How an Educational Material Would Be Like? Perceptions of Relatives of Children with Leukemia
Autor(a) principal: | |
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Data de Publicação: | 2023 |
Outros Autores: | , , , , |
Tipo de documento: | Artigo |
Idioma: | por eng spa |
Título da fonte: | Revista Brasileira de Cancerologia (Online) |
Texto Completo: | https://rbc.inca.gov.br/index.php/revista/article/view/4026 |
Resumo: | Introduction: The child with leukemia, when at home, requires special care. In this context, family members are faced with care-related demands that need to be learned due to their child´s clinical condition. This article is part of the research “The learning demands of family members of children with leukemia for home care”. Objective: To know the perceptions of family members of children with leukemia about the proposal to build education materials for home care and describe the themes that family members considered significant in the composition of these materials. Method: Participatory study developed in a children’s hematology ward in Rio de Janeiro. Paulo Freire´s problematizing education was the theory utilized to support the study. Data were collected through three discussion circles, and subsequently examined using Bardin´s content analysis. Results: Eight family members of children with leukemia participated in the study. Two categories emerged: The proposal for the construction of education materials for home care and relevant themes to compose the educational materials. Conclusion: Considering the perception of family members in the construction of educational material can make an assertive contribution in choosing content, and how to approach them, and be a more effective strategy in this continuous process of health education for relatives of children with leukemias. |
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How an Educational Material Would Be Like? Perceptions of Relatives of Children with Leukemia¿Cómo Debe Ser un Material Educativo? Percepciones de los Familiares de Niños con LeucemiaComo Deve Ser um Material Educativo? Percepção dos Familiares de Crianças com Leucemiamateriais educativos e de divulgaçãocriançaleucemiaenfermagem pediátricaeducational and promotional materialschildleukemiapediatric nursingmateriales educativos y de divulgacíonniñoleucemiaenfermería pediátricaIntroduction: The child with leukemia, when at home, requires special care. In this context, family members are faced with care-related demands that need to be learned due to their child´s clinical condition. This article is part of the research “The learning demands of family members of children with leukemia for home care”. Objective: To know the perceptions of family members of children with leukemia about the proposal to build education materials for home care and describe the themes that family members considered significant in the composition of these materials. Method: Participatory study developed in a children’s hematology ward in Rio de Janeiro. Paulo Freire´s problematizing education was the theory utilized to support the study. Data were collected through three discussion circles, and subsequently examined using Bardin´s content analysis. Results: Eight family members of children with leukemia participated in the study. Two categories emerged: The proposal for the construction of education materials for home care and relevant themes to compose the educational materials. Conclusion: Considering the perception of family members in the construction of educational material can make an assertive contribution in choosing content, and how to approach them, and be a more effective strategy in this continuous process of health education for relatives of children with leukemias.Introducción: El niño con leucemia, cuando está en casa, requiere cuidados especiales. En este contexto, los familiares se enfrentan a demandas de cuidado que necesitan ser aprendidas debido a la condición clínica de su hijo. Este artículo forma parte de la investigación “Las demandas de aprendizaje de los familiares de niños con leucemia para el cuidado domiciliario”. Objetivo: Conocer las percepciones de los familiares de niños con leucemia sobre la propuesta de elaboración de materiales educativos para el cuidado domiciliario y describir los temas que los familiares consideraron significativos en la composición de materiales educativos. Método: Estudio participativo desarrollado en una sala de hematología infantil de Río de Janeiro, teniendo como base la teoría de la educación problematizadora de Paulo Freire. Los datos fueron recolectados a través de tres círculos de discusión y, posteriormente, analizados mediante