Perception and Expectations of Cancer Patients about the Anticipated Directives of Will
Autor(a) principal: | |
---|---|
Data de Publicação: | 2022 |
Outros Autores: | |
Tipo de documento: | Artigo |
Idioma: | por eng |
Título da fonte: | Revista Brasileira de Cancerologia (Online) |
Texto Completo: | https://rbc.inca.gov.br/index.php/revista/article/view/1625 |
Resumo: | Introduction: Anticipated Directives of Will is a document that allows patients to register previously and clearly expressed wills about care and treatments they want, or not, to receive in a situation of inability to express their will. Objective: Assess the perception and expectations of cancer patients about the concept and applicability of the Anticipated Directives of Will. Method: Descriptive, quantitative approach and cross-sectional study carried out with 346 patients from a reference hospital in oncology in the city of Recife-PE. The data were collected through the application of the game “Cards on the Table” (Go Wish®) and a questionnaire, according to the Likert-scale (degree of disagreement or agreement, from 0 to 10). Results: The mean of the knowledge of the term “Anticipated Directive of Will” was 0.64 points among patients. After explaining its meaning, the mean of the intent to prepare to was 8.58 points. The mean acceptance among patients was 9.42 points for the creation in the Brazilian legislation and 9.64 points for the implantation in the hospital where they were hospitalized. Conclusion: In the perception of these patients, although little known, the advance directives have shown to be an instrument capable of preserving their dignity and autonomy. Patients showed interest both in their elaboration and in their applicability, however, they expect to receive more information and guidance from health professionals. |
id |
INCA-1_b2ba3e3e113ae25ef9b92bbd66544ade |
---|---|
oai_identifier_str |
oai:rbc.inca.gov.br:article/1625 |
network_acronym_str |
INCA-1 |
network_name_str |
Revista Brasileira de Cancerologia (Online) |
repository_id_str |
|
spelling |
Perception and Expectations of Cancer Patients about the Anticipated Directives of WillPercepción y Expectativas de los Pacientes con Cáncer sobre las Directrices de Voluntad AnticipadasPercepção e Expectativas de Pacientes com Câncer acerca das Diretivas Antecipadas de Vontadediretivas antecipadasautonomia pessoaldoente terminalbioéticaneoplasiasadvance directivespersonal autonomyterminally Illbioethicsneoplasmsdirectivas anticipadasautonomía personalenfermo terminalbioéticaneoplasiasIntroduction: Anticipated Directives of Will is a document that allows patients to register previously and clearly expressed wills about care and treatments they want, or not, to receive in a situation of inability to express their will. Objective: Assess the perception and expectations of cancer patients about the concept and applicability of the Anticipated Directives of Will. Method: Descriptive, quantitative approach and cross-sectional study carried out with 346 patients from a reference hospital in oncology in the city of Recife-PE. The data were collected through the application of the game “Cards on the Table” (Go Wish®) and a questionnaire, according to the Likert-scale (degree of disagreement or agreement, from 0 to 10). Results: The mean of the knowledge of the term “Anticipated Directive of Will” was 0.64 points among patients. After explaining its meaning, the mean of the intent to prepare to was 8.58 points. The mean acceptance among patients was 9.42 points for the creation in the Brazilian legislation and 9.64 points for the implantation in the hospital where they were hospitalized. Conclusion: In the perception of these patients, although little known, the advance directives have shown to be an instrument capable of preserving their dignity and autonomy. Patients showed interest both in their elaboration and in their applicability, however, they expect to receive more information and guidance from health professionals.Introducción: La Directiva de Voluntad Anticipada es un documento que permite registrar deseos, expresados previa y expresamente por el paciente, sobre los cuidados y tratamientos que quiere, o no, recibir en una situación de incapacidad para expresar su voluntad. Objetivo: Evaluar la percepción y las expectativas de los pacientes con cáncer sobre el concepto y aplicabilidad de las Directrices Anticipadas de Voluntad. Método: Estudio descriptivo y transversal de carácter cuantitativo, realizado con 346 pacientes de un hospital de referencia en oncología