Indicators of family resilience in families of children with Down syndrome

Detalhes bibliográficos
Autor(a) principal: ROOKE, Mayse Itagiba
Data de Publicação: 2023
Outros Autores: PEREIRA-SILVA, Nara Liana
Tipo de documento: Artigo
Idioma: por
Título da fonte: Estudos de Psicologia (Campinas)
Texto Completo: https://periodicos.puc-campinas.edu.br/estpsi/article/view/7802
Resumo: This study aims to characterize and analyze family resilience in families of children with Down syndrome. Five families consisting of father, mother, and children, one child with Down syndrome, participated in this research. The instruments used were: the Characterization of Family System Questionnaire, which was answered by the mother; the Coping Strategies Inventory, which was responded by both parents separately; and interviews conducted with parents and typically developing children. The families were visited three times. Results indicate that in the face of bad events mainly health problems related to Down syndrome, the families showed ability to make meaning or sense of adversity, and to organize themselves in a cooperative way with dialogue and closer ties. Family resilience was observed in all families investigated. The most frequently used coping strategy was positive reappraisal, while the less frequently used was escape-avoidance.
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spelling Indicators of family resilience in families of children with Down syndromeIndicativos de resiliência familiar em famílias de crianças com síndrome de DownCopingFamilyFamily resilienceDown syndromeCopingFamíliaResiliência familiarSíndrome de DownThis study aims to characterize and analyze family resilience in families of children with Down syndrome. Five families consisting of father, mother, and children, one child with Down syndrome, participated in this research. The instruments used were: the Characterization of Family System Questionnaire, which was answered by the mother; the Coping Strategies Inventory, which was responded by both parents separately; and interviews conducted with parents and typically developing children. The families were visited three times. Results indicate that in the face of bad events mainly health problems related to Down syndrome, the families showed ability to make meaning or sense of adversity, and to organize themselves in a cooperative way with dialogue and closer ties. Family resilience was observed in all families investigated. The most frequently used coping strategy was positive reappraisal, while the less frequently used was escape-avoidance.Este estudo objetiva caracterizar e analisar a resiliência familiar em famílias de crianças com síndrome de Down. Participaram cinco famílias compostas por pai, mãe e filhos, tendo um deles a síndrome. Os instrumentos utilizados foram o Questionário de Caracterização do Sistema Familiar, o qual foi respondido pela mãe; o Inventário de Estratégias de Coping, o qual ambos os genitores responderam separadamente; e entrevistas com genitores e filhos com desenvolvimento típico. As famílias foram visitadas em três momentos. Os resultados indicam que diante de eventos ruins, principalmente, dos problemas de saúde relacionados à síndrome de Down, as famílias apresentam capacidade de extrair sentido da adversidade, bem como de se organizar de forma cooperativa, com diálogo e estreitamento dos vínculos. Em todas as famílias foram identificados indicativos de resiliência familiar. A estratégia de coping mais utilizada é a reavaliação positiva, enquanto a menos utilizada é fuga-esquiva.Núcleo de Editoração - PUC-Campinas2023-03-15info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://periodicos.puc-campinas.edu.br/estpsi/article/view/7802Psychological Studies; Vol. 33 No. 1 (2016): Estudos de Psicologia (Campinas)Estudos de Psicologia; Vol. 33 Núm. 1 (2016): Estudos de Psicologia (Campinas)Estudos de Psicologia; v. 33 n. 1 (2016): Estudos de Psicologia (Campinas)1982-0275reponame:Estudos de Psicologia (Campinas)instname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)instacron:PUC_CAMPporhttps://periodicos.puc-campinas.edu.br/estpsi/article/view/7802/5330Copyright (c) 2023 Mayse Itagiba ROOKE, Nara Liana PEREIRA-SILVAhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessROOKE, Mayse ItagibaPEREIRA-SILVA, Nara Liana2023-03-15T14:17:25Zoai:ojs.periodicos.puc-campinas.edu.br:article/7802Revistahttps://seer.sis.puc-campinas.edu.br/seer/index.php/estudosPRIhttps://seer.sis.puc-campinas.edu.br/seer/index.php/estudos/oaisbi.ne_estpsi@puc-campinas.edu.br||estudosdepsicologia@puc-campinas.edu.br||psychologicalstudies@puc-campinas.edu.br1982-02750103-166Xopendoar:2023-03-15T14:17:25Estudos de Psicologia (Campinas) - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)false