el análisis de contenido de Bardin. Resultados: Participaron del estudio ocho familiares de niños con leucemia. Emergieron dos categorías: La propuesta de construcción de materiales educativos para la atencíon domiciliaria y temas relevantes para componer los materiales educativos. Conclusión: Considerar la percepción de los familiares en la construcción del material educativo puede contribuir asertivamente en la elección de los contenidos, en la forma de abordarlos, y ser una estrategia más efectiva en este proceso continuo de educación en salud para los familiares de niños con leucemia.Introdução: A criança com leucemia, quando no domicílio, requer cuidados especiais. Nesse contexto, os familiares deparam-se com demandas de cuidados que precisam ser aprendidas em função da condição clínica de sua criança. Este artigo é um recorte da pesquisa “As demandas de aprendizagem dos familiares de crianças com leucemia para o cuidado domiciliar”. Objetivo: Conhecer as percepções de familiares de crianças com leucemia sobre a proposta de construção de materiais educativos para o cuidado domiciliar e descrever os temas que os familiares julgarem significativos na composição desses materiais. Método: Estudo participativo desenvolvido em uma enfermaria de hematologia infantil no Rio de Janeiro. A teoria utilizada para fundamentar o estudo foi a educação problematizadora de Paulo Freire. Os dados foram coletados por meio de três círculos de discussão e, posteriormente, examinados a partir da análise de conteúdo de Bardin. Resultados: Oito familiares de crianças com leucemia participaram do estudo. Duas categorias emergiram: “a proposta de construção de materiais educativos para o cuidado domiciliar” e “temas relevantes para compor os materiais educativos”. Conclusão: Considerar a percepção dos familiares na construção de material educativo pode contribuir de maneira assertiva na escolha de conteúdos e na forma de abordá-los, e ser uma estratégia mais eficaz nesse processo contínuo da educação em saúde dos familiares das crianças com leucemias.INCA2023-09-20info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionArtigos, Avaliado pelos paresapplication/pdfapplication/pdfapplication/pdftext/htmlhttps://rbc.inca.gov.br/index.php/revista/article/view/402610.32635/2176-9745.RBC.2023v69n3.4026Revista Brasileira de Cancerologia; Vol. 69 No. 3 (2023): July/Aug./Sept.; e-234026Revista Brasileira de Cancerologia; Vol. 69 Núm. 3 (2023): jul./ago./sept.; e-234026Revista Brasileira de Cancerologia; v. 69 n. 3 (2023): jul./ago./set.; e-2340262176-9745reponame:Revista Brasileira de Cancerologia (Online)instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)instacron:INCAporengspahttps://rbc.inca.gov.br/index.php/revista/article/view/4026/3185https://rbc.inca.gov.br/index.php/revista/article/view/4026/3328https://rbc.inca.gov.br/index.php/revista/article/view/4026/3257https://rbc.inca.gov.br/index.php/revista/article/view/4026/3202Copyright (c) 2023 Revista Brasileira de Cancerologiahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessSoeiro, GabriellaPacheco, Sandra Teixeira de AraújoCosta, Cicero Ivan AlcantaraNunes, Michelle Darezzo Rodrigues Silva, Liliane Faria da Araújo, Bárbara Bertolossi Marta2024-01-10T15:35:24Zoai:rbc.inca.gov.br:article/4026Revistahttps://rbc.inca.gov.br/index.php/revistaPUBhttps://rbc.inca.gov.br/index.php/revista/oairbc@inca.gov.br0034-71162176-9745opendoar:2024-01-10T15:35:24Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)false |
dc.title.none.fl_str_mv |
How an Educational Material Would Be Like? Perceptions of Relatives of Children with Leukemia ¿Cómo Debe Ser un Material Educativo? Percepciones de los Familiares de Niños con Leucemia Como Deve Ser um Material Educativo? Percepção dos Familiares de Crianças com Leucemia |
title |
How an Educational Material Would Be Like? Perceptions of Relatives of Children with Leukemia |
spellingShingle |
How an Educational Material Would Be Like? Perceptions of Relatives of Children with Leukemia Soeiro, Gabriella materiais educativos e de divulgação criança leucemia enfermagem pediátrica educational and promotional materials child leukemia pediatric nursing materiales educativos y de divulgacíon niño leucemia enfermería pediátrica |
title_short |
How an Educational Material Would Be Like? Perceptions of Relatives of Children with Leukemia |
title_full |
How an Educational Material Would Be Like? Perceptions of Relatives of Children with Leukemia |
title_fullStr |
How an Educational Material Would Be Like? Perceptions of Relatives of Children with Leukemia |
title_full_unstemmed |
How an Educational Material Would Be Like? Perceptions of Relatives of Children with Leukemia |
