Clinical, therapeutic and medication aspects of spinal muscular atrophy (SMA): an integrative literature review
Autor(a) principal: | |
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Data de Publicação: | 2022 |
Outros Autores: | , , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Revista JRG de Estudos Acadêmicos |
Texto Completo: | http://revistajrg.com/index.php/jrg/article/view/402 |
Resumo: | To highlight the care plans for patients with SMA, demonstrating statistical data about SMA, informing about possible treatments for SMA and discussing the systematization and care provided to patients with SMA. This is an integrative literature review, with articles selected through electronic data, such as Scientific Electronic Library Online (Scielo), PubMed and Virtual Health Library (BVS), and the use of DECS/MeSH in search of the following descriptors: “nursing”; “spinal muscular atrophy”. 14 scientific articles were selected, in which they debated on subjects that were organized and divided by categories, in which those with knowledge about the proposed theme were considered the most important, in order to obtain a set of propositions and conclusions from the authors selected. SMA is a rare disease, in which there is a genetic diagnostic study that should be performed in its treatment. The diversification of complications that it can determine requires a broader and more coordinated approach to the patient. Medical follow-up and palliative care, together, are important procedures throughout the life of patients with the disease. With this, a plan must be developed that contains teamwork, with multidisciplinary health professionals, in which each professional develops complementary actions, favoring the treatment of patients. |
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Clinical, therapeutic and medication aspects of spinal muscular atrophy (SMA): an integrative literature reviewAspectos clínicos, terapêuticos e medicamentos da atrofia muscular espinhal (AME): uma revisão integrativa da literaturaAtrofia Muscular Espinhal. Cuidados de Enfermagem. Cuidados de Enfermagem Doenças Degenerativas. Tratamento Atrofia Muscular Espinhal.Spinal Muscular Atrophy. Nursing Care. SMA Nursing Care Degeneratie Diseases. Treatment Spinal Muscular Atrophy.To highlight the care plans for patients with SMA, demonstrating statistical data about SMA, informing about possible treatments for SMA and discussing the systematization and care provided to patients with SMA. This is an integrative literature review, with articles selected through electronic data, such as Scientific Electronic Library Online (Scielo), PubMed and Virtual Health Library (BVS), and the use of DECS/MeSH in search of the following descriptors: “nursing”; “spinal muscular atrophy”. 14 scientific articles were selected, in which they debated on subjects that were organized and divided by categories, in which those with knowledge about the proposed theme were considered the most important, in order to obtain a set of propositions and conclusions from the authors selected. SMA is a rare disease, in which there is a genetic diagnostic study that should be performed in its treatment. The diversification of complications that it can determine requires a broader and more coordinated approach to the patient. Medical follow-up and palliative care, together, are important procedures throughout the life of patients with the disease. With this, a plan must be developed that contains teamwork, with multidisciplinary health professionals, in which each professional develops complementary actions, favoring the treatment of patients.Evidenciar os planos de cuidado do paciente com AME demonstrando uma revisão de literatura sobre a AME, informando sobre os tratamentos possíveis para a AME e discutindo a sistematização e assistência prestada em pacientes com AME. Trata-se de uma revisão integrativa da literatura, sendo selecionados artigos através de dados eletrônicos, como Scientific Eletronic Library