dc.title.none.fl_str_mv Indicators of family resilience in families of children with Down syndrome
Indicativos de resiliência familiar em famílias de crianças com síndrome de Down
title Indicators of family resilience in families of children with Down syndrome
spellingShingle Indicators of family resilience in families of children with Down syndrome
ROOKE, Mayse Itagiba
Coping
Family
Family resilience
Down syndrome
Coping
Família
Resiliência familiar
Síndrome de Down
title_short Indicators of family resilience in families of children with Down syndrome
title_full Indicators of family resilience in families of children with Down syndrome
title_fullStr Indicators of family resilience in families of children with Down syndrome
title_full_unstemmed Indicators of family resilience in families of children with Down syndrome
title_sort Indicators of family resilience in families of children with Down syndrome
author ROOKE, Mayse Itagiba
author_facet ROOKE, Mayse Itagiba
PEREIRA-SILVA, Nara Liana
author_role author
author2 PEREIRA-SILVA, Nara Liana
author2_role author
dc.contributor.author.fl_str_mv ROOKE, Mayse Itagiba
PEREIRA-SILVA, Nara Liana
dc.subject.por.fl_str_mv Coping
Family
Family resilience
Down syndrome
Coping
Família
Resiliência familiar
Síndrome de Down
topic Coping
Family
Family resilience
Down syndrome
Coping
Família
Resiliência familiar
Síndrome de Down
description This study aims to characterize and analyze family resilience in families of children with Down syndrome. Five families consisting of father, mother, and children, one child with Down syndrome, participated in this research. The instruments used were: the Characterization of Family System Questionnaire, which was answered by the mother; the Coping Strategies Inventory, which was responded by both parents separately; and interviews conducted with parents and typically developing children. The families were visited three times. Results indicate that in the face of bad events mainly health problems related to Down syndrome, the families showed ability to make meaning or sense of adversity, and to organize themselves in a cooperative way with dialogue and closer ties. Family resilience was observed in all families investigated. The most frequently used coping strategy was positive reappraisal, while the less frequently used was escape-avoidance.
publishDate 2023
dc.date.none.fl_str_mv 2023-03-15
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://periodicos.puc-campinas.edu.br/estpsi/article/view/7802
url https://periodicos.puc-campinas.edu.br/estpsi/article/view/7802
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://periodicos.puc-campinas.edu.br/estpsi/article/view/7802/5330
dc.rights.driver.fl_str_mv Copyright (c) 2023 Mayse Itagiba ROOKE, Nara Liana PEREIRA-SILVA
https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2023 Mayse Itagiba ROOKE, Nara Liana PEREIRA-SILVA
https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Núcleo de Editoração - PUC-Campinas
publisher.none.fl_str_mv Núcleo de Editoração - PUC-Campinas
dc.source.none.fl_str_mv Psychological Studies; Vol. 33 No. 1 (2016): Estudos de Psicologia (Campinas)
Estudos de Psicologia; Vol. 33 Núm. 1 (2016): Estudos de Psicologia (Campinas)
Estudos de Psicologia; v. 33 n. 1 (2016): Estudos de Psicologia (Campinas)
1982-0275
reponame:Estudos de Psicologia (Campinas)
instname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)
instacron:PUC_CAMP
instname_str Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)
instacron_str PUC_CAMP
institution PUC_CAMP
reponame_str Estudos de Psicologia (Campinas)
collection Estudos de Psicologia (Campinas)
repository.name.fl_str_mv Estudos de Psicologia (Campinas) - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)
repository.mail.fl_str_mv sbi.ne_estpsi@puc-campinas.edu.br||estudosdepsicologia@puc-campinas.edu.br||psychologicalstudies@puc-campinas.edu.br
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