de la ciudad de Recife-PE. Los datos fueron recolectados mediante la aplicación del juego “Cartas sobre la Mesa” (Go Wish®) y un cuestionario, según la escala numérica Likert (grado de desacuerdo o acuerdo, de 0 a 10). Resultados: El conocimiento del término “Directiva de voluntad anticipada” alcanzó sólo un promedio de 0,64 puntos entre los pacientes. Tras explicar su significado, la intención de obtener una media de 8,58 puntos. La aceptación media entre los pacientes fue de 9,42 puntos para la implantación en la legislación brasileña y de 9,64 puntos para la implantación en el hospital donde fueron hospitalizados. Conclusión: En la percepción de estos pacientes, aunque poco, como directivas anticipadas representan un instrumento capaz de preservar su dignidad y autonomía. Los pacientes mostraron interés tanto en su evolución como en su aplicabilidad, sin embargo, agregando más información y orientación de los profesionales que atienden un tema.Introdução: Diretiva Antecipada de Vontade é um documento que permite registrar desejos prévios e expressamente manifestados pelo paciente sobre cuidados e tratamentos que desejam, ou não, receber em uma situação de incapacidade de expressar sua vontade. Objetivo: Avaliar a percepção e as expectativas de pacientes com câncer acerca do conceito e aplicabilidade das Diretivas Antecipadas de Vontade. Método: Estudo descritivo e transversal, de natureza quantitativa, realizado com 346 pacientes de uma instituição hospitalar de referência em Oncologia no município de Recife-PE. Os dados foram coletados por meio da aplicação do jogo “Cartas na Mesa” (Go Wish®) e de um questionário, desenhado segundo a escala numérica de Likert (grau de discordância ou concordância, de 0 a 10). Resultados: O conhecimento do termo “Diretiva Antecipada de Vontade” alcançou apenas a média de 0,64 pontos entre os pacientes. Após a explicação de seu significado, a intenção de elaboração obteve média de 8,58 pontos. A média de aceitação entre os pacientes foi de 9,42 pontos para implantação na legislação brasileira e 9,64 pontos para implantação na instituição hospitalar onde estavam internados. Conclusão: Na percepção desses pacientes, embora pouco conhecidas, as diretivas antecipadas se mostraram um instrumento capaz de preservar sua dignidade e autonomia. Os pacientes demonstraram interesse tanto por sua elaboração quanto por sua aplicabilidade, no entanto, esperaram receber mais informações e orientações dos profissionais em relação a essa temática.INCA2022-03-10info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionArtigos, Avaliado pelos paresapplication/pdfapplication/pdftext/htmlhttps://rbc.inca.gov.br/index.php/revista/article/view/162510.32635/2176-9745.RBC.2022v68n1.1625Revista Brasileira de Cancerologia; Vol. 68 No. 1 (2022): Jan./Feb./Mar.; e-181625Revista Brasileira de Cancerologia; Vol. 68 Núm. 1 (2022): ene./feb./mar.; e-181625Revista Brasileira de Cancerologia; v. 68 n. 1 (2022): jan./fev./mar.; e-1816252176-9745reponame:Revista Brasileira de Cancerologia (Online)instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)instacron:INCAporenghttps://rbc.inca.gov.br/index.php/revista/article/view/1625/2480https://rbc.inca.gov.br/index.php/revista/article/view/1625/1930https://rbc.inca.gov.br/index.php/revista/article/view/1625/2429Copyright (c) 2022 Revista Brasileira de Cancerologiahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessSantana, Stefani Catarina Gois Câmara, Davi de Brito2022-12-13T16:33:10Zoai:rbc.inca.gov.br:article/1625Revistahttps://rbc.inca.gov.br/index.php/revistaPUBhttps://rbc.inca.gov.br/index.php/revista/oairbc@inca.gov.br0034-71162176-9745opendoar:2022-12-13T16:33:10Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)false |
dc.title.none.fl_str_mv |
Perception and Expectations of Cancer Patients about the Anticipated Directives of Will Percepción y Expectativas de los Pacientes con Cáncer sobre las Directrices de Voluntad Anticipadas Percepção e Expectativas de Pacientes com Câncer acerca das Diretivas Antecipadas de Vontade |
title |
Perception and Expectations of Cancer Patients about the Anticipated Directives of Will |
spellingShingle |
Perception and Expectations of Cancer Patients about the Anticipated Directives of Will Santana, Stefani Catarina Gois diretivas antecipadas autonomia pessoal doente terminal bioética neoplasias advance directives personal autonomy terminally Ill bioethics neoplasms directivas anticipadas autonomía personal enfermo terminal bioética neoplasias |
title_short |