Online (Scielo), PubMed e Biblioteca Virtual em Saúde (BVS), e a utilização do DECS/MeSH em busca dos seguintes descritores: “enfermagem”; “atrofia muscular espinhal”. Foram selecionados 14 artigos científicos, em que debateram sobre assuntos que foram organizados e divididos por categorias, nos quais foram tidos como mais importantes aqueles com o conhecimento acerca do tema proposto, com o intuito de obter um conjunto de proposições e conclusões dos autores escolhidos. A AME é uma doença rara, no qual existe estudo diagnóstico genético que deve ser efetuado no tratamento da mesma. A diversificação de complicações que pode determinar, exige uma abordagem mais ampla e coordenada do doente. O acompanhamento médico e os cuidados paliativos, em conjunto, são procedimentos importantes no decorrer de toda a vida dos pacientes com a doença. Com isso, deve ser desenvolvido um plano que contenha um trabalho em equipe, com profissionais multidisciplinares de saúde, em que cada profissional desenvolva ações complementares, favorecendo o tratamento dos pacientes.Editora JRG2022-10-12info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionArtigo avaliado pelos Paresapplication/pdfhttp://revistajrg.com/index.php/jrg/article/view/40210.5281/zenodo.7190898ark:/57118/JRG.v5i11.402JRG Journal of Academic Studies; Vol. 5 No. 11 (2022): Revista JRG de Estudos Acadêmicos; 134-146JRG Journal of Academic Studies ; Vol. 5 Núm. 11 (2022): Revista JRG de Estudos Acadêmicos; 134-146JRG Journal of Academic Studies; V. 5 N. 11 (2022): Revista JRG de Estudos Acadêmicos; 134-146Revista JRG de Estudos Acadêmicos ; v. 5 n. 11 (2022): Revista JRG de Estudos Acadêmicos; 134-1462595-1661reponame:Revista JRG de Estudos Acadêmicosinstname:Editora JRGinstacron:JRGporhttp://revistajrg.com/index.php/jrg/article/view/402/479https://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessRodrigues, Vídia Karine SouzaSantos, Thalice Rodrigues doSilva, Rodrigo José de OliveiraRodrigues, Carolina do NascimentoCaldas, Guilherme SantosPassos, Marco Aurélio Ninômia2022-10-12T17:09:07Zoai:ojs2.revistajrg.com:article/402Revistahttp://revistajrg.com/index.php/jrgPRIhttp://revistajrg.com/index.php/jrg/oaiprofessorjonas@gmail.com||2595-16612595-1661opendoar:2022-10-12T17:09:07Revista JRG de Estudos Acadêmicos - Editora JRGfalse |
dc.title.none.fl_str_mv |
Clinical, therapeutic and medication aspects of spinal muscular atrophy (SMA): an integrative literature review Aspectos clínicos, terapêuticos e medicamentos da atrofia muscular espinhal (AME): uma revisão integrativa da literatura |
title |
Clinical, therapeutic and medication aspects of spinal muscular atrophy (SMA): an integrative literature review |
spellingShingle |
Clinical, therapeutic and medication aspects of spinal muscular atrophy (SMA): an integrative literature review Rodrigues, Vídia Karine Souza Atrofia Muscular Espinhal. Cuidados de Enfermagem. Cuidados de Enfermagem Doenças Degenerativas. Tratamento Atrofia Muscular Espinhal. Spinal Muscular Atrophy. Nursing Care. SMA Nursing Care Degeneratie Diseases. Treatment Spinal Muscular Atrophy. |
title_short |
Clinical, therapeutic and medication aspects of spinal muscular atrophy (SMA): an integrative literature review |
title_full |
Clinical, therapeutic and medication aspects of spinal muscular atrophy (SMA): an integrative literature review |
title_fullStr |
Clinical, therapeutic and medication aspects of spinal muscular atrophy (SMA): an integrative literature review |
title_full_unstemmed |
Clinical, therapeutic and medication aspects of spinal muscular atrophy (SMA): an integrative literature review |
title_sort |
Clinical, therapeutic and medication aspects of spinal muscular atrophy (SMA): an integrative literature review |
author |
Rodrigues, Vídia Karine Souza |
author_facet |
Rodrigues, Vídia Karine Souza Santos, Thalice Rodrigues do Silva, Rodrigo José de Oliveira Rodrigues, Carolina do Nascimento Caldas, Guilherme Santos Passos, Marco Aurélio Ninômia |
author_role |
author |
