Indicators of family resilience in families of children with Down syndrome
Autor(a) principal: | |
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Data de Publicação: | 2023 |
Outros Autores: | |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Estudos de Psicologia (Campinas) |
Texto Completo: | https://periodicos.puc-campinas.edu.br/estpsi/article/view/7802 |
Resumo: | This study aims to characterize and analyze family resilience in families of children with Down syndrome. Five families consisting of father, mother, and children, one child with Down syndrome, participated in this research. The instruments used were: the Characterization of Family System Questionnaire, which was answered by the mother; the Coping Strategies Inventory, which was responded by both parents separately; and interviews conducted with parents and typically developing children. The families were visited three times. Results indicate that in the face of bad events mainly health problems related to Down syndrome, the families showed ability to make meaning or sense of adversity, and to organize themselves in a cooperative way with dialogue and closer ties. Family resilience was observed in all families investigated. The most frequently used coping strategy was positive reappraisal, while the less frequently used was escape-avoidance. |
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Indicators of family resilience in families of children with Down syndromeIndicativos de resiliência familiar em famílias de crianças com síndrome de DownCopingFamilyFamily resilienceDown syndromeCopingFamíliaResiliência familiarSíndrome de DownThis study aims to characterize and analyze family resilience in families of children with Down syndrome. Five families consisting of father, mother, and children, one child with Down syndrome, participated in this research. The instruments used were: the Characterization of Family System Questionnaire, which was answered by the mother; the Coping Strategies Inventory, which was responded by both parents separately; and interviews conducted with parents and typically developing children. The families were visited three times. Results indicate that in the face of bad events mainly health problems related to Down syndrome, the families showed ability to make meaning or sense of adversity, and to organize themselves in a cooperative way with dialogue and closer ties. Family resilience was observed in all families investigated. The most frequently used coping strategy was positive reappraisal, while the less frequently used was escape-avoidance.Este estudo objetiva caracterizar e analisar a resiliência familiar em famílias de crianças com síndrome de Down. Participaram cinco famílias compostas por pai, mãe e filhos, tendo um deles a síndrome. Os instrumentos utilizados foram o Questionário de Caracterização do Sistema Familiar, o qual foi respondido pela mãe; o Inventário de Estratégias de Coping, o qual ambos os genitores responderam separadamente; e entrevistas com genitores e filhos com desenvolvimento típico. As famílias foram visitadas em três momentos. Os resultados indicam que diante de eventos ruins, principalmente, dos problemas de saúde relacionados à síndrome de Down, as famílias apresentam capacidade de extrair sentido da adversidade, bem como de se organizar de forma cooperativa, com diálogo e estreitamento dos vínculos. Em todas as famílias foram identificados indicativos de resiliência familiar. A estratégia de coping mais utilizada é a reavaliação positiva, enquanto a menos utilizada é fuga-esquiva.Núcleo de Editoração - PUC-Campinas2023-03-15info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://periodicos.puc-campinas.edu.br/estpsi/article/view/7802Psychological Studies; Vol. 33 No. 1 (2016): Estudos de Psicologia (Campinas)Estudos de Psicologia; Vol. 33 Núm. 1 (2016): Estudos de Psicologia (Campinas)Estudos de Psicologia; v. 33 n. 1 (2016): Estudos de Psicologia (Campinas)1982-0275reponame:Estudos de Psicologia (Campinas)instname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)instacron:PUC_CAMPporhttps://periodicos.puc-campinas.edu.br/estpsi/article/view/7802/5330Copyright (c) 2023 Mayse Itagiba ROOKE, Nara Liana PEREIRA-SILVAhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessROOKE, Mayse ItagibaPEREIRA-SILVA, Nara Liana2023-03-15T14:17:25Zoai:ojs.periodicos.puc-campinas.edu.br:article/7802Revistahttps://seer.sis.puc-campinas.edu.br/seer/index.php/estudosPRIhttps://seer.sis.puc-campinas.edu.br/seer/index.php/estudos/oaisbi.ne_estpsi@puc-campinas.edu.br||estudosdepsicologia@puc-campinas.edu.br||psychologicalstudies@puc-campinas.edu.br1982-02750103-166Xopendoar:2023-03-15T14:17:25Estudos de Psicologia (Campinas) - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)false |