Perception and Expectations of Cancer Patients about the Anticipated Directives of Will |
title_full |
Perception and Expectations of Cancer Patients about the Anticipated Directives of Will |
title_fullStr |
Perception and Expectations of Cancer Patients about the Anticipated Directives of Will |
title_full_unstemmed |
Perception and Expectations of Cancer Patients about the Anticipated Directives of Will |
title_sort |
Perception and Expectations of Cancer Patients about the Anticipated Directives of Will |
author |
Santana, Stefani Catarina Gois |
author_facet |
Santana, Stefani Catarina Gois Câmara, Davi de Brito |
author_role |
author |
author2 |
Câmara, Davi de Brito |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Santana, Stefani Catarina Gois Câmara, Davi de Brito |
dc.subject.por.fl_str_mv |
diretivas antecipadas autonomia pessoal doente terminal bioética neoplasias advance directives personal autonomy terminally Ill bioethics neoplasms directivas anticipadas autonomía personal enfermo terminal bioética neoplasias |
topic |
diretivas antecipadas autonomia pessoal doente terminal bioética neoplasias advance directives personal autonomy terminally Ill bioethics neoplasms directivas anticipadas autonomía personal enfermo terminal bioética neoplasias |
description |
Introduction: Anticipated Directives of Will is a document that allows patients to register previously and clearly expressed wills about care and treatments they want, or not, to receive in a situation of inability to express their will. Objective: Assess the perception and expectations of cancer patients about the concept and applicability of the Anticipated Directives of Will. Method: Descriptive, quantitative approach and cross-sectional study carried out with 346 patients from a reference hospital in oncology in the city of Recife-PE. The data were collected through the application of the game “Cards on the Table” (Go Wish®) and a questionnaire, according to the Likert-scale (degree of disagreement or agreement, from 0 to 10). Results: The mean of the knowledge of the term “Anticipated Directive of Will” was 0.64 points among patients. After explaining its meaning, the mean of the intent to prepare to was 8.58 points. The mean acceptance among patients was 9.42 points for the creation in the Brazilian legislation and 9.64 points for the implantation in the hospital where they were hospitalized. Conclusion: In the perception of these patients, although little known, the advance directives have shown to be an instrument capable of preserving their dignity and autonomy. Patients showed interest both in their elaboration and in their applicability, however, they expect to receive more information and guidance from health professionals. |
publishDate |
2022 |
dc.date.none.fl_str_mv |
2022-03-10 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Artigos, Avaliado pelos pares |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://rbc.inca.gov.br/index.php/revista/article/view/1625 10.32635/2176-9745.RBC.2022v68n1.1625 |
url |
https://rbc.inca.gov.br/index.php/revista/article/view/1625 |
identifier_str_mv |
10.32635/2176-9745.RBC.2022v68n1.1625 |
dc.language.iso.fl_str_mv |
por eng |
language |
por eng |
dc.relation.none.fl_str_mv |
https://rbc.inca.gov.br/index.php/revista/article/view/1625/2480 https://rbc.inca.gov.br/index.php/revista/article/view/1625/1930 https://rbc.inca.gov.br/index.php/revista/article/view/1625/2429 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2022 Revista Brasileira de Cancerologia https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2022 Revista Brasileira de Cancerologia https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf application/pdf text/html |
dc.publisher.none.fl_str_mv |
INCA |
publisher.none.fl_str_mv |
INCA |
dc.source.none.fl_str_mv |
Revista Brasileira de Cancerologia; Vol. 68 No. 1 (2022): Jan./Feb./Mar.; e-181625 Revista Brasileira de Cancerologia; Vol. 68 Núm. 1 (2022): ene./feb./mar.; e-181625 Revista Brasileira de Cancerologia; v. 68 n. 1 (2022): jan./fev./mar.; e-181625 2176-9745 reponame:Revista Brasileira de Cancerologia (Online) instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) instacron:INCA |
instname_str |
Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) |
instacron_str |
INCA |
institution |
INCA |
reponame_str |
Revista Brasileira de Cancerologia (Online) |
collection |
Revista Brasileira de Cancerologia (Online) |
repository.name.fl_str_mv |
Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) |
repository.mail.fl_str_mv |
rbc@inca.gov.br |
_version_ |
1797042247475134464 |