author2 |
Santos, Thalice Rodrigues do Silva, Rodrigo José de Oliveira Rodrigues, Carolina do Nascimento Caldas, Guilherme Santos Passos, Marco Aurélio Ninômia |
author2_role |
author author author author author |
dc.contributor.author.fl_str_mv |
Rodrigues, Vídia Karine Souza Santos, Thalice Rodrigues do Silva, Rodrigo José de Oliveira Rodrigues, Carolina do Nascimento Caldas, Guilherme Santos Passos, Marco Aurélio Ninômia |
dc.subject.por.fl_str_mv |
Atrofia Muscular Espinhal. Cuidados de Enfermagem. Cuidados de Enfermagem Doenças Degenerativas. Tratamento Atrofia Muscular Espinhal. Spinal Muscular Atrophy. Nursing Care. SMA Nursing Care Degeneratie Diseases. Treatment Spinal Muscular Atrophy. |
topic |
Atrofia Muscular Espinhal. Cuidados de Enfermagem. Cuidados de Enfermagem Doenças Degenerativas. Tratamento Atrofia Muscular Espinhal. Spinal Muscular Atrophy. Nursing Care. SMA Nursing Care Degeneratie Diseases. Treatment Spinal Muscular Atrophy. |
description |
To highlight the care plans for patients with SMA, demonstrating statistical data about SMA, informing about possible treatments for SMA and discussing the systematization and care provided to patients with SMA. This is an integrative literature review, with articles selected through electronic data, such as Scientific Electronic Library Online (Scielo), PubMed and Virtual Health Library (BVS), and the use of DECS/MeSH in search of the following descriptors: “nursing”; “spinal muscular atrophy”. 14 scientific articles were selected, in which they debated on subjects that were organized and divided by categories, in which those with knowledge about the proposed theme were considered the most important, in order to obtain a set of propositions and conclusions from the authors selected. SMA is a rare disease, in which there is a genetic diagnostic study that should be performed in its treatment. The diversification of complications that it can determine requires a broader and more coordinated approach to the patient. Medical follow-up and palliative care, together, are important procedures throughout the life of patients with the disease. With this, a plan must be developed that contains teamwork, with multidisciplinary health professionals, in which each professional develops complementary actions, favoring the treatment of patients. |
publishDate |
2022 |
dc.date.none.fl_str_mv |
2022-10-12 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Artigo avaliado pelos Pares |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://revistajrg.com/index.php/jrg/article/view/402 10.5281/zenodo.7190898 ark:/57118/JRG.v5i11.402 |
url |
http://revistajrg.com/index.php/jrg/article/view/402 |
identifier_str_mv |
10.5281/zenodo.7190898 ark:/57118/JRG.v5i11.402 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
http://revistajrg.com/index.php/jrg/article/view/402/479 |
dc.rights.driver.fl_str_mv |
https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Editora JRG |
publisher.none.fl_str_mv |
Editora JRG |
dc.source.none.fl_str_mv |
JRG Journal of Academic Studies; Vol. 5 No. 11 (2022): Revista JRG de Estudos Acadêmicos; 134-146 JRG Journal of Academic Studies ; Vol. 5 Núm. 11 (2022): Revista JRG de Estudos Acadêmicos; 134-146 JRG Journal of Academic Studies; V. 5 N. 11 (2022): Revista JRG de Estudos Acadêmicos; 134-146 Revista JRG de Estudos Acadêmicos ; v. 5 n. 11 (2022): Revista JRG de Estudos Acadêmicos; 134-146 2595-1661 reponame:Revista JRG de Estudos Acadêmicos instname:Editora JRG instacron:JRG |
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Editora JRG |
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JRG |
institution |
JRG |
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Revista JRG de Estudos Acadêmicos |
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Revista JRG de Estudos Acadêmicos |
repository.name.fl_str_mv |
Revista JRG de Estudos Acadêmicos - Editora JRG |
repository.mail.fl_str_mv |
professorjonas@gmail.com|| |
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