Reliability of the EORTC QLQ-INFO25 to Assess Cancer Patients’ Information Needs
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2022 |
| Outros Autores: | , , , , |
| Tipo de documento: | Artigo |
| Idioma: | por eng |
| Título da fonte: | Revista Brasileira de Cancerologia (Online) |
| Texto Completo: | https://rbc.inca.gov.br/index.php/revista/article/view/2151 |
Resumo: | Introduction: Most patients do not have a satisfactory degree of understanding about cancer. For the information communication process to be truly effective, it is necessary to identify the patient’s level of knowledge beforehand. Objective: To verify the test-retest stability of the EORTC QLQ-INFO25 instrument, in its Brazilian Portuguese version, to assess cancer patient’s information needs. Method: The instrument was applied in 253 patients hospitalized in the clinical and surgical wards of a high-complexity cancer treatment hospital located in the city of Rio de Janeiro through the application of a questionnaire in an individual interview. To test the adequacy of the measurement process, 85 patients adhered to the retest, with an interval of 7 to 15 days. Data were entered into a database by independent double typing in the Excel program, and the analysis was performed using simple and weighted Kappa statistics. Results: Responses were stable, and test-retest reliability estimates ranged from good to excellent (0.66 to 0.99). The instrument also demonstrated good stability when applied to other populations and patients with different types of cancer. Conclusion: The EORTEC QLQ-INFO25 instrument can contribute for the measurement of patient satisfaction in relation to their need for information since the results suggest a high stability of information, making its applicability in the Brazilian population viable. |
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Reliability of the EORTC QLQ-INFO25 to Assess Cancer Patients’ Information NeedsFiabilidad de la EORTC QLQ-INFO25 para Evaluar las Necesidades de Información de los Pacientes con CáncerConfiabilidade do EORTC QLQ-INFO25 para Avaliar a Necessidade de Informação de Pacientes Oncológicossatisfação do paciente/estatística & dados numéricosestudo de validaçãoreprodutibilidade dos testescomunicação em saúdeneoplasiaspatient satisfaction/statistics & numerical datavalidation studyreproducibility of resultshealth communicationneoplasmssatisfacción del paciente/estadística & datos numéricosestudio de validaciónreproducibilidad de los resultadoscomunicación en saludneoplasiasIntroduction: Most patients do not have a satisfactory degree of understanding about cancer. For the information communication process to be truly effective, it is necessary to identify the patient’s level of knowledge beforehand. Objective: To verify the test-retest stability of the EORTC QLQ-INFO25 instrument, in its Brazilian Portuguese version, to assess cancer patient’s information needs. Method: The instrument was applied in 253 patients hospitalized in the clinical and surgical wards of a high-complexity cancer treatment hospital located in the city of Rio de Janeiro through the application of a questionnaire in an individual interview. To test the adequacy of the measurement process, 85 patients adhered to the retest, with an interval of 7 to 15 days. Data were entered into a database by independent double typing in the Excel program, and the analysis was performed using simple and weighted Kappa statistics. Results: Responses were stable, and test-retest reliability estimates ranged from good to excellent (0.66 to 0.99). The instrument also demonstrated good stability when applied to other populations and patients with different types of cancer. Conclusion: The EORTEC QLQ-INFO25 instrument can contribute for the measurement of patient satisfaction in relation to their need for information since the results suggest a high stability of information, making its applicability in the Brazilian population viable.Introducción: La mayoría de los pacientes no tiene un grado satisfactorio de conocimiento sobre el cáncer. Para que el proceso de comunicación de la información sea realmente efectivo, es necesario identificar de antemano el nivel de conocimiento del paciente. Objetivo: Verificar la estabilidad testretest del instrumento EORTC QLQ-INFO25, en su versión portuguesa de Brasil, para evaluar la necesidad de información en pacientes con cáncer. Método: El instrumento se aplicó a 253 pacientes hospitalizados en las salas clínico-quirúrgicas de un hospital de tratamiento oncológico de alta complejidad ubicado en la ciudad de Rio de Janeiro mediante la aplicación