Perception of the Adolescent in face of its Condition of Oncological Sickening

Detalhes bibliográficos
Autor(a) principal: Costa, Vânia Chagas da
Data de Publicação: 2021
Outros Autores: Melo, Nathália Rodrigues Martins de, Nascimento, Monique Maria de Lima, Leão, Deuzany Bezerra de Melo, Nascimento, Carlos Alberto Domingues do, Bushatsky, Magaly
Tipo de documento: Artigo
Idioma: por
eng
Título da fonte: Revista Brasileira de Cancerologia (Online)
Texto Completo: https://rbc.inca.gov.br/index.php/revista/article/view/1672
Resumo: Introduction: Cancer illness brings a tiresome routine due to aggressive therapies, and changes occur in the adolescent’s life. Objective: Understand the perception of the adolescent in face of its condition of oncological sickening. Method: Exploratory, descriptive, and qualitative research, through the Collective Subject Discourse technique, conducted with 13 adolescents, from June to August 2019, at the Specialized Center for Pediatric Oncology of a university hospital. The individual interviews were recorded based on the following questions: What is it like to be sick to you? What do you think about your future? How do you relate to your family members and the health team? Results: Eight central ideas were identified, among them: being sick is bad because it limits normal life routines; the treatment is painful and changes my body image; being sick has a good side; be healed and resume plans for my life; the hospital and the team are welcoming; proper welcome and empathy are lacking; humanized care; family support. Conclusion: In the adolescent’s perception, illness goes beyond the physical health condition, interferes, and limits theirs and their family quality of life, and therapeutic listening is essential for humanized care.
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spelling Perception of the Adolescent in face of its Condition of Oncological SickeningPercepción de los Adolescentes ante su Condición de Enfermedad OncológicaPercepção do Adolescente frente à sua Condição de Adoecimento OncológicoAdolescenteNeoplasiasEnfermagem OncológicaPesquisa QualitativaSaúde do Adolescente InstitucionalizadoAdolescentNeoplasmsOncology NursingQualitative ResearchHealth of Institutionalized AdolescentsAdolescenteNeoplasiasEnfermería OncológicaInvestigación CualitativaSalud del Adolescente InstitucionalizadoIntroduction: Cancer illness brings a tiresome routine due to aggressive therapies, and changes occur in the adolescent’s life. Objective: Understand the perception of the adolescent in face of its condition of oncological sickening. Method: Exploratory, descriptive, and qualitative research, through the Collective Subject Discourse technique, conducted with 13 adolescents, from June to August 2019, at the Specialized Center for Pediatric Oncology of a university hospital. The individual interviews were recorded based on the following questions: What is it like to be sick to you? What do you think about your future? How do you relate to your family members and the health team? Results: Eight central ideas were identified, among them: being sick is bad because it limits normal life routines; the treatment is painful and changes my body image; being sick has a good side; be healed and resume plans for my life; the hospital and the team are welcoming; proper welcome and empathy are lacking; humanized care; family support. Conclusion: In the adolescent’s perception, illness goes beyond the physical health condition, interferes, and limits theirs and their family quality of life, and therapeutic listening is essential for humanized care.Introducción: La enfermedad del cancer trae una rutina agotadora debido a terapias agresivas, y se producen cambios en la vida del adolescente. Objetivo: Entender la percepcion de lo adolescente ante su condicion de enfermedad oncologica. Método: Investigacion exploratoria, descriptiva y cualitativa, a traves de la tecnica de Discurso de Sujeto Colectivo, realizada con 13 adolescentes, de junio a agosto de 2019, en el Centro Especializado de Oncologia Pediatrica de un hospital universitario. Las entrevistas individuales fueron grabadas basandose en las siguientes preguntas: .Como es estar enfermo para usted? .Que opinas de tu futuro? .Como se relaciona con los miembros de su familia y el equipo de salud? Resultados: Se identificaron