/view/1625/2480https://rbc.inca.gov.br/index.php/revista/article/view/1625/1930https://rbc.inca.gov.br/index.php/revista/article/view/1625/2429Copyright (c) 2022 Revista Brasileira de Cancerologiahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessSantana, Stefani Catarina Gois Câmara, Davi de Brito2022-12-13T16:33:10Zoai:rbc.inca.gov.br:article/1625Revistahttps://rbc.inca.gov.br/index.php/revistaPUBhttps://rbc.inca.gov.br/index.php/revista/oairbc@inca.gov.br0034-71162176-9745opendoar:2022-12-13T16:33:10Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)false
dc.title.none.fl_str_mv Perception and Expectations of Cancer Patients about the Anticipated Directives of Will
Percepción y Expectativas de los Pacientes con Cáncer sobre las Directrices de Voluntad Anticipadas
Percepção e Expectativas de Pacientes com Câncer acerca das Diretivas Antecipadas de Vontade
title Perception and Expectations of Cancer Patients about the Anticipated Directives of Will
spellingShingle Perception and Expectations of Cancer Patients about the Anticipated Directives of Will
Santana, Stefani Catarina Gois
diretivas antecipadas
autonomia pessoal
doente terminal
bioética
neoplasias
advance directives
personal autonomy
terminally Ill
bioethics
neoplasms
directivas anticipadas
autonomía personal
enfermo terminal
bioética
neoplasias
title_short Perception and Expectations of Cancer Patients about the Anticipated Directives of Will
title_full Perception and Expectations of Cancer Patients about the Anticipated Directives of Will
title_fullStr Perception and Expectations of Cancer Patients about the Anticipated Directives of Will
title_full_unstemmed Perception and Expectations of Cancer Patients about the Anticipated Directives of Will
title_sort Perception and Expectations of Cancer Patients about the Anticipated Directives of Will
author Santana, Stefani Catarina Gois
author_facet Santana, Stefani Catarina Gois
Câmara, Davi de Brito
author_role author
author2 Câmara, Davi de Brito
author2_role author
dc.contributor.author.fl_str_mv Santana, Stefani Catarina Gois
Câmara, Davi de Brito
dc.subject.por.fl_str_mv diretivas antecipadas
autonomia pessoal
doente terminal
bioética
neoplasias
advance directives
personal autonomy
terminally Ill
bioethics
neoplasms
directivas anticipadas
autonomía personal
enfermo terminal
bioética
neoplasias
topic diretivas antecipadas
autonomia pessoal
doente terminal
bioética
neoplasias
advance directives
personal autonomy
terminally Ill
bioethics
neoplasms
directivas anticipadas
autonomía personal
enfermo terminal
bioética
neoplasias
description Introduction: Anticipated Directives of Will is a document that allows patients to register previously and clearly expressed wills about care and treatments they want, or not, to receive in a situation of inability to express their will. Objective: Assess the perception and expectations of cancer patients about the concept and applicability of the Anticipated Directives of Will. Method: Descriptive, quantitative approach and cross-sectional study carried out with 346 patients from a reference hospital in oncology in the city of Recife-PE. The data were collected through the application of the game “Cards on the Table” (Go Wish®) and a questionnaire, according to the Likert-scale (degree of disagreement or agreement, from 0 to 10). Results: The mean of the knowledge of the term “Anticipated Directive of Will” was 0.64 points among patients. After explaining its meaning, the mean of the intent to prepare to was 8.58 points. The mean acceptance among patients was 9.42 points for the creation in the Brazilian legislation and 9.64 points for the implantation in the hospital where they were hospitalized. Conclusion: In the perception of these patients, although little known, the advance directives have shown to be an instrument capable of preserving their dignity and autonomy. Patients showed interest both in their elaboration and in their applicability, however, they expect to receive more information and guidance from health professionals.
publishDate 2022
dc.date.none.fl_str_mv 2022-03-10
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
Artigos, Avaliado pelos pares
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status_str publishedVersion
dc.identifier.uri.fl_str_mv https://rbc.inca.gov.br/index.php/revista/article/view/1625
10.32635/2176-9745.RBC.2022v68n1.1625
url https://rbc.inca.gov.br/index.php/revista/article/view/1625
identifier_str_mv 10.32635/2176-9745.RBC.2022v68n1.1625
dc.language.iso.fl_str_mv por
eng
language por
eng
dc.relation.none.fl_str_mv https://rbc.inca.gov.br/index.php/revista/article/view/1625/2480
https://rbc.inca.gov.br/index.php/revista/article/view/1625/1930
https://rbc.inca.gov.br/index.php/revista/article/view/1625/2429
dc.rights.driver.fl_str_mv Copyright (c) 2022 Revista Brasileira de Cancerologia
https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2022 Revista Brasileira de Cancerologia
https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
text/html
dc.publisher.none.fl_str_mv INCA
publisher.none.fl_str_mv INCA
dc.source.none.fl_str_mv Revista Brasileira de Cancerologia; Vol. 68 No. 1 (2022): Jan./Feb./Mar.; e-181625
Revista Brasileira de Cancerologia; Vol. 68 Núm. 1 (2022): ene./feb./mar.; e-181625
Revista Brasileira de Cancerologia; v. 68 n. 1 (2022): jan./fev./mar.; e-181625
2176-9745
reponame:Revista Brasileira de Cancerologia (Online)
instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
instacron:INCA
instname_str Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
instacron_str INCA
institution INCA
reponame_str Revista Brasileira de Cancerologia (Online)
collection Revista Brasileira de Cancerologia (Online)
repository.name.fl_str_mv Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
repository.mail.fl_str_mv rbc@inca.gov.br
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