de un cuestionario a modo de entrevista individual. Para probar la idoneidad del proceso de medición, 85 pacientes se adhirieron a la nueva prueba, con un intervalo de 7 a 15 días. Los datos se ingresaron en una base de datos mediante doble entrada independiente, en el programa Excel, y el análisis se realizó utilizando estadísticas Kappa simples y ponderada. Resultados: Las respuestas fueron estables y las estimaciones de fiabilidad test-retest variaron de buenas a excelentes (0,66 a 0,99). El instrumento también demostró una buena estabilidad cuando se aplicó a otras poblaciones y pacientes con diferentes tipos de cáncer. Conclusión: El instrumento EORTEC QLQINFO25 puede contribuir a la medición de la satisfacción del paciente en relación a su necesidad de información ya que los resultados sugieren una alta estabilidad de la información, viabilizando su aplicabilidad en la población brasileña.Introdução: A maioria dos pacientes não possui um grau satisfatório de compreensão acerca do câncer. Para que o processo de comunicação de informações seja verdadeiramente efetivo, e necessário identificar anteriormente o nível de conhecimento do paciente. Objetivo: Verificar a estabilidade teste-reteste do instrumento EORTC QLQ-INFO25 em sua versão em português do Brasil, para avaliação da necessidade de informação do paciente oncológico. Método: O instrumento foi aplicado em 253 pacientes hospitalizados nas enfermarias clinicas e cirúrgicas de um hospital de alta complexidade no tratamento do câncer situado no município do Rio de Janeiro, por meio de um questionário com entrevista individual. Para testar a adequação do processo de aferição, 85 pacientes aderiram ao reteste, com intervalo de sete a 15 dias. Os dados foram inseridos em um banco de dados por dupla digitação independente no programa Microsoft Excel. A análise foi realizada por meio da estatística Kappa simples e ponderada. Resultados: As respostas mostraram-se estáveis, e as estimativas de confiabilidade teste-reteste variaram de boas a excelentes (0,66 a 0,99). O instrumento também demonstrou boa estabilidade quando aplicado em outras populações e em pacientes com diferentes tipos de câncer. Conclusão: O instrumento EORTEC QLQ-INFO25 pode contribuir para a mensuração da satisfação do paciente em relação a sua necessidade de informação, uma vez que os resultados sugerem alta estabilidade das informações, tornando viável a sua aplicabilidade na população brasileira.INCA2022-07-29info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionArtigos, Avaliado pelos paresapplication/pdfapplication/pdftext/htmlhttps://rbc.inca.gov.br/index.php/revista/article/view/215110.32635/2176-9745.RBC.2022v68n3.2151Revista Brasileira de Cancerologia; Vol. 68 No. 3 (2022): July/Aug./Sept.; e-072151Revista Brasileira de Cancerologia; Vol. 68 Núm. 3 (2022): jul./ago./sept; e-072151Revista Brasileira de Cancerologia; v. 68 n. 3 (2022): jul./ago./set.; e-0721512176-9745reponame:Revista Brasileira de Cancerologia (Online)instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)instacron:INCAporenghttps://rbc.inca.gov.br/index.php/revista/article/view/2151/2483https://rbc.inca.gov.br/index.php/revista/article/view/2151/2486https://rbc.inca.gov.br/index.php/revista/article/view/2151/2482Copyright (c) 2022 Revista Brasileira de Cancerologiahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessRodrigues, Claudia FernandesMartins, Thalyta Cássia de FreitasMuzi, Camila DrumondCoutinho, José Victor AfonsoJomar, Rafael TavaresGuimarães, Raphael Mendonça2022-12-15T15:01:38Zoai:rbc.inca.gov.br:article/2151Revistahttps://rbc.inca.gov.br/index.php/revistaPUBhttps://rbc.inca.gov.br/index.php/revista/oairbc@inca.gov.br0034-71162176-9745opendoar:2022-12-15T15:01:38Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)false |
| dc.title.none.fl_str_mv |
Reliability of the EORTC QLQ-INFO25 to Assess Cancer Patients’ Information Needs Fiabilidad de la EORTC QLQ-INFO25 para Evaluar las Necesidades de Información de los Pacientes con Cáncer Confiabilidade do EORTC QLQ-INFO25 para Avaliar a Necessidade de Informação de Pacientes Oncológicos |
| title |
Reliability of the EORTC QLQ-INFO25 to Assess Cancer Patients’ Information Needs |
| spellingShingle |
Reliability of the EORTC QLQ-INFO25 to Assess Cancer Patients’ Information Needs Rodrigues, Claudia Fernandes satisfação do paciente/estatística & dados numéricos estudo de validação reprodutibilidade dos testes comunicação em saúde neoplasias patient satisfaction/statistics & numerical data validation study reproducibility of results health communication neoplasms satisfacción del paciente/estadística & datos numéricos estudio de validación reproducibilidad de los resultados comunicación en salud neoplasias |