ocho ideas centrales, entre ellas: estar enfermo es malo porque limita las rutinas normales de vida; el tratamiento es doloroso y cambia mi imagen corporal; estar enfermo tiene un lado bueno; ser sanado y reanudar los planes para mi vida; el hospital y el equipo de salud son acogedores; carecer de empatia y bienvenida adecuada; humanizacion en el cuidado; y apoyo familiar. Conclusión: En la percepcion del adolescente, la enfermedad va mas alla de la condicion de salud fisica, interfiere y limita su calidad de vida y familiares, y la escucha terapeutica es esencial para la atencion humanizada.Introdução: O adoecimento por câncer traz uma rotina cansativa por conta das terapêuticas agressivas, e ocorrem mudanças na vida do adolescente. Objetivo: Compreender a percepção do adolescente frente a sua condição de adoecimento oncológico. Método: Pesquisa exploratória, descritiva, qualitativa, por meio da técnica do discurso do sujeito coletivo, realizada com 13 adolescentes, no período de junho a agosto de 2019, no Centro Especializado em Oncologia Pediátrica de um hospital universitário. As entrevistas individuais foram gravadas baseadas nos seguintes questionamentos: Para você, como e estar doente? O que você pensa sobre seu futuro? Como você se relaciona com seus familiares e com a equipe de saúde? Resultados: Foram identificadas oito ideias centrais, entre elas: estar doente e ruim porque limita rotinas da vida normal; o tratamento e doloroso e altera minha imagem corporal; estar doente tem um lado bom; ficar curado e retomar planos para minha vida; o hospital e a equipe de saúde são acolhedores; falta empatia e acolhimento adequado; humanização na assistência; e apoio familiar. Conclusão: Na percepção do adolescente, o adoecimento vai além da condição de saúde física, interfere e limita sua qualidade de vida e dos familiares, e a escuta terapêutica é essencial para uma assistência humanizada.INCA2021-12-08info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionArtigos, Avaliado pelos paresapplication/pdfapplication/pdfhttps://rbc.inca.gov.br/index.php/revista/article/view/167210.32635/2176-9745.RBC.2021v67n4.1672Revista Brasileira de Cancerologia; Vol. 67 No. 4 (2021): Oct./Nov./Dec.; e-211672Revista Brasileira de Cancerologia; Vol. 67 Núm. 4 (2021): oct./nov./dic.; e-211672Revista Brasileira de Cancerologia; v. 67 n. 4 (2021): out./nov./dez.; e-2116722176-9745reponame:Revista Brasileira de Cancerologia (Online)instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)instacron:INCAporenghttps://rbc.inca.gov.br/index.php/revista/article/view/1672/1548https://rbc.inca.gov.br/index.php/revista/article/view/1672/1573Copyright (c) 2021 Revista Brasileira de Cancerologiahttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessCosta, Vânia Chagas da Melo, Nathália Rodrigues Martins de Nascimento, Monique Maria de Lima Leão, Deuzany Bezerra de Melo Nascimento, Carlos Alberto Domingues do Bushatsky, Magaly2022-02-01T17:57:40Zoai:rbc.inca.gov.br:article/1672Revistahttps://rbc.inca.gov.br/index.php/revistaPUBhttps://rbc.inca.gov.br/index.php/revista/oairbc@inca.gov.br0034-71162176-9745opendoar:2022-02-01T17:57:40Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)false
dc.title.none.fl_str_mv Perception of the Adolescent in face of its Condition of Oncological Sickening
Percepción de los Adolescentes ante su Condición de Enfermedad Oncológica
Percepção do Adolescente frente à sua Condição de Adoecimento Oncológico
title Perception of the Adolescent in face of its Condition of Oncological Sickening
spellingShingle Perception of the Adolescent in face of its Condition of Oncological Sickening
Costa, Vânia Chagas da
Adolescente
Neoplasias
Enfermagem Oncológica
Pesquisa Qualitativa
Saúde do Adolescente Institucionalizado
Adolescent
Neoplasms
Oncology Nursing
Qualitative Research
Health of Institutionalized Adolescents
Adolescente
Neoplasias
Enfermería Oncológica
Investigación Cualitativa
Salud del Adolescente Institucionalizado
title_short Perception of the Adolescent in face of its Condition of Oncological Sickening
title_full Perception of the Adolescent in face of its Condition of Oncological Sickening
title_fullStr Perception of the Adolescent in face of its Condition of Oncological Sickening
title_full_unstemmed Perception of the Adolescent in face of its Condition of Oncological Sickening