title_sort |
How an Educational Material Would Be Like? Perceptions of Relatives of Children with Leukemia |
author |
Soeiro, Gabriella |
author_facet |
Soeiro, Gabriella Pacheco, Sandra Teixeira de Araújo Costa, Cicero Ivan Alcantara Nunes, Michelle Darezzo Rodrigues Silva, Liliane Faria da Araújo, Bárbara Bertolossi Marta |
author_role |
author |
author2 |
Pacheco, Sandra Teixeira de Araújo Costa, Cicero Ivan Alcantara Nunes, Michelle Darezzo Rodrigues Silva, Liliane Faria da Araújo, Bárbara Bertolossi Marta |
author2_role |
author author author author author |
dc.contributor.author.fl_str_mv |
Soeiro, Gabriella Pacheco, Sandra Teixeira de Araújo Costa, Cicero Ivan Alcantara Nunes, Michelle Darezzo Rodrigues Silva, Liliane Faria da Araújo, Bárbara Bertolossi Marta |
dc.subject.por.fl_str_mv |
materiais educativos e de divulgação criança leucemia enfermagem pediátrica educational and promotional materials child leukemia pediatric nursing materiales educativos y de divulgacíon niño leucemia enfermería pediátrica |
topic |
materiais educativos e de divulgação criança leucemia enfermagem pediátrica educational and promotional materials child leukemia pediatric nursing materiales educativos y de divulgacíon niño leucemia enfermería pediátrica |
description |
Introduction: The child with leukemia, when at home, requires special care. In this context, family members are faced with care-related demands that need to be learned due to their child´s clinical condition. This article is part of the research “The learning demands of family members of children with leukemia for home care”. Objective: To know the perceptions of family members of children with leukemia about the proposal to build education materials for home care and describe the themes that family members considered significant in the composition of these materials. Method: Participatory study developed in a children’s hematology ward in Rio de Janeiro. Paulo Freire´s problematizing education was the theory utilized to support the study. Data were collected through three discussion circles, and subsequently examined using Bardin´s content analysis. Results: Eight family members of children with leukemia participated in the study. Two categories emerged: The proposal for the construction of education materials for home care and relevant themes to compose the educational materials. Conclusion: Considering the perception of family members in the construction of educational material can make an assertive contribution in choosing content, and how to approach them, and be a more effective strategy in this continuous process of health education for relatives of children with leukemias. |
publishDate |
2023 |
dc.date.none.fl_str_mv |
2023-09-20 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Artigos, Avaliado pelos pares |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://rbc.inca.gov.br/index.php/revista/article/view/4026 10.32635/2176-9745.RBC.2023v69n3.4026 |
url |
https://rbc.inca.gov.br/index.php/revista/article/view/4026 |
identifier_str_mv |
10.32635/2176-9745.RBC.2023v69n3.4026 |
dc.language.iso.fl_str_mv |
por eng spa |
language |
por eng spa |
dc.relation.none.fl_str_mv |
https://rbc.inca.gov.br/index.php/revista/article/view/4026/3185 https://rbc.inca.gov.br/index.php/revista/article/view/4026/3328 https://rbc.inca.gov.br/index.php/revista/article/view/4026/3257 https://rbc.inca.gov.br/index.php/revista/article/view/4026/3202 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2023 Revista Brasileira de Cancerologia https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2023 Revista Brasileira de Cancerologia https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf application/pdf application/pdf text/html |
dc.publisher.none.fl_str_mv |
INCA |
publisher.none.fl_str_mv |
INCA |
dc.source.none.fl_str_mv |
Revista Brasileira de Cancerologia; Vol. 69 No. 3 (2023): July/Aug./Sept.; e-234026 Revista Brasileira de Cancerologia; Vol. 69 Núm. 3 (2023): jul./ago./sept.; e-234026 Revista Brasileira de Cancerologia; v. 69 n. 3 (2023): jul./ago./set.; e-234026 2176-9745 reponame:Revista Brasileira de Cancerologia (Online) instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) instacron:INCA |
instname_str |
Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) |
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INCA |
institution |
INCA |
reponame_str |
Revista Brasileira de Cancerologia (Online) |
collection |
Revista Brasileira de Cancerologia (Online) |
repository.name.fl_str_mv |
Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) |
repository.mail.fl_str_mv |
rbc@inca.gov.br |
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