| title_short |
Reliability of the EORTC QLQ-INFO25 to Assess Cancer Patients’ Information Needs |
| title_full |
Reliability of the EORTC QLQ-INFO25 to Assess Cancer Patients’ Information Needs |
| title_fullStr |
Reliability of the EORTC QLQ-INFO25 to Assess Cancer Patients’ Information Needs |
| title_full_unstemmed |
Reliability of the EORTC QLQ-INFO25 to Assess Cancer Patients’ Information Needs |
| title_sort |
Reliability of the EORTC QLQ-INFO25 to Assess Cancer Patients’ Information Needs |
| author |
Rodrigues, Claudia Fernandes |
| author_facet |
Rodrigues, Claudia Fernandes Martins, Thalyta Cássia de Freitas Muzi, Camila Drumond Coutinho, José Victor Afonso Jomar, Rafael Tavares Guimarães, Raphael Mendonça |
| author_role |
author |
| author2 |
Martins, Thalyta Cássia de Freitas Muzi, Camila Drumond Coutinho, José Victor Afonso Jomar, Rafael Tavares Guimarães, Raphael Mendonça |
| author2_role |
author author author author author |
| dc.contributor.author.fl_str_mv |
Rodrigues, Claudia Fernandes Martins, Thalyta Cássia de Freitas Muzi, Camila Drumond Coutinho, José Victor Afonso Jomar, Rafael Tavares Guimarães, Raphael Mendonça |
| dc.subject.por.fl_str_mv |
satisfação do paciente/estatística & dados numéricos estudo de validação reprodutibilidade dos testes comunicação em saúde neoplasias patient satisfaction/statistics & numerical data validation study reproducibility of results health communication neoplasms satisfacción del paciente/estadística & datos numéricos estudio de validación reproducibilidad de los resultados comunicación en salud neoplasias |
| topic |
satisfação do paciente/estatística & dados numéricos estudo de validação reprodutibilidade dos testes comunicação em saúde neoplasias patient satisfaction/statistics & numerical data validation study reproducibility of results health communication neoplasms satisfacción del paciente/estadística & datos numéricos estudio de validación reproducibilidad de los resultados comunicación en salud neoplasias |
| description |
Introduction: Most patients do not have a satisfactory degree of understanding about cancer. For the information communication process to be truly effective, it is necessary to identify the patient’s level of knowledge beforehand. Objective: To verify the test-retest stability of the EORTC QLQ-INFO25 instrument, in its Brazilian Portuguese version, to assess cancer patient’s information needs. Method: The instrument was applied in 253 patients hospitalized in the clinical and surgical wards of a high-complexity cancer treatment hospital located in the city of Rio de Janeiro through the application of a questionnaire in an individual interview. To test the adequacy of the measurement process, 85 patients adhered to the retest, with an interval of 7 to 15 days. Data were entered into a database by independent double typing in the Excel program, and the analysis was performed using simple and weighted Kappa statistics. Results: Responses were stable, and test-retest reliability estimates ranged from good to excellent (0.66 to 0.99). The instrument also demonstrated good stability when applied to other populations and patients with different types of cancer. Conclusion: The EORTEC QLQ-INFO25 instrument can contribute for the measurement of patient satisfaction in relation to their need for information since the results suggest a high stability of information, making its applicability in the Brazilian population viable. |
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2022 |
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2022-07-29 |
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info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Artigos, Avaliado pelos pares |
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https://rbc.inca.gov.br/index.php/revista/article/view/2151 10.32635/2176-9745.RBC.2022v68n3.2151 |
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Copyright (c) 2022 Revista Brasileira de Cancerologia https://creativecommons.org/licenses/by/4.0 |
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Revista Brasileira de Cancerologia; Vol. 68 No. 3 (2022): July/Aug./Sept.; e-072151 Revista Brasileira de Cancerologia; Vol. 68 Núm. 3 (2022): jul./ago./sept; e-072151 Revista Brasileira de Cancerologia; v. 68 n. 3 (2022): jul./ago./set.; e-072151 2176-9745 reponame:Revista Brasileira de Cancerologia (Online) instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) instacron:INCA |
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