dc.title.none.fl_str_mv |
Indicators of family resilience in families of children with Down syndrome Indicativos de resiliência familiar em famílias de crianças com síndrome de Down |
title |
Indicators of family resilience in families of children with Down syndrome |
spellingShingle |
Indicators of family resilience in families of children with Down syndrome ROOKE, Mayse Itagiba Coping Family Family resilience Down syndrome Coping Família Resiliência familiar Síndrome de Down |
title_short |
Indicators of family resilience in families of children with Down syndrome |
title_full |
Indicators of family resilience in families of children with Down syndrome |
title_fullStr |
Indicators of family resilience in families of children with Down syndrome |
title_full_unstemmed |
Indicators of family resilience in families of children with Down syndrome |
title_sort |
Indicators of family resilience in families of children with Down syndrome |
author |
ROOKE, Mayse Itagiba |
author_facet |
ROOKE, Mayse Itagiba PEREIRA-SILVA, Nara Liana |
author_role |
author |
author2 |
PEREIRA-SILVA, Nara Liana |
author2_role |
author |
dc.contributor.author.fl_str_mv |
ROOKE, Mayse Itagiba PEREIRA-SILVA, Nara Liana |
dc.subject.por.fl_str_mv |
Coping Family Family resilience Down syndrome Coping Família Resiliência familiar Síndrome de Down |
topic |
Coping Family Family resilience Down syndrome Coping Família Resiliência familiar Síndrome de Down |
description |
This study aims to characterize and analyze family resilience in families of children with Down syndrome. Five families consisting of father, mother, and children, one child with Down syndrome, participated in this research. The instruments used were: the Characterization of Family System Questionnaire, which was answered by the mother; the Coping Strategies Inventory, which was responded by both parents separately; and interviews conducted with parents and typically developing children. The families were visited three times. Results indicate that in the face of bad events mainly health problems related to Down syndrome, the families showed ability to make meaning or sense of adversity, and to organize themselves in a cooperative way with dialogue and closer ties. Family resilience was observed in all families investigated. The most frequently used coping strategy was positive reappraisal, while the less frequently used was escape-avoidance. |
publishDate |
2023 |
dc.date.none.fl_str_mv |
2023-03-15 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://periodicos.puc-campinas.edu.br/estpsi/article/view/7802 |
url |
https://periodicos.puc-campinas.edu.br/estpsi/article/view/7802 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://periodicos.puc-campinas.edu.br/estpsi/article/view/7802/5330 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2023 Mayse Itagiba ROOKE, Nara Liana PEREIRA-SILVA https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2023 Mayse Itagiba ROOKE, Nara Liana PEREIRA-SILVA https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Núcleo de Editoração - PUC-Campinas |
publisher.none.fl_str_mv |
Núcleo de Editoração - PUC-Campinas |
dc.source.none.fl_str_mv |
Psychological Studies; Vol. 33 No. 1 (2016): Estudos de Psicologia (Campinas) Estudos de Psicologia; Vol. 33 Núm. 1 (2016): Estudos de Psicologia (Campinas) Estudos de Psicologia; v. 33 n. 1 (2016): Estudos de Psicologia (Campinas) 1982-0275 reponame:Estudos de Psicologia (Campinas) instname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS) instacron:PUC_CAMP |
instname_str |
Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS) |
instacron_str |
PUC_CAMP |
institution |
PUC_CAMP |
reponame_str |
Estudos de Psicologia (Campinas) |
collection |
Estudos de Psicologia (Campinas) |
repository.name.fl_str_mv |
Estudos de Psicologia (Campinas) - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS) |
repository.mail.fl_str_mv |
sbi.ne_estpsi@puc-campinas.edu.br||estudosdepsicologia@puc-campinas.edu.br||psychologicalstudies@puc-campinas.edu.br |
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