title_sort Perception of the Adolescent in face of its Condition of Oncological Sickening
author Costa, Vânia Chagas da
author_facet Costa, Vânia Chagas da
Melo, Nathália Rodrigues Martins de
Nascimento, Monique Maria de Lima
Leão, Deuzany Bezerra de Melo
Nascimento, Carlos Alberto Domingues do
Bushatsky, Magaly
author_role author
author2 Melo, Nathália Rodrigues Martins de
Nascimento, Monique Maria de Lima
Leão, Deuzany Bezerra de Melo
Nascimento, Carlos Alberto Domingues do
Bushatsky, Magaly
author2_role author
author
author
author
author
dc.contributor.author.fl_str_mv Costa, Vânia Chagas da
Melo, Nathália Rodrigues Martins de
Nascimento, Monique Maria de Lima
Leão, Deuzany Bezerra de Melo
Nascimento, Carlos Alberto Domingues do
Bushatsky, Magaly
dc.subject.por.fl_str_mv Adolescente
Neoplasias
Enfermagem Oncológica
Pesquisa Qualitativa
Saúde do Adolescente Institucionalizado
Adolescent
Neoplasms
Oncology Nursing
Qualitative Research
Health of Institutionalized Adolescents
Adolescente
Neoplasias
Enfermería Oncológica
Investigación Cualitativa
Salud del Adolescente Institucionalizado
topic Adolescente
Neoplasias
Enfermagem Oncológica
Pesquisa Qualitativa
Saúde do Adolescente Institucionalizado
Adolescent
Neoplasms
Oncology Nursing
Qualitative Research
Health of Institutionalized Adolescents
Adolescente
Neoplasias
Enfermería Oncológica
Investigación Cualitativa
Salud del Adolescente Institucionalizado
description Introduction: Cancer illness brings a tiresome routine due to aggressive therapies, and changes occur in the adolescent’s life. Objective: Understand the perception of the adolescent in face of its condition of oncological sickening. Method: Exploratory, descriptive, and qualitative research, through the Collective Subject Discourse technique, conducted with 13 adolescents, from June to August 2019, at the Specialized Center for Pediatric Oncology of a university hospital. The individual interviews were recorded based on the following questions: What is it like to be sick to you? What do you think about your future? How do you relate to your family members and the health team? Results: Eight central ideas were identified, among them: being sick is bad because it limits normal life routines; the treatment is painful and changes my body image; being sick has a good side; be healed and resume plans for my life; the hospital and the team are welcoming; proper welcome and empathy are lacking; humanized care; family support. Conclusion: In the adolescent’s perception, illness goes beyond the physical health condition, interferes, and limits theirs and their family quality of life, and therapeutic listening is essential for humanized care.
publishDate 2021
dc.date.none.fl_str_mv 2021-12-08
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
Artigos, Avaliado pelos pares
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://rbc.inca.gov.br/index.php/revista/article/view/1672
10.32635/2176-9745.RBC.2021v67n4.1672
url https://rbc.inca.gov.br/index.php/revista/article/view/1672
identifier_str_mv 10.32635/2176-9745.RBC.2021v67n4.1672
dc.language.iso.fl_str_mv por
eng
language por
eng
dc.relation.none.fl_str_mv https://rbc.inca.gov.br/index.php/revista/article/view/1672/1548
https://rbc.inca.gov.br/index.php/revista/article/view/1672/1573
dc.rights.driver.fl_str_mv Copyright (c) 2021 Revista Brasileira de Cancerologia
https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2021 Revista Brasileira de Cancerologia
https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv INCA
publisher.none.fl_str_mv INCA
dc.source.none.fl_str_mv Revista Brasileira de Cancerologia; Vol. 67 No. 4 (2021): Oct./Nov./Dec.; e-211672
Revista Brasileira de Cancerologia; Vol. 67 Núm. 4 (2021): oct./nov./dic.; e-211672
Revista Brasileira de Cancerologia; v. 67 n. 4 (2021): out./nov./dez.; e-211672
2176-9745
reponame:Revista Brasileira de Cancerologia (Online)
instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
instacron:INCA
instname_str Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
instacron_str INCA
institution INCA
reponame_str Revista Brasileira de Cancerologia (Online)
collection Revista Brasileira de Cancerologia (Online)
repository.name.fl_str_mv Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
repository.mail.fl_str_mv rbc@inca.gov.br
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